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100acrewood

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About 100acrewood

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  1. Morning. They do say everyone has a twin somewhere I think 10 yr old may have found his. He displays as you describe. There is a lack of services I agree. Camhs have tried to help because a lot of my son's behaviour I'd related more to anxiety but the best help I have found are local parent led groups who have children with additional needs. We meet up and talk it out and share experiences and helpful hints to help reduce sensory overload. I know it sounds random but when someone told me that by taking talcum powder with to a beach you can get rid of all sand everywhere easily as it drys when it removes the sand you don't get that scratchy wet feeling. It has east this summer we have been to the beach 7 times. So much is unpredictable and so I have learnt to accept what I can't predict and gradually work on what I can. I take mine swimming nearly every day because he loves to float and spin in the water. It apparently helps them to gain balance and answers sensory needs it has helped because whilst he is there I can relax. A lot of my son's rages are related to his frustration with school I am on the ehcp path now and although my son is high functioning I know a special school will answer the environment issues that mainstream never can. He loves his tablet and eating too. When it gets towards evening time I turned all lights lower and turn loads of to reduce overload then again bath time give him half hour to just float etc it reduces the outbursts if they begin in time length. I hope you do find some groups near you. I know.little miracles has a few groups in different places and if not then maybe reach out in your local area and arrange a coffee morning. I do feel you but please always remember to look after yourselves so that you are stronger to deal with what comes. Xxx
  2. I reckon having some fiddle toys could help or putty that he can have only when he goes to places with you. http://www.exploreyoursenses.co.uk/autism-toys.html?p=13 is a good source of a good range of stuff xxx distraction is my only idea really.
  3. I reckon having some fiddle toys could help or putty that he can have only when he goes to places with you. http://www.exploreyoursenses.co.uk/autism-toys.html?p=13 is a good source of a good range of stuff xxx distraction is my only idea really.
  4. http://www.exploreyoursenses.co.uk/autism-toys.html?p=13there are some pink red or blue ear defenders on this site on sale hope this helps
  5. I am living this scenario right now and in fact my son and i are attending a family residential unit at present for 8 weeks. Part of the plan of care from the professionals is to adopt a method called 123 magic. The best thing to do is to purchase the dvd or book On Amazon And Judge For Yourself. It's simple and works for all kids aged 2 -12 no matter what additional needs or not. Have a try hun. The key is consistency once u start don't stop and be seen to do with all kids x
  6. Thank you Micheal. Gemt08 have been thinking of you. Let us know how you both are. And any progress with getting help. One thing I would say. You can bypass any gp by going to a and e. CAMHS will see you no matter what and he cannot go home without a plan of action in place. I know this only from experience. Unfortunately limited resources mean bigger journeys but we have a choice in mode of transport. Xxx
  7. I feel your pain gemt08. My son too has sobbed begging to die. He searched through draws for knives and told me his voices tell him bad things. Before he would say he would tell them no but now told his support worker he finds it harder to ignore them. He has become violent and told me the voices tell him to murder me. Camhs haven't been an amazing help because I too believe they are not his imagination. He also hallucinates day and night and has told various people lots of things he has seen. He thinks he has demons inside him and calls his voices angels and demons. He has started to be philosophical about God. Because of his age I was dismissed. However he has been consistent and as a result we have been referred to a family unit for further observation. We go as a family for 6 weeks. I want to stress there is help out there. I would recommend calling the camhs duty workers every time u are worried. Even if he hasn't been seen by camhs if a referral has been sent you have every right to contact then directly. Don't be deterred If his file is constantly being pulled from the bottom of the pile to the top they cannot ignore. Go to a and e every time u feel he us unsafe. I always believe low risk is not no risk hun. Hope he feeling safer now x
  8. Can I ask what are his beliefs. How does he describe the voices. I can totally relate to your situation . My son has only just turned 9. It has been a long road. He first disclosed hearing voices to me when he was 7. I was told schizophrenia wasn't a possibility because he is not psychotic but as time goes by he is changing before my eyes. I have family who are schizophrenic so you can understand my concern. He has recently been diagnosed with atypical autism but the diagnosis needs further investigation and observation apparently because his adi r scored so high but ados low. He had extreme anxiety too and camhs keep saying to him the voices come from his imagination and so are using distraction methods which do not work. Whilst building his minecraft platforms in his head he now tells me the voices are worse but now won't tell me what they say.
