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DLA Continued,..

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anyone claiming DLA should ask about 'Direct Payments' the local social services and council have a nasty habit of forgetting to tell parents and adults about it when they are entitled.

 

Basically I get 478.99 a month (12 hours a week)to pay for any assistance with daily living I require on top of DLA, In return for this I provide accounts of where I have spent the money and the name of the person I employed. been on it for over a year

Edited by teaker1s

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hi all, i havnt been on for a while what with the kids and every thing else mums have to do :wub:

i so pleased to see that somebody had benifited from a very small bit of imformation that i had posted :thumbs:

My kids are all well even ,harry in his own way.

 

He has a pastrol surport plan ,a statement ,a social worker, 2 days help each week in the hoildays as well,the cids team helping ,parent partnership help and we have had funding from the family fund.

Well if i didnt ask for help no one else would

 

The forms for dla have arrived again for renewal ,so im about to start all over again there. :wallbash:

 

I would like to thank the people on this forum for all the help ,support and advice given so freely and without judgement. >:D<<'>

 

from vastsarah

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Hiya

 

I'm new here too.

I've recently won my appeal for DLA though I must admit I found

it a stressful and humiliating process, feeling like I was almost

begging for something we were entitiled to!

My son has Aspergers and I felt the form was not geared

up for this kind of condition. In order to win the appeal

I got evidence from each of my sons specialists and

asked for advice from a welfate rights service.

The more evidence you can get yourself the better.

It shouldn't have to be this way - makes you wonder

what the goverment are doing..

 

My advice is don't give up and try to see

if you have a welfare rights organisation

near you to help you fight for what you deserve B)

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Hi

 

I'm pretty new to the site - I work as a volunteer for an organisation in Brighton which helps parents of children with special needs.

 

I fill in the dla forms mostly for children with asd, global developmental delay and challenging behaviour - my field as my son has these particular problems :wub:

 

You may find this site helpful too:

 

http://www.nas.org.uk/nas/jsp/polopoly.jsp...3330&view=print

 

I warn you that it's pretty long winded, but I got my results today and I have the high rate for dla and low rate mobility - not bad, although it would have been extremely useful to get a blue badge

 

Actually, I'm a bit cross with the DLA team at the moment - This is the last time Chris will be awarded DLA as a child - he's 12 in Aug and has been awarded for 4 years.

 

The payments were going into my account on 9th of each month, but they decided to change it to 24th of the Month so that the payment is nearer to his birth date. In their wisdom they didn't pay the benefits into my account for 6 weeks and neglected to tell me - I went over my overdraft and had to go to the bank and plea for the limit to be upped.

 

As if life isn't complicated enough!! :angry:

 

Faz

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I found this form recently when filling in my son's DLA form and found it a huge help. (He was awarded lower rate, which we think is reasonable for his needs).

 

My son, 25, has great difficulty relating his needs to others, this form made it easy for him. It's in a tick box format which makes it very easy to fill in, lists the difficulties someone with ASD might live with and it helped him focus on the important issues. It's meant for adults with an ASD but useful for parents/carers too.

 

DLA application - supplementary information (DOC)

http://www.nas.org.uk/content/1/c4/77/90/D...application.doc

 

You may have difficulty downloading the page, if so, you can find a link at the bottom of this page.

 

DLA - guidance for adults with an ASD completing the form

http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=300&a=7788

 

I also used the DLA guide below and found it very useful.

http://www.bhas.org.uk/

 

Nellie xx

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I just want to thank you for this thread, I was awarded higher rate care componant for my 4 year old boy, I used one of the links about key phrases, on my appeal letter regarding the motability elemant, and it worked, the appeal was succesful, and we are getting higher rate motability as well, and the decision lasts until April 2010, so thankyou again. :D

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i have a nine year old son with asd ,i applied for dla some months ago .i was turned down for dla and was told my son just needs the same as any other child who is nine !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!.this is no more than i expected ,do the people who make these deicisions no what asd is like !!!!!!!! obiviously not to have made such a statement.could anybody advise me which course of action to take next ???????????. : i am so angry at the lack of understandin that they can even make such a statement .maybe if they spent 24 hours with us they would change there whole opinion on asd .

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i have a nine year old son with asd ,i applied for dla some months ago .i was turned down for dla and was told my son just needs the same as any other child who is nine !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!.this is no more than i expected ,do the people who make these deicisions no what asd is like !!!!!!!! obiviously not to have made such a statement.could anybody advise me which course of action to take next ???????????. : i am so angry at the lack of understandin that they can even make such a statement .maybe if they spent 24 hours with us they would change there whole opinion on asd .

