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baileyj

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About baileyj

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    Snowdon

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    Female
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    Birmingham
  1. Hi, I'm Jo, Mom to Max who is now 19. I joined this forum many many years ago when Max just 3 and at different times youve all helped and advised me. Were about to move to a new stage in Max's life, he's leaving college. I want to be able to help him find either a project or a job be it paid or volunteering that makes him happy and fulfilled. Max is very intelligent and can learn, but struggles with social skills and trusts everyone. We live in Worcestershire, does anyone have any advise where I can start looking for help as I'm just clueless. Thanks in advance any advise would be so appreciated.
  2. baileyj

    Back Again

    Hello All, wow its been 2 years already! Ive been a member of this forum for over 10 years now, though don't visit very often. Update on my Max, he's now a fully fledged teenager of 13 :-) he attends an autism base in a mainstream High School and absolutely loves it. There are 8 in the unit and 5 staff, he attends most lessons some with and some without support and has weekly speech therapy at school. Weve been very very lucky. He travels in a taxi to school with his friend. From day 1 due to the preparation before he started he has always wanted to go to school, much more so than when in Primary. 13 brings with it standard teenager hormonal moodyness, but hey I'm not complaining its just part of growing up isn't it. So, upwards and onwards with the adventure of life with my Max. Hope everyone doing OK, and maybe even remember us :-)
  3. Hiya, my son was dx Autism when he was 3, he only had a few words and they were copied from cartoons, he attended mainstream primary with 1:1, and bit by bit his speech came on. Back then I honestly didn't know if his speech would improve. The important thing is they go at their own pace, its different to peers, but thats OK. Also there is a difference between functional speech and conversation, his speech is functional :-) He's now a chatty 13 year old attending mainstream High School in an Autism unit, its fantastic. Keep doing what yr doing, get into the system and accept all the support that it brings. Autism units in mainstream are brilliant.
  4. Just want to say as a Mom of a 13 year old ASD son, he does all of these things, and reading this has made me really happy to know its a good thing for him, and helps him relax or cope with situations. Thanks for the enlightenment folks. Jo (Max's Mom).
  5. Hi, my son is 12 and hitting teenagerdom big style. Its weird whenever I hv a problem I look on here, and find someone with the same. Max is in "love", he's at High School in an Able Autism Base and they are fab, he travels to school everyday with Z, they get on great, but if she's not in for any reason he flips. Monday he's told she's going on a trip on Thurs, meltdown. Yesterday she went home ill, biggest meltdown school have ever seen, threw himself on the flow screaming, shouting, crying and holding his breath. At home even worse when he found out she's still ill today. This is totally new for me, I have no clue how to help him, he screams Noooooo, then cries and cries for ages, then is so sad for hours. He won't see that it will be OK. I'm really worried. I understand its hormones, puberty and loads of new feelings, I so wish I could help him and don't know how. Makes me very sad. p.s. Loupin I'm in the Midlands too :-)
  6. Hi, I don't come on here that often now, I joined many years ago when my son was 3, he's 12 now gosh. As always when I do pop on, I find someone has posted with a similar problem, and read really interesting replies. My son Max is 12 and loosing his temper. I know some of its personality, some ASD, some teenage hormones. I have found the answers really interesting, and I should remember to allow him to be just who he is when he needs to be instead of guilting that I don't do enough with him. Merry your post was so interesting to me as a Mom, gives me great insight into Max. Thank you all so much.
  7. baileyj

    Back Again

    Thanks folks, nice to be remembered, yes when i joined it was called Krism, and not many members, its certainly grown, and is still fab. x
  8. baileyj

