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Annea

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Everything posted by Annea

  1. Annea

    school strike!!

    My eldest a/s daughter is affected because her home tutor is striking.... My middle and youngest daughters are affected because their tutors are striking But my son who is in the the same school as youngest dd is not affected.... go figure...... I don't object to the strike if it is for better training... but I have heard some objectionable remarks from teachers regarding th strike.... Things like " It will be nice to get paid a proper wage for coping with these yobs! " "At least i have an extra day so I can get my shopping done!" Remarks like this maybe do other teachers no justice and certainly just add to my discontent about the education service within this country.... ANd why oh why did I only learn yesterday that my youngest dd was off school? Leaving it the last minute shows utter disdain for busy parents who lead busy lives who have to prepare children with A/S for some time in advance for interruptions and changes to their regular day.... Sorry again to the good teachers on hear as I am ranting ... but am very very frustrated just now!!!! Anne x
  2. I too feel for you, I tribunal the chair of governors told everyone that he had worked with parents like me before, parents who seem to get a buzz out of being in the limelight and mean while causing the very problems they pretend to be anxious about!! He also went on to say disabled children should be grateful for what they get!!!! I now have those comments in writing by the chair of the panel as a permanant record of his comments but even though I know its rubbish, it still stings. I would ask to speak to him in a meeting that is witnessed and fully minuted! If he refuses, make a formal complaint to the governing body. I would also take up Lynne poisnt about dissability discrimination, we took our case forward and won, it opened a huge can of worms, and showed the school had non of the legal policies that they should have, had no training and were basically ignorant. I too have loads on my plate as you can see by my other posts, it is so hard sometimes trying to juggle things and stay sane. but bit by bit you will get there, just make sureyou have ALL the independent representation you can find, get them to share the load. IPSEA have saved my sanity! Good luck with everything and remember the Ed Psychs are employed by the LEA and even though ours wanted to side with us, when push came to shove, she always sided with the school and added fuel to the fire against us, just saying this because you said you are leaving things for the psych to sort out... it just didn't pan out like that for us! Hope things improve quickly!! Anne x
  3. Annea

    Home Tuition

    thank you les...... For anyone elses interest the document is: http://publications.everychildmatters.gov....S-0732-2001.pdf It is a free downloadable pdf.. Anne x
  4. Annea