 

Hi Sam1414, would like to comment as follows:-

If you have missed the deadine to appeal (which is I think one month) then do you have a reasonable 'reason' for doing that - I appealed a long time ago when I first applied - about 4mths late and I stated the reason was because my son was undergoing assessment at the child development centre to get a formal diagnosis and also that we were waiting outcome of a request for an assessment of special needs whilst at school (both had actually happened at time). They did give me appeal but we still lost appeal because he did not have a diagnosis, plus some other points. we did wait about a year and reapply and then he got awarded middle rate care (since then reapplied and got middle rate care and lower rate mobility.

 

If you are reapplying I would recommend you contact Citizens advice or other organisation who can help you word the questions more like "DLA" speak. If you want I can try and help... pm me if you would like further advice. Remember its not the same person assessing every time and what one person thinks is not a case, another person will have the opposite view. And ALWAYS copy the completed form so you know what you have put, and put in statements/ letters/ info from professionals wherever possible which supports evidence on the form - they do not always contact the people you want them to - I found that out when I appealed and it said supply names of people we can contact - but we are under no obligation to do so - if you send them evidence with your application/ appeal they have to consider it. Also do not be afraid of DLA sending a doctor to see your child - they are not generally prejudiced and will listen to your case - and will see you are not exaggerating. A relative's child had a speech and language disorder and was turned down and on appeal a doctor was sent to the home who, upon asking the child questions immediately saw how much this impacted on their life....

take care

Debbie

Edited by westie

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thankyou for the reply it is nice to know that there is support out there .my son is nine he was diagnosed in feb this year and all i have found is lack of understanding in general .what upset me the most is that the dla stated that he had no extra needs than any other nine year old and that he understood danger . - what i don t understand is how do they make these outrageous statements what person can say my son is like any other child of nine ,i simply do nt understand .i find my son so hard to deal with at times ,how can spiting and swearing at people in the street on an impulse be normal for a nine year old ,he can t explain his actions he does not no why this happens he states he can t help it .

the night times are the worst i dread the nightly rountiune which can last for hours ,all i wanted was for the dla to help me to help him . i have rang the dla and after a few very sharp words from myself i am having the decision looked at again i have the opportunity to send in further evidence ,if this fails i will have to go to appeal any tips u have would be gratefully accepted

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I had this with the DLA they said that kieran didnt need anymore care than a normal 16 year old at the time. Hes 20 now.(ity didnt take all that time i just let their decision stand untill i was told to follow it up.I got middle rate care when he was at school and they dropped it to low when he left and he was at home all the time.I to missed the deadline and went to see the citizens advice and you can apply again on a change of circumstance form(i think its called supersession)I filled it in and it had been a while and i got a letter yesterday saying that after taking into consideration what i had said and the point i had made thay have changed it back to middle care.My point was that if he was at home now 24/7 how could he need less care than he did before when he was at school most of the day it seemed to work.Put as much information down as you can.\i think my mistake like a lot of people have said before is that i didnt want to admit that he needed as much care as he did.

 

 

lynn

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To all those who offer support here, and those who have been banging their heads on a brick wall trying to get DLA, keep at it.

 

I kept putting it off as the forms were just too daunting, However 4 months ago after a puch from the paed I took the plunge and filled out the forms online,

I did it in conjunction with the advice from the autistic society.

 

My daughter age 12 has been awarded higher rate care and lower rate mobility for two years, it is much better than we hoped for, and makes a huge difference to our income and has allowed us to pay the payments on a new second hand car.

 

The back payments (three months worth came in very handy for christmas too)

 

For anyone not going for it and if you are on other benefits, it does impact these too, and you get extra payments if you are on income support and child tax credit.

 

One thing that is sad though is the people who helped me fill out the form told me you really have to not lie but treat the worse day as if it is every day to get a sucessful claim, I felt very very disloyal doing this, as Mydaughter tries so hard.

 

Keep on going

 

Anne

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To all those who offer support here, and those who have been banging their heads on a brick wall trying to get DLA, keep at it.

 

Keep on going

 

Anne

 

I echo that!

I applied for DLA when DS1 was first Dx'd in year 5 at school.

Not sucessful... school not helpful

 

I applied for DLA for DS2 back in the summer.

Not sucessful ... GP asked for more info - fat lot of good he is!

