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Everything posted by tizzmeclare

  1. Hi Guys, Sorry I forgot to ask, does anyone recomend that I still write to the LEA about my concerns as well as the school informing them about the emergancy review? or should I leave it too the school? tizz. p.s I got A to write his own statement about school this morning and it makes very, very sad reading. I don't know if it will help, but I going to take copies of it too the meeting.
  2. Hi Guys, Well the letter arrived this morning to inform me that a "combined pastoral support meeting and an emergency annual review" is going to take place next week. This is probably going to sound like I'm completely dumb, but I'm not sure about how this works...is anyone able to shed some light on it for me? ok, so we have the meeting, then what??????????? does that mean that the suggestion of A going to a special needs school is recomended to the LEA and then they decide if they will carry it out or not as the case maybe???? Because if everyone is saying that he shouldn't be in mainstream school, how can the LEA not provide A with a special needs placement???? And who the hell do all the multi-proffessional team work for?????????? people at the meeting will include: Behaviour support, Educational Psychologist, recent Dr report and outreach teacher from austic school? because if they work for the LEA, who the hell sits on the panel that does decide??????????? totally confussed, tizz
  3. ohh bless we had to change hairdressers after my son, told the last one that she looked awful!!!! tizz
  4. Current NAS member, but as I've never asked for support, I can't say either way!... Oh hang on a minute, I've just remembered, I did ask about attending one of there, you've just been dx sessions and never heard anything! tizz
  5. Hope Henry is back walking with the living soon...bless
  6. Hi Jenny, My daughter is 5 with no dx, but our 9 year old son has AS and statemented. Our daughter shows many traits of AS, but is coping so well, we are not going to push for a dx at present. Well what I was going to say was. Our daughter was totally transfixed with one boy for the whole of last year to the total exculsion of others!... The boy is small for his age and very quiet(just like her!). She spent all her time talking about him, writing to him and asking him round to play! Although, I don't think it caused any harm, my husband and I decided that we really ought to widen her group of friends to above 1... This year, we began to invite other children round to play, we started with one girl. Our daughter was not that impressed...but we kept it up and low and behold its working, she will now play and look forward to seeing and playing with the girl. We also had a halloween party, so she had to invite other children. she still wants to mainly play with the particular little boy, but at least she's got others to talk and play with now. Although, I don't mind her only wanting to play with one person, I feel that later on this could lead to her being isolated from the whole peer group,and that by widening her group of friends, this shouldn't happen! I think, if you want to widen her group of friends, you are going to have to be active in bringing it about! Regards, tizz
  7. Hi Guys, Thanks for the advice.... A went back to school, only to get excluded again...this time for 2 weeks..ah, ah, ahhhhhhhhhh The head has called for an emergancy review, I'm not yet aware if thats been sucessful? I'm sure I will hear soon. Thanks for the advice mossgrove...I've got a few prospective's back and we are off to visit the first one next week! The only problem I feel now, is that the two most appropriate schools are so far away! We went to see the doctor, who is going to write and express her thoughts about A going to a special school and is also going to re-refere A back to the consultant, as she said her voice has more clout with the LEA! For now at least, A, is happily sitting in his bedroom in his underpants not wanting to ever go back to school! ranting over....tizz
  8. Hi Guys, I've just started using Epsom Salts in A's bath and I was wondering if any of you have had any luck with it, in helping them get off to sleep? I've only used it once, as I don't want to use it all the time - as I'm not sure how often you should add it to the bath? I actually bought it a month or so ago, but put off using it. A did actually go off to sleep that night, and slept through, which is amazing! but as he has been up so much on previous nights, I'm not sure if it was the salts that helped or if it was just shere tiredness! Any idea's or knowledge welcome! regards, tizz
  9. Hi Puffin, A is nine- We've talked to him several times about friends and if he would like some... and the answer has always been mixed. sometimes he seems desperate to have friends ( especially as his older brothers - non AS- have loads!) and at other times he just says - he's doesn't mind!. His first experience of having a friend in year one, went awfully wrong, with the parents demanding that A is kept away from their child! it resulted in us taking A out of school and homeschooling for a couple of years. He's been back in school since year 3 ( he's now in year 5) and has just got his frist (well i suppose you could say second) friend. A is very happy to have his new friend, but as I watch them, I can see that A is not making any eye contact and the interaction is limited, so I guess I will just have to wait and see if it does develop. Regards, tizz
  10. thanks you two! Just wanted to add ( thought Puffin might be intrested) that when I asked A why he wouldn't do what was asked of him, he replied... " I don't know them mum...so that means there strangers...so i musn't do what they say!" Makes sense to him... oh, I supose one day I'll laugh about this!
