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Found 14 results

  1. Hi everyone! For my dissertation, I am conducting surveys about the effect of friendship quality on mental health in children diagnosed with Autism Spectrum Disorder. If you have a child age 4-13 with a diagnosis of Autism, I invite you to complete my survey, which will take only 20 minutes! Findings could lead to a greater understanding of the effect of friendship quality on mental health in autistic children. Please email me at pt00254@surrey.ac.uk if you have any questions. The link is here: https://surreyfahs.eu.qualtrics.com/jfe/form/SV_etCpqsUlJzZiWH3
  2. TiffanyHoran

    Hello!

    Hello everyone, My name is Tiffany Victoria Horan, I'm twenty five years old. I'm British and although I was born in the UK, I grew up in the United Arab Emirates. I now live in Warsaw, Poland and I have also lived in Taiwan. Due to the nature of my hectic (third culture kid) upbringing (different countries, different schools, etc.) it took a very long time for anyone, including myself, to understand what was 'wrong' with me. I began seeing a psychiatrist and psychologist here in Warsaw after a number of 'incidents' occurred at university and work. Everything was so clear to them that after a couple of months I was diagnosed with Asperger Syndrome. It was twenty five years worth of explanations in a single sentence. However, receiving a diagnosis later on can be difficult as there may already be significant damage caused, for example, spending my entire life in a state of confusion and frustration caused me to develop PNES. I take medication for anxiety. I'm interested in art, philosophy and technology.
  3. Seeking adults (18+) with autism spectrum disorder (ASD), who have access to the internet and are able to complete an online 20-30 minute questionnaire independently. This study is designed to learn the relationship between anxiety, sensory processing difficulties and intolerance of uncertainty in a population of adults with ASD. Research is being conducted by Kathryn Flatley (k.flatley@dundee.ac.uk) with collaborative supervision from Dr Ashley Robertson (a.z.robertson@dundee.ac.uk). To begin the survey, please click on the following link - http://www.instant.ly/s/HZ33r
  4. Hey, So, I've always struggled with education environments. Like, school, for example. My brother and I both had 'school refusal' down on our records because the both of us only just got diagnosed ASD (i mean, c'mon. I get that I may've been missed because it's rare that girls get diagnosed in an instant, but my brother is 24!). Anyway, I'm in my second year at college now, which is a struggle but i do love it regardless. I'm staying for a third year because I want to achieve the same A-level grades as everyone else - (i did only 2 igcses and was homeschooled for 2 years before college so im a bit behind) After that, I'd really love to go to University, but im really worried about the issues i might face with it all - work load, responsibility, independence, and mostly - being away from home. of course, I can go to a (fairly) local (kind of) college, but its still a case of being sure I dont have an episode - that i dont waste my money because I have a meltdown and end up having crappy attendance! So, I guess, what im wondering is, Any Aspies been to Uni? What are/were your experiences? or, alternatively, are there any Universities speciffically for people on the spectrum? I know there's a school near where I live that is specially for girls with autism (the school from itv's 'Girls with Autism' Documentary - I went to a 'hospital school' with a girl who goes/went to it) - but i'd already finished school and become out of the age range by the time I knew about it - and by the time i knew i was autistic, even.
  5. I have been on 50mg of Sertraline for over a year now and I have decided to come off them. I am now down to 1/2 a tablet every other day. I am feeling ok. I do have anxious moments, but generally I am ok. I want to learn how to live with my Asperger's and try to live as normal life as possible without the need for medication. So far so good.
