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shinypanda

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Posts posted by shinypanda

  1. Posted · Report reply

    Hi there, not wanting to bombard you with terminology etc, but tip-toe walking etc may also be indicative of Sensory Processing Disorder, which is another common co-morbid with ASC's. Anyway, welcome to the forum :)

     

    Edit: My head's a bit muddled tonight, having just read "Sensory Integration Disorder" elsewhere on the forum, I'm not sure if that's what I meant, not "Sensory Processing Disorder"... in fact I'm not even sure I didn't just make that term up! :) I'm so sorry! Worth exploring, anyway :)

     

    Thanks for that. It would make sense. He is so fussy about what clothes he will wear, won't let anyone touch his head (haircut time is traumatic at best) and doesn't like certain food textures, noise etc. He got really annoyed with his younger sister when she hurt herself, because she was making too much noise by crying! There was no empathy at that point because he couldn't cope with the crying. The empathy came later once she was quiet again.

     

    I will have a look into it and talk to the doctor about it at his next appointment. This is such a minefield!

     

    Thanks

     

    Panda xxx

  3. Posted · Report reply

    Hi Shinypanda,

     

    My son is the same- a model student- but that is because he is very self-conscious and doesn't want to draw any attention to himself. He was diagnosed this week and I am also wondering how to explain it to him. It is definitely very important that your son understands as secondary school can be very difficult for a child with ASD. If he at least gets an official diagnosis then he will be able to view events as they are - misunderstandings, saying the wrong thing, friendship difficulties etc. and develop strategies to deal with them Hopefully that will prevent him from developing self-image problems which is even more vital at his age. If I find out a good book or way of telling my son I will let you know.

     

    Starlight :)

     

    Thanks Starlight

     

    I hope things go well with your son too. It is very reassuring to know there are others out there with AS who have done very well in life and I'm sure, with the right help, our sons will also do well.

     

    Panda x

  4. Posted · Edited by shinypanda · Report reply

    Hi,

     

    My son was a little older (11) when I told him - I tried to make sure I didn't make it a bad thing, just a different way of thinking. He was confused at first, and needed a lot of re-asurance that he still loved him etc.

     

    But he is very into his computer, and in looking up AS, he read about some famous alleged Aspies. When he found out the inventor of Pokemon maybe has AS, he was very re-assured. He loves computers and wants to be a computer game inventor himself.

     

    I did also buy the book: Asperger Syndrome, the Universe and Everything , by Kenneth Hall - an 8 year old child. He only flicked through it, but his younger brother found it interesting when I read bits out to him .

     

    Glad they are putting things in place at school.

     

    Diane

     

    Thanks. My son loves computers too so perhaps that is an option to show him how it isn't a bad thing, he just thinks differently. I shall have a look at that book too. If it is a boy the same age it might help him to understand and also help us understand how things are for him in his world.

     

    Panda x

  5. Posted · Report reply

    Something clicked in my mind when you said he likes mysteries. Me too. I much preferred finding things out myself instead of being taught, and that's often the key for me in holding my interest....rather than being told what the outcome will be before it's certain, why don't you tell him that you have appointments with people who want to work with him to find out why he has such a clever mind, -why he can think differently. His friend could be told that also. It would be perhaps a half-way point?

    :)

     

    What a wonderful way of explaining it. I will try that with him. He is clever, well above his age, but he finds it difficult sometimes to get out what is in his head.

     

    Thanks for your help :)

  6. Posted · Report reply

    Hi

     

    I have always known there was something different about my son and now that he is 8, and has had a couple of toileting incidents at school, people are finally starting to listen to me. I got very upset one day and went to speak to the school's family liaison person who was really helpful and decided a referral to school health was in order. School health felt that he should be referred to our local Child development centre. He had his initial assessment on Tuesday and the doctor is convinced it is Aspergers and I agree, having now read about it. She now just needs a report from school. I was a little worried about this because previously no one has been able to see what I see because he is a model student and very bright. I shouldn't have been worried though because they have had their eye on him since I spoke to them and they are seeing loads of classic signs and already have a learning plan in place for him. I am really pleased with this because I know a lot of people have trouble getting support from their school.

     

    He also has some physical development issues, albeit mild. He still tip-toe walks and has some gross-motor co-ordination problems. He does walk funny and although he doesn't get bullied at the moment, I do worry what will happen as he gets older.

     

    I am thinking that now is the right time to introduce him to Aspbergers, even though he doesn't have a final diagnosis yet. He is soon going to wonder why we have these appointments and why he is being taken out of lesson for special one-to-one lessons. I'm not sure how to go about this. He is very bright but doesn't get social stuff. He does worry about things so I want to introduce the subject in a way that he won't worry.

     

    I have ordered a mystery book called "Blue Bottle Mystery" by Kathy Hoopmann because he loves reading, especially mysteries. I will read it first to make sure it will be suitable for him.

     

    I would really appreciate any advice on the best way to let him know about how he thinks differently from others. I would like his best friend to be able to know too so that he can understand why my son behaves the way he does sometimes. His friend is very bright and very understanding but I think it would be good if he knew. Of course my son needs to know first.

     

    Sorry to waffle on. Hopefully someone can advise me :)

     

    Thanks :)

  7. Posted · Report reply

    Hi Cliff. I'm Carolyn and I'm new too. My 8 year old son is in the process of being diagnosed with Aspergers. The doctor spotted it straight away and school agree it's Aspergers so hopefully formal diagnosis will be quite straight forward. I'm sure we'll get lots of useful information here :)

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