Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team


  • Content count

  • Joined

  • Last visited

About Mannify

  • Rank
    Mt Blanc

Profile Information

  • Gender
  1. New member

    I over think and edit replies a lot, too. Sometimes it feels as though I'm in a kind of whirlwind of over-thinking and editing. I have friends online now, though, and I have found that I do it less. I'll probably always be prone to over thinking, but over time talking online has helped me gain some confidence. If you're talking to others who are on the spectrum, they very likely relate to being overly self-analytical when it comes to communicating with others, and I think knowing that helps, too. Welcome
  2. Hi - Newbie Here!

    Hi Emily
  3. AS crash

    Thanks everyone for your comments. I could relate to your experiences, Nesf, and it interests me that you no longer surpress your jumping around and stuff. Sometimes I feel that now I know why I do things I ought to be able to stop myself doing them; I know that's kind of irrational, but I nonetheless feel that way. Is that the general consensus - go with it rather than surpress? I was particularly touched by the sentiment at the end of your post, Sa Skimrande. I agree with you, too, that acceptance of my own difference is the ideal state, and certainly one towards which I will work. I feel I have some way to go, though. Smiley, I'm sorry you're going through such a hard time right now. It seems you're in a kind of vortex of needing to express yourself and then feeling bad for doing so. That's a tough one for you, but please don't worry about how we will react. The beauty of a forum is that no one is obliged to read your posts, so you're not a burden to anyone, but generally there will be some who will read and reply. Lyndalou, your post could have described me, and I thank you so much for sharing. I, too, spent hours playing on my own, and I used to talk to things rather than people. I talked to my hen, I talked to Bungle from Rainbow, I talked to my cat, who could be quite wild. I was never girly. One clear memory of when i was five was being asked in class to choose different shades of the same colour for colouring a doily-thing (always hated colouring, lol) and all the other girl chose pinks, so I got the greens all to myself. I became used to having opinions which were entirely different from my immediate demographic. I never had a crush on a boy for his looks; I didn't care about looks. I never personalised my room, save for a collection of the same soft drinks bottle. I was never, ever fashionable, and had no interest in being so. Like you, Lyndalou, I find no relief in the explanation, just bewilderment. I know I have to work through this, and I've been offered some good advice for doing so. But it won't be an overnight thing. Thanks all. It's a big deal that you have all taken the time to share your own thoughts and experiences.
  4. AS crash

    Your response means a lot, Lyndalou. I've just been telling someone that I really thought I'd assimilated it and that it hadn't really affected me, but it appears that I'd simply deferred it. I still feel awkward talking about myself like this, which I know is kind of irrational. Thanks for feeling my grief because, yes, it was definitely there. Thank you.
  5. AS crash

    I'm just so down, I'm just not thinking straight. As I said, if anyone else had posted as I have done, I would have thought positively of it, but I guess I'm finding it hard to think anything positive about myself at the moment. It wasn't an official diagnosis, but I can hardly think of anyone more qualified than her to assess whether or not I have AS, and she was very thorough with what she asked. My husband was there, and he said almost as much as I did.
  6. AS crash

    Thanks, Oakers. I feel embarrassed for having posted like this. I don't know why; when others do I admire their openness. What the ed psych said was more than just a comment. She spent hours with me, and then detailed all the areas in which I would satisfy diagnostic criteria, by which time I really wasn't listening. My husband was there and is absolutely convinced by all the evidence, which is something not to be taken lightly in his case. I really am struggling to assimilate the information, and it's a kind of belated reaction. I refused to dwell on it too much at the time. Yes, it does. Sometimes you manage to convince yourself that it doesn't, but it does. Thanks for replying, Oakers, and not thinking ill of me.
  7. AS crash

