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latmaz

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About latmaz

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    Salisbury Hill
  1. thanks j's mum i do still think there are aspergers tendencies and maybe we will talk abot them more at the next assessment and of course we do have the ADOS i guess if its just adhd i am on the wrong forum now but u have all been so much support and help to me i would hate to leave
  2. thanks will take a look at the site u mentioned its not one i have heard of before have been reading up on dietary stuff funnily enough
  3. thanks .. i am still going to let him go for the ADOS asssesment as their are definitely traits of aspergers as well but at least we are getting somewhere. like i said a shame we had to pay for it was worth it as i had to go to the PRU this morning and it was good ammunition with them as well. also can present it to the school that expelled him when we have that hearing onwards and upwards as they say
  4. we bit the bullet and paid for ds to go to for an assessment, amazingly we got into see the specialist today (funny how money works isnt it!!!) anyways the dr verbally gave us a diagnosi of ADHD, he said i am not seeing aspergers but i am most definitely seeing ADHD, hes a textbook case. we are to have one more meeting then hes going to write his formal report so YAAAY we have a diagnosis BUT <sob> we have a diagnosis. the sense of relief that i have not been imagining things all these years makes me feel validated but on the other hand its never going to be a great day when your child is diagnosed with something ds was an absolute star today saying whats going on in his head and explaining as best he couldl i was SOO proud of him and told him so but of course this doesnt mean anything to him so we took him out for dinner to demonstrate it sooo now we begin the next stage of this
  5. latmaz

    what next??!!

    spoke to the ADOS assessment people and they are quoting 18 weeks before he can be seen! i almost burst into tears there and then on the phone also went drs this morning who has tried to refer us 3 times. first he was told 'school have to refer', then the 'patient does not fit criteria', then that it has to come from TASCC (who are disbanded anyways now). he is as frustrated as us but for some reason in our area he just cannot refer, he has offered to write again but we dont hold out much hope. we know this is true cos he has shown us all the letters he has received back so we are not getting the run around from him am now thinking maybe i should consider paying for a private assessment to speed things along. does anyone have any recommendations for essex/london/suffolk area? the ex is insisting on taking ds to a hypnotherapist which at this point i think is not a good idea as we dont know what we are dealing with so i need to get some dx FAST cos hes back to refusing to belive there is any problem and its all in ds 'head'
  6. latmaz

    what next??!!

    thankyou both for your further comments, sorry i didnt realise they were here as i didnt get notification and have been very busy over easter have tried to speak to ACE a few times but constantly get sorry all advisors are busy etc. YOT put an EWO onto us who was very helpful and also felt that our appeal has a good chance of being successful so we are pursuing that altho he may not go back to that school even if we win unless they put something in place to meet his needs. i have spent all day doing a timeline showing where they constantly have not followed up their own suggestions. in fact by the time i finished it made me realise even more how let down we were regarding the bite we still dont know how this came about as we havent had a statement from the school. it may well be that the maths teacher (whose attitude i complained about) grabbed ds aggressively and lets be honest who wouldnt fight back he has been twice t othe PRU for a couple hours each time and they are hopefully going to offer some more hours after easter have contacted the ADOS people but have not had a reply but thats on my list to chase tomorrow too. the YOT are also pressing for this to be done sooner (as is my MP!) its been extremely stressful lately not helped by the ex hub and his unhelpful attitude but its nice to have the support of everyone here hope everyone has a lovely easter break x
  7. latmaz

    what next??!!

    no he dosent get DLA something i hadnt even thought of applying for. i guess up til now i always thought we needed a diagnosis before we could do anything but thanks to everyones input here i realise that is not the case as far as whether they have ASD specialist i am not sure of this at the moment as only had a quick visit yesterday. as usual ds presented well and everyone was thinking umm how come this kid is here - am still trying to explain to ds that he must say what is in his head not what he thinks everyone wants him to say but its a slow process dont think the planned move route is being considered in this case tho it was mentioned at one point. i guess this will have to await the outcome of our appeal jsmum when i spoke to the youth offending team i was told that an awful lot of the youths they seen in 'prisons' are on the austistic spectrum but have been let down by the system - its sad isnt it but also highlights how we have to keep fighting for our kids, sadly some kids dont have parents that fight for them and get lost
  8. latmaz

    what next??!!