  6. Hello So here it goes, a little about me. I am 41 and I am Bisexual. I live with my partner in Surrey, near to London. Since a very young age, life has not been easy for me. I was sexually abused between the ages of 8-11 by a family friend (female) and since then I have struggled with life. As well as certain sexual fears, I also suffer from Anxiety, OCD and other aspects of Asperger's I am sure many of you can relate to this, but my main issues are: I cannot relax, my mind is so full of stuff all the time, I cannot switch off and relax I get worried and anxious about everything, even if it's something I am looking forward to. I am not keen on being a crowded place where I cannot see an easy exit. I have OCD and have to have a routine all the time, I have to plan things ahead. I am very shy and lack confidence. I have not had many sexual partners. I never think I look good enough. I fidget all the time, and have trouble sitting still. I am frustrated with most things. I get bored easily. I talk too much and don't mission too much. I can get angry and upset very easily. I could go on and on with this, but just wanted to put something down here to start with. It's good to be on this forum. Damon
  7. Hi - just felt like sharing my despair and looking for moral support and radical suggestions. My son is nearly 17, should be starting sixth form this term, but has not attended school since the first term of Year 9 (when he was just 14). He was due to start this morning doing catch up English and Maths at a local college, but would not go. My disappointment if fresh and raw! He is diagnosed with Asperger's, anxiety and depression and experts believe he had a kind of breakdown at school (mainstream) and could no longer cope. Since then we have had three attempts to start new academic years - all failed. I managed to get him a statement a couple of years ago. We have had a string of Education Other Than At School tutors, some of which have been great for him, but none of which have managed to transition him back to school nor get him to do any work. He is in effect uneducated, has not qualifications and is totally socially isolated. He leaves the house very rarely and has no friends. He does see peers occasionally when it is arranged and scaffolded by me with the help of my friends, but as he/peers gets older, this is becoming harder and harder to arrange. To make matters more complicated, he won't accept his diagnosis, so does not accept specialist help and won't go into a special unit. He has always refused to go to CAMHS. He spends his whole time on his PC playing games and watching You Tube videos. I used to limit this strictly, especially during school hours, but he is a big boy now and it is harder. Three years of this has worn me down to be honest. Today was the start of a new era for us. His tutors, Ed Psych and everyone else involved have spent the last few months preparing him to start college. He has been offered a lot of help and support to get there. I cannot complain that we have not been helped. However, now that he has refused to go today, I feel really desolate. I don't think I can stand this again. Do I give up on the idea now? What will he do? If I go back to work (I had to give up my job while all this was going on) I will be leaving a young man alone at home doing nothing constructive. And what will become of him/us in the long term? Should I move to Shetland (a small community that he has to be part of)? Get him sectioned? Abandon him for a while, leaving him with money on the kitchen table, in the hope of forcing him out into the world (he currently relies on me for everything)? All these awful thoughts go round my head and I really don't know what to do for the best. I feel sorry for him because he is genuinely frightened and anxious, but I am also so angry with him for not trying and not seeing that he has to do something. I guarantee that all the sensible, logical steps and approaches that you will all suggest, I have tried. I need radical suggestions.
  8. My son age 14 has finally seen the Psychiatrist today. It took one and a half hours to persuade him in to the car for the short journey. He kept his dressing gown over his head. I went into the centre and when the Psychiatrist called his name I told him he was in the car. He then came out and my son agreed to walk to his office (non verbally) with dressing gown over his head. After an hour of chatting (not my son) the Psychiatrist said Fluoxetine 20mgs alternate days for a week and then daily to help the depression and also will help with anxiety. May go up to 60mgs daily for OCD but does not have that. If his sleep pattern is not improved he will think about Melatonin in the future. Now I just have to get my son to take the medication...............
  9. Hey guys, this is my first post. I just kinda want to know that I'm not alone. Okay, that sounds really needy. I am a nearly sixteen year old Aspie girl. Well, until about six months ago, I thought I was totally crazy. I felt totally alone. I could not interact with people. I had a very specialist subject (Poultry - I absolutely adore chickens) which was the only thing I felt comfortable talking about. I was being bullied at school and was very frightened. The description of asbergers as "Lost Planet Syndrome" is totally right. I felt very alone in the world and I just didn't understand other people. It was by chance that I came across an article describing a family of Aspies. And instantly something clicked. I was not crazy or weird. I was an Aspie. I think that my Asbergers has been pretty obvious and yet not obvious throughout my life. From the age of about four I knew that I was different. So I copied others, but I still, to this day, cannot "speak" fluent NT. I struggle to talk to others, I show little empathy, I like being by myself and I am obsessive. I've been bullied a lot because of this. I've done IQ tests and I am well over 140, into the genius range. I do well enough at school that I find most classes easy. So why can't I understand people? I also have bad anxiety, and it has gotten to the point where I struggle to even go out of the house and I am unhappy a lot of the time. My five hens really keep me going. To make it worse, I met a boy months ago who I thought I might finally be able to relate to, but he lives thousands of miles away and has a girlfriend. I still love him and he has no idea.I speak to him a lot and It's killing me, because I am so obsessive and I really, really like him. Although my parents try to be supportive, it's difficult for them to understand, and they have said before that they think that my Asbergers and Anxiety is an act to get attention. My favourite analogy of Aspergers that I've read is that social rules and life in general are like a jigsaw. NT's are born with the picture on the box, but we aren't. We have to build the jigsaw in clumps. It's harder for us, but we can do it. Many people say that Aspergers is a gift. Unless you count being able to read at several thousand wpm as a gift, I don't feel I have any gifts at the moment. Any other Aspies out there?