    Home Tuition

    Hiya all.... Have been talking to My IPSEA rep who mentioned a document.... DFES -732-2001 which talks about the guidance for tuition for children off school with illness or dissability. I need to find a copy of this document, but can't find it on the dfes website... Does anyone know where I can find this document as I need to quote some facts on Monday at a meeting I am having. Thanks in advance Anne x
  5. Hi Kathryn thanks for the input, I don't think you are peeing on my fire I agree with you..... BUT before the tribunal we have the disagreement resoultion meeting.... the inc officer has sort of mentioend that whilst she still feels my daughter can be educated mainstream <like so many others>, then she will have to go to tribunal..... I think that deep down she knows that it won't work but because of her job and the money invo,ved she has to oppose me..... I do think it would be beneficial..... JSmum, I hope you get your issues sorted too..... We have a meeting with the EWO wedensday who is coming to discuss a way forward but the inc officer has tol dhe rthat my daughter shouldn't be dragged in screaming and kicking so not sure what will happen... I am really hoping this can be resolved without going to tribunal it's such a waste of money for all concerned.... My daughters placement will be residential too... well weekly boarding.... she got on so well there <even when she struggled> I suppose you just can't find a good substitute for teachers and staff who see these problems day in day out. Anne x
  6. Hi everyone, Last week my daughter went for a 3 day assessment at an independant Asperger school, when she came to the end she said to me... I never knew school could be like that mummy... I am never going back to my other school now! So basically she has realised that there are alternatives to the daily grind she has taken part in for the whole of her education and has decided she will not play the education game anymore! Now I have the LEA aware of this and we are waiting to go to tribunal for appeal on section 2,3 4 of the statement.... But one thing came up in a conversation with the inclusion officer this morning.... She told me she feels that main stream is suitable for my daughter, and the reason for this is that children like her are being educated well as we speak, she mentioned children wth sensory problems coping well with the help of ear plugs and dark glasses. Using seperation into quiet areas and the such like! I personally think this is a case of 'making' our children fit the system... the LEA's have no cheap practical alternative so they squeeze the round pegs into square holes.... I think this making our children fit is detrimental to the welfare of some of our children and I think that it contravenes some of the sections of the childrens act Please understand I know some on here are happy with their childrens main stream education and are happy with measures in place.... it's just for my daughter this isn't working..... So please don't think I am trying to say main stream isn't ok for some children with the use of such aids..... I am interested in those parent of children in secondary school. Whose children have sensory problems and who are made to fit in..... How are your children catered for? I read some info <posted by link here a while ago> about the childrens act..... states that children have a right to socialise and play...... My daughter is either subjected to an intolerable <for her> amount of sensory overload during the social hours of the school day or she is withdrawn from this aspect of her education and kept in a quiet room away from the crowds... because it is a mainstream system, there is no alternative! She either suffers from sensory overload due to the bright lights or she gets teased relentlessly about her tinted glasses. Because within a school that has so many pupils it is impossible to stamp out the cruel comments ... short of excluding the majority. She either suffers from sensory overload due to the excessive noise or she has to wear earplugs which also cause her sensory problem as as she can't cope with the pressure it causes in her ears.... But their is no alternative because in mainstream with so many pupils the noise just can't be reduced to acceptable <for her> limits. One part of the childrens act says a child has the right to live without fear, but my daughter has to be educated by law, and everyday she goes to school she is frightened by the environment she is placed in. There is no alternative <as I see> within mainstream, because her fear is caused by the very scary place that is main stream school. So how many of us parents feel the same way?.... the reason I am asking is that I am told that many children are perfectly happy in mainstream.... but what about those that aren't... why should our children be forced just to exist until they are no longer the problem of the LEA? I would be interested in hearing from any of you by email.... <ashford1@btopenworld.com> about why your child doesn't fit into mainstream..... I of course am happy to share my thoughts with you in return if it will help your fight for a proper education for your child.... The reason I am asking is that so many of us are constantly told that we are the odd ones out, our children are the exception... I just think after reading in this forum everyday, that this isn't true!!!! So I would like to present some opinions from other mums and dads out there to tribunal to show why main stream is just so wrong for many of our kids and why we feel it is detrimental to there well being...... If anyone is happy to share with me.... please do email me ashford1@btopenworld.com ........ I am so fed up with being told that main stream fits all!
  7. Just wondering if anyone has gone through the disagreement resolution procedure prior to SEN tribunal hearing? Did it make any difference negative or positive to your tribunal or were things resolved before tribunal? Any comments will be really useful. (we are appealing sections 2,3 and 4 of the statement in the attempt to get special placement named) Thanks Anne x
  8. Annea

