becci

hello all,could you all please sign this petition,we are trying to get the government to recognise endo as a real illness that should receive more awareness and help from the government.please please please please, thanks in advance, love becci http://petitions.pm.gov.uk/endometriosisdla xxxxxxxxxxxxxxxxxxxxxx

well...i spoke too soon.back to school and back to meltdowns oh well.just goes to show that its the biggest factor. incidently.we had the ados tests done months ago now and still havent got the report.i really need it to take to school.they just keep fobbing me off telling me that they will get it to me.yeah right.

hi,my son did this for about 3 years,then one day he picked up a knife and was bringing it towards himself quickly,it was only my panic that stopped him making contact,as i literally punched it out of his hand.the next morning i went to the school and the head teacher sorted it immediatly.i had a camhs appointment for a couple of days later,the e.w.o came instantly and i finally got the help i had been asking for for 6 years. the thing is you dont want it to get to that stage and i know how terrifying it is.but when asked if he really wanted to die he said no.he was just frustrated. sometimes it really is just a cry for help.and because they know full well that if they say that they get extra attention. i would phone the school and camhs.threatened suicide from a 6 year old needs to be dealt with urgently. your in my thoughts,i have been there and can sympathise.

through-out the holidays,aaron has been a dream,no meltdowns nothing.im keen to see if this changes once he is back at school.his next camhs appointment is 27th september,it will have been 6 weeks since he went. has anyone else experienced this during the hols?

thankyou everyone for your replies and clare thankyou so much for your message for aaron,you made his day.i am really nervous now about the op even though its only a minor one i am still scared.in a lot of pain today so going to bed early and hoping aaron will sleep all night!!!!

ok im going in to hospital on monday lunch time for a laparoscopy and hysteroscopy for endometriosis.i have explained to aaron that this is happening and he seems fine,but...i may have to stay overnight and aaron has real seperation issues.how can i reassure him that.a. im not going to die,and b.that im coming back? can i just point out also that bless him he is currently doing the housework for me as im in pain today.can everyone give him anonline well done for doing this off his own back>xxxxxx

oh my good god.what the hell is wrong with these people??????? i am currently awaiting approval to become a foster carer of under two`s but in all the training i have recieved i was told that children with special needs have to have a very different approach to their removal and care as a "normal" child would. i cannot believe they are doing this.i strongly suggest you get some legal advice.who else heard the doctors comments?have any paperwork with you stating that you tried to get help previously.i am so angry at the system. on a more personal note...even though i dont know you you have my thoughts with you at this most distressing time.stay stong for your little ones sake,show him its ok that you ARE his mum and that you love him no matter what happens.make sure he also knows that its not his fault,just some jumped up snotty nosed faceless and heartless b from ss. take care. <'>

did not get it,just found out by letter yesterday.he isnt disabled enough.

what about swimming?????

<'> <'> <'> <'> <'> <'> <'> <'> <'> <'> <'> you are so much more than a runner.you are a truly amazing person for being you. i know its hard to not be able to do things that you need to do.i have endometriosis so a lot of the things i used to do can longer be done.housework was my thing(i know im mad)i loved the hoover.but i cant lift it now or push it.i cant work anymore as a carer and i loved it.but the thing is there are lots of things we can do.i have a garden which was grossly ignored for a long time so i kicked hubby into touch and now its gorgeous.i have planted so many lvely things and i have the satisfaction of knowing i did it.i also read thats my escape.and i just took up knitting baby clothes and when i have a basket full i take them to the local social services and donate them for the babies that are taken into care.occasionally i see babies in prams wearing the clothes i made.ultimate satisfaction. what i am trying to say is that there is a whole world out there with a bucket full of things we can do to escape in. dont be down,we are here.god bless. <'>

ok a went to play at grandads today with my younger sister n who is 10.while he was there he saw grandad get some choccie out the fridge and asked if he could have some.now grandad knows he is only allowed it once a week and that he had already had some today so he said sorry mate mum said no.grandad then took the choccy upstairs to nana.during which time aaron had put on his trainers and gone out toplay with n.grandad came downstairs to get himself a piece of choccy and the rest had gone.he then phoned me up telling me how it had dissappeared along with aaron.and how disappointed he was.aaron eventually turned up here at home.i asked him if he knew what had happened to the choccy and he said yes grandad gave it to nana.i said yes what happened to the rest of it.he said i dont know mum.i explained what grandad thought and that maybe aaron had had it.upon which he got really upset and was crying screaming had a massive meltdown.i asked him again and he still said he hadnt seen it.anyway a little while later grandad rang to ssay he had found it between the fridge and the cats bed.now knowing the layout of their kitchen i can tell you it must have been put there deliberatly,it cant have dropped down there.yet aaron still denies all knowledge.he did say though that n had been in the fridge and then bent down to strike the cat. grandad apologised to aaron profusely but aaron is still upset,so i take him down to see grandad and n is looking sheepish in the corner.i took her to one side and asked her if she knew anything about it.guess what.she did.she put it there to see if her dad would believe aaron over her!!!!!!!!!i told my dad what she said and he said oh well never mind its been found now. EXCUSE ME?????never mind????aaron was so upset to be accused of stealing,i was put in an extremely awkard position and she was the one that did it just to see?! i am furious.with her and my dad.had it had been aaron all hell would have (and did)break loose,but she does it and never mind i now have to pick up the pieces. and its so unlike my dad he never acts like this,he is usually so supportive.where do i go from here now.my dad thinks my son is a thief.he lies yes,he does everything a child with odd does,but he has never to my knowledge stolen.

great just got a phone call to tell me for the second time that canhs have cancelled my counselling appointment.

ok i have found out why they want a cat scan,apparently its because they think he has a form of epilepsy.i asked camhs why this would be recommended and they said they had wondered this also,but considering they havent witnessed the rages they cant say they think that??????? aaaarrrrrggggghhhhhh! i have so got to the end of tether.why cant they just do something other than spout s***

hi cmuir,the thing is we have never seen a consultant.our gp and school referred him to camhs and he has only been seeing a support worker.the last time we went he saw a social worker who told us it was normal behaviuor for a six year old boy to try and penetrate his four year old sister.!!!!! the time before that when he was four he saw a consultant who diagnosed him with adhd as he was only sleeping for around 2 hours a night.there is no way aaron has adhd and we havew since had this confirmed. so as you can understand its difficult to know where to go from here. luckily for us we have the school intervention officer on board and lea.

ok we had an appointment today with camhs who have now decided aaron is odd,but not asd.we still havent had the report for his ados tests. anyway whats really buggung me is that i told them the last week or so had been ok,thanks to the money jars and rules,and they said they think that we only need two more visits and then they will discharge him.oh i see because i sorted out some of the issues thasts it is it?he`s cured?i think not.from what i have learnt odd lasts forever not another two visits!so where do i go from here?they will not change their minds.however they have said if i feel i cannot cope they will let me have him re-referred!!!!!I AM SO MAD.i mean what about the anger managment they promised him?i cant restrain him now,what will it be like when he is 15?what about the counselling they offered him?the parental support? so the moral of all this is dont tell them when things are going well at home,because in a puff of smoke they take everything away.