florrie

Dr `Wakefields response to allegations is here http://www.cryshame.org/ All Dr Wakefield ever did was as a gastroenterologist found that some children with certain developmental disorders had the measles virus in the gut and all he ever said was that it needed investigating, to see if there was a link he never actually said MMR caused autism, I don't really understand what appears to be a witchhunt to me. What I find interesting is that all 12 parents of the children that were patients of andrew wakefield that sparked this are all supportive of Dr`Andrew Wakefield. Also my son went into a coma within hours of his MMR , I don't think it is safe for some children. I think there should be an investigation into why many children appear to have been harmed by it, it is very traumatic to hve your child go through this. Hanah Poling parents have now been compensation proving the vaccine caused her autism due to an undiagnosed mitochondria disease which meant she could not metabolise it. Interestingly her father is a neurologist and her mother a nurse. Another case has also been won recently, so it is linked to some children's autism thenhttp://www.huffingtonpost.com/robert-f-ken...a_b_169673.html

I think 1 in 60 is quite likely. In my case the private dx from a specialist in ASD was more reliable than NHS non specialistwhere they haven't a clue in the adult sector anyway, and don't refer or do any established diagnostic procedure. My son was dx by paedatrician who referred for this 12 years ago but I'd had private tests done by speech and language pathologist previously, semantic pragmatic disorder, the speech and language therapist did not understand them and described me as a high achieving middle class mother who expected too much from her child, however thankfully as it was 8 years at this point trying to find out what was wrong and my partner and I having develped our own strategies at the time which we found worked, a bit like the horse boy etc,thankfully the paediatrician did understand it, but sadlyshe left a year later after dx,m so he never got the help he needed with language as no one understood it. I felt quite traumatised by this as it was availlable but couldn't access it. The adult services have not got a clue, and I got dx privately through learning assessments measure the auditory and visual processing and sensory integration, that picked up mixed expressive language disorder w hich is similarwhich led to ados test and dsm 4 assessment by specialist. Ican't really explain unless I gotr into detail how they tested or how it works but Iunderstand it. My local mental health team do not refer or carry out any established diagnostic procedure, of course asd is not mental illness but it gets treated as such where I live. Any help we ever had that was worth having and helped was what we paid for, anything from the NHS has been one great long trauma that has made things worse, although I accept and am envious of those that have received different on NHS. I suspect it is the most vulnerable that will not get dx, who are unable to fight through the bureaucracy to get referred for dx which I was also unable to do and who may not have the finances to go privately, I borrowed... Even now they are denying it, Iknow they are breaking the law according the european charter on autism rights when they do not refer for dx and it is predjudice and discrimination but they seem a law unto themselves and not sure what you can do about it. Ihave seen some children dx with ASD on NHS simply because of behaviour problem and opinion but not full diagnostic procedure, I'm not saying they haven't got asd as they may have but some medical people and other people think that higher functioning autism is simply a behaviour problem alone without understanding what causes behaviour problems and that is worrying

