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jlp

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Everything posted by jlp

  1. jlp

    Home/School book

    In ds#1's last mainstream school the book varied on his class teacher as to how well it was filled in - in Y2 it was every day but in Y3 the teacher wasn't keen, eventually gave him one but never wrote in it. He's just started Y4 in an ASD unit and the boys all have books, are checked straight away and always have a comment in, even if it's only a few words. Ds#2 (no diagnosis) has just started Reception in a mainstream school and after a week, he's already been given a home school diary!
  2. I looked at the link from a different forum but it says when they reach the destination they want to make as much noise as possible and encourages people to bring things to make noise with so no chance of my two being able to cope with that!
  3. We've had it for quite a few years now. When it was first prescribed it was stopped after about 6 months, we were told it was only a short term measure to try and sort ds#1's sleep patterns out, or so so we had a time without it. When we mentioned the problems we were having with sleep we were told there was new research now that said it was ok for longer term use so we were given it again. I try to keep to the lowest dose we can (so we have somewhere to go in future years) but it's just been upped to between 4 and 7mg (we're sticking at 4 for now) for my son who's 8. It seems professionals are more knowledgeable now than when we were first prescribed melatonin. Just to add- ours was stopped very suddenly without warning and wasn't a fun time so I can sympathise with your feelings of dread! In our case we went without for approx 6 months and he started going to sleep later and later and we were back to square one.
  4. Thank you Wasuup! I'm excited, he's 5 at the beginning of September and very ready to start learning but he wouldn't have been ready to start last year so I'm glad he just missed the deadline. Going part time might be an option - legally they don't have to be fulltime till the term after the 5th birthday and our first school actively wanted it for ds#1. This is a different scholl but the head did say that there's only a short induction time (half days) of a week but if parents felt their child wan't ready to go full time then this could be extended. Has he been to the school nursery?
  5. My 4 year old is due to start in September and currently being assessed. He does soil sometimes and I prewarned his new teacher - while not looking overjoyed they were ok about it apart from to say they might need to ring me to come and clean him if he should have an accident. Apart from that I have sent them a copy of a report nursery wrote detailing his problems. I think that's all I can do, when we return I will let them know that he's now having a formal assessment and an ADOS which wasn't known before the end of term. There will probably be a wide range of children starting mainstream schools in September as lots of children aren't diagnosed so early and are picked up (hopefully!) as they start their formal education. I also recall from ds#1 starting (diagnosed in the November of Recpetion year) that school weren't too keen to have him full time until they had to (the term after his 5th birthday). Ds#2 starts full time the day after his 5th birthday so this won't be an issue.
  6. jlp

