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florrie

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Everything posted by florrie

  1. florrie

    florrie

    Thank you, i remembered i had a blood test too and he said they might want me to do further tests before refering me to psychiatrist, to make sure things haven't got a physical origin as my coordination is all up the creek, ( which i assumed was seroxat overdose) but the registrar would make decision about further treatment but i never got to see registar because i got confused and wondered what they were doing, i dont really know i got very stressed and paranoid and now i realise i've blown my chance to get help and i don't know why i did that. I'm begining to wonder if food allergies are making me worse because i am a lot better mentally if i stick to very restricted diet,but then that becomes an obsession too and i believe the more i restict the more i'll improve, and i've eaten gluten and dairy foods recently in the last two months. I'm going to try cutting that all out again. Iknow it doesn't seem to be recognised by medical profession, I don't know why
  2. florrie

    florrie

    I decided to go to A and E my ex partner thought i should, they were very nice but the junior doctor did not think it sounded like typical manic depression, if the last psychiatrist i saw hadn't dx it, and just anxiety, and could not refer me to a psychiatrist as there weren't any he couldn't prescibe the anti convulsant anti depressant meds i believe i need either, but they monitored my heart but I don't know why, which although was racing,rhythm was fine, they were considering admitting me for further tests, but they would of been of a physical nature which i doubt is the problem they admitted me to wait for registrar decision on what to do and ihad been in there 12 hours and felt so stressed i discharged myself. Ken told me to stay and be compliant because otherwise it is more evidence of me a being difficult and just go along with it but i couldn't I was afraid they were going to keep me in overnight i have all my obssession and routines so I just couldn't and i felt so stressed. Ken then screamed abuse at me and said i would have seen a psychiatrist if i'd stayed, but the doctor had already said they didn't have any, so i'm really confused Ijust can't understand why they didn't measure my brain for activity with eeg or send me to psychaitrist I feel really distressed, everything is completely chaotic as i can't cope and MY Gp is on holday until the 20th i have no others I can see i was struck the last practice after sucide attempt when on seroxat and manic behaviour one doctor who i'd never seen but head of practice said i was attempting suicide to harm doctors and this predjudice has followed me, my gp will not accept my asd dx ( iexpect they think i did it to harm doctors) my last gp blocked my referalls to people who would help including my son's psychologist so i couldn't see him any more i felt like thumping him although i wouldn't,my anger is all internallised which is why ifeel so illprobably. some of my problems have arisen becaue i'm under threat of losing benefits and i can't get down to the job centre due to phobia, my dla has run out and my ex partner has been too stressed with my difficulties and work to help and so haven't been able to renew it, and the dx criteria for generlised anxiety disorder is worry about non existent things, which i don't feel my things are non existent. THe seroxat was also considered tohave damaged my brain at the time and i've been left with residual stuff which difficult to pick from asd which i know i had before as ihad hyperlexia although hyperlexia is now considered not an asd but has asd symtpoms. this is really rambly because of all the detail i go into to try and explain things. and also because i was trying to find out things to help but I still feel really unwell. perhaps some people especaily boys with asd externalise there anger with behaviour problems, but if it is internalised it causes more mental health probs but ifeel agitated and frustrated and it is reallly bad and feels awful
  3. florrie

    florrie

    Thank you for replies and advice i will go next week and explain reaction to seroxat and try and explain once more but have felt so unwell can't explain exactly very well. My sister has told me to go to A and E iand get seen that way but my phobia is so bad i t is really making things worse but i know I have to go and try and explain.
  4. florrie

    florrie

    i have been so ill recently, with obsessive manic states and losing track of time and days and not sleeping for days and hyperactive pacing, and because i didn't really know what was happening to me,and am not able to communcate accurately at the time i was struck of several years a go after suicide attempt with seroxat so have been frightened to go again but believed it was because i had asd, which i do also have but that is not what is causing mental health probs, any way my mother and sister came and saw me over xmas and are absolutely convinced i have manic depression due to agitation and rapid flipping from topic to topic in a manic way, sometimes being incoherent, the seroxat made me worse and i 've had seizures ever since my overdose with it and i remember the hospital doctor told ken at the time I would be likely to have some brain damage which is exacerbating problems my short term memory and organisation was affected too and i lost ast least 30 points off my iq as it was 75 on iq test when i was assessed for asd but I went to a grammar school where entry was minimum 110. I don't really know what is happening to me, but i don't think my gp is likely to acknowledge these difficulties, this is a lucid moment where i can write this but things are getting worse, and i'm not able to communcate at all much of the time i wonder if i have got like this because of undx communication problem and stress and trauma that I've tnot been able to cope with but I don't know. i feel exhausted with it all
  5. Hqve you tried dietary recomendations, because I think dietary stuff can be related to a lot of stuf with these kinds of difficulties b particularly gluten and dairy can be implicated,but it vcan be many things as undetected allergies can interfere with neurotransmitter funcition although i know it may be difficult, it would probably be worth giving a go and worth it in the long run if you can stick to it. Donna williams writes about this in the the jumbled jigsaw. I always feel calmer when diet is restricted
  6. florrie

