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mand

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About mand

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    Salisbury Hill
  • Birthday 02/16/1962

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    Surrey
  1. This information may be why you have difficulties with GP practices The drugs Melatonin and Risperdal are both fairly new drugs and so the full side effects and long term effects on those who take them are still being researched. The British National Formulary for Children presents practical information to help healthcare professionals prescribe, monitor, supply and administer medicines for childhood disorders. In the formulary it says under Melatonin "Melatonin has been used in the treatment of sleep disorders in children with visual impairment, cerebral palsy and autism. The long-term safety and efficacy of melatonin is unclear, treatment should be initiated and managed by a specialist." Risperdal has many side effects and should be used with caution with children who has cardiovascular disease (heart)or a history of epilepsy. Withdrawl of the drug after long term therapy should always be gradual and closely monitored to avoid the risk of acute withdrawl syndromes or rapid relapse.. It is family GP's that look after the every day care and emergencies of the people in their practices they need to be given the relevant information from the Specialist to be able to continue the prescriptions started by them and the information for changing doses if needed. Every child is different and so will need treatment tailored to their needs and size.If they only have the formulary to go by the licensing for Risperal starts at 15 years.Drugs that are not licensesd need a specialist prescription. You had a good pharmacist to have questioned the prescription. They are watching out for your child too. I am not a doctor but in my job I deal with children and their medicines and can see both sides of the story. Ask the specialist for a copy of the information he sends the GP then you will all be informed and hopefully have no crossed wires. Hope this helps. Mand
  2. My eldest son now 19 is left handed and he learned to do his tie up just turning the tie round the opposite direction to me and he manages ok.The left handed scissors help a lot but careful they are sharper than some of the junior paper scissors. There is a site that may be helpful called www. anythinglefthanded.co.uk. All the best Mand
  3. mand

    MP'S???