    toileting in school

    Sorry have no advice to offer but interested as we have some continence problems with our youngest daughter. We have been told that it's nothing to do with the school. So thanks to those links above, maybe I can utilize some of the info too.... Good luck with your problems Erika. Anne x
  9. Thank you everyone!!!! I think I just got so overwhelmed yesterday and spent loads of time in tears.... Am gonna take time out today and just relax.... IPSEA are going to represent at tribunal, it was just because of circumstances he couldn't do all the paper work which was fine as the solicitor was going to do it.... apparently the legal help system constantly move the goal posts as to what they will and won't pay for.... my solicitor has had to take on a LOT of extra non legal aid work to balance the books for the free stuff they doand make a loss on.... I just wish she had told me sooner.... Any way.. thanks again all of you.... I know how hard it is for us all to keep fighting.... Anne x
  10. Hi everyone, I so felt like just throwing the towel in today, as I had two seperate whammies... Firstly we have put in for stat assesment for my youngest dd (10YR) who has lots of small but significant problems <especially when added together) anyway the school have been less than helpful and even wrote on our DLA form that she had no problems AT ALL I emailed the head and gave her a list of questions that I wanted answering and she rang me up, I told her I still wanted the answers in writing.... basically she told me loads of stuff, told me that she knew DD had problems but the DLA form was too direct and so she just put the answers she felt most applicable, she agreed on the phone that she could have put a lot more down on the form. She then went on to tell me that my daughter was only on SA+ because I had insisted on itand she maintained my daughter has no problems! She told me that she felt the OT was wrong for saying problems picked up in her asessment of dd would impact on her school life, she told me she would tell her she was wrong! She was so adament to the LEA that my dd had no probs, that the inc officer asked if I minded her sending off for the myriad of reports from physio, OT, Paed etc because she said she had never had such an opposing response from the school. Anyway... today I got the email of her answers and to cut it short, every single positive she had said ont he phone had beeen turned into a negative and she refused to comment on what she had said about the OT etc. I am furious with her for her lies! Anyway, on top of this, I finally got hold of my solicitor who is supposed to be putting our reasons for appeal together fro my eldest daughters SEN appeal. we only have 3 weeks left and as I am away next week and with Easter, I was getting a bit twitchy, I then find out that under the legal help system her firm can no longer do anything but get medical experts on board. So she has not been putting the reason fo appeal together like I thought, I then spoke to my IPSEA rep who told me he was unable to help either <it's a complicated story> Soooo... I was so upset..... I had this horrid waking dream of going into the tribunal alone trying to fight the lEA single handedly.... it wasn't nice at all..... SInce then IPSEA have told me one way or another they will help me, but I am so stressed,,,,, as well as these two fights I am also preparing to go to appeal for my youngest daughters \DLA and on top of this found out that the illness I have < an incrable auto immune disease> has deteriorated!!! Does anyone else sometimes feel like running away and burying their head in the sand? I just feel I am totally at the end of the line and haven't got much more to put in the pot..... Anyway..... I am sorry to offload here, but this place is one place I know where you all truly understand where I am coming from..... Thanks Anne x
  11. Annea

    parents evening

    I think you must have a right to be seen at parents evening.... at our 7 min appointment parents evening <yep 7 minutes LOL> the teachers also put up the childrens work and special displays so we would miss this if given an appontment at a set time away from this evening. I also think it an excellent opportunity to meet other parents and get feedback. I am often told I am the only one with certain isssues etc only to find out that their are 4 of us with the same issues..... Surely not allowing you at parents evening could be classed as discrimination. Yes they may have seen you recently, and yes your child may take up more than an allotted 10, 7 or 5 min slot or whatever... but hey maybe you would just like to be there to see your sons work and to discuss him some more! AND how unprofessional telling your friend to pass on the message. I would expect a letter! Did you go to Parents evening in the end?? Anne x
  12. My eldest daughter with A/S was born at term and was a normal delivery, My youngest ?A/S ? Dyspraxia daughter was also born at terms with no complications. My other two children both with no problems both had complications at birth My youngest being born at 35 weeks.... I think these questions are asked for most assessments whether they are physical or psychological. Anne x
  13. Flora, A huge congratulations!!!!!!!!! Can't wait to hear the details when you are ready........... as you know we are also just awaiting tribunal proceedings in readiness to attempt a priory school...................... Can you PM me and let me know which school you are into? <wondering if it is the same we have applied to> A huge congratualtions again Anne x
  14. Can No one help me with this??? Thanks Karen for Clarification!!!!! <Thought so.. better be cautious up front :0 > Anne x
  15. Hi Everyone, Can anyone help? I am looking for a child psychiatrist with some expertise of ASD's who can see my daughter prior to her SEN appeal. Has anyone used one they could recommend, any where in the south / south west? It is probably better if you PM me rather than post on here as I'm not sure that would be allowed.... I would be very grateful for any help!!! Anne x Thanks Anne.Yes pm is fine but please do not mention any names on open Forum.Karen
  16. Annea