 

In the process of getting DD Dx'd and the topic of DLA came up again.

Said I hadn't been sucessful with the boys, I was asked if I had appealed.

I said I hadn't, and I got told off!

So I applied again online this time .... I found this to be so much easier, still took ages but the onlone info makes it easier.

 

I applied for all three children, bearing in mind that I had been told to think of the worst case scenario for all the questions.

 

:clap: I have just been awarded DLA for DS1 :clap:

... thanks to the head of Special Needs at his school! :notworthy::notworthy:

 

:pray::pray::pray: Now I am waiting to hear about the other two :pray::pray::pray:

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Have filled in a renewal dla form eventually - scared to bits about it put in letters from specialists and other stuff but am still so nervous - I have bronchitis at the moment and feel really low so all this dla worry is just making things worse.. I put in the form that he was now on melatonin - wish I hadn't now as they might say that his needs at night time are being dealt with - its still a battle to give him the stuff and he won't keep it in his mouth for the 3 mins they recomend for him to start feeling drowsy quickly.. it can take still up to an hour and sometimes he doesn't have it because he is unwell and on other medication so I don't want to overload him.. so I could argue yes he is loads better on the medicine but take the medicine away and its back to square one - also how many normal kids do they know who has to take medicine to help them sleep !!!

 

Thats why I think I am under the weather now.. my body is just starting to catch up with sleep that I am now coming down with every bug I had put off whilst dealing with my son..

 

Anyway I digress - I am soooooo worried that they will say no !! peeved with them as last time they said no I asked for them to take another look which they did but instead of the normal 3 years apart they did it so it ended the day before his 11th birthday !! so missing out on 6months before the worry started again..

 

Its the constant battle and also the money - I work from home claim working tax credit and housing benefit and just being able to make ends meet - take away the dla and then its also bye bye to the disability element of the working tax and the housing benefit disability element.. All this stress just does not help anyone least of all my boy..

 

anyway waffle over... does anyone think that me putting the melatonin on the form might jeopardise my chances ?

 

helpppppp

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this topic is scary , my son has just been diagnosed and i have to apply ...i cant beleive the contradiction you all face and everyone gets something different ....the more i see the more disgusted i am with the whole system ...ive got the form...but goodness what a nightmare....hope i can get it right!! good luck to everyone

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can anyone tell me who is the best person to get to fill in the dla form ...as in which specialist /therapist etc ..i presume they contact the school anyway from what i am reading

 

Di

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My son is 3.5 and I just learnt that we got middle rate for the care component and nothing for mobility. It's better than nothing, but he deserves more than that :angry:

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I filled in DLA renewal forms in January and happily sent them off and today in the post I got a letter from the paed with the form the DLA peeps wanted her to fill in about ds2 with a letter saying "we cannot fill these forms in now as we are not paid to do so."

 

Just like that! So the paed who has said that there's nothing else she can do for ds2 cannot even fill in a brief flippin form for his DLA! :rolleyes:

 

Luckily health visitor and social worker are happy to write honest, damning reports. Does that mean they still get paid to do this? It's a joke! :huh:

 

Has this happened to anyone else or is it just ds2's paediatrician being extra helpful?

 

 

Nikki.

he's currently getting higher rate for care but am hoping to get the mobility part too!

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Im confused how they work out the rates DS gets middle care high mobility which seems the wrong way around to me.This is his second aplication and they have both been the same :huh:

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Hi, I'm new on here.

 

I applied for DLA for my 12 year old son, due to having Aspergers Syndrome and he is also under SENCO, and the Education Psychologist.

This was applied for in Dec 2006 in which we finally received his decision last week. My son was turned down, and yet everything like support evidence letters were sent by both the Child Paeditrician, Senco etc a few other letters to support this.

I had also had copies sent to me to what was sent from the above in which they all state how my son struggles with everyday life, social interactions, communication, he is very easily led, vulnerable, you name it everything !!!

This is all so true, as I cannot let him out alone, and he is in the first year of the secondary school, in which i still have to walk him there and back.

But anyway its everyday he needs this support, and he tends to stay awake until 3am every morning as he is distracted by sounds, even the quietest of them.

He needs encouragement with clothes, as labels on clothes agrivate him, so these have to be taken off as like if nothing feels right on him, this happens daily.

He needs a lot of help and encouragement with personal care etc, like bathtimes etc, brushing his teeth.

The DLA know all this !

