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call me jaded

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Posts posted by call me jaded


  1. I don't think my son ever runs out of energy :lol: he's a houdini too, the amount of times he's been up and over our neighbour's garden wall (4ft high), I can't count on my hands of feet :huh:

     

    So, at his age (3 and a half), is it best just to let him get on with it?

     

    I built in opportunities for sensory input throughout the day. So a chance to bounce, some rolling up in duvets, a visit to softplay, and the thing he likes best, joint compressions, which make him melt. Best to have a bit of structure round it so that he's aware his needs will be met and he will, over time, be able to wait.


  2. Has she ever had an EEG? Been to the neurologist? Just wondering if epilepsy has been ruled out?

     

    Recommend www.fledglings.co.uk for bed-wetting products and www.turn2us.org.uk for information about possible sources of grants to pay for them. Households with an income under £30,000 in receipt of DLA at middle rate for care can apply to the Family Fund.


  3. My favourite snake oil story was told to me by Paul Shattock. He said the original snake oil was part of Chinese herbal medicine and came from Chinese water snakes. In the US it was made from rattle snakes. He swears that analysis of rattle snake oil shows very little of value whilst water snake oil is packed full of Omega 3s. He's a very plausible snake oil salesman, lol.

     

    I would do anything to improve my son's life. He is far, far too vulnerable. We still work at things to help, won't ever stop.


  4. Hi all. I've been given a budget of £10,000 to spend by the end of January. It's to equip a new log cabin which has a ball pool at one end and not much else. It's going to be used by disabled children and young people up to age 25. I am looking for suggestions for what we can put in for sensory toys, etc. Everything has to be either wipe clean or soemthing that can be thrown into a washing machine. Suggestions please...


  5. I personally think there is a massive shake-up on the way and funding will no longer be attached to statements in the way it is now.

     

    Kathryn our PPS stands back when it starts getting hairy but points them in our direction. We've just invested some money in education Step-by-Step manuals from ACE which will allow our volunteers to give legally accurate advice with the backing of a 'professionals only' phone number to back it up. A group of people can get together and do this with a little help from your local CVS, including sources of funding. Start here to find your local organisation.


  6. lol too cryptic for my own good.

     

    PPS - Parent Partnership Service

     

    What I'm saying in my first sentence is if you say to a lawyer that you have a problem and ask what you can do the answer will generally be sue, or take them to court or other adversarial action. Parents often feel it's their only option, especially after consulting a solicitor.

     

    PPS however knows what the current practice is in that LA and in the vast majority of cases can guide parents and schools through the maze of paperwork to get what needs to be on the cover sheet when it goes to Panel is actually there. I don't know if you're aware but a two-hour panel meeting may have to get through 50 cases. You need to make it as simple as possible for them to make a good decision.

     

    Could go on at length. My parents organisation rarely goes to tribunal. We have one on Tuesday that I'm not at all convinced we'll win. It has not cost the parent anything to get there and she has known from day one that the outcome is marginal. The input we've had from a PPS officer volunteering for us has been invaluable.

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