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viper

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  1. Hi Lucy, good to have another teacher on board , but don't look too closely at the spelling, it's kind of accepted that a lot of us can't Hope we can all help each other out in some way, its always a good place to be for comfort, support or just to have fun. Wez
  2. Very interesting. I still don't know wheter to have Kian vacinated, I have this fear it may make him worse than he is and we would lose the bright gifted child we have, but on the other hand do I want him to catch some dreadful disease and have to deal with those consequences. Oh the joys of parenthood. Wendy.
  3. Hi Josh, <'> My daughter posts here, she also has AS. She is 13 yrs and posts under the name Dodobird. I hope you find things you need to know and any questions you have will be answered here I'm sure. Welcome to the world of ASD its a wonderful place to be. Wendy.
  4. Hi Kaz, I do realise I have lost my computer, not only to Jodie but my 16 year old Jennifer and my 9 year old Abigail also want to join us, I think I've created a monster or three. Thanks to everyone for welcoming her here. Wendy.
  5. Hi Gita, hope you find us a help, or even somewhere to express your feelings as lots of us do. Wendy.
  6. Hi, My daughter Jodie was getting benefits for two years then we had to fill those darned forms in again and were refused. We apealled saying someone with ASD does not get better but we were still refused. Something is very wrong somewhere. Wez
  7.  viper

    DLA

    Hi, I was getting bennifits for Jodie For 2 years, then we had to be reassesed (every 2 years) and they have refused all benifits as Jodie's school was asked about her and they said she has "age appropriate behaviour". We have appealed pointing out that someone with aspergers does not get better, it is not like chicken pox that clears up. We have to wait 11 weeks for the result. And those forms are a nightmare to fill in. You get the same one every 2 years which is stupid as nothing changes, we had an awful job trying to reword what we wrote last time.
  8. Hi Lisajb, I think we all fell like you at times, when I get like that I tell myself it's all about numbers, if the majority of people had AS then they would look at us and try to find a reason why we are different, there is nothing wrong with being different, everyone is different and with the right support we can all achieve our own idea of happiness. Don't beat yourself up about it you created a wonderful human being, well done. Wez.
  9. Hi Tyraelie. Jodie dosn't have a statement but the school is aware of her AS not that they help her much, they think she has " age appropriate behaviour" or as one teacher put it "no different from anyone else in her peer group. I asked Jodie today how she was getting on with the work sheets and she said she just copies what her friend writes. I think I will be seeing the school on monday. Wez
  10. Hi everyone. My 12 year old daughter Jodie is sensetive to light. She gets migraines a lot and seems to suffer more at school. We had blue tinted glasses made for her which help a lot but one teacher always gives out work sheets on yellow paper, (she has a diferent colour paper for each year group). Jodie can't cope with the colour, she says all the words run together so she can't see them. She asked the teacher to photo copy it onto white paper and was told to take the sheet home and do it there (extra homework) I solved the problem by putting the sheet into a pink transparent folder. Don't worry I am not rounding up a lynch mob for the teacher I am just interested to find out if anyone else has had this sort of problem with light and colour. Is it a common problem? Wez
  11. Hi I'm Wez or Wendy. I have already posted but thought I had beter tell you who I am. I am a 38 year old mother of 4 from kent. My children are Jennifer nearly 16, (has dyslexia) Jodie 12 (AS diagnosed at 9) Abigail 9 (psorias, skin condition) and my only boy Kian 3 (AS undiagnosed). I married my partner of 16 years on October 11th this year with our son playing the part of Camilla Parker Boles(spelt wrong?) he never left my side through the whole ceromony and kept asking for Jelly tots (my dress had tiny beads on that made him think of them) and saying can we go home now. If you have read my postings up to now you can imagine the trouble we had getting him out of the door let alone wearing clothes. My husband is a train driver, also 38 and I am a full time mum. I found this site when I was feeling very low and used a search out of desperation to my relief I found a UK site. Our experiances with AS started When Jodie was born, She entered life screaming and hasn't stoped yet. We felt she hated us and we could do nothing right, as time went on she had strange phobias, grass was like a seething mass of wiggly green things to her and none of the family was allowed to touch it without her screaming hystericaly which made life very hard for Jennifer. At this point I had an idea things were not right but my husband could not accept there was anything wrong (a male pride thing) not untill she reached 9 and was still screaming did he agree with me and we sought help from my health visiter after Kian was born. It all just came out one day when she was checking on Kian and she was wonderful, we had an appointment at a special centre within weeks and a diagnosis followed very soon. Jodies school did not agree with it, her teacher said she was just rude and ignorant, refusing to even speak when asked questions. Her current school say she has 'age appropriate behaviour' but they don't see her when she 'lets go' at home. Now we have Kian a whole new set of problems, he loves me so much it is a problem, I am his world. I love him just as much and even with his problems would not swap him for anything, the same goes for all my children and I am so proud of them all. Well thats me done, you might notice I go on a bit but I have never had anyone to talk to about all this and fell the need to unload onto someone, Sorry. Wez.
  12. My 12 year old daughter was born with AS she had 'odd behaviour' from the start. It may have been triggered by being severly over due with no one addmiting it untill she was born (too late by then the damage may have been done). My son however was the text book baby for the first 5 months then it all went down hill, he developed normally ie. sitting, walking and talking, in fact he could talk very well and still can to the point where he was assesed as being gifted at 2 years old(now 3) The problems we had were he was never happy, crying all the time and as he got older he would self punish, if we said 'no' when he was doing something that may harm him he would slap himself, bang his head on the floor or wall and generally physically abuse himself. My childrens AS is not linked to MMR I am sure, as my daughter was born with it and my son has not had MMR, I don't want to risk losing what my son has ie speach by having him vaccinated untill I can be sure there is no link. Wez
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