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Shamankailona

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About Shamankailona

  • Rank
    Norfolk Broads
  • Birthday 01/19/1979

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    Female
  1. Mihaela, thanks Although your daughter has Aspergers not really aspergers, nothing specfic, just ASD, and I dont understand how serious it really is or can be in future and how can affect all her life. Don't let your daughter feel that getting the diagnosis is bad in any way she doesnt care about diagnosis, even not interested to know something about it, she just feel bad when somebody call her weird or strange and that nobody wants to talk with her Have you ever thought of teaching her at home? Yes, but she doesnt want, because she want at least some communication, if she will be all the time at home with me, it wont be good. School helps her, and without schools, council and I dont know who else was helping to her, many people and organistaions, without them I could be much harder for me and her. Maybe you could both find friends who share your interests. Yes, I was thinking about it, but dont know how and where to start, and before somebody can be your friend he/she is stranger and I cant just ask somebody to be my or my daughters friend, it doesnt work like that Thats the main problem. I want to make friends for me and my daughter, but dont know how to do that. And we are from another country, we live here (UK) about 5 years, and Im not sure about my language and everything, and cant talk normally to people, sorry about my moaning... I know it will take time to adapt and I hope everything will be fine later, just emotions... oxgirl, thanks for comment. having a diagnosis of AS doesn't mean that your daughter will not have a good and happy life yes, of course, and I really hope that one day she can have family, kids and be happy and have friends and good job, I worry because of my own experience and dont want that she suffers like i did and sometimes still feel very bad. But now Im 35 years old and can look at things different than in 13, and my daughter almost 13 and I know its crazy age and its very hard to understand and accept some things. It would be a good idea to speak to her teacher about how isolated she feels. I will try Are there any groups you could both join together where you could meet new people? Dont know, need to find about about that and prepare myself to meet many strangers Sally44, thanks. Do you or your daughter have any interests that you could use to meet other people? Not sure, I like different crafts and to be honest, dont like to meet people, she likes to watch different videos about science, history on youtube and play minecraft I know I must think about it and do something about it, but it feels so hard for me, I dont know why and dont know what to do with all this feelings. I also tend to spend most of my time with family [husband, children, mum, siblings etc]. And you can become isolated if you have a special needs child. Yes, I know, all my family live in latvia, I dont have familu in England, only two daughters aunts, thats all what I have, of course its better than nothing and when they can they help me, but one of her aunts have depression and her own problems i dont wanna ask her anything now, another lives with us, but she doesnt have friends as well, last year found one and sometimes visits her, so there is no any advice from her Sometimes I dont understand why so many strange peopel around me but maybe its good, I can learn somethign from them and at least I know that other people have problems as well and Im not the only one. Sorry, maybe out of topic little bit, but I feel now that I must talk about everything with somebody. So weekends and school holidays are spent in his bedroom. Yes, we spend mostly our weekends and holidays at home, but Im trying to go somewhere, to another towns, museums, nature parks, cinema, restaurants, cafes etc. We like to stay at home, but sometimes its too boring and need new feelings, emotions. I know, maybe need more time to understand, accept, I think I almost accepted everything, I was ready for diagnosis, but now it became real and I feel happy and sad, strange but this are my feelings, happy because finally I know it and sad because its for real now. Maybe its not so bad how it looks like at the moment
  2. Hello, few days ago my daughter was diagnosed with ASD, shes 12 now. And Im happy that finally she have that diagnosis, because, I hope, we can have some help, was waiting about year, and about 2 years ago found out about autism at all, didnt knew anything about it, and teachers in school found that she (daughter) possibly autistic. I started to read everything about it. And to be honest, feel very sad and lonely last years. I wanted good life for her, different than my life, but looks like it will be even worse, I really hope that its still possible for her to have all the best in her life. I was so upset when she told me few weeks ago, when school started, that she feels lonely, nobody wants to talk with her and calls her weird. As far as i can remember myself I always had problems with having friends, other kids bullied me a lot and now I feel so bad about my daughter. And another problem is that I dont have friends with who I can talk about it and feel so lonely as well I can help myself and I cant help to my daughter, I cant teach her anything, I cant find friends for her, because I dont have any, because if I had friends with children I possibly could introduce her with them, and help somehow, but I cant. And most of our time we spend with each other and thats all. I know that nobody can help me with that, I just wanted to talk somewhere with somebody, maybe somebody else have similar problems.
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