Jazzy'smum

Hi, I know this may sound a little odd but do you work or receive benefits? If you do receive benefits you could be eligible for Legal aid, we received it and we had our private assessments and reports taken care of by the solicitors etc. They cannot represent you at tribunal but they build your case for you and I do not know what i would have done without them.

Hi Windylou, My daughter is autistic and from all the people I have spoken to and from what I have seen with friends etc, Girls with ASD do tend to present differently to boys and in more subtle ways. My daughter had similar issues as Willow stated regarding pain. She is also very verbal but follows her own agenda. I got really sick and tired of hearing 'own agenda' back in the beginning. She also obsessed over things, mainly bugs and volcanoes. I would say if you have any concerns at all get her reffered to be checked out. Be sure to tell them though if when they get her to do something like the cup thing you mentioned you think it is learned or copied behaviour from before.

Hi all, well we got a decision back from the tribunal and.... we won, my daughter got her weekly boarding place. We could not be happier. Thank you for the advice you gave me on this forum to my many questions.

Indeed, it is one of the things my husband had trouble seeing.. he always believed she just wanted her own way when it is in fact not that at all. However this is often how it comes across to onlookers and even us as parents sometimes. In my daughters case she has to control the situations to feel safe and as if 'everything is right and where it should be'. If she is unable to control the situation it creates huge amounts of anxiety that she cannot cope with. Maybe your son feels the same? It took us a long time to work out the reason and rhyme behind it and we are still learning.

Hiya, My daughter who has just turned 13 has ASD and has always been like you describe. She most definitely has oppositional behaviors controlling to the extreme, punishment does not work I can 100% tell you that, my daughter lives on the XBOX one of her things at the moment is minecraft as well. We have tried numerous things from NVR (non violent resistance) to removing the xbox from the room. We use bribery, manipulation and just crossing our fingers. We do however depending on the dangerous nature or severity of the situation take away the xbox/internet or on occasion her phone for 24hours. Sometimes you have to and deal with the situation it creates so they know they cannot get away with it. At least I can assure you that you are not alone and it is very hard to deal with and to know what is right.

hi all, thank you for the info. mainly it is the reason they wont assses her numeracy is because she is too hard to handle. respite brochure, some pricing and transport details, and emails quite a lot.

Hi all, I was wondering if anyone had any information on the rules for late evidence being accepted? Our tribunal is Wednesday and I have had an email today attached with a whole bunch of evidence the LEA want to admit as evidence, is this allowed? Thank you for your help in advance.

Hiya, yes we have a working document i am trying hard to commit to memory, our daily life is documented in the OT report, I am going over the bundle repeatedly looking over everything and making notes to refer to pages and statements made etc. I can only hope that luck is with us on the day. I had a solicitor help prepare all the documents etc so hopefully that has helped too. Well I don't think i would have been able to manage to do all of that with the stress at home myself.

Hiya, thank you for the advice, yes the headteacher is going to be there. I shall be ringing them tomorrow to tell the of the changes in the clin psychologists stance on things so they can be prepared. She does receive OT at school but that is at the school discretion there was never any supplied in her statement. They are proposing 2 hours direct OT per term. We are very lucky to have a pro bono Barrister representing us at the tribunal so I am hoping they will catch anything i miss and will know how to say and term things, I am not the best at making arguments and knowing what needs to be said where. No where in the clinical psychologists letter does it say she needs OT so hopefully that will work in our favour when the LA are using her for that argument.

HIya, Sorry i think i confused things, we go to tribunal on Wednesday My daughter has, ASD, OCD, sensory processing disorder, tourettes, severe dyslexia, and anxiety disorders, she is in a Special school as a day student but this also offers residential mon-friday, Her behaviors are worse at home and she is violent and very controlling. We had independent EP and OT (the OT is the OT that works for the school not the borough). The school has SALT on site, and OT, also a specialist Dyslexia teacher. The school support it and are requesting it and we are requesting it because she does not handle Transitioning it causes major problems and she ends up in class unable to learn for the first part of the morning because of it. Transport have to wait for her (they are only supposed to wait 3 mins) They wait upwards of 15 sometimes. Her sensory processing disorder is off the scale at the moment, she wears no clothes around the house except a bra. This includes when she is menstrating. She deals with this better at school, she tolerates clothing and understands it has to be worn. Behaviours between home and school are very contrasting. Her learning is affected and she needs to over learn things, she takes no responsibility for her actions and there are a bunch of other reasons too. My head is spinning at the moment after just trying to go through it all.

Well i found out why the clinical psychologist supporting us is going, The LA have been talking to her and have persuaded her trying OT before boarding would be best.. which of course isn't and she is there to back them up for that. We do however still have her letter supporting boarding so not quite sure what to think, goes to show you cannot trust anything that is linked with the authority!

We have independent ed psych (in support), occupational therapist (in support), CAMHS have written a strong letter in support of residential (the same person the LA are taking as a witness) The school are backing us 100% so the head teacher is on our side, the LEA wrote to the school asking them to provide evidence for them, all the school could provide was the need to board so I really have no idea why the LEA have not agreed and are taking all the way to tribunal. We shall see what happens next week though.

Hi all, thought i should introduce myself. I am married from Kent and I have a daughter aged 12, about to turn 13 who has ASD, OCD, Sensory processing disorder, severe dyslexia, and anxiety disorders. Sounds like a lot and it is but considering she does pretty well. She goes to a brilliant special school, and we are about to go to tribunal (in a week) to hopefully get her a residential place Mon-Fri at the same school. The last 7 months have been extremely stressful but hopefully we are coming to an end now one way or another.

We are taking our daughters Headteacher as our witness.

Hi, Thanks for the replies. We are all prepared and have just found out we will be having someone represent us at the hearing which is very helpful. Tribunal is in a week so all fingers crossed. I am not so worried now that the Clinical psychologist is appearing as a witness for the LA as in her letter to the tribunal she has supported us 100% so I cannot imagine any change. And if there is at least I can quote her own words back to her. Day to Residential placement has been extremely hard to prepare for, I really do not know what i would have done if i had not found the solicitor we have had help us prepare.