onlycrazygal Report post Posted October 10, 2006 do s anyone know where i can get an advocate for my son in case the worst happens, ive tried , searching but i cant continue feel so sickj please , do s anyone know of one bin bolton manchester area.... hugs, paula Quote Share this post Link to post Share on other sites
florrie Report post Posted October 10, 2006 paula hopefully someone will come along with advice on an advocate, the nas may be able to help and your regional nas, perhaps someone could post a link as I don't know how to find it, or the nas can give it to you. I think you should contact your MP and the newspapers, this case needs to be publicised my MP was quite helpful in as much as they could and contacted regional nas for me. Would moving to another authority help, you really need expert help, I had great difficulties accessing it myself. The NAS were very helpful and MP. I really feel so bad for you, I hope someone comes along with better info soon Love Jane Quote Share this post Link to post Share on other sites
keyholekate Report post Posted October 10, 2006 Paula, Stay strong!!!! Regards KHK Quote Share this post Link to post Share on other sites
jb1964 Report post Posted October 10, 2006 Hi Paula, This is so way over my head - I'm sure someone will come along soon with the advice you desperately need. Take care both, keep your strength, we're all thinking of you. Jb Quote Share this post Link to post Share on other sites
mum22boys Report post Posted October 10, 2006 Oh Paula, I read your update in tears. I am hoping so hard that everything is ok for you. I don't know how you are coping but you obviously are. I pray that someone will come along and help you and your son. Love mum22boys <'> <'> Quote Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted October 10, 2006 Paula <'> <'> <'> This is clearly a case of the system failing you and your son and not you failing your son. If he does get his assessment and dx then the health professionals must see that first you need help to understand how to deal with your child and his condition. How taking him away from you is going to be of benefit to the child is beyond me. First when working with social services (child welfare) you have to remember that SS don't care a jot about you and your feelings nor will they listen to a word you say. Their whole intent is the protection of the child and they can do this by various means including you voluntarily signing the child over into their care or engaging police powers of protection - in this situation the police will be able to come and take your son away from you with or without your agreement, your child will then be taken into protective custody and placed with a foster carer where you will only be given supervised access at a special contact centre. Do not for one minute think that your child going to a foster carer is any different to your child going into care - it's not - it's the same thing and on average it can take up to a year to go through the court process to either a) get your son back have your son cared for by other family members ( a residency order) or c) adoption. What you must do is enlist the help of NAS and your local parent partnership group. Is there a relative you can leave your son with rather than him going into care perhaps. How old is your son? I ask this because your child has the right to speak for himself and to say what he feels would be better for him. He can speak to the CAFCASS guardian and so can you - check out the link below: http://www.cafcass.gov.uk/ Keep strong - you've got a long battle ahead. Sending lots of these <'> <'> <'> Quote Share this post Link to post Share on other sites
stressedmumto2 Report post Posted October 10, 2006 Your post is really sad and worries me so much. Please stay strong, try to eat and build your strength up. I am thinking of you and I hope this all gets sorted asap. Sending you lots of these <'> <'> <'> <'> <'> <'> Quote Share this post Link to post Share on other sites
onlycrazygal Report post Posted October 10, 2006 Thanks daisy proudfoot, yeah im familiar with how the system works, what i must be very careful of is who works for the LA /LEA and who doesnt love, i know parenting partnership for one do , as at the last meeting she tried her hardest to discredit my sons independant consultants report. Not only that but she was part of the corrupt team that put him on the child protection register in the first place.......i just hope the nice little paypacket they all recieved from this triumph was worth it. ive approached my mp by letter firstly (which he promptly sent to the social services im battling with) then by telephone, in which he said at the next meeting i was to sort it out. i asked him how i was ment to sort it out when the ed soc worker had been lying and now was backed by the camhs doc and ss, he simply said paula sort it out you will never be able to care for your son alone you will need them so sort it out. as for NAS i will try them though i have in the past cried out for help and they couldnt offer me much assistance im afraid. thanks for your efforts and thinkin about me its well appreciated , hugs, paula Quote Share this post Link to post Share on other sites