 

I have since asked them to look at this decision again with sending in more supporting evidence and now getting prepared to appeal as I am aware there is only a month to do this from the date of the letter with the decision.

 

I also have an older son who is 18 years of age, and I know that no 2 children are the same, but my older son had gained a lot of independence before my younger son's age.

 

I will keep you posted of the reconsideration, and wish everyone else the best of luck who are also undergoing the DLA process !

 

Cheers Di :thumbs:

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Hello Di and welcome to the forum. :)

 

Good luck with your appeal - it sounds as though you've got loads of evidence. I hope you get it this time.

 

K x

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Hello Di

 

Welcome to the forum.

 

Just wanted to say that my son was also turned down when he was 12. Like you I asked for reconsideration; I also contacted my MP by email and he immediately wrote to them.... within 4 days they'd reconsidered and awarded my son DLA. Thought that might give you a bit of hope.

 

Flora

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Hi

Thanks for your replies, I am very grateful indeed.

I have also taken your tip of e-mailing my local MP, I e-mailed him this morning, I explained the whole lot, given him all the details, but I have not yet had a reply back from him as requested, so I do hope he gets to read my e-mail asap in order for my son to have more support in the reconsideration.

When ringing we cannot directly speak to the MP, so at least with an e-mail it's so much easier to explain.

I will keep you posted, thanks again to both Kathryn and Flora, much appreciated.

It's a nightmare isn't it and yet when you know others who receive this with the same situation although I do not begrudge this but you know then your entitled to this too !

So I will keep on fighting lol !

Thanks again

Cheers

Di >:D<<'>

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Hi Di and welcome to the forum, I am fairly new here too. I have received my DLA form to fill out and have been sitting on it for a while as it looks daunting. From what you say about your son sounds exactly like mine, he's 12 and in first year of secondary, has aspergers and struggles with every day life etc. Be interested to see how you get on with your appeal so please keep posting as I may need to ask for some help as I imagine I am going to be in the same situation very soon, hope you don't mind me being so cheeky.

Good luck with your appeal and I hope your MP emails back very soon

Clare x >:D<<'>

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Hi Clare

Thank you so much for your kindness. these forums are great and the support on here is great too.

 

I do hope you get better luck than us here.

 

I will keep you updated of the process, and if you can as I expect you will , send off as much info as possible towards your son's claim, also from whoever diagnosed your son.

 

I will be happy to help as much as I can, and fingers crossed your son will be lucky, as I seem to think this may depend on what person is dealing with this too and hopefully this will be someone who understands.

 

Please keep me posted too, my fingers are crossed.

 

All the very best, I look forward to hearing from you.

 

Di

xx :thumbs:

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Hi Clare

Thank you again for your kind words.

 

So far up to date, yesterday I e-mailed my local MP and now hoping he will reply to me by today as time is going by.

I have explained everything and given him the details of my son etc, as back 2 years ago our MP helped us regarding a parking problem-so fingers crossed he can help us out here too.

I have taken Flora's tip lol, and so glad this helped her out, from what I am aware Flora also had a support letter from a member of her family which helped too , so either way it has worked for her which is great news, and a great tip that could help others too.

 

When I first applied in DEC 2006 I sent in a support letter from my sons's Child specialist, Senco and the school, my sister is a health worker and she wrote a fantastic letter too, but this obviously wasnt enough, yet all letters stated he needs support 24/7 in all aspects !

My sister stated they never even contacted her for further information, so goodness knows.

 

So fingers crossed if my MP can do this for me and this works well we all know what to do lol !!

 

Keep you posted, and many thanks again.

Di xx :thumbs:

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Hi all.

 

I have received an e-mail from my local MP's secretary this afternoon in which I was informed the letter of support for my son's reconsideration for DLA will be with the DLA dept tomorrow, and that I will be receiving a copy of this too.

So hopefully this should help to change the decision !!

 

Keep you posted xxxxxxxxxxxxxxxxxx :thumbs:

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:robbie: Hi

Anyway, thought I should tell you all a bit about myself, which I should of done first lol.

I am married and have 2 son's Jamie age 18, he is undergoing A levels this year, so plenty of studying, and of course my 12 year old son Daniel who is in the first year of a mainstream secondary school.

 

My son Daniel was thought to have had communication probs etc since the ages of 4, but I was fobbed off or felt like we were from then the Child specialist who said he was just being immature and over time will grow out of it.

This appointment was made by the school as it was their concerns too.