    florrie

    Has anyone experienced seizure or fits with ssri, I went to gp after many years as they don't recognise difficulties of asd, and depression and fears are intolerable and prescribed me seroxat again which i had been on many years ago but came off them due making manic behaviour so bad, I couldn't explain it at the time i just said they were doing me harm but they didn't seem to believeve me so i took them this time when given them i thought oh no but I'll try them again, i felt i had no option this time i had a convulsion so i've stopped, but i am afraid to tell them as I'm so phobic of them due to past experiences
  7. Thanks for info, i was wondering whether there is anything that helps adults as I have some problems labelled as hyperlexia and mixed receptive expressive language disorder, amercan dx affecting my functioning and ability to communcate what i want to. There is some treatment i believe would help but would cost a lot of money bt speech and language pathologists and education psychologistst and involves intensive treatment 4 hours a day for four months
  8. Has anyone had any therapies that help with the pragmatic difficulties associated with semantic pragmatic disorder, I would appreciate any advice and information
  9. My nephew was dx with epilepsy although he had never had an epileptic fit, thrugh brain scan at the same time as dx weth autism. I have had episodes of petit mal, and I think it could be linked to sensory overload or some other explanation, but I think seizures may be linked
  10. i had the ADOS test as part of reserach project at icn and came up as definitely coming up as asd and I thought finally some conclusive proof, although doctors still wouldn't accept it as it is not from them, and then i read in a neuroscience magazine that it was not reliable in adults as other cognitive disorders can mask as autism under this test, so i', so confused again. Still one thing seems certain if there are problems showing with the test then there must be something wrong whatever you want to call it
  11. I just told my ex partner about this topic and he was outraged and said this was bullying and abuse of an autistic person and should be sacked, this sort of behaviour should stop. Can you get yur psycholgist to explain why you need to be signed of work, and explain the difficulties asd causes, or whoever the person is who dx you.
  12. I felt so sorry for you reading this and I felt sick too, because of all my bad experiences with GPs they all seem to be the same, in my experience, I'm absolutely terrified to go to them, it makes my probs worse because of the fear,not one single GP in my practice in the last 10 years has ever even bothered to find out what asd is, and they make thes ridiculous judgemental comments. My ex partner pointed out to me that Asperger syndrome is recognised by the World health organisation as a moderate to severe disabilty not a mild one as many think. I think what you said to the GP was brilliant , I think how your gp responded was like bullying even though they probably don't see it that way themselves. I also had bad reaction to anti depressants i was on seroxat and trying to come off them was evil, and I don't believe they help in the long run, I think they can do harm in the long term, but you don't seem to be allowed to say so, they then say you aren't really depressed even though Ihave terrible depression because Ican't cope and I can't get anything acnknowledged if the difficulties were acknowledge better maybe it would be easier to cope instead of haaving to withdraw out of fear of everything
  13. I mentioned this topic to my ex partner and he pointed out that king charles cavaliers spaniels can be extremely nervous dogs and I felt as an animal lover should add this here as a consideration, it depends on how exhuberant for want of a better word the child with adhd is. Cocker spaniels are much more confident Ihate to put a damper on it but I felt I should add it
  14. I am also biased to cocker spaniels as they have lovely temperments not as active and springer spaniel, very affectionate,love children etc although having said all dogs just like humans have individual temperaments and when you are looking , look for a calm placid dog, and if buying a puppy, it is good to look at temperament of parents, when i chose florrie my cocker spaniel pup, she was the quietest one, and she chose me, and one was hyperactive, and I knew that might cause me difficulties in coping,the mother was delightful and the father was hyperactive so animals can take after the parent too. and perceptions paid off and I have the most delightful dog that everyone especially children adore, and she adores them JUst re read your original post and this time took in that you were looking at king charles spaniel and retrievers, they would also be good choices., a king charles may be even better as they are smaller, but have had no experience of them they look very sweet calm dogs though
  15. There is a place in cambridge but can't remember the name of it, run by a famous psychologist of asd in adults but I'm probably not allowed to name, and I asked to referred but the waiting list was full at the time, also he doesn't really acknowledge that it can present differently in females as he believes it is male brain orientated, also i got a list from national autistic society that can give you a list of people who can dx, but the first one I went to said I didn't have it without doing any assessment and the second one I went to said I did, after full assessment so they do vary in there understanding and perceptions of what asd is, but I think it seems to improving a bit now if other people are being dx as adults.