    an update we went along to the pupil referral unit today who have said they have to conisder whether they can offer him a place in light of what occurred. so far ds is going tom and wed from 1-3 for assessments and integration, depending on how that goes they will let me know if he can go and how long for have notified school of appeal and a few people have said they think we have a case but we shall see have contacted all the people mentioned in this thread some of whom have been very useful thankfully thanks again all no doubt there will be another update after easter
  9. and i used to think it was just me i got so skilled with the clippers that i could do his hair in about 5 passes!! i used the bribery method too i am afraid, just gave him a bag of sweets and he had 1 for each pass of the clippers. i also did it outside and immediately i finished he jumped in the bath and i had to wash all the hair off or he scratched himself raw now ds is older he will go to the barbers BUT we have a haircutting shirt cos once hes had his haircut in a shirt he will not wear it out again no matter how many times i wash it
  10. latmaz

    what next??!!

    as far as biting the teacher my understanding is that as he was throwing things around the teacher restrained him physically and thats when he bit him am making notes from all your comments to assist me on monday when i ring various people thank goodness u are all so knowledgeable and willing to help others, i would be lost otherwise
  11. latmaz

    what next??!!

    yes its permanent will ring ACE on monday to get the pack u suggested their website is very useful because he has no formal diagnosis he is not treated as having an SEN which sort of makes things more difficult regarding that. my argument will be tho (as u say) that it was cos of an unmet SEN. iuseful to know that any appeal we do will go on his record as that could be useful in years to come when trying for a school/college etc my ex husband has said he doesnt want to appeal so i have to persuade him to go along with this as he has joint parental custody will also look into the process u mentioned with the LEA on monday my phone list is getting longer by the day!! x
  12. latmaz

    what next??!!

    thanks everyone for the suggestions thanks Jsmum have asked the youth justice lady to progress it but (typically) she is now on holiday til 6th april and i missed a call from her today whilst i was out. GP has chased the referral but will ask him again in light of the expulsion which he doesnt know about as yet sally thanks will ask about autism outreach like u i thought he needed a diagnosis first so its useful to know i can talk to them anyways. have looked at the ACE website and took notes from there. believe it or not but despite that all that has happened he isnt even on action plus let alone anything else, no behaviour support nothing. not even the SEN involved. an EP saw him approx 2 weeks ago at school but have had no report back from her as yet so no idea how that went not even sure if an appeal is worth it as apparently its very rare for them to be overturned especially as there was violence involved (he bit a teacher) tho it does seem the fact that the school has not given even behaviour support after the last outburst at christmas does question their part in this need to gird my loins and start phoning everyone AGAIN!!! tonight tho i think its vodka and chocolate <sigh> thankyou all for your support and suggestions
  13. latmaz

    what next??!!

    well following on our from our previous meltdown where ds ended up arrested he has since had another at school which has resulted in him being expelled it was in the maths class which has been out of control for some time and about which i have complained a number of times. ds has shown improvement in every class except this one and in fact i complained about the teachers confrontational attitude to the head just 10days before this all happened!! we have a referral for an ADOS assessment but apparently that could take 3months!! we had a meet with the youth offending officer who felt ds showed all the signs of having an ASD and said she would try and hurry up the ADOS anyone else been down this road and has any advice as to what happens next and any suggestions? i am at my wits end and i dont know how u all cope thanks
  14. having just had to get a solicitor for my son i was told that as he was under 18 he would get free legal advice whatever... course this was for criminal proceedings and i am not sure if this is the same for all matters hth
  15. HALLELUJAH!!!!!!!!!! just had a phone call from my dr who apparently had a bit of a go at the CAHMS people. the guy has said he WILL now refer ds and will contact me this week for another appointment i burst into tears. i know this isnt a diagnosis but after all these years we have a referral so thats a start isnt it? anyways advice/suggestions as to what to ask, tell, do, explain etc for this. do i write a list of his behaviours i think point to ASD or is that not a good idea? do i get Ds to write anything? etc etc also any advice on what to expect would be good thanks in advance
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