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hollypoppy

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About hollypoppy

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    Salisbury Hill

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    Female
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    East of England
  1. Thanks for your replies, I really appreciate it. I'm determined not to give up this time. My little boy also has trouble concentrating t school because of the noise, so when I spoke to his teacher she said, "wear earplugs"!!!!!! When I said that was inappropriate she said he could sit on a quieter table. Needless to say, when he asked to sit on the quiet table she said No! I'm now going to see her next week to sort this out. when you have teachers like that, the poor kids don't stand a chance! x
  2. Hi As most of you know, the road to diagnosis is very very long! I gave up trying with my 8 year old son for a while as I just couldn't cope with the constant rejection from healthcare professionals. He's now been re-referred and we've just received an interesting letter from the new Paed which has made me very angry. Basically the old Paed discharged him while the SALT still had concerns. ......Dr ****** discharged you in 2009. I note however that the SALT still had concerns that he still had difficulty sharing and interacting with other children, and that he had obsessions around food and routines.............. I'm so annoyed that he was discharged while the SALT had concerns. The Paed had even seen him in a full blown meltdown!!!!!!!!!! Has anyone else had this problem, and did you get any joy with different Paeds? Thanks
  3. Hi! I'm trying to get a diagnosis of ASD/aspergers for my 8yr old son. We've just been given 2 questionnaires from the paediatrician, one Social Communications questionnaire and one Conners' Parent Rating Scale. Has anyone got any experience of what happens once these are completed by me and the school? Thanks
  4. Just wanted to say, that even though you hate it, I think it's fantastic that you managed to do it xx
  5. Hi, someone on here had this quote on their profile and I think it's sooo true, hope it helps "Just because someone doesn't love you the way you want them to, doesn't mean they don't love you with all they have"
  6. Hi! This is why I think medical staff need more training into ASD, especially in cases of emergency admissions to hospital, where there is no time to prepare for the change in routine.
  7. Hi I just wondered what people experiences were of being treated in hospital for non-ASD problems? The reason I ask is, that I work in a Hospital and one of our patients has Aspergers. His admission is through a totally unrelated medical condition. Luckily, through personal experience, I have an understanding of Aspergers and hopefully am treating my patient sensitively. I have heard various staff members using expressions such as "a bit odd", "he's a bit precious" " doesn't want to help himself" Staff also getting annoyed that he doesn't want to do things in "order" ( such as getting washed before breakfast) In actual fact, he has been taken out of his own surroundings, placed in an environment with completely different routines, staff coming and going all day and evening, lots of noise, having needles stuck in him...the list goes on. the chance of sensory overload, I should imagine is very high!! I'm not blaming my colleagues for their attitudes, I think it's ignorance and lack of understanding, but with just a little training we could make patients lives easier in this environment It would be interesting to hear anyone elses experiences, staff or patient, good or bad
  8. Hi Thanks for sharing with us I was married to a man with Aspergers, and we have 2 children together. Unfortunately for us it didn't work out and it led to a divorce. Having said that, it was all very amicable and we still get on ok now. I think life can be a constant learning curve for both people in the relationship! I'm still learning now and we've been divorced a few years! I like how you say weirdness, we used the word "oddisms". not as a derogatory term, but a way of describing behaviour that either of us didn't understand about each other. At times it can seem almost impossible, but keep doing what you're doing, you sound like you've got a really strong relationship x
  9. Hi,, I'm sorry, I don't have any answers but just wanted to send a hug <'> Hopefully somebody can offer you some help
  10. No offence taken! lol. The only reason I suggested an area for parents with kids on the spectrum etc, is that it maybe easier to find specific info and people with the same issues. My ex-husband is dx aspergers and our ideas on whether our undx son is on the spectrum are totally different. I agree that its good to have diversity and in the long run we're all here to get and give support and advice <'>
  11. Hi! Welcome to the forum! I have a 7 yr old (undx ASD) son and a 5yr old NT son, hopefully you'll get lots of help and advice on here
  12. I've just watched it, and it was very interesting, I could really relate to the parents going through the process of getting a diagnosis for their son
  13. I came on here to get advice on Childhood Autism. Its really useful to get a perspective from adults on the spectrum, but maybe would be an idea to have an area of the forum for parents?
  14. Touch (without his permission) definitely seems to be something which sets him off. Hugs are also on his terms. I can't "just hug" him, I have to ask, or he comes to me occasionally. He's ok with haircuts but we've been going to the same place, with the same hairdresser since he was one so its routine for him. Its so hard, because I see posts on here where people are on the spectrum and my son doesn't seem that extreme with some things, but he has too many "quirks" and ASD behaviour to be NT. Its just getting people to understand. What's action plus? I've not heard of that? He had an IEP, but tbh the school seem to think he's "normal" so its hard to get any help from them. I've been sent on parenting courses and been told that maybe I'm trying to make the quirks fit a diagnosis. He's now going up to Junior School in Sept, so we'll see how his behaviour is with such a major change I'm so glad to find this site where people actually understand x
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