Thanks for explanation everyone, yes I can see why the word "cure" aggravages, especially if people are also on the autism spectrum and take newspaper sensational headlines literally which I do too sometimes but just not that one. It is probably more to do with newsaper having to have a sensational headline. Of course people should not feel guilty if things don't work, or can't afford them, I don't feel guilty I sometimes feel angry because I think every ASD is an individual and they have the right to the kind of help and support that they feel helps not that someone else says helps and it should be free or affordable. one of my obsessive interest is holistic health in everything, not just asd, the obsession/interest in it helps me even if not all things work. I get frustrated with it someimes too, but I absolutely loathe allopathic medicine due to the amount of abuse we received from the NHS, all the NHS have ever done is made things so much worse I nearly did not survive by covering up and blocking 3 referals to adult asd specialists this was not just over asd but physical health too and educational people did the same with my son which started almost 20 years ago where there was even less known, he was one of the first to be dx by good fortune to see someone who had knowledge and who saved our lives,so as a resultI don't believe much I'm told by mainstream I read everything and am interested more in people's personal experiences many of who are not selling anything such as me, than research that is funded by pharmaceutical companies and those who also have a vested interested in pushing their products, I do try many things and many do not help at all and it does get discouraging I feel that too. But I disagree lucas I feel that sensory processing difficulties can be helped especially when young, I read and studied montessori and sensory processing years ago before I was dx or I even had children, young children's brains under 3 are not yet fully developed and are more malleable to absorbing information around them they have what montessori described as sensitive periods where they have the ability to absorb information on a scale we cannot as adults, that is how they learn so much by the time they go too school, one example is that is why most children (neurotypical)learn to talk fluently by 3 or 4 but most adults cannot learn to speak a foreign language fluently in that period of time. I originally ended up getting my dx in asd by having the sensory processing problems or weak central coherence which leads to uneven cognitve profile tested, and I am pretty extreme although on presentation my symptoms appear subtle but my difficulties are not, which this is how Iunderstand autism I can see what is causing the difficulties rather than just looking at the symptoms. I guess that is because my constellation of symptoms as a female appearing on presenatation subtle as they are masked which is how I learnt to cope and also were not typical. I then had to find a clinician who understood it, all the professors understood it as asd but the clinicians in the NHS I came across can't even get too first base. I was dx by a famous world class expert who I better not name and the staff psychiatrist in the NHS would not acknowledge it and rubbished it as he didn't understand it. The only reason I am here though is Ijust kept going, Ihad to borrow money and go without even basic stuff like food and fridge to get assessments. Where is the research that shows sensory integration therapies don't help and who was that funded by? I've read plenty of people say they do, they tend to be mostly people with young children though, and the difficulties are that many kids with aspergers or high functioning autism do not get dx until a lot later sometimes teens or even adulthood. The place I went too has been given awards by congress for there work in this area. I didn't think you could get a diagnosis removed, are you sure? once you have been diagnosed you have been diagnosed, even if is true someone improves so they no longer fit the diagnostic criteria, they have still been diagnosed, you can't take that away. I can see why that is alarming as it is often so difficult to get diagnosis in the first place, Ihad not thought of that...

I don't understand why anyone would be offended at someone who wrote a book explaining all the things she tried for her autistic child and the things that helped, it resonated with me because they are similar things that I found helped too. I read everything there is on autism, I have hyperlexia and asperger syndrome and my son autism. I thought it was a really good book, she went through hell as well. Yeah she had the money and I do believe the therapies that work are not on the NHS. They are better in the US at understanding the sensory problems and other issues too. Sensory integration therapies do help many autistic people. Ihad to go privately to get my dx. The only reason my son got dx was he was fortunate enough to have a paedatrician who understood the difficulties I think the book should be read and therapies tried before criticized, Everyone is different though, an individual, no one with autism has the same constellation of symptoms. I agree it is neurological and biological but that doesn't mean there aren't things that can be done to improve functioning people's quality of life. I do wonder though that people who get completely better on just CFGF probably do not have true ASD but an allergy to those products as many people do. I feel better on CFGF but still have auditory and visual integration difficulties.

Jenny Mc Carthy says she managed to pull her son out of autism by using diet , yeast control and sensory integration so he improved so much he no longer fitted the criteria for autism. It did cost her around 4000 dollars a week and she did have many different doctors and speech and language therapies, and other integrative therapies. She says there is a small window of opportunity where people can be pulled out of autism if they get the right help when young. I believe because my son did not get the speech and language therapies and auditory integration therapies that are available now he would have done better. Although I know some things do not work at all for many autistic people. Everyone with autism is different http://www.amazon.co.uk/Louder-Than-Words-...4567&sr=8-2

Hi, I am a female that has been diagnosed and can give you the name of a couple of people who are aware that the constellation of symptoms can be different in females, if you pm me this does not mean milder in my book. My audiotry processing is that of a 5 year old but to others observing me I appear able to understand but I've just developed a sophisticated advanced form of echolalia. Ihave loads of anxiety and can't answer phones the door or cope with uncertainties