  10. Hey guys, this is my first post. I just kinda want to know that I'm not alone. Okay, that sounds really needy. I am a nearly sixteen year old Aspie girl. Well, until about six months ago, I thought I was totally crazy. I felt totally alone. I could not interact with people. I had a very specialist subject (Poultry - I absolutely adore chickens) which was the only thing I felt comfortable talking about. I was being bullied at school and was very frightened. The description of asbergers as "Lost Planet Syndrome" is totally right. I felt very alone in the world and I just didn't understand other people. It was by chance that I came across an article describing a family of Aspies. And instantly something clicked. I was not crazy or weird. I was an Aspie. I think that my Asbergers has been pretty obvious and yet not obvious throughout my life. From the age of about four I knew that I was different. So I copied others, but I still, to this day, cannot "speak" fluent NT. I struggle to talk to others, I show little empathy, I like being by myself and I am obsessive. I've been bullied a lot because of this. I've done IQ tests and I am well over 140, into the genius range. I do well enough at school that I find most classes easy. So why can't I understand people? I also have bad anxiety, and it has gotten to the point where I struggle to even go out of the house and I am unhappy a lot of the time. My five hens really keep me going. To make it worse, I met a boy months ago who I thought I might finally be able to relate to, but he lives thousands of miles away and has a girlfriend. I still love him and he has no idea.I speak to him a lot and It's killing me, because I am so obsessive and I really, really like him. Although my parents try to be supportive, it's difficult for them to understand, and they have said before that they think that my Asbergers and Anxiety is an act to get attention. My favourite analogy of Aspergers that I've read is that social rules and life in general are like a jigsaw. NT's are born with the picture on the box, but we aren't. We have to build the jigsaw in clumps. It's harder for us, but we can do it. Many people say that Aspergers is a gift. Unless you count being able to read at several thousand wpm as a gift, I don't feel I have any gifts at the moment. Any other Aspies out there?
  11. Recently I've been between various counsellors and doctors regarding issues with managing negative emotions. My diagnosis of Aspergers Syndrome form 10 years ago does not appear in any of medical notes (I have changed doctors once in my life, but I know for a fact the current surgery has my paper and electronic notes so this strikes me as odd). The most recent appointment I had with Lets Talk Well Being confirmed a diagnosis of borderline Aspergers syndrome and a further one of long term depression with significant rejection issues. I am currently waiting for CBT and an appointment to have anti-depressants. I know in the long term this is really going to help and get me to a point of being able to live 'normally'. Right now I feel in a limbo with no solution for the immediate issues of isolation and loneliness. Doing anything on my own seems to just leave me unfulfilled. My friends are so far away I can't just go see them. When I do call them all I can't see past what is happening in my life to be able to have a normal, friendly conversation. I don't know what to say to them. I have been through a lot of difficult events in my life over the last year . A very dear friend who lives in Canada lost her mother last April so I was out there trying to support her. My inability to emphasise and frustration with myself made this worse at times. I came after this to have my entire life and routines turned upside down. I live with my grandmother and she spent a month in hospital literally from the moment I got back. I had to take on a lot more responsibility, manage the household completely to myself which I'm not used to. When she came back there were so many people coming and going, not communicating with me about anything that's was happening I felt so out of control in my own home. While this was going on my friend in Canada had a massive change in her life which meant I had far less contact with her. She had been a massive part of my life for years so to have to try and accept how much things were going to change wasn't easy. This was then followed by a 2 months relationship with someone who was emotionally confusing and manipulative. Several friendships I had took serious hits from this and I was just left run down and worn out. by this time I was so exhausted mentally I was struggling to keep check in control of my emotions the one person had been able to maintain a close long term friendship with was struggling to manage the ups and downs and round about I was going through. Anything that could be remotely taken as negative was and amplified and eventually I lost her. With her I lost my social life, my day to day interaction with someone I called a friend The rest of my friends live 80 miles away, they keep telling me I should do this and I should do that to fix things, but the idea of doing anything socially just panics me. They suggest getting new hobbies and trying new things, but I can't find anything that captures my interest, My current personal interests don't distract me like they used to. I've reached a point where I don't know my emotions or what I'm feeling, I don't know how to distract myself or what will settle them. Has anyone else been in a similar situation and if so how did they cope?
