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tizzmeclare

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Everything posted by tizzmeclare

  1. Hi guys, I don't know if its part of the CEA - card scheme, but Oden Cinema's are offering a disability card that entitles a person with a disability to take a carer free... They have to be over 3 years of age and be currently recieving DLA. Forms are available in cinema's...or so they say on their little advertising cards that I picked up at my local cinema last week! ttfn, Tizz.
  2. Hi Guys, Well I got Asa's report back today from the ARU at Sunderland and they recomend both a gluten free diet and casien free diet ( but to test the casien free diet for 4-5 weeks) as there was an anomalie on the casien results. I did mention it to the GP ( thanks very much for that advice) and it went better than i expected! he offered to provide the gluten free diet on perscription if the resluts came back that he needed it....and I've got an appointment tomorrow, so its off to see if he keeps to his word! I've also ordered some eye Q from the chemists and I'm going to start him on those aswell....Has anyone got any suggestions as to weither: 1. Its ok to start the eyeQ at the same time as starting the gluten free diet? 2. Weither its better to graduate the diet or just go for it... thanks again for your advice about involving the Doctor, that was a great help. Regards, tizz.
  3. Hi Baddad, Thanks for the warm welcome to the forum and for the advice about getting the test. I will mention it to the GP, but tell them that I've already emailed the ARU to request the urine analysis. Thanks, tizz
  4. Hi Desperate, I'm only new on this site, but sending out a big hug anyway. My son is much younger, but has had many temporary exclusions, the last one was for...hitting a girls face with the cuff of his sweatshirt ( no bodily contact), it seems that AS scares the living daylights out of the staff at my son's school. I did deregister my son for 18 months and educated him at home. This worked well but he got zero contact with his peers. I feel that its like being stuck between a rock and a hard place. The stress of getting and maintaing an education for my son is overwhelming at times! Anyway what I wanted to say was, have a wonderful large glass of wine, kick your shoes off, pop on you fav film or cd and try to forget the stress of it all, at least for a few hours. Warmest wishes, tizz
  5. Hi Denise, I was just wondering, where did you send off to for the test? I think my son, has some nutritional intolerances and have just sent an email to the ARU at Sunderland Univeristy to request an Urinary Analysis. I have no idea how long they take to respond to an email, so I'll just have to wait. Does anyone know how much the urinary test at Sunderland costs...or if there are other places I can get the test done. I do have an appointment with the GP comming up, but with so many other issues I need to raise, I don't think they will refer me to all the specialists / tests that he needs ( this is the first appointment since Asa was given the AS dx) and at least it something I can be doing for myself....feeling pretty useless at the mo. Regards, tizz
  6. Hi Nellie Thanks for the link, it certainly made interesting reading! I'm going to do a little research on Melatonin and ask the GP about it at Asa's next appointment on Wednesday...along with the many other things I need to ask about...oh they will be happy! Regards, tizz
  7. Hi, My son suffers awfully from lack of sleep, he can't get to sleep and once he does, he wakes nearly every night at least 2/3 times! I haven't tried the lavender smellies, as like Elaine 1, my son can't handle any strong smell. The only thing that I've found that at least keeps bedtime quiet (avoiding a meltdown) is rountine! I think that becuase we have been living with this problem for so many years, I've forgotten how 'unnormal' it is! Has anyone got any other suggestions for 'remedies' that they have found useful in getting their darlings off to the land of nod? or asked the doctor for help...this is something I've not felt comfortable in doing ( using drugs) and would love to hear others view on. regards, tizz
  8. Thank you both for the warm welcome. I've spent most of the day wondering around the forum boards and have shed tears and smiles as I've come across so many postings that echo my family's own life! I just didn't know there were so many people out there going through similar things to myself! It feels like at least some of the stress / worry I carry constantly has begun to lift. Many, Many thanks, tizz
  9. Hi everyone, My son is 9 years old and was finally diagnosed with AS 3 weeks ago. My husband and I have always known that he was "different" since he was very little, but it has been a very long road to get were we are today! We have been sent from piliar to post with a 'lets see what happens' attitude by the proffesionals around us and have gone through so many emtions, that it would be impossible to list them. My real worries now include: dealing with the guilt I feel for not pushing his diagnosis quicker, not researching what his problems were sooner, worrying about weither his statement is going to be successful (it has only just been initiated), his education needs( he only gets 3 hours a day at school)....oh the list is endless! My biggest wish, is too find a friend for my son. Since starting school, he has never been invited to one party or to play with another child and I feel so sad for him, as he is a wonderful, happy, friendly boy (who just happens to flap his arms and spin around alot). I feel so inadequate, not knowing what services and help are available for my son, I feel like I have failed him. Does anyone else feel like this? Sorry I've woffled on too long... Regards, tizz
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