I just seen this thread and can answer some questions although it is probably a bit old now. B 12 does not help with chelation but many neurological problems as well as many other conditions are helped with B 12, I've had improvment with high dose perque B12 hydroxocobalamin which you can't get in this country. The B12 in t his country didn't help at all something to do with abosorption, I get a special one that helps for people with malabsorption. Hair mineral tests won't confirm mercury, most people that have mercury related problems actually have difficulties excreting or detoxing therefore it is not in the hair. You need to do a Kelmer test which shows if you have a problem with mercury. It is available from www.drsarahmyhill.com I haven't tried chelation yet

My son had the MMR when it came out too and he developed a high fever projectile vomiting and went into a coma, for a fortnight. I was told they did not know what was wrong with him. 10 years later he was dx with autism. It is only in the last few years that I realised many other children suffered similar severe symptoms after the MMR. This is not a coincidence. I can't even begin to tell you how depressing it is that it is denied despite so many children getting the same reaction with no thorough investigation into it. Anyone who has evidence or believes it is linked to autism or making children ill gets struck off for unprofessional conduct

Socrates I only just read your reply, I didn't see it before. That is good, is there a private autism hospital then,I've not heard of that, where is that? Let us know how you get on, keep your chin up, I know it is difficult, I understand how you must feel.

I'm sure there are people that can help it is just finding them so contact the NAS anyway as they may have someone in your area. Also the disability law service http://www.dls.org.uk/ may be able to help, I found them quite helpful in some ways. They do have a legal duty to house you if you are dx autistic even if the people you are seeing do not understand or realise that and unless people oppose them they carry on like this. When my partnre opposed them and told them they were breaking the law and we had MP on side too, they did act, ASD people are easy for them to fob off, so you need someone to help you get what you are legally entitled too.

Hi Socrates I'm so sorry I dn't know what to say, Ihave felt like you before and terrified, surely you should be able to get some housing, if you can show that you got into arrears due to no support for your asd, maybe if you make that a legal point it would help There don't appear to be any official adult services, well not where I live anyway and I have been through similar to yourself maybe not as bad as I did have a home but lost it. My son has been homeless and mentally ill htough and we had to fight to get him somewhere to live well my ex partner did and I don't think we would have made it either without that. The NAS are completely useless, they just give you a list of totally inappropirate things and expect you to sort it out, when I know I can't make sense or communicate properly with the people they give,and most people onthe list they give you can't help. You certainly need help though, our MP got involved with us luckily and we got a letter from the regional NAS office via him and my expartener told the housing people when they tried the rubbish they come out with that they were breaking the law by not providing appropriate for housing for my son, they wanted to put him in residential place that was completely inappropriate for someone with asd . Telling them they are breaking the law seemed to work and they actually are, but no one ever opposes it the thing he had documentation on the law and rights to prove it. I hope someone can help, I will ask also my ex parter at the weekend when he is home what you might be able to do, but I don't see him very often I don't know what to suggest other than keep going don't give up you will get there in the end if you keep going we did and Iknow it gets very despairing write to the NAS anyway, you need direct help and an advocate I asked for one but didn't get one got a list but none in my area. there is a book called autism discrimination and the law which may be useful although particularly aobut homelessness http://www.amazon.co.uk/Autism-Discriminat...8240&sr=8-1 There is also that law place for diabilities on the internet that might help I can't remember what they are called. The thing is asd people often can't organise all this stuff for their rights and need an advocate. My thoughts are with you. I hope someone here is able to help more than I as this is a problem and I do not believe you are alone.

High iq doesnot make a genius, some people with low iq have incredible savant skills that are genius ie kim peek. My son has low iq but could play chess at 2 though did not learn to speak also can play music just by watching it. http://www.wisconsinmedicalsociety.org/sav...asked_questions I myself could not do gce's easily, but that was because the subjects were boring, but could do a degree when it is my interest,although finding a degree that covered thelevel my interest went to was hard as the degree course I felt was very limited

