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Devon mum

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About Devon mum

  • Rank
    Ben Nevis
  • Birthday 08/05/1967

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Profile Information

  • Gender
    Female
  • Location
    Beautiful South Devon
  • Interests
    Before the children came along I liked horse riding and doing cross stitch.<br />Now I seem to not have time to think about what I like to do ... Hmmm, maybe one day I'll be able to again!
  1. This has been my experience with DS1 it was a battle to get them to even admit he was dyslexic much less that he was also ADHD and DD well I'm sure they just think she is not really bothered half the time, when actually she doesn't understand what she is being asked to do. <'> She had a guided reader called Oh, Otto that she read to me last night, I had to smile cos the mistakes the little alien boy made were so much her mistakes! <'> DS2 in secondary school has a Student Information Sheet, very detailed and asks for input from all teachers and parents, so this is working as far as he is concerned - DS1 never had one and he is now in college where he is still having the same issues with focus and getting things mixed up. He also still cannot spell - even DD can tell him how to spell a lot of the words he gets stuck on - not that he appreciates that of course!! Yes this is the reason that DS1 never really got the help he needed, he would do anything not to be noticed, the rest of the time he was usually daydreaming at the times when he needed to be listening and that meant he missed out on important info. DS1 said himself that if he had realised playing up would have got him more help, then he would not have spent so much time trying so hard to obey the rules! My second letter last week has resulted in the HT wanting to touch base. Couldn't talk to him yesterday as I was WAAAAAY too emotional about other stuff, so I'm to find out this morning.
  2. Is it just me? But that suggestion seems totally barbaric, it just shows how little understanding most teachers have of Autistic (of what ever degree) children and what the families go through. Do they really expect you to subject your child to what amounts to torture just so that you can prove your child has their particular needs and difficuties that go with it? I know I wouldn't even consider it, and I guess you wouldn't either nor would any of us. Good Grief life is hard enough for our children. With Rebecca as far as I know the clinical Psychologist in the only one who has requested external input over the last year, which is about long she has been on SA+. I only know she is on SA+ because I saw it on her I.E.P. I have not been consulted, or otherwise involved, except for the once when the I.E.P. had already been written and they wanted me to sign it.
  3. Hi Anna Yes I know what you mean about the fobbing off they did it with my boys! I have phoned the CID outreach team and left a message, the person I am in contact with at Parent PArtnership suggested that I do this as it may speed things along a little. I am not taking any messing about this time around, I listened to the school telling me DS1 was not far enough behind to get a statement and he was a lot worse when he was tested in secondary school and he left school still having not learned to spell, he is now in a small branch of Bridgwater college and really enjoying himself. I was treated much like a mushroom with DS2 and his CATS etc during year 7 meant he has had life skills lessons, extra spelling, extra reading and missed nearly all of the summer term due to what seems to be IBS. He is now in year 8 and is getting retracking and is going to have some Alternative Curriculum Education. DD is so much more complicated and she obviously has learning difficutlies as shown in the results of the WISC-IV and CELF-Uk3 assessments, the school is for the most part a good school. But as you say they just do not understand what it is to live with Autism and be expected to just fit in. I know they are trying with Rebecca but they are not comminicating with us properly and they are not going to get away with keeping us in the dark this time, I have a copy of the SEN code of conduct and the SEN tool kit which I need to go through. Thanks for you input - I am in Kingsbridge by the way.
  4. Hi Kazzer Thanks for that, I have written a second letter quoting from the SEN code of practice and a little document to do stating the Council's strategy for ASD children. I think they may start to sit up and take me more seriously this time around. Just so you know, hun, my screen name is more to do with my geographical location than whose mum I am. I don't think they will be able to provide for Rebecca's needs without admitting that her educational difficulties mean that she needs a statement. I am just going to have to push them to do it before the end of this school year. I now have the WISC-IV and the CELF-Uk3 reports behind me and we are now waiting for the Communication and Interaction Difficulties (CID) - Outreach Team to give the school advice, I know that this itself will be an excuse for more delay until the visit has happened. None of these three things were asked for by the school, they have asked for no external support fro Rebecca since she has been on SA+ so in effect the are already not providing for her needs by lack of action, even though they may be giving her extra support at times in class, they still have made no effort to find out the reasons for Rebecca's inability to settle and do her work consistently. I have been the one to get all the referals, right from the half term when she was in year 1 and the teacher didn't know what to try next to get Rebecca to comply. And still the school don't seem willing to accept the reports, even the CAMHS nurse went in to see the SENCO.