 

We had moved when Daniel was 5ish and thats when he started this school that was ok, but were not up on things, because when Daniel was in the first school he was on the 'special need register' and the new school was just helping by giving extra reading the usual thing as much as I tried to inform them of his needs.

The did get an Ed Psych involved as we insisted, but to be honest she was ok but not that helpful, its only now over the last year or so I have learn't about PP (parent partnership) etc as the school was also saying he will improve in time.

 

When Daniel moved up to the junior school we thought we would give him time and hopefully he will start mixing etc, but things seemed to have got worse and more noticable, I was still giving my full support day and night as this has never stopped as much as we do help our kids, it just seemed to be more than giving another child of his age group etc.

 

Its been coming up approx 18mths I have learn't about Aspergers in which I met a mate who's son has this, and even though no 2 kids are the same, my mate was saying that it may be aspergers with Daniel.

 

I spoken and wrote to the school for help, they were a bit funny about it, then I spoken to our GP who had said it would be a quicker way through the school for a referral.

So I insisted for the Community school's nurse contact details who then got the ball rolling for my son.

So since the last year of the juniors my son has been under a Child paediatrician and now Daniel is 2nd on the list to meet CAMHS to confirm the official diagnosis.

 

All those years I didnt know of the support out there as the junior school were quiet about this, and now he is in the 1st yr of the secondary school they seem to be more helpful and have SENCO fully involved and the Ed Pysch, and I have involved PP and the LEA, the ones who I never or was never informed about before.

 

Its a shame this wasnt picked up with my son when he was 4 yrs old, when he was being assessed. So 8 yrs on here we go, but are now finally getting somewhere.

 

Will keep you posted on the process. (Soz I didn't know what forum board to post this......lol).

Di xxxxxx >:D<<'>

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:robbie:

Hi again.

Today I received a copy of the letter and e-mail what my MP has sent to the DLA unit manager regarding my son's reconsideration, so then afterwards I received an email from the DLA dept to inform me they had received the letter from the MP which is being forwarded to who is dealing with my son's claim/reconsideration.

However, I had sent in further evidence by both e-mail and post by 1st class recorded delivery 2 days ago (Mon 23 March 07) and asked the DLA dept to inform me receipt of this when they receive this, so in the meantime I had checked it out myself on the Royal Mail Track & Trace, which confirms delivery this morning.

The DLA dept informed me they had not received my support evidence letter yet as they could not see this on their computer system.

So this is possibly because they also have both internal and external post, but they did say they will check this out again tomorrow.

Fingers crossed it will be dealt with soon.

 

Di :thumbs:

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Hello Di,

 

You're working hard on the DLA front by the sound of things- you deserve to get it: fingers crossed.

 

Like many here, you've had a long and winding route towards recognition and official diagnosis of your son's difficulties. It's good to hear the school is supportive, it makes all the difference - hope it continues.

 

K x

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Before I applied for DLA, I sat on the form for about 6 months. The paed kept telling me to apply so I did.

 

The paed, the Autistic society kept reminding me to put down the worst days, i felt very disloyal writing down how she actually was.

 

When I put my form in, i photo copied it and gave my paed a copy. (The form had been filled in with her help anyway) But this way she was able to mirror my answers in her form when the time came.

 

I however put in a claim for myself as I have a progressive liver condition and have lots of pain and fatigue. I was turned down flat for my claim. I now know that the GP wasn't sympathetic and put down my symptoms as mild (yet she is the one prescribing me all the medication)... I have even been signed off work for two years following a governemnt benefit medical so it is a bit of a farce really)

 

It really does seem to be a lottery as to who gets it and who doesn't!

 

Keep on trying everyone..... if you need it, you should be getting it!

Anne

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:robbie:

Hi Anne

 

I am so sorry about your illness, I do hope things will improve for you.

 

I am really shocked with your GP, especially as your GP is prescribing you with all the medication for your problems.

 

Have you tried applying for DLA since ? it sounds like you should definately be entitled to this.

 

The DLA dept are so hard with claims from what I have learnt when people first claim too !

 

I am hoping with all the extra evidence and a supporting letter from my MP will do the trick for them to realise what my son should be entitled too, and reconsider the decision.

 

I am married have 2 sons, my hubby works full time shifts and Daniel my 12 yr old son depends on me, so I cannot return to work as he will not stay with anyone else, so this can be difficult.

 

Anyway, I wish you all the best with your health, and you too if you haven't already done so make sure you get what your entitled too.

 

All the best to you.