I've done a few iq tests and mine varies the lowest being 85 which was done by clinician so has been formally recorded but I went to a grammar school and passed ll plus so it must have been around 110 at that time. Also I've done a few others the highest recorded at 145, what I found was the more intelligences it measured the higher it was, the less ie just verbal and logic the lower it was. I don't think intelligence is something you can truly measure, (you may be able tomeasure how wellsomeone can do academically but there is more to intelligence than that,) ie animals have intelligence birds that migrate using complex sensor radar, the animals that did not get killed in the tsuanmi as their intelligence/senses told them it was coming and their senses weremore reliable than all the complex equipment humans possess. I've read of other people on the specturm having hugely varying iq when tested repeatedly

Hi Abby I believe you can have AS and score a low iq although so far typically they say AS score high on iq and autism score low, but this is not quite right,and there is not full understanding of the processing problems involved in ASD as I have been dx with high functioning ASD and I scored with a low IQ ( due I believe to my auditory processing difficulty as it wasmostly verbal based iq test which they do with adults, but as a child I passed ll plus as it was non verbal) despite being able to fluently read at 2 had difficulties with GCSE's but yet can do a degree if is my own interest etc, I think the IQ is very limited is measuring peoples abilities anyway, as it only measures 2 intelligences verbal and mathematical/logical and there are 9 including visual spacial, kinisielogical interpersonal intrapersonal etc the more intelligences it measures the higher I score. Most asd score high on logical ability, it is often part of criteria, but I score low on that but still have the squew in the opposite direction often not recognised as asd but causes exactly the same probs as asd. Interestingly donna williams has an IQ ofless than 70 which is known to be mentally retarded and has a degree also she is high funtioning and I think extremely intelligent in other intelligences.

Dooday24, Where do you get it on the internet in Liquid form, I want one with out additives as there are some nasty exipients in the tablets that are by products of the plastic industry

Thanks Baddad for info. usually lose the point of what I'm trying to say and go off on a tangent I don't have a squew on the IQ test as Ihave understood is usual with aspergers But I do have amassive squew between auditory and visual processing, ie photogrpahic memory for letters and digits I di not know Ihad until tested hence hyperlexia and excellent memory of certain facts, but auditory processing can't even follow a short paragraph and retain any info designed for 5 year old, hence this squew causes an in ability to form a gestalt ( a whole) so all I see is bits and details of the bits and therefore causes problems make meanings losing the point of things etc even though Iusually know what I want to say I can't actually get it out as I got off on tangents, and affects communication. The auditory deficit can be addressed I think it is available for children on the NHS ins some places but not adults. I believe Ihave a subtype of aspergers that does not quite fit the usual criteria ie in fact sometimes the squew is in the opposite direction to what is considered "normal" for asperger due to the hyperlexia therefore Iprefer to use the term hyperlexic as that is what I have despite the symptoms being the same as Aspergers