  16. Interesting reply from crimewatch some psychologists have very predjudiced view of aspergers syndrome, when my son was dx at age 9, by a lovely padiatrician and sympathetic to both of us child psychologist, very knowledgeable and sympathetic on asperger and autism however I was being treated seperately for depression, brought about by all the stress trying to get him appropriate educationetc and other stresses and my psychologist for adults said to me my son would probably end up in prison because that is what happened to most people with aspergers which further compounded my depression not helped it, I was appalled but this was said again when my son developed mental health probs when became homeless by his GP. The lack of understanding by some professionals is truly frightening. The psychologist crimewatch are referring too seems to me to be predjudiced toward people with asperger syndrome to assume that violent behaviour such as this meant it was asperger syndrome. I find it extremely offensive
  17. I'm so sorry paula, this is so awful and unbelievable, it makes me so angry, thinking of you, will say a prayer and belief that it will come right in the end, keep positive and strong you have done nothing wrong and are caring mum just trying to do the best for your child.
  18. Well I would say my son has what would be known as learning difficulties, as he has auditory processing difficulties, he found school very difficult, but he could play chess at 2 and was brilliant with numbers, but couldn't learn in the way school taught, but could do it if his learning style was accommodated, that was what I was trying to get help for him for but didn't succeed, which made things worse, and I believe made his as symptoms worse, when he is not so stressed the symptoms are barely noticeable although his difficulties with language are and interpretation of things, he has profound communication difficulties. I myself also had the opposite, hyperlexia,read fluently at 2 no obvious communication difficulties but when I had some tests done, they showed that I also had difficulties processing information which I affect my ability to communicate my needs wishes and feeling, I can communcate facts however. also I struggled with o levels due to my processing probs, but got a degree no problem. What does a learning difficulty mean anyway, I thought it just meant a different way of learning to the norm, although that is probably specific learning difficuties which any asd kids have
  19. I was feeling really upset and distressed at the crimewatch comment, but by the time I read all the responses I was rolling around with laughter especially from badonkadonk and the neil, so thanks for cheering me up, it suddenly felt less serious, hey I thought aspergers people weren't supposed to have a sense of humour, another myth I guess.
  20. I never realised you had changed your name either, but I loved your posts and will miss your uplifting contribution to this forum
  21. I've tried several varieties of probiotic and the one I found the most effective by a long way so far, is threelac
  22. I just felt qute strongly that some responses were harshly blaming the mother because of an article in a newspaper or magazine and it reminds me of the old thing with austism being caused by cold parenting and that makes me feel very uncomfortable.
  23. I would just like to add that it is actually not that long ago where autism was believed to be caused by cold parenting skills, and when people are busy making judgements on others, it might be helpful to remember that, it is not helpful to make these kinds of judgements on people, and I agree with Mrs phasmid, I don't believe everything that is written in papers or magazines, stories are sensationalised to sell papers and magazines to make money. no one actually knows the full story and it may have many sides to it including those we don't even know about, then again it might not. Also i don't wish to upset anyone here that has strong views on it, this is just my view.
  24. Why is the mother attempting suicide then? i agree that things may be more complicated than just the daughter having aspergers, if that is what it is and if her mother has a mental illness, she should be in even more need of support, i thought munchhaussen by proxy which was coined by professor roy meadow who was not even qualified in psychiatric illness but was paediatrician was proved not to exist as a conditon
  25. I was just going to delete what I wrote, because I felt embarassed worried of criticism, and anyway I feel a bit today because I got some help to organise stuff, a but I've read all the responses with interest. THanks so much for yur kind response OXgirl, it is clear you have also felt terrible despair, it must have been awful for you to lose your father that way, and you are a very kind understanding person, thanks so much for your kind words, you take care of yourself too.
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