LKU

Thanks Blue. Glad you've cleared that up for me. What can I worry about now, hmmm............

Hi mother in need, please don't let me influence your decision. I too have consented to the test. My thinking was, why would they even consider testing for this when as far as I can see there is usually a degree of learning disability? Maybe there is a percentage of people with fragile x that are within normal iq. Everything I read on the subject (which wasn't a lot) suggested quite severe disability though. I'm definitely not an expert in these things far from it. I hope your child is ok when the blood is taken, my boy won't be happy about it either. At least we'll be able to rule it out as a cause and probably help with research at the same time. <'>

I still get confused by questions like that, and I am supposed to be nt!!!!

Hi all, as my son is going to be tested for this I have looked it up and it seems to me that most likely you would be quite severely mentally handicapped to have it. I realise that this is quite a routine test and is there to rule out a definite cause of autism, my question is this, why would they do this on my son when he clearly has no learning difficulties and is very bright? Any thoughts on this anyone?

Everybody who meets my son always comment on his eyes, this has been since he was tiny. They're very big with extremely long eye lashes. I once read somewhere that autistic kids tend to have this feature along with coarse hair and rough bumpy skin on the back of the upper arms. I have never heard or read this anywhere since, so not sure if there's any truth in it.

Hi mom on a mission, have pm'd you. You're right, waiting for the result is horrible, I'm dying to know, guess i'll just have to be patient. Last night I was thinking oh my god, I don't want him to have asd, it's strange really as I have been trying to get the dx for years now. I guess I must have been panicking or something. Will let you know the result as soon as I find out.

We had our 3hr formal diagnosis appointment today at the child development centre. I was quite surprised to be told when I arrived that I didn't need ds with me So he had to sit there all that time while the consultant questioned me using some kind of diagnostic scale (don't know which one he used). He did the usual thing of asking about every detail since birth. I think it went well. He seemed certain that ds has aspergers but has to tally up the scores on the scale before he can diagnose. He has promised to have the findings delivered to me by next week. He has also referred ds for fragile x testing. He seemed very clued up about the battles that us parents are facing when it comes to dx, education issues etc.

Hi, Tylers mum Sorry I didn't respond sooner, I have only just seen your post. Anyway good luck with your story. <'>

I'm in Staffordshire.

OMG!!! has anyone read take a break this week? There is a story in there that is so sad. If the names were changed it could have been about me, well at least till it got to the bit about the AT RISK REGISTER and obviously not the end bit. These so called professionals should be hung, drawn and quartered, it's outrageous what they put us through. God, If I take the next step in my fight for my childrens rights (taking my other son out of school) I could be labelled a child abuser.My story so far has been identical to the one in tab. ok, rant over.

Thanks zemanski, great advice, I'll definitely ask the consultant for a letter if we get the dx. I wouldn't have thought of it myself (until it was too late of course!). My LEA so far do seem to be quite reasonable, fingers crossed they'll stay that way.

My son can't tie his laces properly and he is nearly 9. I don't know if this is to do with asd or not.

I believe that you love someone for who they are and having aspergers is just a way of being. I think if someone is displaying traits that you don't like, you should consider ending the relationship as people don't easily change and more so if they have an asd. I hope I haven't offended anyone this is just my opinion. My reasons are based on my parents 35 yr marriage, they are still together, but shouldn't be.

I voted other. J's favourite, since forever has been tuna mayonaise sandwiches. But he won't eat it if he can see the mayo, you have to mix it really well.Strangely he will not eat tuna any other way. His other all time favourites are yorkshire puddings and bacon.(not together). He hates sausages.

The following is a small section copied from the proposed statement: This is a Band F statement. This is equivalent to approximately 10 hours per week teaching assistant support or approximately 4 and a half hours per week additional specialist teaching support or a combination of both. This support could be provided either on an individual basis or in small group situation. The nature and organisation of this additional help will be set out in an IEP prepared by the school following consultation with parents. J will also continue to benefit from provision made available through the school's own special needs arrangements. Ongoing support, advice, and involvement of the learning support teacher and other relevant members of the support services. Have they overlooked the fact that my child is no longer in school? How can anything be ongoing or continued when he isn't getting any of this? Any thoughts or advice about the above would be appreciated, I can't decide if the above is good, bad or just a fob off. Boy am I confused!!!!! LKS I thought my user name had been changed then I realised you had posted. good job I realised I was just about to post asking why my user name had been changed!! Doh!!