  5. Yes I have been looking at the SEN code ofpractice and have used section 5:54 in my latest letter to the SENCO. As you say I am running out of time for my daughter to get the best out of her time left at primary school and to make her transition as good as can be in 2009. I will take a look at the SEN tool kit tomorrow, I don't think I have come across that in my search so far but I'm sure I will find it tomorrow. Myself and my husband are through with being fobbed off now. I have been told by the latest person I saw through CAMHS (who was also a governor at his child's school) that if I am not happy I should complain to the board of governors and then the LEA. Let's hope it does not come to that. <'> >< Thank you for your interest PP <'> ><
  6. She has been on school action plus for nearly a year now, the only I.E.P. meeting I have been to was last year and that was to be shown her I.E.P. after it had already been devised and was asked to sign it. In fact I have never been to any I.E.P. meeting for any of my three children through their primary school years, I did not know I should have done so until this year! I only got the most recent I.E.P. sheet after I let the teacher know I wanted to discuss it during parents evening at the end of September, she got me a copy the next day. I'm feeling a bit like a mushroom!!
  7. Thanks PP <'> I did not realise that I could ask the Ed Psych for her input. Rebecca has been on the SEN register almost from the start of school and has still not seen the Ed Psych once! I got into trouble with the HT last year because I sent an exasperated email to the Ed Psych, which nothing came of, the HT did not like me doing an end run around them. The trouble is the SENCO and Ed Psych are quite pally, I remember last year after the provisional Dx, when the CP sent a letter to the ED Psych. The SENCO told me she found the letter condescending! It is the transition to secondary that really bothers me, I am really worried at how Rebecca will cope with all the change. We don't have much choice of school around here, we have a good school right in the town which both boys have gone to but then the next choices are 10 miles and more away, which we will then probably have to pay travel costs to, unless the authorities say that she needs to go to a different school to the one in the town. Today at school the class teacher very kindly showed me Rebecca's work. She had managed to write a letter in the neatest writing I have ever seen, it didn't look like R had written it. Teacher said that she had had lots of help from TA's to get this done and it had taken a long time. So then she slips in that tomorrow Rebecca is to do the work without support - now I don't for the life of me understand the reasoning there. It's like there see she can do it with al this help so she should be able to do it alone too ... Huh? If it works with the help then keep the help and let the child do some learning!!!! Of course she couldn't stay and chat as she was as per usual off to a meeting.
  8. Well I got the letter written, the next day while I was doing my bit in the school library the SENCO came in all smiles and said she was going to get her diary and sort out a time for us to meet. So we get together on the last day of October. I have been doing a lot of downloading from our County Council's website and now I have to do loads of reading so I know what the council say on the matter. It already seems that I may have a case to push for a statement, based on her learning difficulties alone. The trouble is that the one documant that I have printed off is dated September 2003 - Strategy And Provision for Pupils With Needs On The Autistic Spectrum. It said according to one review done in 2001 of the approximate 120,000 children in our county at the time 720 could be affected, I wonder if I can find a more up-to-date file?
  9. Thanks Anna I'll go take a look see! I just can't understand that if Rebecca is on SA+ why has she still not been seen by the Ed Psych. I am trying to figure out a letter to write, but I need to be careful with the wording, so if that site is any good maybe I can inclue some info. Off on a tangent here: I have also just found out this week that Rebecca can no longer tolerate cows milk, she has been complianing for a while that her tummy hurts and what came out of her bottom freaked her out. So I got her to change over to goats milk, as I drink that too, and now she has no belly ache.
  10. Used to be my favourite extra special treat, cos they were more than my pocket money! YUM!
  11. And this is one my Hubby says "what d'ya think?" http://www2.b3ta.com/heyhey16k/heyhey16k.swf
  12. I remember, I remember! Is that something I should be shouting about tho??? Well done Bard, have a Glad you didn't come up with the version we used to sing as kids!
  13. I've obviously got a BIG question to ask of the SENCO! I have just seen on another thread that if a child is on SA+ then outside agencies should be involved. Rebecca has been on SA+ for nearly 12 months and as far as I know she has not even seen the Ed Psych. The WISC-IV and CELF-Uk3 were not the schools idea, they were ordered by the Clinical Psychologist. And SALT referred Rebecca to the CIDS outreach team. Not a dicky bird from SENCO!! :wallbash: :wallbash: :wallbash:
  14. What has a hazle nut in every bite? *****
  15. A bit of MUSH is good for the soul! It's great to see two people so happy in each others company.
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