  11. Hi Guys, Sorry I've not been around for a few weeks, things just seem to go from bad to worse! A started the term with his first statement in place - a whole 20 hours of support + all the other bits, which I thought was going to be great! Ha Ha Ha, how wrong can someone be! He has already been excluded! for a whole week. It was for not being under the control of any adult! he just wouldn't do what anyone asked...and then someone touched him, so off he went into melt down and I was called to collect him. He is now sitting happily in his bedroom in his underpants ( clothes off - he thinks its heaven) and the SENCO told me that she has been ringing round everyone concerned as they just can't cope with him and he shouldn't be in mainstream.... What I wanted to know is...if they decide he has to go to a special needs school, will he continue at his mainstream school till a place is found, or we he stay at home with me? Sorry for the poor little me posting. Regards to all, tizz p.s its not all bad news... he has a friend!
  12. Hi Nikrix Welcome to the forum! there's some wonderful people on here with some great idea's and best of all great listening skills! <'> I've not been around for a few weeks, but I'm back now, so hope to catch up with you around the boards. ttfn, tizz
  13. Hi Hev, I know how hard it is to watch as our children go on year after year without having any friends... But i just wanted to say, you never know whats round the corner...after one friendship that ended just awfully...4 years later and A has a friend!!! Its only at its beginings, but hey thats a start! So I just wanted to say, never give up thinking it can't happen Regards, tizz
  14. Hi Flutter, Glad to see you back posting on the forum I hope you all have a wonderfully stress free summer holiday, it sounds like you need a rest and that the GP meeting provides you will something concrete to go on. tizz
  15. This really is an excellent idea - I'm going to add ICE contacts to my mobile and my husbands and the kids!
  16. Hi phasmid, I've filled in the survey, hope its ok. As our sons statement has only just arrived it was sort of hard for me to judge how good the provision is going to be now...but if you have any questions about what I wrote, please feel free to email me and I can answer more fully (hopefully). Tizz.
  17. Hi darky, My son aged 9 with AS is also immensely gross motor clumsy. One reports stated, he's got "a gangerly gait". We asked the GP to refer him, but he suggested we try the the other professional first for a referal....round and round we go... tizz.
  18. I'm still dithering on this one, my heart says its an awful thing to do to a child in a mainstream school, but so many of you have found it to be a postive experience. I'm going to bring it up with the SENco at the next meeting. They have to arrange one within 2 months according to the newly arrived statement...lets see.... tizz
  19. Hi Sparkle, Welcome to the forum. My son aged 9 also detests any kind of guidence at home or school and often it results in a meltdown. We have found, that even though its very hard sometimes not to intervene, that leaving him to discover his own way of doing things is better for his self esteem, as just as Nelli has experienced, our son reacts to guidence as criticism. For our son at least, guidence only seems to hinder the course of his learning. Of course this holding back of guidence can only be used in situations like learning, as when its essential we do intervene ( then suffer the consequences of his meltdown and reach for a large glass of red wine ) Look forward to catching up with you around the forum. Regards, tizz
  20. Hi Jools, I know just how your feeling, my son was 9 before we finally got a diagnosis of AS, even though his traits are so bad and have been since he was around 2 and a half. I just felt so Bl***y responsible for not pushing things faster in the last couple of years since he's been in school (home educated since y1 - school didn't work) and so angry with the school, when finally they did start to do something. I felt that so much time had been wasted, when I and the school, e.t.c could have been doing something. Anyway what I wanted to say was, Carer Quie and baddad are absolutely right, don't get negative, but use that energy as a positive force. tizz
  21. Hi Carol, Sorry to hear you've had such a hard start to the holidays. I've not got any advice, I just wanted to say...hang in there and send you a big <'> . Is there anyone you can get to help you with the boys? maybe take one or two of them off your hands for a few days? and give you and the boys a bit of a break. Actually I was surprised they had broken up already, mine don't break up for another two weeks yet. I guess its different all around the country. Hope things calm down for you, ttfn, tizz
  22. Hi Viper, Thats great news glad to hear he had a great time and even liked his new teacher. I hope his enthusiasm lasts long enough into September and beyond for you to get him settled. tizz
  23. Hi Canopus, I believe you would have to sit the child as an external candidate. There are centres around the country which cater for external exam entrants who are under 16. I know there is one in Eseex, but I can't remember the name. The LEA or the organization ' Education Otherwise' would be able to help with answering this question. hope that helps, tizz
  24. Hi Emum, Welcome to the forum. I am afraid, like lorry, I don't have any experience of this behaviour, I just wanted to say hi. Just a thought, moving on with Lorry's idea, if you did get some books from either a charity shop or jumble sale (so it doesn't matter if they get torn) you could put some of them in your son's room, for her to rip. I know this idea doesn't stop the behaviour, but at least it might save a few of your son's books. Oh, one more thought - how about a small lock at the top of your son's bedroom door? These are probably things you have already tried, so sorry if I've gone over old ground. There are some very knowledgable people here in the forum, with so much experience between them, someone is sure to read your post and offer you some sound advice, or at the very least gone through something similar and let you know that your not alone. Best wishes, hope to see you around the forum, tizz
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