  9. Now that I have has time to digest yesterday's feedback following his neuro assessments I feel I can ask if anyone else has had similar. He apparently didn't score so high on his ados but very high from adi r for autism so was told without doubt he is autistic but possibly atypical. They were more concerned with his anxiety level haĺlucinations and aggression etc quite right too. They had a list of referrals but the first did shock me. 1. Residential family unit for all 3 of us ( gulp) for 6 weeks. Very intensive. Has anyone done this before ? Will have to wait for a space. They could further his diagnosis and clarify his autistic status SPD. OCD. anxiety, poss depression, sleep disorder 2. Neuro referral query epilepsy because he hallucinate colour changes? 3. OT but none in my area. 4. Camhs key worker 5. Social worker. Someone I had asked for in past but not taken seriously.. Quite a lot to take in
  10. Oh and you mentioned asking who else I could refer him to at the ados. They didn't speak to me. I was left in waiting room. Very proud he went on his own but proves in my eyes the theory of separation anxiety from me is not true he is just afraid of being anywhere physically alone. Even if another child is with him. He wants adults around in case he hallucinate. He did tell me he told them in the meeting he hears voices and sees things but he said that today was all about enjoying himself
  11. Oh and you mentioned asking who else I could refer him to at the ados. They didn't speak to me. I was left in waiting room. Very proud he went on his own but proves in my eyes the theory of separation anxiety from me is not true he is just afraid of being anywhere physically alone. Even if another child is with him. He wants adults around in case he hallucinate. He did tell me he told them in the meeting he hears voices and sees things but he said that today was all about enjoying himself
  12. Thank you Sally44. I am still fighting for further referrals. I had his parents evening last Thursday. On his IEP it states further services needed as outreach and ot but no sign of either. It's was quite enlightening. They can now "tell" when he needs time away because his face goes blank. Time Out is 121 time to talk with TA. This is now added in iep. He doesn't go to assembly. He spends time helping teachers at lunch. He has now been given ear defenders and apparently they leave him to chat because they think it's better for him. They described any format of test as petrifying to the point he freezes and although very bright doesn't perform to his ability. He now does not read aloud or at all unless an adult is sat next to him. I said this sounds like the ed psych needs to come in asap but no response. I have been asking gor ed psych for my rldest to as due gor reassessment on dyslecia profile. Again no joy. School still waiting for assessments to be done. Friday I was the taxi driver for his ados. All that was said was he took part in everything and see you on the 9th March. Since Friday ( maybe a coincidence) he has had 3 nose bleeds bad tummy ache and not eaten telling me his tummy feels like it's been spiked and fitfull sleep. He hasn't been at school. However feels better today. I have finally got the camhs appt for tomorrow. They seemed reluctant because again said they should wait till after assessment even though in hospital I was told he will be given a camhs key worker. Well adi r on Mon and camhs tomorrow. 😯
  13. Hi thank you for replying. Camhs have pointed to a strong possibility of asd. And anxiety disorder maybe related to ocd or ptsd and also pretty sure of SPD. He has auditory and visual hallucinating. He is now under camhs and neuro to assess. It's been a long wretched journey for a could of years but he suddenly shot to top of list when he saw camhs. I think they try the waiting list cure for all referrals hoping the majority do not require assessment as time goes on but for my son he has just become so poorly and anxious. It's a positive step tomorrow for sure but definitely so much more to do. .... what things are a seemingly clever 8 yr old likely to expect from tomorrow. He has already had 2 melt downs tonight worrying about it.
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