    Upset

    They have no idea do they?! My son is starting a unit in September and were were sent a form out of the blue for transport help, taxi or help with the additional petrol costs. It hadn't even crossed my mind but I thought 'great' and filled it in. Then I got another letter saying we were under the 2 mile limit (we are apparently 1.65 miles away) saying we could walk there. I worked out it would take an adult 40mins or so, so have no chance with my two (especially on the days they decide they're not going!) - I'd estimate well over an hour. And ds#1 has high rate mobility and a blue badge. And ds#2 is currently being assessed and will hardly walk at all. I'll drive of course and wonder why they sent me the blooming form in the first place. Good job you rang up to check or your ds would have an even bigger shock on his first day back (which is bound to be stressful for him anyway)
  7. Well if you're passing by in September and see a bunch of us having a picnic in the toy department...it'll mean ds#2 got his own way!
  8. That sums it up so accurately!
  9. Tonight I threw a toddler style strop and stormed downstairs mid story We've had a day of bickering, fighting and whinging. Usually I'm calm and chilled and rarely lose my temper but tonight I've just had enough. Dp is on nights so I'm stressed from getting up with all the jumping around and screeching when I need them to be - well quiet would be asking for too much but at least not as noisy. Ds#2 (5 and being assessed) is a PAIN and ds#1 (8 with AS) is constantly saying horrible things like he hopes he dies soon, I can see why ds#2 upsets him (he upsets me!) but can't stand the horrible things ds#1 says. Calmed down and went back up, ds#1 is really upset. Looking at it objectively, the 'problem' is ds#2. His behaviour is terrible and ds#1 - very black and white - simply can't cope with him, he's at the point with him where he can't stand him, and is crying and banging his head with frustration. ds#2 is forever throwing things, hitting us (everyone - me, dp, ds#1, Grandma etc) with things, nipping, pulling hair, scratching and he's a solid build and really hurts. He's been in the bathroom (put him in there as he won't stay on a naughty step) so many times today and nothing works. I have never known such a contrary child - he even had a big tantrum a few nights ago as we were talking about their births and which hospital they were born in and ds#2 didn't want to be born in the hospital he was (wish he'd communicated that from the womb!) I'm really worried that there's a problem with ds#2, really worried that there isn't and he's just incredibly naughty, really worried about ds#1's mental health as he simply can't cope with him and exhausted and fed up. And I now have a headache after going up as ds#1 threw a tennis ball full force at ds#2 (for saying something horrible about) and it hit me full on in the face
  10. Ds#2 (5 next month and currently being assessed) is absolutely contrary! He's had so many ideas of where he wants his birthday party - Wacky Warehouse, local sports centre etc and his latest idea is that he wants a party in Fenwicks! He's obsessed with toys and asks for one every day and Fenwicks have a lovely toy department. I've explained that we could visit Fenwicks instead of a party but no he wants an actual party there with friends (NOT going to happen! Even if they did parties which they don't - being a shop!) He changes his mind daily and is very apt to refuse to go to the actual party on the day if that's not the place he wants to go that day. I'd be tempted to cancel the idea of a party altogether but he's been obsessing about his birthday since the last one (daily) and we said he could have a party so I don't want to go back on that. No answers, just a mild moan! I will carefully try and make him understand that we can visit the toy shop or he can have a party (he gets a few pressies whatever). I delibrately didn't give him a choice about where he's having his party if he has one but it hasn't stopped him obsessing where to have it.
  11. We've just discovered that this is why ds#2 (4 and nt but being assessed) doesn't like his photo taken - I thought he was just being awkward but one day he mentioned it and suddenly it clicked. He hasn't figured out that it doesn't go off outdoors so is anxious whenever someone wants to take his photo.
  12. Hopefully he'll calm down soon. Ds#1 was really hyper and angry for the last few weeks of term and the beginning if the holidays but one week in he's settling down. I've made a huge calender of the holidays on cardboard and hung it on the kitchen wall with the things we will be doing, there's not much on so far I need to confirm some dates with my Mam when we can take them swimming / to the beach, dp for when we'll go and see Wall-e (it needs two to take my two out) I was determined that this week would be a fairly quiet one so we can all chill out a bit. My big problem is the house work - I can't get anything done without constant breaking up fights / settling squabbles / requests for food! I don't want an immaculate house but vaguely clean and tidy would be good - ds#1 is a great tidier but ds#2 can create havoc at a greater rate than I can tidy!
  13. No! I'm really not thinking ahead to the days where saying 'if you get out of the car and stand nicely on the kerb then you can have a humbug' doesn't work! (Hurrah for friends who keep humbugs in their gloveboxes!)
  14. I was going to suggest the same as Enid - somehow he thought if he broke the keys then his friend couldn't go home (speaking from experience as my ds (8) locked himself and friend in the shed the other day when it was the friend's hometime! Then got in the friend's car and refused to move - in the end he was bribed out with a sweet and friend's mum locked her car doors pretty fast!)
  15. My son attends (well attended at he's just left) a Catholic school and we are Catholic. However there is no way whatsoever we can get ds#1 in the door of a church. He thinks God is horrible because of various things (such as they prayed for sunshine for the school fair and it poured down!). I really felt it this year because the rest of the class made their First Holy Communion and ds#1 didn't - he wanted to but said there was no way he was going to Church so it was a non starter. Our local priest wasn't much help and didn't really understand the condition - it was either the traditional preparation course or nothing.
  16. It's a tough one. My son is very bright and very challenging behaviour wise with huge meltdowns. Because of his academic ability (and he wasn't diagnosed till he was in Reception) we kept him in mainstream. However gradually his academic progress has gone downhill and he's gone from the top group to the bottom - this last year he's made no progress at all with 1-2-1 full time support. It's not that he can't, it's that he won't! However he's always had friends and the children in his class have always been fairly tolerant of him (and tend to give way to him a bit!), since he's been in the juniors, older years do seem to tease him a bit but this can be 2 ways as he gets obsessive and if someone upsets him he will spend breaktimes following them round saying nasty things, he seems to love confrontation. He'll start an ASD unit in September and I have concerns about that too - on one hand they're experts and very knowledgeable about ASD, he won't be changing teacher every year which is like starting from scratch every September, hopefully they do programs with regard to anger management etc. A big worry is the social side as he looks likely to be the most able child in the unit, and also children who also have ASD won't be so accomodating as his current class so I can forsee standoffs! I have a niggling worry that this is just a case of sticking them in a classroom and reading stories to them but I'm sure that won't be the case and I'll be reassured when we get there!
  17. What a shame bless him! My son (8 1/2) is very clingy and hates being parted from me too. At least you tried though, now he's seen what it's like he might get so himself upset another time?
  18. We're all looking forward to Wall E! Ds#1's particular interests are robots and Star Wars droids so he'll love it. Going to wait a few weeks thought till the initial crowds are hopefully gone.
  19. I had no success with the usual treatments and was recommended 'Wartner' which you can buy at the chemist - it did sting but only needed one application whereas there was no way my son was going to let me near him with a file!
  20. You'd think after that they'd have took you home Mumble, since you were upset and had obviously had a bigger shock
  21. I would love some AS specific schools! My son has struggled with mainstream and is moving to an ASD unit that doesn't fit him completely either. An AS school would be perfect.
  22. My son (8) is leaving his mainstream primary to go to an ASD unit and I can totally understand your feelings. We're going to try really hard to keep in touch with his friends but it works both ways and I'm not sure his best friend's will keep in touch. Still all we can do is our best but I'm thinking times are going to be hard.
  23. jlp