Phew I feel slightly more understood now. Thanks

I'm not really understanding the debate here in detail on HFA and LFA, but my feeling on it is that most medics and even some experts do not believe HFA is a disability, due to high IQ, I'm a squew like donna williams as my IQ is really low and I was really shocked when I found out and embarrased and horrified for anyone to know as I had thought it was really high as everyone always assumes I'm really intellingent as I appear articulate , I wish I'd never found out etc but am not really able to communicate what I wish but can make small talk far more easily than communicating what I realy want, this small talk thing which used to be considered evidence for not having asd I do not consider myself unintelligent , as the IQ tests do not measure all types of intelligence, it can't pick up myhyperlexia, which is how I get bybut I can' t apply or organise information in a coherent way or usefully,I must have lost some points along the way as I went to a grammar school at one point as a child so must have had higher one then. Donna Williams has an IQ of less than 70 and I wouldn't consider her of low intelligence. One speciaist I saw actually wrote in a report "she is of low intelligence but she doesn't present as someone of low intelligence" I found that really offensive. People/professionals seem to think I'm either more intelligent that I am in one way but also not recognising or understanding the intelligence I do have as it is usually beyond there level inmany ways. One professional said tome well you haven't got to be very intelligent to be interested in nutrition, but she didn't understand the level ofnutrition Iam interested in, which is orthomolecular nutrition and medicine, she assumed it was thelevel she was at which was no understanding what soever, it really takes the biscuit that iput myself in a position with these professionals who think they can comment onmy intelligence in this way when she didn't even understand my presentation of asd even when all the evidence and tests was handed on a plate she didn't have to work at it and she was supposed to be a specialist. They are just unablt to think or make conclusions for themselves she ws probably taught it was one thing and that is all it is. That is how I got myself to a professor who understood my tests phew what a relief but hte gps and psychiatirst would not accept it. They just refuse tol isten to what it is o rhow it affects me,probably because they don't understand, the last psychiatrist I saw said what is an informnation processing problem I don't understand that when I tried to explain he said well your speaking to me aren't you.,so I explained the auditory processing problem and gave him tests and he just dismissed them and said your talking tome but missed the entire point and just tried to find anything to disprove Ihad an asd ie my love of animals he said autistic people do not have empathy and do not like animals Ijust do not understand how they cannot know what an information processing problem is, all mentall illnesses are also information processing problems , they affect neurotransmitters the medications are supposed to increase or suppress certain neruotransmitters and therefore relieve symptoms problem is there is not enough known about neurotransmitters to understand how they affect others this is another interst of mine Ijust give up really and they just decide what my problem is I am not allowed to have an opinon on my own life Unfortunately no specialists in this country although it is more widely recognised in the US understands my squew of problem but just enough from tests I've had ,to accept that it meets enough asd criteria, but I'mnot happy with wht they think my problems are as they just seem to think I'm of low intelligence and that is it but my reading material is nearly all research stuff in my areas of interest by proffessors and i make a lot of conclusions of my own due to experience with own difficulties ie hyperlexia that later mainstream comes tomake the same conclusions and to demonstrate them better than I am able. It has been horrific to realise no one understand your problems at all I feel that HFA is more of a disability as it is more difficult to see what the difficulties are (predjudice) for some people many people do not even get dx and this may lead to mental illness due to lack of understanding and given prescribed drugs that will have an adverse reactions. I have suffered with severe mental illness at times due to feeling so much for my son and watching him decline and the frustration in communicating with authorities getting the intervention and understanding he needed (that is how I ended up on ssri). It was also quite surprising when I discovered in my research to help him that Ihad hyperlexia also has traits of asd that is even harder to see, so you need tests to demonstrate it. and took ages to prove. The criteria for asd is so diverse ( and keeps changing) people can have completely different sets of symptoms for example on the social area you have to fit only two out of 4 well you may have a differnet two to someone else, for example reading body language and facial expressions, is considered a major asd problem but I don't have a problem with this at all, in fact I would say the opposite I have an acute sensitivity to reading this ,I became very good at it as my spoken communication wouldlead tomisinterpretation which caused me stress so I would read situations very well in order to avoid them. I think I fit a slightly different subtype of asd that is not yet widely recognised and it needs to be because I believe I can't be the only one with hyperlexia (ie read fluently at 2) but yet have these probs and I believe that probablylack of understanding and thenmyson's \probs has led me to become mentally ill and the way I've been treated has been horrific, as they now think I'm just obsessed with non existent problems and that I'mjust an attention seeker, but Ihad broken bones and stuff as a kid that never got picked up as I wasn't able to always communciate what I was feeling and when I've tried on my sons behalf it has led to being treated like this which is my idea of a nightmare so I have to demonstrate the difficulties and I will take it as far as I have too. I'm guessing no one will follow what I'm saying here either as usually that is what happens c'est la vie

