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Pippin

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About Pippin

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  1. Waiting is probably the best thing to do if you aren't worried. But if you are, then ask for her to be referred for a hospital eye test. They have huge experience with disabled kids and are able to assess vision with very little response from young or disabled children. Your Optometrist or GP should be able to refer you.
  2. Pippin

    How many LSAs?

    Just a quick note to fill you in on progress. We sent in our views that the number of LSAs was too high and that he needed more literacy support. The review was this morning and the SENCO (who was chairing it) dived straight in with his new timetable.... LSAs down from 11 to 5 ! and a promise to concentrate on his writing skills and refer him for more OT input. Fingers crossed, buit it sounds like a result!
  3. Pippin

    How many LSAs?

    Hi Bettyhen, P cant tell one LSA from another really. We'd never have known there were so many if we hadnt asked for a list. I think my main concern is how effective they can be if they only see him once in a blue moon rather than how he reacts to them. I think I'm quite relieved to hear others AREN'T in the same boat so I have more ammunition. Pippin
  4. Pippin

    How many LSAs?

    Hi all, I replied yesterday but it doesnt seem to be here. Thanks for all the advice...especially about keeping calm. I'm writing up a reply for his annual review in a couple of weeks so will try to put it in there so that all the officials see it in writing. I can certainly identify with some of your replies, especially about him not recognisisng his LSAs. I'll post back when the meeting has happened thanks
  5. Pippin

    How many LSAs?

    Hi all, I havent been around for a while but feel able to pop my head back over the parapet again...Waves! A quick Q for those of you with kiddies in mainstream. P is in year 8 now and the school have changed to a 2 week timetable, which he is just about coping with. I was getting confused as to who his LSAs were this year (he had 4 different ones last year at any one time). The school have sent me a list of who he has, and when....He has 11 (yes, ELEVEN) different LSAs this year over each fortnight period. No wonder the poor sod is confused. Would you be just a tad miffed with this? We have a review in 2 weeks and I'm going in with guns blazing! Am I over-reacting? Pippin (waves again!)
  6. Our son's paed recommended melatonin before it was available at all in this country. She told us to order it from the web. It is still available by this route and we still do that. Also, if you happen to have any friends or relis in the USA, it can be got over the counter there.
  7. Pippin

    Ta Ta

    Hi all, just logging in quickly to wave goodbye. As many others have, I now feel it's time to move on. P is progressing very well (long may it continue) and I feel we've not got as much to give or get from the board anymore. Thanks so much for all the help and advice over the last few years and good luck to you all. Pippin
  8. I'm sorry, Ian, but I am also an Optometrist and I'm getting increasingly annoyed at some of your comments regarding care of patients. To say that the use of eye drops is rarely necessary and to insinuate that their use is abusive is very insulting, and entirely untrue. I, and most practitioners I know, would never ever do anything to a patient without their co-operation or without a need for that action. Neither is it the case that we "often" use eye drops in children. We use them if, and when, the situation calls for their use. ....In hospital practice I used them more often, in high street practice, very rarely....all due to the types of patients and conditions I was dealing with. Most of us would, honestly, answer your first 2 questions by saying that it is not their field of expertise. Please stop putting us down over this. If I went to my GP with something which was outside his experience I would be pleased to be referred on by him, I would not consider him inferior because he was not a specialist. Most Optometrists are "general practitioners" too. Referral by your own Optometrist to a specialist in visual processing is a far better way to go than walking out of the shop. ....Isnt it better to work together?? The answer to your third question is easy........An examination takes as long as that person requires. I dont chuck people out after 20 minutes just cos their time is up!! I agree absolutely that a standard NHS eye test is of limited help in dealing with particular processing problems in people with ASD's (I do have one, remember) but that is not its purpose, and neither is that the Optometrist's fault. It is, however, a good starting point. Pippin climbs down off her high horse and goes to drink her milk!!
  9. Hope it's going well Karen. We're in the same boat today....P went off on the school bus with his sisters this morning....we dont even know who his LSA is yet so I'm chewing my fingers til hometime.
  10. Tell me about it! P's came back with him after his last day and was so glowing I'm sure his school next year will expect him to have no problems at all. A classic example was "needs encouragement to proof read for simple errors", when, in fact, he has scored only 2/15 in nearly every spelling test this year. He's been classified as dyslexic but the teacher didnt believe it!!
  11. Hi Cariad, you really are going through ######, aren't you! I cant believe what the school have done to you all, never mind the LEA. Have you involved any polititians in this yet? MP, AM, MEP or councillors??? (or all of them??) I know the police case has your hands tied in many ways but polititians are often quite useful in shifting immovable objects. It seems the only thing to do in these cases is to be a loud pain in the bum to all concerned and keep yelling. Make it so they'll do anything to get you off their backs. God, I wish it wasnt like this!! Ask them to look at the units in Swansea, One has boarding facilities and does take loads of kids from out of the area. It's only just over an hour commute anyway (My Dad did it for 7 years when we lived in Cardiff (- and that was before the M4 was there). Good luck, and let us know how things are going. Pippin
  12. We had a moan to school last year about this and they swore they didnt get a cut, but it's clearly , as was previously so well put, "vanity publishing". These books will never be out there for the general public to buy, and the quality of the printing and binding is not good in the ones I've seen.
  13. The problem here is that children with mitochondrial disease regress anyway. What has not been shown is any proof that there was anything other than a coincidental link with the timing of MMR and that regression. Many cases are conceded, especially in the USA without much proof as a cheaper option than continuing through the courts. I must say here that, although I tend to veer against MMR damage, I do try to keep an open mind. But this particular report, coming as it does from a pro-MMR-damage site, is somewhat biased.
  14. Ooooh, do I dive in here or bite my lip? Hope you realise this could be a fun debate for months!! Ah, heck, why not.......here goes. Firstly, no I would never say a peanut killed anyone (unless they choked on it), I would say a peanut allergy killed him. Secondly, just because the US courts rule on something, it doesnt necessarily make it true....after all, according to the American justice system OJ didnt kill his wife and Dubya fairly won a second term. Bring on the Gladiators..... ....Pippin runs off to hide......
  15. Hope the coffee has worked !!! I've just been thinking through the strategies we use (cos I'm an utter wimp and hate facing other parents!!). Our luckiest is that P goes to a rural school with no safe walking route, so the council bus all the children in, even if they live fairly close. Thus I havent had to face other parents in years and take all problems (and there are lots!!) straight to the school. The bus escort is also fantastic and keeps all the little horrors in line on the bus. Its not ideal but it does help. Is there any way of picking him up a bit earlier or later than the general chuckout time, and thus avoiding flashpoints? The other thing I learned...the hard way....is never to discuss the school day until we are all in the house. Nothing can then be overheard and we can all rant as much as we like. The school are pretty ###### with bullying, but at least we can take one step back from the school gate. hope that helps Pippin
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