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butterflycake

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About butterflycake

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  1. No to be honest. My family is supportive but not my friends. I have one friend who ive known a long time who seems to have a hangup if i buy some thing, get a new hair do or do something new that she hasnt done. She rarely mentions my kids but never forgets their birthdays/xmas etc. She also said something insenitive and thoughtless to me 2 days ago which i am offended about. I dont know what to do about this friendshipas i used to think she was a good friend. Now im beginning to see how childish and selfish she is. i thought she would have been more supportive but it didnt turn out that way.
  2. Hi i was just wondering has anyone ever put in for a Community Care Grant for their child. I was told my son may be entitled to it but havent a clue what to write. As i dont know what things they help you with. Thanks.
  3. Some mornings i feel like not getting out of bed as from the moment i get up i cant get Autism out of my head and why did my son get it. Im so sick of seeing kids born the same time as him walking and talking and interacting and my son cant. I cant help feeling bitter. Does anyone else feel the same and how many years will it take me to be ok because at the minute, myself and family members both think im never going to be the same again.
  4. Hi this is a really good topic btw. My husband and i had a very hard time after our sons diagnosis, i am only coming to terms with the diagnosis now. I must have cried nearly every day for six months after the diagnosis it just hit me so hard. I have a really good friend and she rarelymentions it, i do feel she could give me more support but she is still a mate. Other friends only talk about it if i mention it first. Most of my relations dont mention it, probably as not to upset me or they dont understand im not really sure why. My mother is a tremendous support as is my husband, i would have had a breakdown if not for them. For some reason peop0le find it really hard to talk about autism.
  5. Thank you for all the welcomes Ive actually been a member since April but havent been posting really as ive been just trying to get on with it if you know what i mean!
  6. Hi thanks for the messages and virtual hugs Its just one of them days where you see kids the same age as your child chattering away and think he would have been in their class if he hadnt had autism. Dont get me wrong i love my son to bits , and tomorrow i`ll be fine again but sometimes its hard not to feel a bit down. Thats excellent news about Adam speaking, adamsmum.
  7. Just wondering, as i know this site is for all levels of autism and my son has low functioning autism and some days i just feel a wee bit down as i feel so helpless. Thats it really i just needed to put these words down.
  8. Thanks for the link brook. I didnt know there was a name for the way my son communicates with me by taking my hand or pushing me to where he wants, its called Motoric!
  9. My wee son whos 3 flaps his arms very excitedly when he sees subtitles and stands up close to the telly an trys to touch them. He has low functioning autism and is nonverbal.
  10. Thanks for the messages everyone. I dont know any kids like my son and i appretiate your experiences of how your children are doing.
  11. Hi Bullet , no you havent upset me dont be silly Ive just read back my post and it sounded a bit short, i apologise. im just wanting to find more out about autism from other peoples experiences because i dont know any other kids personally who have it apart from ds2 whos autistic and we also suspect ds1 has aspergers.
  12. Thanks for the message Lauren. A lot of this is new to me. I met my sons teacher a couple of weeks ago and she briefly explained Pecs and Teacch. So im hoping it helps him, as im feeling a bit useless at the minute because i dont know much. He has in the past said a couple of words and he says daddy at least once every day and the teacher said thats a good sign.
  13. He has no way of communicating at the minute. I know speech isnt the most important thing, i was only wanting to hear others experiences. They will be using pecs and teacch at the special school he starts in September.
  14. Im just wondering, my ds is 3 and nonverbal. He starts special school in a couple of months. And im wonering if and when he will ever be able to talk. Id appretiate any experiences anyone has of a nonverbal child who is older and has or has not learned to talk. Thanks.
  15. Im not alone then. I am used to it as he is 3 now. And i usually grab his favoutite blanket and wrap it around him. Although some times he wants to be on his own, but he soon lets me know!
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