New -searching for professional help

[kittyl]

Hello, this is my first post here.

My son is 10 & dx 2 years ago with Aspergers & since then also SID & Dyspraxia. He is in a DSP unit

of a mainstream school, he's been there for a year, he likes the class he's in & occasionally has had a good

co-operative week, but when he cant cope he explodes & his rages are becoming more violent than the

school can cope with. With great difficulty (phone calls & e-mails) we spoke to the school doctor on the

phone, he couldnt suggest anyone to refer us to but the phyc at CAFS who did the diagnosis, but our CAFs

dont support, they only diagnose. So he prescribed Risperidone & will see us in a couple of months.

Its only been 2 weeks & theres no effect yet. We tried getting W back to school (he's been too afraid to

go in incase he loses control again) as the Ed Phyc was to do an observation, he went in really stressed

& upset & having someone staring at him and writing on her clipboard set him off straight away, he

trashed the classroom & I had to take him home. He wont be allowed back till after xmas, & that depends

on what the Ed Phyc says at next weeks meeting. I dont care if he cant go back to that school, I've told him I will homeschool him if necessary; the last 2 years of struggle at school have been too stressful

for him and me, & his tempers at home are very mild compared to school. However, he would prefer to be able to go to school if he could control himself, as he is quite sociable. So where do we go for help? you all seem to go to CAHMS or therapists, or paediatricians. Our GP knows nothing about AS, he will refer us but we have to tell him where. I cant find CAHMS here (Northampton area) I think its incorporated into CAFS & they only diagnose. We dont mind paying but we cant find anywhere to go. The NAS recommends cognitive behavioural Therapy but the nearest one is 2 hours away. I'm sure we're missing something, either that or we'll have to move house! I feel we're going round in circles & not getting anywhere, & W's childhood is

fast disappearing. Any suggestions??

 

Kitty

[pumpkinpie]

Are ther any support groups in your area? If there are get in touch I have always found parents are better at passing on useful tips.

In our area we have something called carers resourse who can come out visit and find out your needs and do some of the leg work for you. They are independant but not as quick as the parent grapevine.

 

It sounds as if school cant really offer support, have you asked them about cahms. They may be expecting you to understand the system?

If you dont know your local nas group ring the national helpline and they should be able to help you. I go to more than one group, I find that by not sticking to 1 I can use what is app to me at that time.

Good luck

 

I would seriously think about changing my gp or asking him to refer you to a paediatrition who is more in the know.