I don't think my post above makes sense now as the name of the drug was removed , I understand the reasons, my intentions were to provide information to prevent anyone going through what I have . There have been 3 panorama documentaries on this drug and the makers are facing criminal investigation as their own research showed it caused bad reactions in some people including suicide and iti s addictive and people are not able to get off it, It was withdrawn after one investigation in under 18s as they knew from there own studies it was causing harm including suicide in children,however they still say once your over 18 it is safe, it took me a year and side effects were horrendous It has also been on the news . Some people do not metabolise certain medications and that includes ssri's and I think that information is helpful to some people as it can cause bad reactions and side effects . And many people cannot get off these drugs due to addictive nature Many doctors are not aware of this ,some are though as they rely on information from the pharmaceutical companies and of course the pharmaceutical companies have a vested interest in this information not being available as they have made 2 billlion pounds from the drug in question alone of course once people are on it they can't get off it,and they mislead the public this was proved on investigation and they had to withdraw it for under 18s as it caused suicide in this age group, and changed the label on the drug saying the side effects that have been found and to get off it you need to do it very slowly, in fact my experience was you had to do it slower than they say by I mg at a time, the particular ssri drug in question being the worst for reported side effects. There is a forum alone for side effects from this drug and it is extremely active as active as this one but I won't name it will give the name of the drug away although it uses the american name not the English one as it is an american forum. I've read on here that people have bad reactions from meds so I wanted to provide info for anyone who may believe they had this and topoint out they have never been control tested on groups of asd people to see if they react differently. But they did cause bad reactions in the normal control group and I have evidence of the studies, I can't really give it without giving the name of the drug away. This link provide info for receiving effective medications http://www.lab-21.com/healthcare/cytochrome.php so that you can findout which meds you can metabolize and which one you can't most people will have something they can't metabolise of course the cost would be high to find out. But I did find out I can't metabolize the one I was given and when I reported horrific side effects at the time I was ignored and in fact given more drugs anti psychotics to cope with side effects, I don't metabolise the particular drugs I was given then either. I believe that is why some people have bad reactions to certain medications. On a positive note my research has also included how to clear and activate the metabolic pathway, the drugs inhibit,one is another drug I'll give that a miss I think, but also B vitamins will help and I'm looking for a herb that will replicate the drug that can help clear and activate the metabolic pathway.,and Ihave improved at times since progressing with loads of information I have found out, inthe last few years and I guess Iwill keep going with it. BTW I had hyperlexia before these eperiences so I was already on the asd spectrum but it wasn't giving me as many problems as when I went on the drugs or also perhaps the problems when I then had a child with asd before I knew he had difficulties and I found it difficult to cope as well as with communicating with professionals, as this was nearly 18 years ago now before anything was known about AS, I didn't really comprehend as they were so opposite to mine, we both have savant skills but in the opposite direction as hyperlexia is a savant skill, fluent reading at early age with asd traits,so when he didn't read and talk and 2 and even didn't even at 3 and 4, but could play chess at 2 shows the difference. Zara I really feel for you and relate to your experience ie "welcome to the world of mild autism" I've been there too and it is still a struggle but I've progressed with my knowledge on asd I couldn't get a dx, but eventually got one due to having tests done that demonstrated I was on the spectrum, had difficulties getting appropriate intervention for my son and some of it was abusive, but thankfully when he got a dx from delightful understanding professionals who unfortunateluy do not have now it was a relief but then the predjudice began from those professionals ie education and GP at the time who had no understanding what soever and caused harm which made me severely depressed. I think many symptoms are thrown under the same label as I've now been dx with asd but they refused to accept my dx but dx in since the drug overdose my bad drug reaction is being ingnored as I have also some central nervous system problems that I recently mentioned numb legs dizziness loss of balance which haven't been dx or even been sent to be checked out but now they are using my asd difficulties against me to prevent me getting them checked out, whenI tried to explain the symptoms and that I wasn't explaing them properly due to communicaiton problem or that people were not allowing for my communicatin problem they now say that I'm not happy with anything as that is what asd people are like type of thing and all my problems are anxiety that is her personality because that is what asd people are like. Is it anywonder I feel so angry, and have had to find out everything myself and demonstrate it,Jake had to put up with this predjudice too instead of getting support he needed, I was even told after dx he would end up in prison as that is what happens to them. Well Iwill continue to progress as I don't think this type of thing and predjudice is acceptable at all

I just renewed my son's and asked for it indefinitly and they awarded it. I think that means you don't have to renew it. This is such a relief now. I didn't even have a specialist or a GP on our side either, as most professionals do not think it is a disability. He does have considerable difficulties though but I reckon if he had specific intervention appropriate for him he would not have needed it.