Di :thumbs:

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WOWSERS! I have just got ds2's DLA letter saying that as of June 2007 (that was the renewal date) he will still get the higher rate for personal care, but they've also awarded him the higher rate for mobility!!!

:blink::thumbs::bounce::clap:

 

I am totally amazed! I didn't think he should a chance, especially as he's not 5yrs yet and the paed wouldn't fill in the form as she doesn't get paid too!

 

Oh well that's out of the way with ds2 until August 2010, just got to get on and claim for ds3. :rolleyes:

 

 

Good luck to everyone else going through the weird and wacky lottery known as claiming DLA.

 

Nikki.

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>:D<<'>

Hi great news, well done !!

 

You can relax with that one for a while now then.......brilliant !! :thumbs:

 

Today (Sat 31st March 07) I received an update letter which was issued Monday 26th March 07 to inform me they are looking at my son's claim again for reconsideration, and that they are going by all the information they have and new evidence sent.

They received a few emails from me on the 22 march 07 which i had then requested them to look at the decision again and had posted the evidence, also a support letter from my local MP in which they did not received this until 28 March so their letter had crossed with the letters of support and evidence sent.

 

They did say this can take 11 weeks and only contact them if we haven't heard nothing by then.

 

I do hope we will hear before that and hopefully they will decide that my 12 yr old son is entitled to DLA !!

I know the time can vary.

 

I will keep you posted.

 

Again the very best of luck to everyone else too ! :thumbs:

Di :robbie:

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Hello Di, this must be an horrendous time for you!! I too am waiting for my sons DLA decision and it feels like iv'e been waiting forever!!! its only been 7 weeks. My son is nearly 6 and hasn't been formally diagnosed with AS as of yet- we are hoping he will before the end of this year. Iv'e had to reduce my shifts from 35 hours per week to just 13 because Daniel just couldn't cope with it. Now im in a catch 22 situation. Whilst it's wonderful that I am spending more time with Dan the bad thing is that we have absolutely no spare money for anything!! I trully don't know how we have managed over the last 3 months- it's been horrendous for us all. I just wish that the Dla people would put me out of my misery- if my claim for Dan has to be reconsidered I don't think il be able to get him any birthday presents, so i'm praying for a positive outcome.

I'l be keeping my fingers crossed for you Di- all the best, im sure you'll get a positive result!

caroline x

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:robbie:

Hi Caroline

 

Thank you for your reply.

 

The DLA do drag their feet don't they ??

 

Mine is also a Daniel (hmmmm they must be jinxed-with their name) !!

 

I do hope you hear from the DLA soon, like my son, although the specialist have said Dan has AS this has to be officially diagnosed by CAMHS (Child & Adolescence Mental Health Service).

He is 2nd on the waiting list as informed a fortnight back, so we should hear anytime now, but really this has been left and ignored for almost 8 yrs as much as we tried for help and support to get things resolved for Daniel for a diagnosis.

 

Reading advice on here, one mum had wrote to her MP who had supported her with letters of support for the DLA, I had taken her advice and my MP done the same last week for us, in which the DLA have confirmed they have received this in support of evidence for Daniel.

 

I was hoping to return to work myself, my hubby works full time shifts as a steelworker, but due to the fact that Dan will not stay with anyone else this is difficult for me to return.

 

It's been an horrendous time for you too by the sound of things, and like you said its been 7 weeks and feels like a lifetime...........which I think this is already given them long enough to make the new decision !

They say if you do not hear within 11 weeks is to contact them, but all i do now is pester as I am forever sending in new evidence to add in order to help them make a new decision.

 

I think the whole system the way its done is crazy !

 

I do hope you hear sooner than the 11 weeks, do you think you could e-mail and ask them due to curiosity the progress of the decision, I know I will be doing so due to the fact my first letter was mislaid in the post.

 

Good luck, keep us posted and thanks again.

Di x :thumbs:

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Daniel is such a great name isn't it!! I like yourself am hounding the dla dept everyday-i should have the number on speed dial I think!!! It's horrible checking the post everyday and I know when the letter arrives il be too scared to open it! I think I will try emailing them- because if they hear my voice again they are likely to put the phone down on me lol!!

Isn't it terrible that our children who need more support are denied it? They need us to be around everyday but the dla just don't realise how hard it is for us- do you work full-time and watch your child struggle to cope or do you stay at home and worry about how you're going to buy next weeks shopping?? I think the decision makers are robots, no feelings and no hearts, i'm sure im not the only person that feels this way......

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