    Back Again

    Hello All, Its been a long time, I'm Jo, Mom to my wonderful Max, now 10 nearly 11. I joined this forum many years ago in Sept 2003 when Max was 3 and starting the DX process. Back then this place was my lifesaver, so much help with DX, nursery and statementing, I don't know how I'd have managed without it. Through people who helped me on here, Max was statemented in Reception for 22.5 hours and is doing OK, though now in his last year at Primary with the dreaded senior school looming. Since then life has gone along, highs and lows as we all know. I rarely come on the forum, but when I do, i still get answers, thank you. Lately have began to dip my toe in again, and its great to be back. Hope I can help anyone with our experiences over the years, and am sure you folks will continue to be the wonderful folks that you are. Cheers Jo x
  9. Hi Kerrie, hope all goes well with the nurse today. It is a scarey thing to do, but you won't regret it, as you can get the help your son needs, be it autism or not. Good luck. Jo
  10. Hi everyone, my Max (10) has to have a brace on his teeth, the dentist wants to refer him to the dental hospital rather than a local orthodontist as he feels the dental hospital are more experienced at dealing with special needs children. He asked me if I thought Max would cope with a brace. To be honest I just don't know, as I have no experience of it at all. Does anyone else have a child who has had a brace, or has anyone on here had one, how did they/you cope? Many thanks Jo
  11. Hiya, my son was very similar, we eventually got him dry at 5, he went to nursery still in pull-ups. What we did was have several potties, 1 in each room, so he saw them all the time, then in the summer months let him run round with nothing on his bottom, I know not ideal, but he started weeing in the garden, which seemed to get him used to the sensation of needing to go by seeing it, when it happened we'd scoop him up and put him on a potty, so he began to associate weeing with the potty. Gradually we reduced the number of potties, and just kept 1 in the bathroom, so he started to associate weeing with the bathroom, then we bought a potty that looked like a loo, kept it in the bathroom, and finally went cold turkey and removed that. Also, all nappy/pullup changing we did in the bathroom, so he associated that with the toilet to. It takes a long time, and needed patience. Ive lost count the amount of times we sat singing in the bathroom, or all quietly cheering when he used a potty. Also because he could read, we had a chart on the bathroom wall, numbered with what to do, eg 1) pull down trousers, 2) pull down pants etc etc. Nursery had the same chart in all the loos too. Now at 10 we are starting to teach him standing up wee's by doing target practice in the loo at a ping pong ball, the fun and games continue. Good luck, don't loose heart, its just that our kids take longer thats all, but they do get there. Jo
  12. Hi all, hope you are all well. I would love to take my son Max, 10, on an abroad holiday, somewhere like Spain or Majorca. I think self-catering would be best, and preferably somewhere i can get Chicken Nuggets and Chips, as thats all he'll eat. I'm wanting a quiet, not too busy/noisy place, as Max wouldn't cope with that, and often tends to get picked on if hoards of children. Does anyone have any recommendations on resorts, as I just don't know where to start. Many thanks Jo
  13. Hi my son also wouldn't wipe his bottom, after a long time we eventually found it was because he was worried about getting his hands dirty. His Peidiatrician suggested we try latex gloves, like surgical gloves. My lovely local hairdresser gave me some (powder free)to try as a test and they worked a treat. We now buy boxes of 100 online, we keep a little bin by the loo, and a box of the gloves at the side of the loo, he pops a pair on, wipes, and pops them in the bin. He's now 10 and this has worked successfully from about age 8. We found we had to wait until he was ready to do this, and just took our time. Good luck Jo
  14. Hi, Ive been noticing similar with my Max, he's 10, but things started last year, just like you say, needing deoderant, hair appearing, shoulders broadening. Ive definately noticed a difference at home too, he's spending much more time in his room, doesn't seem to need us as much. Can't really offer any advise, just that your not alone, we are very similar. Cheers Jo
  15. My son, now 10, wouldn't wipe his bottom, he was terrified of getting anything on his hands, so not the same issues, a clean thing. The paediatrician suggested disposable gloves, we tried it, and its worked. We keep 2 boxes of disposable gloves next to the loo,and a bin, so he knows there are plenty (200) there, he goes for a no. 2, pops his gloves on, uses wet wipes, and then pops the gloves into the bin. Not sure if it will help, but may be worth a try. Really wish you luck. Jo
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