  12. Hi again I've been in denial about this for the last few days but my partner was just picked up by his boss and I'm terrified. They're driving to Liverpool and catching a plane to Barcelona. He won't be back until Wednesday evening. His boss knows I'm ill but he's needed for these meetings, so he has to go. I've been off work for two weeks with anxiety. Things that trigger panic attacks are: waking up and the reality of my situation hits me Ringing phones People ringing the doorbell Certain TV programmes Getting flowers from work Just having quiet time and starting to think too much A long queue in a post office I'd not been to before and waiting outside with people walking past me Children running I have to describe this one: Yesterday we went to Alderley Edge in Cheshire which I love. There were families and dogs there. We'd been there for about 15 minutes - I'd taken a photo of an interesting tree stump and we'd walked up to the Beacon. As we started towards - I think - the Wizard's Well I started to realise how muddy, slippery and steep the paths were. We kept trying to find an easier way around and then the whole forest seemed to spin and I had to stop because I was so dizzy. I was able to go on for a bit and then we sat down on a log for about 10 minutes while I calmed down again and listened to the birds. We carried on down the path a bit further, passed two families with kids and dogs and I couldn't go on. It was just after midday but I was frightened of getting lost and stuck there after dark, or coming out so far from the motorbike I'd have to struggle uphill in my motorbike gear and be so tired that I fell off the back on our way home. There were too many people, kids and too many dogs, and too many trees that looked the same. I got disorientated, lost all sense of direction. My hands were freezing - my partner said they were icy to the touch - but inside my jacket I was soaked with sweat. We left the path to go back to the bike and I could barely walk upright. I thought I was going to faint and I had to keep hold of his hand. It felt like he was dragging me though he wasn't. When we got the path I was stomping and walking like a robot. When we paused so my partner could choose the path I just stood still staring blankly into space. It turned out we had gone a bit wrong and went we got out of the wood we were a bit further down the road from where we parked, at the pub, There's a tea room there so we stopped for some chocolate and then walked back to the bike, which was less that quarter of a mile away. Once we were back on the bike going home I was fine again. I'm diabetic and I have gone hypo before. I get confused and irritable, but this didn't feel quite the same, even though chocolate helped fix it. This was real fear, but at the same time there was a little person in the back of my head telling me I was being irrational. When we got out and I asked my partner how far away the bike was and he said not far, I needed to know exactly how far "not far" was. 100 metres, half a mile, a mile? I sounded childish even to myself. My partner said I have got worse since my panic attack week before last which was caused by people moving too fast and too close to me. Last Thursday morning I woke up, had the panic attack but instead of gasping I froze. When I could move I started pulling my hair out. Last night I went to bed with chest pains because I knew he'd be gone this morning. I've got the phone on mute, the answer phone on, the door locked and I'm not going out any further than the back garden. The only people I've told are an online friend in Australia who's raising her autistic grandson and you. I don't want to stay with anyone because there's no-one I trust nearby. Even if there was it would mean going outside and using public transport, and I don't want anyone in the house with me because they would be invading my space and I'd feel compelled to be the perfect hostess and try and act "appropriately". I've seen the doctor and he won't give me any medication to stop the panic attacks. Instead last week he said he'd send me a DVD with relaxation techniques but that's not here - in fact, my Australian friend sent me a DVD and that arrived first! I'm relying on Kalms but last Tuesday after one panic I took some too close together. They knocked me out for 3 hours and I woke up feeling sick and with a headache. The earliest I could get an appointment with him is Thursday and that's after my partner gets back. What I'm asking is, is there anyone out there that knows this and can you help? How did you cope? I'm really scared I'm going to die without him there.