    Rocky time

    L has decided he's not going either and I was called in for A Word after his visit. He wouldn't do a thing they asked him and was generally v naughty! We're finished now with the visits, just waiting for September, eek. One of the children in the unit who he particularly clashed with is leaving and won't be there in September but I am a bit concerned - in mainstream the other children in his class are pretty accomodating whereas in the unit they're going to be just like G! Got to go as G now crying in the passage.
  24. Ds#1 is so stressed at the minute he's exploding every few minutes. He's moving to an ASD unit attatched to a mainstream school and has been looking forward to it but had his first full morning there yesterday and there were various things that upset him (including one little lad getting very upset and hitting people - not ds - when he heard a bin waggon). He's now decided he's not going there 'because they're all mental' (Mental being a new word - he was called it at his current school this week). He is going but I'm going to worry whether this is the right place and about September. He's been really stressed over the school fun day and the fact that it rained, then he had a horrible time at the new school, returned to his old school to discover that his class were having a go on the bouncy castle and he couldn't go on because he had odd socks (!), took him home and got matching socks then returned only to have another tantrum because his class weren't on it any more. He was persuaded in eventually to have a go with a friend then there was an announcement that Sports day was cancelled and the school was closing due to a sickness bug, mostly amongst the staff. They go back on Thursday hopefully but his support worker is striking and not sure if he'll cope. It's quite sad he's missing his very last week at this school - we have little party bags to give out and gifts for staff and there's a farewell book going around that's gone missing and no teacher to chase it up. Anyway, hopefully he'll calm down after a week or two on holiday. The way both boys have been these last 2 days, I'm really doubting my ability to cope with them these holidays - if it's not one having a tantrum it's the other or they're trying to kill each other!
  25. Lynne, we're in a similar position -one of ds#1's support workers has had him since he was 5. My idea is to give her a little photo album of him - photos of the years she has known him so 5 to 8. I was going to get a photo book from Truprint but some of the photo's wouldn't load properly and I've now left it too late so it'll have to be photos in an album.
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