    Hi, The advisory cantre for education (ACE) in islington London will send out a pack on exclusions if your child has been excluded.Telephone no on their web site. They have advice on their website www.ace-ed.org.uk and an advice line that has specific times to contact them. You can click and buy their advice sheets that are helpful for all including governors. Mand
  4. Hi Lizzie Have you looked at the NAS site under summary of Educational psychologists known to specialise in autism. There are areas they cover etc. This is the pdf file address hope it comes up ok for you. www.nas.org.uk/content/1/c6/01/07/81/list%20of%20educational%20psychologists.pdf NAS helpline may be able to direct you to an occupational therapist. The page about professionals is titled Who can help?Professionals involved in autism. Mand.
  5. Hi, Yes we had a good day out.Weather lasted til we were leaving and then the spray and rain gave us an extra hours travel on our journey but home safe now. To answer your question about the ed psych there is a Dfes publication you can have as a parent called Special educational needs code of practice.I got my copy through a partnership with parents meeting which you could try. For a copy or info try www.dfes.gov.uk/publications/ Click on publications for schools which will take you to teachernet online.Use the search for sen code of practice. There may be other articles that may interest you too. There is a web site stated on the back of the book which also may be helpful it's http://inclusion.ngfl.gov.uk. Also if your LEA have a good web site you can search their site under education, for statutory assessment , their guidelines also exclusions and managed moves. If you have the resources to get an Educational psychologist assessment through a known private ed psych there is information about professionals with an interest in ASD on the NAS web site it may be an option ( we got ours through a known dyslexia centre by an Ed Psych who specialises in ASD)to help see your son's ability and concentration and brain processing and reasoning and the way he takes information on board. It is an expensive business so pobably wait to see what the school will do about assessing for a statement first. If they do another observation on your son ask for it to be done in the areas he has difficulty in such as the playground PE un structured time. If this is the time when social difficulties/ bulling occurs then it should be this time that he is observed in not a classroom. My son we asked to have observed in the playground but the school chose to do it in a structured lesson. He showed no problem. Conclusion No problem! Hope you are having an ok weekend. Best Wishes Mand
  6. this web page may help. www.besttreatments.co.uk/btuk/conditions/1000290336.html under autism and risperidone. mand
  7. Hi again sorry for the delay in replying. Have been having a day of hair cuts and baking. Going to see my 3 year old niece tomorrow as it's her birthdayand was making some gingerbread teddies and a small birthday cake to take with us. To start at the end of your last reply, a CAT test is a cognitive ability test which checks for reasoning abilities,numbers,non-verbal and verbal. It provides the school with indications on outcomes at all key stages. The Neale test Nara II is an analysis of reading,it enables reading materials to be matched with the child's ability,check specific skills have been learned. more info can be seen on www.nfer-nelson.co.uk Visual spatial people can score higher on the non-verbal reasoning than the verbal and so can some other cultures who learn in pictures eg Chinese their alphabet is made up of pictures. I think I've put this accurrately. Please correct me anyone if I'm not. The exclusion and the part-time education I'd check up with an LEA officer or exclusion officer with how this time is worked with attendance. look at guidlines on www.teachernet.gov.uk/wholeschool/behaviour/exclusion/guidance. The school record I would have thought would contain more than you have said especially if the collecting evidence for a statement.You could ask to go into school and look at the file and write a letter to the chair of governors requesting this as you feel there should be more in his file.even the report from the ed psych. I will be away tomorrow but around Sunday if I can be of anymore help I will log on Sunday. Take care til then.Thinking of you all. Mand
  8. I really do understand where you are coming from.We have been there too. Have you considered puttng your own request for a statutory assessment as a parent. We never did and all the way through his education the schools have said my son would never get a statement but looking back on his whole school life and the school file he should have been assessed by the LEA in Junior school and not so much for academic needs but social and emotional needs. The assessment would have shown up the ability on the educational psychologist test and so the whole picture would have been seen hopefully. Did you ask for a copy of his school file when he was excluded? Its your right to have a copy. Have you spoken to any of the governors? There should be one responsible for learning and possibly even special needs. Even if you don't want to stay with this school you could ask either school about the way they fund their children across the SEN code of practise. Since the exclusion has your son been put on the special needs register.My son was on the SEN register from infants although he did not get a diagnosis til he was 12 and then a speech and language assessment at nearly 14 showed that his ability had compensated for his difficulties Have you asked to speak to the new school SENCO at all? You could find out what assessments they do in the school, like handwriting spelling comprehension and writing speed and brain processing.CAT test and Neale Analysis test. Sorry if I have gone on a bit. Friendships are very important for our children to have especially if they accept them for who they are. If your son does move schools ask the new SENCO to set up a circle of friends and a buddy system with children that are consistent in character and also have the same ability and interests, this may need funding but it may be part of the managed move.(Look up managed move on your LEA website you may find something to help.) Some things you can not do over the summer holidays as the people you need to speak to are also not around and sometimes having a good time away from education and doing things you all like doing together as a family are far more important and help far more. You will make the best judgement you can make in the end. Some GREAT people in history did not show their talents til they were passed school. Go and have an interesting day out somewhere despite the weather. Mand x
  9. By MM I meant managed move. From the hand writing point of view there has been research done to say that a lot of gifted and talented children have poor handwriting. Here are a few names you may find useful on a search engine. Ludwig Lowenstein Diane Montgomery words such as underachiever, twice exceptional, Warwick university G&T Brookes University, gifted and talented Gifted and talented in and out of the classroom even some county councils have guidelines for support of the gifted and talented in PDF style, these do include underachievement such as not showing it on paper. My son got for 14 yr old SATs after being out of school for 3 months waiting for the managed move as he had to wait for a place at the new school and was at home during this time with work as old school would not have him in school on health and safety grounds, got 7maths 7 science and 4 english and the school still did not test him any further or include him in G&T even though they knew he was an able child! You will probably understand his frustration seeing how your son is. It has been said that Aspergers syndrome and giftedness should have both the gifted side and social/communication side addressed at the same time other wise you will not result in helping the child if you address the social side only you raise the self esteem only to have it demolished by the fact that they are perfectionists and if the work doesn't come easily the first time it deflates their self esteem so adding to the frustration and the behaviouraL difficulties. If you address the learning side to adapt to their way of learning, very often visual spatial, and address the handwriting difficulties with mind mapping or computerskills to achieve written work then you also raise self esteem and a happy brain is a brain that can learn and the behaviour is helped by raising their self esteem. There is also research going on about gifted and talented children demonstrating some traits of Aspergers but these can be so similar to just very gifted children and a wrong diagnosis can be made. You need to find a gifted and talented check list to compare with a gifted and talented with twice exceptional or dual exceptional child some of the american sites are informative. I hope this information helps I did a lot of research a few years back and brought a few books to read on the subject too.I wish you all the best in your son's future schooling and we'll see what the results bring in a few weeks time. Mand
  10. Have you tried the National association for gifted children's web site . They have an advice line too. www.nagcbritain.org.uk Also the LEA should have a gifted and talented person on their team it may be worth contacting the LEA for a contact. Have you talked to the LEA about the move? My son had a MM in year Yr 9. He is G&T,A/S but does not show it on paper in all subjects especially not in English. He had his ability pinpointed by Ed Psych but schools would not address it because he didn't show it in tests. He was not included in any G&T activities .Anyway the behaviour/ social skills worsened as he wasn't stretched. The new school worked for the first two terms but GCSE courses and lack of support due to staff changes and communicatioin/understanding difficulties by the school about his needs although suggested by professionals to get funding for him, never came to pass. He had more exclusions which had an impact on his learning. If you can get your son involved in outside school activities its worth it to stretch him and not rely totally on school to help achieve where he excels. You need to pinpoint the subjects your son is talented in as they are not always talented in all areas.If it is maths and sciences I would seriously look into the subjects that are being failed at the new school as this may also have an impact on achievement. It is very hard going through these changes with our children and at times you feel that everything is falling around you. Its very hard to keep chin up but in the end we try to do the very best for our children. After a long fixed exclusion at Easter we are now waitng for GCSE results! Mand
  11. Sometimes the job description helps you to find reasons why you want to work for them and then you can expand your experiences to this. Mand
  12. Hi Mrs F, The centre for child mental health in Islington may be able to give you information that you need. www.childmentalhealthcentre.org They may be able to suggest books too that are helpful My son when he was at Junior school had anger management through the school nurse who had been trained by the local child psychologist. She used Pokemon characters to help explain feelings etc. Hope the link is helpful Mand.
  13. 1.To understand what a meltdown is,how it is brought on and how to take steps to avoid one. 2.That behaviour may be a sign of communication and that you have to know the child very well and hear why they do things from their point of view and their carers to be able to understand the behaviour and how to approach it. In my son's case what was understood by the teaching staff as a reason for the behaviour was far away from the real reasons behind the behaviour. The behaviour got him excluded on many occassions. Mand
  14. you may find some helpful info on http://www.cafamily.org.uk http://www.tuberous-sclerosis.org I am afraid I do not have any experience of it but know it is genetic and if known to run in a family can be tested prenatally. It means swelling or enlargement and hardening of tissue and may occur in the brain skin and kidneys. I hope the above web sites will help with some of your questions. Mand
  15. When I had a query about the data protection act and freedom of information act I was referred to the ICO the Information Commissioners office. They have a web site and a telephone advice line and were very helpful in my case. yours Mand
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