onlycrazygal Report post Posted October 10, 2006 slightly off topic i know but in todays newspaper they plan on giving foster carers proper wages and raising their payments by 50% as theirs a shortage , i know it varies depending on the area however it occured to me that on average a foster carer gets on average 250-300pounds a week for a neurotypical child plus bonuses for a child with asd s it rises quite dramatically to 450-500pounds a week and the government are raising their payments by 50% surely to god this will only serve to entice not only genuine foster carers but also the undesirable kinds of people out of the woodwork whos only interest is the money ....... good god the system is going nuts!!! and unfortunately children like yours and mine , the vunerable in society will suffer as a consequence. im disgusted beyond words, papers are my next stop guys, i may need your help for which il be forever in your debt im sure . but i cannot tackle this alone, id obviously rather go to the big papers than local anyone got any ideas, would appreciate them.... hugs, paula Quote Share this post Link to post Share on other sites
tsmom Report post Posted October 10, 2006 I cant believe these people my daughter is different at home from school.At school she holds it together most of the time,yet she does call me from school to let of steam.The meltdowns come at home.Im sure this is very commen in ASD.The psych and all the profetionals we've had all say its often the case.Have these people never read up on asd. My thoughts are very much with you.Have you tried charity help we have a lot of support from KIDS,i will see if i can find a contact by you if i can i will pm you. Quote Share this post Link to post Share on other sites
tsmom Report post Posted October 10, 2006 Contact GMTV or yr local evening paper.You can email GMTV Quote Share this post Link to post Share on other sites
Bagpuss Report post Posted October 10, 2006 Oh Paula, I'm so, so sorry to read what happened Take care hun and please know I'm thinking of you x <'> <'> <'> Quote Share this post Link to post Share on other sites
citrine Report post Posted October 10, 2006 Contact GMTV or yr local evening paper.You can email GMTV denise robertson from this morning is heralding this sort of thing, its somthing that she continuosly works on lobbying the councils and mps.... my thoughts are with you... Quote Share this post Link to post Share on other sites
hev Report post Posted October 10, 2006 i wish there was something we could do,what about if all of us on here e mail gmtv and this morning so maybe that way if they get a lot of emails they will see theres a big problem and deal with it on the shows,strength in numbers im thinking,i cant bear the thought of paula losing her son,i cant think how else to help Quote Share this post Link to post Share on other sites
onlycrazygal Report post Posted October 10, 2006 Dare i ask you guys to do such a thing for me ???? i think its a wonderful idea!!! what do you think ??? ive been so worried tonight as in my sons doctors report it says on the last page that my sons seperation anxiety and embarrasment about his tics as he has been bullied has made it impossible for con to return to school..... seperation anxiety , thats within the realms of the aspergers diagnosis isnt it ??? so that means if they take him from me they could make very ill , i cannot let that happen he has been through enough trauma ........ i dont want to appear desperate as i know you all have so many problems of your own, but if we could accumulate enough emails and send to gmtv surely to god someone would listen ????? the system is sooo wrong, sometimes maybe when enough people are strong enough in what they believe they can bring about change.........i have to pray that this is the case , god knows ive little else left, just hope! id like to do this, not just for my son but for many others that have fell prey to the system, it has to stop..... hugs, paula Quote Share this post Link to post Share on other sites
kinky j Report post Posted October 10, 2006 i'm up for emailing them <'> we need to stick together on this!! tell me what to put and where to send it (i'm naff at wording these things) but i'm willing to help any way i can! paula stay strong you're a credit to us all! <'> <'> <'> kj Quote Share this post Link to post Share on other sites
