julie-2

Thanks for the suggestion Merry, will mention this to Sian and see what she thinks

Hi Hope everyone is well, I have'nt posted for a while, but would be grateful for any ideas on what to buy my daughter for her 13th birthday in a couple of weeks. Sian has autistic spectrum disorder and epilepsy, and has a thing about ponies (the my little ponie kind) it seems all she wants to do is remove the hair and head and just hold the body part of the pony. Other than keep buying these, I would really like to buy something that is more educational for her, as she is quite a bright girl, and is very verbal. I have looked on ebay under toys for autistic children but there is nothing really suitable. julie

Many thanks for your replies. Justine1:- I have talked to my daughter's school about the smearing, and it seems she does not have the problem at school, although she has wet herself a number of times as became stressed about going for a pooh. The boy she becomes stressed about does not talk, and tends to just lash out at her, this is upsetting her and she comes home saying she doesnt want to go to school. Butterfly73:- My daughter Sian always seems to drink plenty of fluids, east lots of fruit and veg, but she does have a tendency to not empty her bowels all at once, so this means she's using the toilet for a pooh 3/4 times daily. I just dont understand why she has to use the toilet upstairs before going to bed, and will only use the toilet downstairs during the day. Chris54:- I dont see my daughter itching around the back end area, just that when she uses the toilet she holds back for as long as she can which obviously is going to cause pain, and then she will become agitated and stressed. I suppose I will just have to wait to hear back from SCAN to get some answers I am waiting to hear back from Barnet SCAN who deal with these kind of issues with autism and smearing.

Hello Thanks for the reply, never thought about anything like worms, will have to try and check her poo nex time, although going to be difficult as she's 11years old, and wont let me anywhere near the toilet when she's using it.

Hi I have'nt posted for some time but still take a look through some of the threads for advice which are always very helpful. I have been having trouble since last September when my 11yr old daughter started the new term with a group of different children at the special school she attends. Since being in the new class she has come home quite often complaining that a certain boy is hurting her and she frightened of him. I have spoken to the school about this, they say he's new to the school and needs time settling in etc. She has also been wetting herself occassionally at school which she has never done before. The smearing started with her using the toilet upstairs before going to bed. She would use the downstairs toilet throughout the day downstairs, without smearing, but would insist on using the one upstairs before bed. She normally would smear the towels, mat, walls, and anything left in the bathroom. What really concerns me though is that I have found the end of toothbrushes, hairbrushes and other things soiled with poo where I presume she has tried to put them up her bottom. The reason I say this is because I found a toothbrush with poo and some blood on it and heard her saying it wont come out it wont come out. She does have major issues when using the toilet for a poo anyway and has done since the age of 4. She tends to get very worked up and aggressive and will punch her head, throw things and become violent. It is very hard trying to keep her calm when she becomes like this, I try to stay calm myself and reassure her, and this does take time but normally works. I have informed the GP and the school about this and they have said they dont have any smearing at school. I am now waiting for a referral to Barnet Scan where they can apparently help with issues like this. Not sure how long I am going to wait as they have a waiting list. In the meantime I have removed everything from the bathroom in order for her not to be able to hurt herself. Has anyone been through similar? Is this normal behaviour for autistic children? Advice much appreciated. Julie

Hello If you go to the ebay website and type in austim t-shirts, it should bring up lots of different kinds of tops with different autism logos, hope this helps. Julie

Hello All I would like to add that my 9yr old daughter had the sf vaccination at school at the end of November. All parents were given the choice by signing a letter on whether they wanted their child to have the vaccine or not. My daughter attends a special needs school, and a number of the children there also have health issues, alongside autism. I must admit I was unsure whether to let my child have the vaccine at first, so took the advice of the gp and the consultant for her epilepsy, who both agreed it would be better that she have the vaccine. Sian was only given the first dose in November and was supposed to have a further dose 2 weeks later, for some reason this was no longer necessary, as a letter was sent home to parents from the school nurse, stating this. After about one week of her having the sf vaccination sian did come down with a temperature and was'nt very well, she also had a breakthough seizure as her temperature was very high, but I suppose this was no different from her having the normal cough and cold virus with a temperature, I just gave her the usual calpol and nurofen and lots to drink and after about a week, she was fine again. So I suppose all I can really say is at the end of the day its your decision, you can only do what you feel is best for your children. Take care Julie

Hello Voted for Cameron and Stuart again today. Dont know what happened to Sian's picture when it just disappeared a couple of days ago. Anyway hope to catcvh up with some votes! Julie

Sian is now back on the site if you would like to vote for her she's on page 8 at present. Thaks Julie

hi, just to let you know in case you were wanting to vote for Sian, her picture has been either moved or deleted, as I cannot seem to find it on the site. I Tried sending an email to them which was returned stating mailer daemon?then and tried resending the picture, but have still not heard anything back as yet. julie

Thank you something differ for voting for Both Sian and Stuart, we need lots more votes!

Hi maggzmay, Thanks so mych for putting the link up for me. Julie

Hi Sian was on page 3 of the newest entries the last time I looked.

Hi Maggzymay, Yes Sian is now up on the website, I have also voted for your son Stuart. Can you tell me how I can post her pic from the kinder website to here also please. Thanks Julie

Hi maggzymay what a good idea, I totally agree that more children with special needs should be worthy of being able to be the face of a new product. I have just posted my daughter Sian's picture. Julie-2 Not sure if this link will work that I have posted. http://photos-h.ak.fbcdn.net/hphotos-ak-sn...98020_555023020