fed up with schools, systems and proffessionals

[hedders]

4yrs and younger have better chances of possible identifcation for special needs with intervention,support etc..

 

 

reception year children no one wants to label them till 7years and older .

 

 

In the sen code of pratice states

"schools should be aware that any child admitted to reception class might have unidentified sen"

 

Whats the point!!

 

Im being told well we can monitor her, best to wait till shes seven, then what a year of iep before ed psy is involved so that would be 3-4yrs since started school.

 

If i turned back the clock to my dd age of 2-4yrs and gave them her nursery assessment over that period she would of been labelled and everything hunky dorery.

 

What happens between the age of 5-7yrs ?? Isnt there any research or studies for children with special needs or sen who were labelled before school age to differ from children with no disabilities

 

Is there a loop hole in the system?

What is early intervention for children who have complex needs, where some schools arent experienced to recognise

[butterfingersbimbo]

hey i can share your anger and frustration here....my daughter wasnt "labelled" until she was already well behind at school, struggling not only with her school work but with her realtionships with everyone around her too. and it all comes down to money!!!!

 

i often sit here and wonder how different el's life might be if she had been officially diagnosed at four....

 

all i can say is, hang on in there....

[Karen A]

Hi Hedders I understand the frustration but please don't give up.Ben was identified as having difficulties last year.The school had accepted that he behaved differently in some situations for some time.However we were very fortunate that his teacher last year recognised there was a problem and spoke to us.The biggest difficulty we had in getting a Statement was explaining why nothing had been documented.The Panel want to know what action has been taken at school action and school action plus-over set periods of time.If the school observe and do nothing then you will effectively start from scratch-at 7.

It is my guess that children with the most complex needs do get picked up because they become noticed-professionals may not correctly spot the specific SEN but they recognise that a child is not coping.The children who are at the risk of being missed are the ones who aren't doing as well as their peers but are not far enough out of the norm for the professionals to identify the problem.Regards Karen

[madmooch]

Hi, Caras 3 and i've been telling everyone who'll listen she's not behaving properly, they referred her to a pead who said she hasn't got Autism she has eye contact and then onto a SALT who said she has higher level language disorder but they still wont refer her for assesment

 

Because of the way she was born we got a Solicitor involved and he has said he's going to get someone to assess her ( she was born dead and without oxygen for a while ) so luckily i'll get her assessed one way or the other but i dont know how long i'll have to wait

 

 

Clare

[gladysmay]

slightly sideways but who, how is your child going to be assessed, will it be by the ed psych being approached by the school because my 'medical condtion' question on another thread is about lea's saying that this is purely a health issue, i.e. go to see your gp? (but what if that fails too)

[BusyLizzie100]

they referred her to a pead who said she hasn't got Autism she has eye contact and

 

I was told this several times about DS2. It took him much longer than most to smile for the first time but when he did he had and still has the most glorious sunny smile, with apparent good eye contact too. When he was still a baby I actually said to my husband, 'you don't think he's a bit simple, do you?' Can't believe I asked that, now.

 

So when I did ask if his difficulties were because of an ASD, the professionals politely laughed at me. 'But he's so social', they said. Finally he was referred to the Newcomen Centre at Guy's Hospital because of our parental concern and because school had raised a few issues. Guy's sussed him straight away, it took two and a half hours. They diagnosed him with ASD, and very carefully explained to us that he had a very, very thin social veneer but that he was definitely autistic. We knew it anyway, so we were relieved. he was four and a half.

 

I have really analysed his eye contact, and there IS something different about it. As a younger child I realised he was looking at my mouth, not my eyes. Likewise DS1; he makes good eye contact but it tends to slip away and, while he is happy to tell strangers all his intimate details he definitely does NOT look them in the eye while doing it.

 

Making good eye contact is NOT a diagnostic criteria!!! If you are being told this and are not happy with it, then ask to see a specialist in ASDs or ask for a second opinion.

 

And by the way, I totally agree with Hedders' original post. Early intervention seems to be the catchword of the moment, but everyone says 'let's wait and see' so we wait and there's no intervention. With waiting lists to see many professionals so monstrously long, the sooner action is taken the better, even if that means being labelled as a pushy parent. Bah!

 

Lizzie

[madmooch]

Hi, Cara's eye contact is strong - maybe too strong- a bit intimidating and she's way over the top with poeple - will ask whats in their bags when she doesn't know them and has hit poeple she doesn't know, she talks to anyone but a bit warey of men.

 

when she plays it's all copying - what she's seen, heard or what weve taught her and when she's playing Dr Cara she always asks what's wrong with daddy and how she should treat him.

 

She can be very aggressive - it doesn't come across as aggressive, but she enjoys hitting people.

 

She is unsure of how to interact with children around her own age and will copy them - right down to crawling and babbling with babies.

 

She is polite with her speech and rarely talks slang - she called me mummy up until she was 21/2 yrs - we dont say mummy, it's Mammy.

 

She doesn't seem to understand feelings very well and if i raise my voice alittle but i'm not angry she'll get upset and tell me to stop shouting.

 

I've spoke to other people about her and they think she's aspergers, because my son is severe asd he's completly different so this is new to me.

 

Clare

[dooday24]

its madness all of us just want wats best 4 our children but they keep fobbing us off reece has been waiting 4 a physchiatry appointment with camhs for about 2 yrs now because they still cant see him they r sending him back 2 the peads and also camhs want 2 know why i want a diagnosis bloomin proffessionals!!

[bramblebrae]

They want to know why you want a diagnosis?? that's ridiculous call me jaded but is the government trying to decrease the amount of ASD diagnosisis(new word ) or something? I would ask them what reason would a responsible parent not want a diagnosis? and if it was their child why would they not want one?

 

It's totally bizarre i kinda understand it for adults with undiagnosed with AS who on the surface are mangaing to get on with there lives independantly because part of the criteria for a diagnosis is that it must affect part of their life socially or work wise etc (it said something like that in the DSM criteria) so the doctors ask to get a clearer picture of whats affected and how a dx would help them. But for a child the implications of not getting a diagnosis and therefore little understanding or support at school is so important do CAMHS actually know what is going on in the education system!

 

Lorraine

[jlp]

Hi, Cara's eye contact is strong - maybe too strong- a bit intimidating and she's way over the top with poeple - will ask whats in their bags when she doesn't know them and has hit poeple she doesn't know, she talks to anyone but a bit warey of men.

 

On my son's diagnosis his 'over' eye contact was noticed - he did make eye contact sometimes, not always, but it was 'inappropriate' and could turn into an intense stare.