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About bloodcoveredprincess

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    Norfolk Broads
  1. Thank you for the replies...... It isn't that he has trouble sleeping at night and that makes him tired. He sleeps day and night. On a normal day he sleeps about 19 hours, on a bad one 23. On a really good day he might be awake 8 or 9 hours, but those are very few and far between. Even when he is awake he is exhausted. He falls asleep mid sentence and while eating. He has only been into school about 10 times in the last year. For the last few weeks we have had a tutor come for 2 1/2 hours once a week. He can sleep though part of the session and has to go to bed as soon as the tutor leaves. Before that we have had no support with his education at all.
  2. Hi All My son 15 is newly diagnosed with Aspergers. He was under CAMHS when he was little 7/8. At that time I asked them if he had a form of autism, but was assured that he did not. The diagnosed ADHD - they wanted to give him ritalin, but I would not allow it as they had not tried anything else. He also had some other medical issues and his attendance at school was down to 63% because of these. The education authority did not offer any help so we took him out of school and home educated him for 6 years. At 14 he decided he wanted to go back to school. His other medical issues has settled down so he made the arrangements for him to go. He started in September 2010. He settled in really well and did great for the first term (although the school thought he had problems with socialising - he did not think he had any - his version of socialisation is somewhat different to theirs!). When he went back after Christmas 2010, he started with a vast range of physical symptoms. He has had the most terrible year. While trying to find out what is wrong with him they have discovered that he has aspergers. We are waiting for him to see the Chronic Fatigue Team (we think he has fybromialga or something similar). He has only been to school for a handful of days in over a year. I don't know how to help him. We are trying to deal with all the medical issues and help him to deal with the aspbergers as well (although I don't really see that as something to "fix" - it's part of who he is and he's great!). I wonder if when he went back to school he had some kind of sensory overload and the other symptoms are somehow related to his aspergers. I need all the advice I can get. I am so frustrated!!! When I think of all the years I could have been helping him to understand and cope with his aspergers and I was trying to help him with the wrong thing! Please help this desparate mother.
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