ryansmum2

hi there, my son has Aspergers and Severe Dyslexia, he started secondary school in Sept 20011 , he has a 'note in lieu' , but things have gone from bad to worse for him ... he has developed a severe case of school phobia - vomitting , insomnia , severe anxiety ect ( mainly due to 1 subject - French , and is stuggling very baddly with 4 other subjects) but seems to be coping ok'ish with maths / science / geog / tech im a bit rusty on where to start (due to ill health myself), basically i think i need to try to get him Statemented do i ask for a re-assesment 1st , or do i ask for a Statement ? the 'note in lieu' has about 5 months remaining on it, befor a review. many thanks for your help in advance , mel xx

thank you both fot your help / advice / and time , best wishes mel xx

DEAR ALL, PLEASE can u help me ... i think i am being 'fobbed off' by high school and EDUCATINAL PYCOLOGIST ... BASICALLY MY SON HAS BEEN ON sen rEGISTAR SINE THE AGE OF 7YRS OLD, and has always had regular Re-Assesments by hus edsyc (last one in june 2011, in preperation for high school) as it was boarder line as to wether he sould be placd in SEN Class, or mainstream... everyone decided he should try mainstream, and if problems began, that he would the go into the sen class. anyway, as i predicted , the problems have been HUGE ... sever shcool phobia , insomnia, vomitting before school, severe anxiety ... the list is endless we have as parents ad many meetings with the school , thry keep telling us things will be put into place , one eg, is that they promised before xmas 1 to 1 support for french ... jan, no 1 to 1 maade phone call to sen teacher, she promised FAITHFULLY , that 1 to 1 would be there at the next lesson ... NO IT WASNT ! Anyway , i though , right , i'll go staight to the LEA and contact his edsyc, who told me ''he could do nothing untilp l , my son had been re-referred to the service and this could take weeks or months untill my son could be seen'' he told me this was because my son had changed schools - he started secondry school , not moved out of the area or anything like that , in fact the high schoo is next door to the high school ! sould the 're-refferal' if it is 'true' , should it of been done before leaving primary , or should the high school of done it back in september when he started ? im so confused , and feel like everyone is 'fobbing me off' please can anyone help? thanks so much , mel xx

[/size] Hi there - yes I had EXACTLY the same thing happen in our shcool, not with my AS Son but with my daughter (who's extremely good at writing/english ect) NOT that , that changes anything - basically we were still CONNED !!! The book we had to pay for was about £18 After we'ed paid the money for the 'special /unique book' we then found out that about 10-15 children out of ALL the classes in the school, had, had their 'poems' printed in this 'special' book - again I WAS CONNED ! I complained to the school about it , as many of the other mothers did - because these people can only get hold of the childrens poems via prior arrangement via the school / teachers - so basically its down to them - there is a web site which explains ALL - www.youngwriters.co.uk if you go to FAQ half way down you'll see THE ONLY mention on the website about the cost to parents - obviously the teachers are not reading through the website properly and I too totally agree with Kateball ... Competition??? I dont think so If we all complained via the www.youngwriters.co.uk 'about us' page maybe they would have to re-think what they are doing to us parents, especially us on low incomes... mel xx

Hi thanks for the Enid - mel xx

hi JsMum so glad to see your back ! thanks so much for that link - i searched but couldnt find anything Duh ! it was just what im looking for - do you (or anyone else!) think that they could help my DS he's 81/2 years ols and has : a DX of aspergers tioleting issues severe lack of concentration '' '' '' motovation only on level 3 reading can hardly write '' '' spell even simple words well below his peers has no friends is certainly depressed shows signs of anxiety severe ballenceand gait issuses toe walks ALL the time makes 'odd' movements 'gigs' back/forth ,up/down talks completey out of context very irritable has huge out-bursts of anger i could go on and on - can they help ? thanks again mel xx

hi all i've heard many of you talking about CAMHS and have just found the website but i dont understand how they can help with Aspergers ? my DS is have real trouble at school (learning and social) and school advised talking to CAMHS, but i can only see them covering England and im in Wales? do wales have a CAMHS or something similar ? and how could they help? id be most grateful for your comments thanks mel xx

THANKS so much - i havent a clue what to write ! mel xx

hi all, please can you help me - im trying to write my 1st letter to the LEA asking for an Assessment, i have filled in - what the problems are / how they effect him etc. but now im stuck with what i need to write to explain ''Why I feel the school can't support my DS ?'' hes had an IEP and been on SA for the past 4 years and SA+ for the past 2 years - but still is so, so behind all the other children in his class. i dont know if anyone can help ? if you can id be ever so grateful many thanks mel xx

hi Both thanks so much for that - i think i will print out this info and show it to the so called 'Senco' she of all people should know all about the rules of an IEP My son has struggles for 4 years now, 1st on SA then SA+ - the shcool has only been giving him a new IEP, ONCE a year - and we have only signed one TWICE ! Thanks so much for the links, mel xx

hi Nicky thanks for that ! yes , i wasnt sure though ,that if the parents think that a Statement is nesscesary , wether we can apply for a Statement before an Assessment ? im so confused ! mel xx

hi all please can you help me - i'm confused as to where to go from here, my son really, really needs so much more help than he's getting (this has been more than confirmed by his teacher) he has 1 to 1 1/2 and hour per shcool day, has DX Aspergers, and has been on SA+ for last 3 years.... do i ask for an Assessment or for him to have a Statement ? do i do the one before the other ? any help / advice would be great many thanks mel xx

hi all the Senco at my sons shcool informed me that 'we the parents' have nothing to do with the writing up of a new IEP is that right ? i always thought the parents were meant to be informed /help write it/ and sign it for 2 years in a row now we have not been shown the IEP until about 6 months after its been put in place arent they meant to be signed stright away by the parents ?? my son is on School Action Plus and has been since year 1 - he's now in year 4 and the IEP is only getting changed once a year - he is struggling teribbly in every aspect of shcool - he's is mainstream any thoughts ? mel xx

hi I have researched weighted blankets for over 2 years before i started to make them. The feedback i have had from parents, teachers and Ocupational Therapists has been MORE worthwhile me making every single blanket. I have had so many letters and emails thanking me so much, not just for the beautifully made blanket, but most importantly the DIFFERENCE they have seen in their child/ pupil just by using the blanket, The deep pressure the blankets provide calm the child body , which in turn then calm the childs mind ... i.e. if you can calm the twitching . jigging. flicking, jerking , it leaves LESS in the childs brain to ''think about having to do'' i.e. they dont have to twitch, jerk, flick, jig up and down anymore - beacuse the pressure therapy from the blanket has taken away that NEED to keep doing it, therefore they dont have to THINK about doing it anymore ! in turn, this calming of the body enables the brain to calm down also, all the child HAS TO DO now is relax and go to sleep - the relaxing part is taken care of too, again due tho the deep pressure therapy. I hope this helps you understand how weighted blankets work, best wishes mel xx

hi many thanks for your answers - Jsmum, thats for the advice , i will do just that, i'll let you know how i get on thanks mel xx