  13. Just came across this. http://www.lgo.org.uk/news/2012/dec/buckinghamshire-cc-criticised-insufficient-education-boy-special-needs/ Buckinghamshire CC criticised over insufficient education for boy with special needs Date Published: 06/12/12 Buckinghamshire County Council did not provide enough education for a boy with special needs for over a year finds Local Government Ombudsman, Anne Seex. In her report, issued today, she says: "The boy received no education at all between February and May 2010, and then only a little over five hours a week until April 2011. There is no evidence that the Council ever tried to establish what education would be suitable for him and what he could cope with in his medical condition." She added: "The Council's position at the time seems to have been the Education Act 1996 requires only five hours tuition on medical grounds. This is wrong – as a child's health improves, the hours should normally be increased." Mr and Mrs A have looked after their 15-year-old grandson, Z, since he was seven years old. At 13, he stopped attending school because of anxiety related to autism. Z's GP referred him to the Child and Adolescent Mental Health Service (CAMHS). CAMHS told the Council that Z was autistic and would be unable to cope in a mainstream school. CAMHS offered Z some education at an attached School Room, but it only had capacity to offer 5.5 hours of education per week. He received education there for almost a year. During this period, Mr and Mrs A had to take on the task of caring for him almost full time. Although the Council was aware from March 2010 that it was likely that Z had special educational needs, it did not use its powers to assess these. Nor did it tell Mrs A that she could ask for an assessment. Eventually she found out and requested one immediately. Z was assessed in November 2010 and found to need specialist education, but he did not start at a special school until April 2011. The Ombudsman found maladministration causing injustice because the Council failed to provide Z with suitable education between February 2010 and April 2011 and failed to fulfil its duties under the Education Act 1996. The Ombudsman recommends the Council to: create a fund equal to the cost of private tuition for the hours of education that Z lost, to be held for him until he is 21 and to be used to provide him with additional tuition, educational opportunities or equipment that an educational psychologist recommends would benefit him, but not for any provision to which he would be entitled as part of his statement of special educational needs, and apologise to Mr and Mrs A and pay them £2,000 in recognition of the impact its maladministration had on them. On behalf of the Council, the Chief Executive has indicated that it will agree to this remedy. Report ref no 10 010 281
  14. We're all accustomed to them now and most of us have accepted them almost like modus operandi of modern times but do any of you experience irrational levels of stress and anxiety with security guards and cameras in shops? I remember when I was much younger having many such irrationalities when masses of cameras first started springing up everywhere but with education in security I learned a lot to dispel many of the myths I'd imagined and was able to quell some of the anxieties I felt back then. However with education there is always the danger of knowing too much and that can backfire and make one even more self-conscious to the point of pure paranoia. Even now I get uncomfortable sensations when I'm looking up and round at the signs over the shopping isles of shops I don't know so that I can easily navigate to the correct section of the shop but then accidentally ending up locking sight with security cameras (which seem only to beg to be stared at with their huge bug-eyed appearances) and then feeling as if I'm being followed by every camera and security guard until I've finished my purchases or walked out empty handed (which in a way is even worse as every security guard is suspicious of people leaving huge supermarkets without having made a single purchase). I had one such experience yesterday when I was in a DVD store and I suddenly got this surge of anxiety because I'd taken my coat off before entering the store due to being way too sweaty and I'd wrapped it up and held it in an ever-unravelling ball in my arm which I had to keep re-wrapping. I became self-conscious that it was bad to have my coat wrapped in my arm this way (bearing in mind thieves use these ploys to conceal things) but could do nothing practical about it. Well that was it wasn't it - as soon as I'd thought that, I could do nothing to forget it and the anxiety intensified. I decided I didn't want to buy anything as nothing took my fancy and that only made things worse. I slowly began to gravitate towards the exit and I floated near the security fences on a kind of high-alert that they were following me - I exited the store and just froze in cold petrification for several moments in the precinct where again there were more cameras and just very nervously began to walk away from the store. You see from the point of view of the Security agents I would probably have seemed highly suspect and that thought was circulating round my mind at the time which only made it worse and I could see no way to stifle those feelings to help me relax. And I needed to escape that situation (that discomfort) but again any hasty exit would make me look even more suspect. Of course I understand the common reason for having security in shops and elsewhere for our protection but it does a lot to undermine our confidence too. There's nothing worse than feeling you're being following/stalked/watched which only intensifies anxious-behaviour which makes them even more likely to follow. And all of this has made me wonder if any one else here has experiences like this. What are your experiences with security?
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