My son also went into coma after MMR, I myself also had bad reaction to a prescribed drug, which gave me symptoms I didn't previously have,they made me feel suicidal and agitated, and I overdosed on them with another drug and told I was mildly brain damaged, I could not coordinate movements after whilst on the drug I bcame aware of difficulties in communicating but I now believe the drug may have caused it it is very difficult to define exactly in what way it affects some kind of neurotranmission I believe it has affected the dopamine receptor site by repressing so I can't use it. I also discovered with a test I had CYP2D6, not much known about this that I cannot metabolizer drugs that use that metabolic pathway of which there are many and it can kill you to take drugs that use this enzyme to metabolise drugs. Bpoth the drugs I took cannot be metabolized, That is probably why many people do have side effects and bad reactions to certain drugs medications and even herbs and vitamins. Zara you mentioned someone HFA commiting suicide in a mental health unit, if they were on medications maybe they were not able to metabolize like I these medications, if they worked why do people commit suicide whilst under mental health care. People should be be tested before being prescribed meds to see which ones are safe. Some info below for those who are sceptical they are orthomolecular scientists http://www.lab-21.com/healthcare/cytochrome.php. I also think that Andrew Wakefield research may have been flawed and that is what they are using to hang him with, but I feel there is a genuine connection for some people and he has done nothing wrong in trying to find out what that is/was. I would prefer a doctor like that any day to the predjudiced ones I've encountered that have made my life very difficult and have lied like crazy and got away with it no one does anything about that. I'm not able too as I can't organise it. Predjudice is against the law too but doctors that have no understanding of asd get away with that. Just my 2 cents. Post Edited by Moderator.Karen A

I an underestand your frustration, these people have been the bane of my life too, there is some info here , the second link if you down load the supplementary information is a check list. Tick as many as you can and demonstrate the difficulties as it is about the amount of points you get rather than the label, I hope that helps. Get a letter from the psychologist also demonstrating relevant points, ie obsessions, and why they cause problems and needing more care etc,that is what I did and I even had to use that when claiming for my son now he is an adult as we had no access to an adult specialist. The professionals do not seem to be very helpful and just make unhelpful downright predjudiced remarks. You should tell your doctor ASD is a disabilty and to say he is not disabled is discrimination against nonphysical disabilities which is against the disabilty discrimination act for asd, I'm also consdering putting in acomplaint about this otherwise it will just continue, I was told when my son was first dx 11 years ago that he would end up in prison, as that is what happens to them.I was horrified and upset. Oh and he has not ended up in prison, unfortunately due these horrific predjudiced remarks though he did not get appropriate intervention which would have given him a future which all asd people should be entitled too http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=1561&a=7788 DLA (Disability Living Allowance): how to claim DLA application - supplementary information (DOC)

I had difficulties,J did not take to it and I found it difficult too, although I would have preferred too as I believe it is healthier,of course I was later dx with asd too so how much of the problem is mine also I wonder, disliking the contact and pain and finding it very difficult. J projectile vomited every feed for a whole year and mybmother said I did the same thing, and then it just stopped suddenly after about a year. Very strange I've always wondered whether that is connected somehow.

From what I was told diagnosis can only be made by pychologist as they run the psychometric tests, although psychiatrists seem to have the power to diagnose without running any test whatsoever. In my case a psychologist diagnosed my son, but the paediatrician also had understanding, my sisters son was diagnosed by paediatrician with understanding of ASD. I personally believe that AS is an educational problem but autism is a medical diagnosis. I don't expect I'm making sense and feel very sorry for your predicament. I think all professinals seem to be able to make a diagnosis if they wish so do not know why they have not in your case.

Well peptides are found in the blood stream of many people with autism although people other than autistic ones can get peptides due to allergies to foods such as wheat and milk, I know I'm allergic and have increased peptides when eating these foods a I've been tested and they reduce when I don't eat them so that is proof to me that something is going on with leaky gut, I'm not sure think they cause autism on there own however, and if people say they got a complete recovery from cutting these things out, they may have just severely been allergic which gave them symptoms of autism but were not actually autistic in the first place. Cutting them out though does help if you are allergic Anyway that is just my thoughts