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Clare63

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Posts posted by Clare63

  7. Posted · Report reply

    Nikki,

     

    I went through the complaints procedure with the suppor of my MP who contacted the Head of Schools & Learning, funnily enough once the initial complaint was raised they quickly moved our case forward and we got the school which we believed was best for our son. (I think it might be the school you looked at, if its one from the "P" Group IYKWIM).

     

    DS son started in November and has come on in leaps and bounds, the school is brilliant and really understands AS.

     

    My DH and I loved the school as suggested by MurphySG, though was total unsuitable for our child, its much larger than the other school with a lot more children with an asortment of conditions. At that school they have onsite therapists and councellors. Our LA really pushed for this school as it is a hell of a lot cheaper than the one we are at now, in my complaint I also complained about this push as they clearly had no understand of my child's individual needs.

     

    If you think there is anything I can do to help, please do not hesitate to ask.

     

    Clare x x x

  17. Posted · Report reply

    Have had a huge fall over night and have at least 12 inches......so beautiful !

     

    DS and I have been out most of the morning in our ski wear building the biggest snowman ever .

     

    Thawing out now over steaming bowls of soup.

     

    Clare x x x

  21. Posted · Report reply

    Kelly,

     

    What a great start, sounds like people are starting to listen and you have empowered yourself to take action rather than wait for the school to do something.

     

    Parents in Partnership Surrey were also very helpful for me and proved to be another scource on "your side" as it were, I found them to be very supportive and sent me lots of information. I'll dig my paperwork and pm you the telephone number.

     

    Do you know who will be attending the multiagency meeting ? as you are quite near me, I would not be surprised if someone from the COOS (Children out of school) agency will be there, whilst their role is to get the child back into school, they will undertake their own assessment and tailor it to the individual child, with my Connor's case they knew it would be a long shot to get him back from whence he came and that it would take a long time. Not only did they work with Connor they also provided me with enormous support as a parent and with a mentor visting the home several times a week a good relationship was built. I do however rememeber that COOS will usually only work with children under CAMHS, I am not sure if your son is with them yet, I am guessing it could be at the same hospital as us ?

     

    Although its bound to be a long journey, I feel quite excited for you, you've made a brillaint start and will now hopefully get lots of help for your son and his education :thumbs:

     

    Clare x x x

  22. Posted · Report reply

    L takes Bio Melatonin. He takes 6mg -2 tablets (It's in a blue square box with 60 in a box isn't it?) He is absolutely fine on it. It just helps him feel tired enough to go to sleep. It isn't a sleep pill as such, it seems to regulate the body clock properly to tell him when he is tired (It doesn't stop him waking up at all hours, and sleeping fretfully though!). He has been taking this one for a few months now, and is at the stage where he really needs a break from it for a couple of nights as he has grown used to it.

     

    If your son finds it difficult to take, L's CAMHS doctor told us to crush it between 2 spoons and sprinkle it on his sandwich, or in a drink, or in yoghurt etc.

     

    L has also taken melatonin capsules in the past - these are like little white plastic capsules - if you have this type, you should be able to pull apart the capsule and tip the contents into the sandwich/drink/yoghurt.

     

    I have heard that you can get a liquid melatonin, but have never had need to use it, so don't know the in's and out's of getting it.

     

    When L was first prescribed melatonin several years ago, his then Dr. said that there was certain milks that had melatonin added into....(never seen it myself mind!)

     

    Yes Fiorelli, that exactly the one ! the purpose of our prescription was to regulate a sleep/wake apttern, so that sounds about right when you say to regulate the body clock. Bit concerned that it does not stop your child waking or sleep less fretfully, as DS can be like this, especially if he is anxious and then he needs his sleep most.

     

    Well I have got to get him to take it first and at nearly 14 really can't force the issue or trick him as that would really not be fair. in the meantime we will keep discussing it and I will relay stories from the forum of other children taking it to try and reassure him its not going to give nay ill effects.

     

    Thanks for your reply.

     

    Clare x x x

  23. Posted · Report reply

    hello clare. did u get him 2 take it last nite?????

     

    hope u r okay xxxxxx love yer loads xxxxxx

     

     

    Nope....did he didn't, although thought he might like to try it around midnight, but I decided against in case he did not wake up in time for school !

     

    We gonna have to do something because I am exhausted, but I really do not want to trick him into to taking it or he might think I spike all his food and drinks. In the meantime we'll have to just keep discussing it.

     

    Clare x x x

  24. Posted · Report reply

    My lad is on melatonin but his are like a capsule that I can split n add to a little water as he will not and cant take tablets. He is on 5mg n I give it 8pm n bed at 9pm n he is asleep by half ten(without it he is up til early hours of the morning!!!).

     

     

    Wonder why Connor's is so different then, I wonder what the "bio" bit is ???

  25. Posted · Report reply

    Melatonin occurs naturally in the brain but some people don't make enough. If you took one you will probably have a good nights sleep :thumbs:

     

    That said it is great for getting my dd off to sleep but doesn't stop her waking a few hours later, this is quite common. But for many it works really well.

     

    Good luck,

     

    A x

     

    Oh, just to say that we mix the capsule contents into dd's juice, some people use yogurt, it might seem less frightening for your son that way?

     

    Thanks Aro, the type we have is a coated pill and it was suggested to take with yoghurt as you stated crushed up. We had to have a special form to take along to the pharmacist as apparently the drug is unlicensed in the UK ? this version comes from Denmark !!!

     

    Clare x x x

     

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