pinkystimp

Hi Clare, Well at long last we have a diagnosis! The Psychiatrist conformed Aspergers although said there are also so many other traits and behaviours from the whole spectrum. I am so pleased that now we can get the ball rolling for his return to school in Sept, and really hope it will be a much better year for Charlie. Hope the case will soon be the same for you with Ben. All i can feel right now is relief :-) I will keep checking back to see how you are doing. Enjoy the rest of the summer! Amy

HI Clare, that's interesting to know you know of others with both. Wonder if there is some kind of link somewhere? Just want to make you laugh, Charlie is not so great at school, it is where he experiences most problems... only yesterday morning I got a call asking me to get there straight away (thankfully i don't work), arrived there only to be led out to the school field by the Headteacher... turns out rather than return to lessons after play time he decided a way nobody could get to him would be to climb a tree. Let's just say, i never knew i had the capabilities to do so myself until yesterday! It was a new one on me, after spending several hours previously locked in the stinky toilets, another time he locked himself in the classroom... school still see him as "naughty" rather than anything else as he is still yet to be diagnosed. I'm holding out hope for our next appointment on August 8th. Keep us posted with how you are getting on with your fight for Ben Amy x

Hi Claire, Was looking in to what the ADOS assessment actually was and came across this thread. I'm sure i read earlier in the day that Ben also has EDS? Struck a chord with me as it's a genetic condition that runs in my family, my 10 year old is diagnosed but my 7 and 8 year olds are not although it is clear they both have it (10yr old was Dx when he was being seen for something which i had considered totally unrelated, lol). It's my 8 year old whom i was searching for ADOS information about. Reading about Ben is just like reading about Charlie. I feel like i have hit brick wall after brick wall and it was almost reassuring to know it's not only me that this seems to be happening too. Hang on in there, you are clearly doing a great job of putting up the fight to get Ben's problems recognised, diagnosed and then get him whatever help he may need. Really, i guess i just wanted to reassure you that i understand your battle x