nellie Report post Posted October 10, 2006 Paula <'> I really am sorry that things have got this bad, I really hope that things work out, sooner rather than later. I can only imagine what your going through. Stay strong. Nellie xx While we respect that members are free to have their own views and to take any action they think fit, I would like to remind members that they are not representing ASD Forum or expressing their views. Quote Share this post Link to post Share on other sites
florrie Report post Posted October 11, 2006 (edited) Paula, I've sent you a PM. i think you should contact the disabiltiy law service, as they do specialise in this sort of stuff , they sorted something out for something similar with an AS child before if you send me your address by PM my ex partner has said he will fax them this post. The NAS has an advocacy service you need to ask for it specifically, I never succeeded in getting an advocate when I needed one either, although my ex partner did help me. I'm sorry you have not had any help from your MP, unbelievable, how are you supposed to sort this mess out on your own. Edited October 11, 2006 by florrie Quote Share this post Link to post Share on other sites
florrie Report post Posted October 11, 2006 (edited) Hi Paula, i have just printed off the post but I'm not sure after looking at it whether it explains the complex situation clearly enough and I need to know whether it is ok to fax it to the disability law service, it may be better if you explain situation to them yourself. I will also email GMTV if i can find out how to do it. Edited October 11, 2006 by florrie Quote Share this post Link to post Share on other sites
hev Report post Posted October 11, 2006 yeah im going to email them now,im also looking for addressed,if anyone knows how i would word it i would be very grateful if they could pm me,and dont forget dont mention asd forum Quote Share this post Link to post Share on other sites
florrie Report post Posted October 11, 2006 Can someone send me the link, so I can email them too, especially as I've been through something similar with corruption etc Quote Share this post Link to post Share on other sites
tsmom Report post Posted October 11, 2006 I will watch GMTV today to get the address.Will defo email them paula yr right it takes lots of us to stand together Quote Share this post Link to post Share on other sites
tsmom Report post Posted October 11, 2006 PUT GMTV into google .Clic on the first link that comes up then there is an email us link on the left hand side Quote Share this post Link to post Share on other sites
tsmom Report post Posted October 11, 2006 thats mine sent Quote Share this post Link to post Share on other sites
onlycrazygal Report post Posted October 11, 2006 hey, you guys are awesome , florrie will pm you love just wanted to update you all..... ok , when con was diagnosed with aspergers/ tourettes, the consultant though very good and very reputable wasnt a tourettes specialist, although he felt upon his knoledge of con and family school history and a hour video he had viewed, his view was that con had tourettes. now the consultant knowing this diagnosed him, as con fit the criteria /diagnostics for tourettes syndrome and this has been documented in the report. knowing this would be in conflict with the camhs doc that said he was fine and didnt have any mental/developmental disorders, and also knowing that the social services and or court could simply view it as one docs view against another docs opinion..... phyeeew!!!.....sooooo cons consultant decided to send all documentation off to a very well known T.S. specialist in scotland, to make 100% sure of his findings. She is a very busy lady but after waiting 4 months i can now confirm that she has been trying to get hold of me . GULP!!! Her secetary has told me to ring her tomorrow morning as she will be in her office and needs to speak to me after viewing the tape. This could be the icing on the ruddy cake so ta speak as far as anyone is concerned as no-one will qualm the word of this lady shes the top of her field. im beside myself guys, i cant wait for the morning , my sol doesnt even know .........ive no fingernails left lol even if she said con hasnt got tourettes she can confirm that he most certainly do s have aspergers......as the two do often get confused with each other.... ahhhhhhhhhhh i dont know what to do with myself, hope you followed this....... hugs, paula <'> <'> <'> Quote Share this post Link to post Share on other sites
jb1964 Report post Posted October 11, 2006 Oh Paula - I'm so keeping my fingers and toes crossed for you - and sending lots of little prayers up too....... Please, please, please let this be the break you so desperately need. Miracles can happen. Take care and god bless, Jb Quote Share this post Link to post Share on other sites