    I try to be positive, I really do; I try not to make big noises about stuff in life and just get on with everything. I'm feeling incorrigeably self-indulgent posting this, and I know I am, but I just feel so needful of expressing myself. In November a head diagnostician and end psych, who also has a PhD in autism and a sister with AS said, 'I have no hesitation in saying that you have Asperger's', although it wasn't an official diagnosis. Since then I have largely shelved that information because all sorts of other things have happened which have overridden its significance. Now, three months later, I feel that I'm having an 'AS crash' over that information. I just feel so overwhelmed and bereft over all the things that everyone else seems to just do naturally. If I'm honest, these include things like washing my hair enough and, yes, even washing enough. I'm a mother of three, and I found that in their early years it was easy to obsess about things like breastfeeding and giving them the best nutrition. Now they're older, I find it harder to simply relate to them and just listen to them. When they speak I do not react immediately because it takes me longer than most people just to tune in to the fact that they are speaking. My daughter is is not on the spectrum and often wants me to play pretend with her, and I find it so hard and so tedious. In September my youngest started school, but my house is still disordered because I find it so hard to prioritise. I'm not lazy; in October I completed a first class honours degree which had taken just three years, even though I had small children at home. I did it mostly via all-nighters. There are other situations in which I have worked incredibly hard. But I just cannot seem to attain normal running of life in the way others do. I can't prioritise; I can't even quite look after myself 'normally'. It really isn't for want of trying. I'm not just lazy. I can and do work really hard. I have some really 'stoopid' oral rituals, I hop around the kitchen holding my left foot, I bounce around like a lunatic, and I actually flap my hands. I have parts of my body I just have to stroke. I annoy everyone listening to the same song on a loop for literally hours - it even annoys my kids. I tear up if I have to make prolonged eye-contact. I have problems with face recognition. I have had no friends for vast stretches of my adulthood. So the list continues. I feel a kind of grief that I'm 36, and I literally didn't have a clue about myself until just over three months ago, even though I have two children on the spectrum. I feel like such a failure on so many levels right now. I'm so sorry if this all seems like a pathetic wallow in self-pity, but I really am overwhelmed at the moment, and surely it's OK to post like this here, if nowhere else. Sometimes I just do not know how I can continue being me, living my life. It really isn't like me to post like this, but the 'coping' is just so overwhelming currently.
  8. Newbie

    Hi, Jo. Social disjuncture is a sensation which just doesn't seem to become more comfortable, isn't it? I can relate to that. I am undiagnosed, although I've had an educational psychologist who heads a diagnostic panel and has a PhD in Autism tell me that I have AS. For me, as I once explained to a friend, that moment was a move away from feeling like an inhabitant of a single-dwelling island in the middle of the sea of Mainstream to recognising that there are others who feel similarly to me. I suppose that's a positive thing. At the same time, though, I'm 36 and I found it inexplicable that the thought had never occurred to me, despite having two sons on the spectrum and family members. It was in November that the epiphany occurred, and I still haven't assimilated the idea properly, nor have I truly worked out exactly what it means for me. I've had other, overriding, issues, though, so that's a factor. The point of my ramble, I guess, is that I can relate to what you have to say as no doubt others do, and you are not alone. Welcome to the forum.
  9. BEER ?

    I've spent ten years as good as teetotal because I've been either pregnant or breastfeeding or both! as a result it doesn't take much for me to feel the effects. I like beer or cider, but never drink much, although my neighbour seems to like to ply me with it sometimes, and on those occasions I do have to put some effort into walking a straight line.
  10. What book are you reading at the moment?

    I once had to translate a barcode reader manual into French. Can't say I'd have done it for fun, though. I'm about to read 'The Fault in Our Stars' by John Greene.
  11. 2,4,6,8 Who do you appreciate?

    On the contrary, As Skimrande. Your posts are varied, interesting, honest and appreciated.
  12. Something for parents of ASD

    My mum annoys me, Lyndalou. For example, she was out with the children and another family was apparently disdainful of my sons' behaviour. She related proudly later that she said loudly, 'We're an autism family'. I was most unimpressed! We're a family. That's the reason not to stare; whether ASDs are present or not, it's not polite to stare, and like you, Lyndalou' I prefer to simply ignore it.
  13. What's everyone listening to?

  14. Nappies on prescription?

    My 7 year old son is the same with toileting. To get nappies can ask for an appointment with the school nurse. You have an entitlement of up to 4 a day for a child who still needs nappies after the age of three, and you will be sent samples to try. When you've found one you like they send a large bulk consignment of them. Don't be fobbed off, 4 a day is your entitlement. Unfortunately our son didn't like any of the samples so we buy Huggies or Pampers (depending on what's on offer) night-time pyjama pants because they go up to age 14. The Huggies ones are the roomiest, but if the Pampers ones are cheaper, we'll go with them because these types of nappies are very expensive, unfortunatley. Your avatar picture is gorgeous
  15. I Bid You Good Day

    Today has been a very hard day. Nuff said.