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Millymoo

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About Millymoo

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    Salisbury Hill
  • Birthday 01/01/2006

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    East Anglia
  1. Thanks again for your replies. I think this move is really affecting him as his behaviour at the moment is driving me to distraction. We've walked past the house a few times and he points to it saying 'man' as it was a man who showed us round. We've been talking about what he'd like in his new bedroom and he wants animals (not real ones I hope!) so we're going to make that a priority for him as he has animals on the walls here. It will be a little bit of continuity for him. Should we make a point of saying goodbye to this house or would that be distressing for him? I'm a bit stuck as this is all new to me Thanks Sarah x
  2. I went for an assessment with my son today to see if he has aspergers and it seems more likely that he has ASD. We still have to have another assesment in November. tThing is, I just don't know how to control his bad behaviour. Most people think he's a sweet little boy but at home (and somethimes in shops) he's a monster. How on earth can I deal with this, please give me any advice you can as I'm really struggling to cope. As I've said before, my Husband is also Aspergers so I'm in a bit of a strange situation. I feel like a bad parent with a naughty child and am starting to dread being alone with him or taking him out. Pleeeeease give me some advice as I'm getting pretty desperate. Do I ignore it, tell him off, reason with him??? (none seem to work at the mo) Help!!! Sarah xx
  3. Thanks very much for your help, the link has answered lots of questions too. I'm sure my toddler has meltdowns sometimes, as he is beyond reasoning and even if I say one word to him he screams and runs away and is totally inconsolable and definitely beyond bribery It's interesting that someone put it can be due to over stimulation, I'd never thought of that. Sometimes he does it when he's had all the attention we can possibly give him and I just didn't understand, it's now startiong to become clearer. As for my DH, he's Aspergers too and although doesn't have meltdowns, he goes very very quiet and non-communicative. Especially at the moment as we're moving house soon and packing up everything. Any advice would be great both to help me and him Thanks Sarah x
  4. Hi As I'm fairly new to this, I'm not 100% sure what a 'Meltdown' is exactly. Can anyone shed any light on this for me please? Thanks Sarah x
  5. Thanks for your support. I think it's the grieving process I'm finding hard. The doctor talked about it when DH wa diagnosed and it's only now, 4 months after his dx that I'm starting to see what he meant. In the case of my Son, it's even harder as I had miscarriages before having him and was told he had a high risk of Downs in pregnancy. I was so happy that he was born fit & healthy, it seems wrong now to be sad about the way he is. There was a time I thought I'd never have kids. I think you're right though, I have to accept how he is and learn ways of dealing with him to make life happier for us all Thanks Sarah x
  6. Hi My son is due for his assessment next week to see if he has Aspergers/ASD. To put it bluntly, he's driving me mad and I think you are the only people who truly understand. Most friends/family say it's usual for kids to ignore you, it's normal to have tantrums, it's normal to get distressed in groups, but they just don't get that his behaviour is constant and extreme , not just that he's having an off day like their kids. I know there are a lot of children that are worse than my son but I just don't know how to deal with him. My DH also has Aspergers so it's hard to get support from him sometimes (although he really tries) Can anyone give me any encouragement? Is there much help out there for Children with ASD? I'm already on happy pills due to the situation and Post natal depression and just don't know how to handle him. Help (please) Sarah x
  7. Thanks for your replies, it sounds like the assessments can vary alot. I know there will be a paediatrician, Speech therapist and Psycologist so we'll have to wait & see, I just want to know, one way or the other. Thanks again
  8. Hi I was wondering if anyone cuold tell me what to expect at my son's assessment? He's nearly 3 and has some traits of ASD, His dad & uncle both have aspergers. I've really got no idea. Is there anything I need to tell them? I feel in the dark a bit. Also can anyone tell me if these are to do with ASD or just NT toddler behaviour: Repetition of the same word over & over again, even when he's been acknowledged, it's like he's oblivious & keeps repeating it. Half the time he's the sweetest little boy & the other he's really violent towards his brother & us for absolutely no reason (it's like a split personality!) Completely ignoring people talking to him unless I say 'listen' and touch his chin so he looks at me. He's not deaf as he's had detailed hearing tests I'd be grateful for any help or advice Thanks Sarah x
  9. I'm so glad you posted on here Bard, you've helped me put things into perspective. My mind is all over the place since DH was dx'd last week. I've even had one 'friend' suggest having an affair!! can you believe that! People just don't understand So thanks again Bard, for making me see what truly matters
  10. Hi My husband was diagnosed by a Psycologist at CLASS in Cambridge. I'ts free at the moment, as long as you have a GP referral. We thought we'd have to pay �1000, but apparently not! Here's a link to their site http://www.autismresearchcentre.com/clinical/class.asp Hope it helps! x
  11. Thanks for your replies, My husband's brother has Asperger Syndrome and was diagnosed 17 years ago when he was 11. I'm comparing DS to other's his age (I help in the local pre-school) and he seems to avoid interraction most of the time, unless he specifically wants something. Also, sorry if I seem ignorant, but what is the hand flapping? DS flaps his hands if he doesn't get his own way but I might be talking about something totally different? It's still all new to me so I'm trying to learn! I forgot to add, He sees the Paed every 6 months for his kidneys anyway so we did raise it at the last appointment. She tested for Fragile-X (he has a large head) and it was negative. The speech therapist has decided to refer him to a specialist as he's not getting on too well with it. Apparently one specialist is predominantly language and the other specialises in ASD. They'll decide which he needs.
  12. Hello, sorry if I'm repeating other posts, but I couldn't find this anyehere. My husband was diagnosed last week with Aspergers and we've been wondering about our 2&half year old for a while now too. Do you reckon these are signs/traits of ASD or just normal toddler behaviour? Only can use about 5 words and uses Makaton sign language to communicate with a series of noises (speech therapy) Obsessional about lining up his cars. They have to be millimeter perfect Gets really upset if he sees specs of dirt on the bottom of my socks If someone takes his toy he gets upset like it's the end of the world. He's really sad and sobbing, not angry Doesn't like lots of noise Plays alone even in a group situation and always has done Doesn't like crowds Understands everthting we say to him and can follow instructions Any advice would be great, thanks x
  13. My husband has just been dx'd with Aspergers. I'ts a releif but I've got lots of different emotions going on at the moment. I've heard that relate can do counselling for an asperger/non asperger relationship but we're nowhere near the 2 places that do it. Where do we go from here? How can I understand him more and how can we work out a way to live together (with our toddler & baby) happily? Any help would be great x
  14. I googled naked dancing turkeys! I needed a laugh one evening and remembered seeing it on Graham Norton or something
  15. We're not sure whether we qualify for DLA. Although My husband (with AS) works full time, he doesn't earn a good wage, mainly due to his lack of concentration. I can't work evenings or weekends as he can't cope with the children alone. We can't afford childminders as it's too expensive. I am the 'organiser', household bills, meals, housework, remembering appointments etc. Do you think we stand a chance with DLA?
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