pingu Report post Posted October 11, 2006 I have got every thing crossed for you hun. i was reading your post waiting for the "but" and it didnt come, lets just hope that thiis is the news you have been waiting for, and for which you deserve. Bless you paula, i have followed your nightmare from the beggining, as im sure many people here have, and you have my very best wishes for tomorow, please tell us as soon as you know. its great that this is finially turning a corner shaz x Quote Share this post Link to post Share on other sites
pingu Report post Posted October 11, 2006 Just told hubby whats happened, and he said ............... (and i quote) "I wishes you the best of luck, and i really hope that tomorrows phone call proves your right, and if it does you want to go to the papers / GMTV anyway and tell everyone how unfairly you have been treated, and how in the end you were proved right" said by steve.. (my hubs) Quote Share this post Link to post Share on other sites
Bullet Report post Posted October 11, 2006 Hope this woman is able to help you. Quote Share this post Link to post Share on other sites
lil_me Report post Posted October 11, 2006 (edited) <'> Just wanted you to know still thinking of you, not an hour has passed today when I haven't thought I wonder how Paula and her little lad are doing. I think you would get the best response from GMTV or any other Tv programme by contacting them yourself. Could even just copy most of what is stated on your post on the AWARES site. Edited October 11, 2006 by lil_me Quote Share this post Link to post Share on other sites
JenRose Report post Posted October 11, 2006 paula , ive just pm.d you Quote Share this post Link to post Share on other sites
UltraMum Report post Posted October 11, 2006 for the morning phone call I shall be on here on and off all day tomorrow - can't wait to hear the outcome .... Let's hope it's a result! Quote Share this post Link to post Share on other sites
kinky j Report post Posted October 11, 2006 paula, keeping everything x'ed for you for tommorow. i've emailed gmtv (thanks for your help, tsmom <'> ) kj Quote Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted October 12, 2006 Hi Paula - how did the phone call go? Did you get the news you were looking for? Still Take Care <'> Quote Share this post Link to post Share on other sites
Jill Report post Posted October 12, 2006 I don't post very often, but I have been following your sad story. I really really really hope the phone call today is good news. I think of you often and pray for a happy ending to this sorry saga. (((()))) Quote Share this post Link to post Share on other sites
CarerQuie Report post Posted October 12, 2006 Still thinking of you and I hope that the phone call is useful.xx Quote Share this post Link to post Share on other sites
pingu Report post Posted October 12, 2006 any news yet??? Quote Share this post Link to post Share on other sites
onlycrazygal Report post Posted October 12, 2006 just had call off doctor, she says she didnt watch all of the video , but from what she saw she couldnt really confirm a diagnosis of tourettes , she said she couldnt really just from a video anyway. she recommended we sought a tourettes specialist was sorry she couldnt help etc etc etc .....bit deflated but ok i thought she would really come through for me......though i must admit its always been so hard to catch cons tics on cam as through school / camhs even at home he represses them and slinks off to the toilets to release them. think its due to the fact he was bullied so much when they first started at school that he will do anything to conceal them now. its pretty typical of ts kids to do this so im told but it doesnt make a clear dx very easy as i cant exactly catch him in the toilet ...... ok, (in the process of picking myself back up guys) big hugs to all, you have all been awsome bless!!! paula <'> Quote Share this post Link to post Share on other sites
madme Report post Posted October 12, 2006 Paula did that journalist not come through for you? Im sorry if not. Couldnt she even put you in contact with others? Dont take this the wrong way- are you confident in your legal team - there is a brilliant solicitor down south who did all those mSBP cases cant recall his name- will research and get back to you. You need someone who has dealt with cases like this and not just a high street solicitor giving it a go- a specialist in the field. JUst a thought. Quote Share this post Link to post Share on other sites
BusyLizzie100 Report post Posted October 12, 2006 Paula, I just want to add my prayers and send some of these: <'> <'> <'> Lizzie x Quote Share this post Link to post Share on other sites
