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  1. Hello everyone, sorry i have been off this site for some time but we have been extremely busy collating and copying evidence seeing consultants regarding getting help for our k as his tribunal is fast approaching. In the meantime we are now concerned as k is still not being able to feel the need to go properly and now the consultant has said that k is a 'good candidate' for a procedure called ACE. My question to you all is does anyone know what to be wary of when having this procedure. I could have screamed at the consultant as he was saying its now a medical thing that k has and i said this situation developed as he was originally stool witholding which is why k's bowels have becomed so stretched that he now cannot feel bowel movements. Its behaviour as k sits in his messed pants and does not clean himself unless told to do so, so some level of supervision is needed. Its been a hectic week and we are concerned now as to what if anything does or is needed or who to inform about this procedure. I have tried to google this but there is no connection between school and this procedure. Is it just a case of letting staff know. We have sorted to a degree about the use of pads from the continence service so that is up and running, but we will not get a lot and k does go through some pads per day. If anyone knows of this procedure or has experience we would be grateful if you could give us any advice or tips. Many thanks, with regards sarni
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