    I am sooo angry

    Took my daughter for her follow up appointmeny yesterday with the paed. ths is my youngest dd who has various problems and we are awaiting a diagnosis. The last two times we went to see this doc she did nothing as she was awaiting reports from school, Yesterday now 12 months on, the paed tells me that after two letters the school STILL haven't responded. She tells me that until the school respond to her letters she is not prepared to do ANYTHING! Total waste of my time, her time but most importantly my daughters time. I am going to ring the school now, but I am so upset I don't want to lose my cool..... This is the same school that tell us DD has no problems... <yet they have her on SA+> They sit in review and tell the ed psych she has no problems, and they lie on the DLA forms and say she has no problems.... The paediatrician told me that in her opinion schools are always keen to sort out childrens problems and she has NEVER had a school lie!!!!! <shall I point her in the direction of this forum, so she can see just how many of us fight schools and LEA's on a daily basis? Sorry for the rant.... needed to clear the air before I ring them! Anne x
  17. Do LEA's tell lies then????? Who would have thought it!!!!!! I have truly had my eyes opened over the past few years with the lies that the LEA and teachers say!!!! It is sooo wrong! I do believe that the truth plays out in the end though! Good luck! Anne
  18. If they don't represent me, I will pay for a representative who works both for independent and IPSEA as he was fantastic at our dis disc appeal... he was very professional and really knew his stuff.... I would prefer to get it for free though as we are struggling with the pennies at the moment..... Anne
  19. Hi Flora, I'm afraid I would just turn up too! I have viewed a priory school three times now and on each occasion we were invited to see ALL parts of the school... we were introduced to teachers who were all very chatty with us and our dd. If they refuse to see you, then this must be raised at the appeal hearing... what are they trying to hide? <sorry have a very suspicious nature> and there is no way my child would go to a school that I hadn't seen in action, I think you are right to be a bit concerned. Anne
  20. I spoke to IPSEA this morning <someone from the helpline> I was told that we WILL be appealing against the school the LEA have named in section 4 and not any others they suddently decide they want to nominate. However I am waiting a call back from IPSEA to let me know whether they are able to represent me at the next tribunal, apparently this lady is an expert and will give me diffinitive answers!! I was told it is likely the panel will want to know if we have looked at other local provision <which we have> and will need to see expert proof as to why this local provision is not satisfactory and suitable. I will let you all know when I get a more diffinitve answer!! Anne x
  21. Hi Devilot, <big hugs> When reading your story, it could also have been written about my eldest daughter who was diagnosed with A/S three years ago. My daughter writes prolifically and also has a fantastic grasp of English language, when reading a story from her recently it was reminiscent of a scene from Jane eyre where she is describing some landscape. The imagination thing stalled us for a while too! and to be honest I didn't know about what Bid and others have said about the different types of imagination < out to buy this book tomorrow> I had my daughter diagnosed independently and believe wholeheartedly that if she had not got a diagnosis, then we would be a lot further behind than we are in sorting out her education etc.... It's also important to note that after diagnosis very few people get much help through CAHMS, or paeds etc... we have just been told.. not enough resources.. just get on with it! I am so glad we opted for diagnosis though. As others have suggested you need t find an expert in ASD's. They don't seem to be as abundant as one might think. Good luck with your journey... I have found so much help here and have been given many a much needed hug within 'these walls' Anne x
  22. Thanks Kazzen I will be speaking to IPSEA tomorrow for clarification. Anne x
  23. Hi marnie, did you get the infomration you wanted today? We have just got our appeal date through, it is the 28th April 2008, so have a good few weeks to prepare. Have also just collected a report from OT and Physios. The OT states clearly that my daughter has, sensory issues and is unable to know where her body parts are in space, she also commented on her poor posture and clumsiness and lack of spacial awareness, she has also dropped from the 20th percentile to the 13th percentile of some test they did with her, which makes hers borderline something but the report doesn't say what! She has very poor posture and can't sit or stand still for long as she has very poor upper body tone and is hyperelastic in her upper body. She also has poor concentration and poor attention. She apparently seeks sensation and this causes her to fidget constantly and spin and bounce etc. Her report answers a lot of questions. I still don't know why she has all these problems but the physio report says that her paediatrican has been asked to push for a diagnosis. She will also continue with her leg casting to strech her tendons and continue her daily physio at home.... So how they can quite say my daughter requires NO extra help other than that of any othr 10 year old is farcical. At least if we get a positive result in April, she will have 8 months of back payments, so a few treats! What date is your appeal marnie? Anne
  24. The LEA have named a school in part 4 of her statement, it is where she is now. The same school that we won a dissability discrimination claim against, and the same school that the chair of governors said that 'disabled children should be grateful for what they get- and yes I dohave that in writing!> As we appealing part 4 I know we appealing against that school but I also thought that the LEA are likely to fight by recommending alternative MS schools. The two of which we have laready investigated ourselves and are full. Can anyone clarify further about the process by which the LEA will try to fight us getting our specialist placement? thanks again Anne x
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