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Showing results for tags 'unstructured time'.
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hello all Unsure what to do about Xmas. The family go to grans and i normally join them but im scared because ive had meltdowns for the past 2 years at Xmas which my 'mum' has triggered off or made worse. It has been a really difficult year, I've been in a wheelchair for over 13 months now and a few family members are very aggressive about my use of my wheelchair. ive been shouted at in an attempt to frighten me into stopping using my wheelchair with the 'do you want to be in it for the rest of your life?' They refuse to accept it is up to my joints whether my wheelchair is for life rather than me. They also wont believe that most people use a wheelchair for pain and fatigue management. ive even lost false friends due to using a wheelchair. Normally i watch 'Santa Claus the movie' (and get really annoyed when it's on any evening except Xmas eve a DVD wouldn't count) when that's on. Then i watch Top of the Pops Xmas special with my uncles girlfriend (who really likes me) but that clashes with Xmas dinner (more of a problem to my 'mum' than me). The we have present time, but after present time im unsure what to do? This is when im likely to get stressed, we did used to play 'name that tune' or 'next lines' but that's not as popular as it used to be. i think the issue is the number of people there. me, 'mum', gran, uncle alan (fairly understanding), Syd (his girlfriend), pete (my lovely bro), alfie (my nephew i haven't seen in over 4 weeks), 'sister', 'BIL', aunty al (provided disability is off the agenda shes OK), cousin, her fella, her baby son. Normally i try and play with alfie but hes not arriving until 3pm. Maybe i should put my weighted jacket on (which a few relatives have a problem with) as that helps with sensory overload. Even worse im unable to control my pain this year but i suspect the meds partly caused a problem. Any ideas of how to cope with xmas when autistic needs get forgotten? There is another tv in a different room i could use.