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Does your child have a Statement - update

Does your child have a Statement?  

89 members have voted

  1. 1. If you child has a dx of ASD do they also have a Statment

    • Yes
      54
    • No
      35


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Does your child have a diagnosis of ASD and a statement. I am including AS in this poll - don't know that Lord A did.

 

Cat

Edited by Cat

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I've voted yes for my son, but could do with voting no for my daughter! Daft thing is, my daughter is much more severely autistic and disabled than my son, but has no challenging behaviour at school (little b*gger saves it up for home!) so no statement.

 

Sarah

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I've voted yes for my son, but could do with voting no for my daughter! Daft thing is, my daughter is much more severely autistic and disabled than my son, but has no challenging behaviour at school (little b*gger saves it up for home!) so no statement.
Sarah

 

I will remember to add another no at the end of the pol ;)

 

Cat

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I voted no - fingers crossed though as we're supposed to be hearing tomorrow if we're getting one!

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Hi cat -

 

that two thirds figure does sound extremely high to me too, but on the other hand the official numbers may be close to that because the 'spectrum' is so wide, and the larger recognised numbers at the more profound end do get statements... Adding to that, I think many, many kids at the 'HF' (sorry everyone, but use that term loosely) end of the spectrum tend to get 'borderline' diagnosis' from fence sitting professionals, and the fact that they don't get statements goes unrecorded because they don't get recognised in the count as being on the spectrum... It's a catch twenty two, and underlines again just why clear, precise diagnosis and SEN statements are so important in determining provision. :angry::angry:

Lord Adonis probably does take the figures at face value, because even the major lobby groups have to tread carefully around 'official' statistics or risk shooting themselves in the foot and being accvused of 'manipulating the figures'... the fact that the figures are totally artificial in the first place is, in political terms, a 'moot point' :angry:

 

L&P

BD :(

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Just voted. My 7 yr old son dx'd with ASD has no statement & after meeting with teacher this week won't be getting one unless his score dips severely!!!! :tearful:

Edited by jinny

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I put 'yes', although now that he is at a special college he has a Section 140 instead of a Statement. It sets out his needs, etc, but isn't a legally binding document.

 

He did have a Statement at his special school.

 

Bid

 

:oops: Should have said he had his dx when he was 7.

Edited by bid

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My ds2 had a statement while he was that age, he's 22 now and has Aspergers. My dd currently has a statement, she's almost 14 and has an ASD. It was a battle to get the statements and everything then, but I do believe its even harder now. I did have to go to appeal with both of them though. The support was ok (eventually) but there were technicalities that needed changing, like putting speech therapy in a certain section and making it more specific as to exactly what kind of support and hours. I had a lot of advice from both ACE and IPSEA and a representative from IPSEA at the appeal. I think both Statements took about 6 months to go through. It wasn't easy but it was very much worth the fight and once you've got the statement, its harder for the authorities to remove it or take away hours than it is to not give one in the first place.

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Guest Lya of the Nox

no and i have a child who displays no issues that grown ups at school can see ( her mates can tho!!!)

but at home it is different.

i did look into the statments issue with la, but got waffled then school looked at her and told HER that she needed to watch her spellings ect!

rant over lol

x

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I voted yes, but must say that DS got a statement 3 years after the dx and only after he suffered a breakdown with depression and attacked another boy at school.

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Can I just say that you do not nessasarily need a diagnosis of any condition to get a statement, if a child is struggling in any area in the SEN CODE OF PRACTICE then the childs statement should meet the needs of those difficulties, its similiar to the DLA its the childs needs.

 

In Js assessment and contribution I stated the actual problems J had describing what J has difficulties with.

 

J is not diagnosed ASD but he has a lot in place that in place for ASD children because they work for him other aproaches have failed so they have implented many similiar statagies for children with ASD.

 

Diagnosis is getting very politically difficult now many in our area are not ASD spersific trained, the longer term implications on the system makes proffessional suggest autistic traits rather than an actual assessment.

 

cahms are geared up for the more mental health approach using medication and left to get on with it.

 

I dont feel that statementing children because of a spersific condifition is the right way as many children have grown up throw the educational system with no actual diagnosis until later into teenage or young adult life, so I feel that it should go on the childs individual problems they are having.

 

I know now that if a child is suspected with conditions they have a duty to meet that childs need, because diagnosis can take a long time with no definate answers for some.

 

Statementing should be based on the childs individuals difficulties, not conditions, diagnosis so if school are suggesting you wont win one if the childs got no clear diagnosis is wrong.

 

JsMum

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You're right JsMum, dd was Statemented on her needs before she was diagnosed, and she got a good level of support too - but its certainly easier to convince them if a professional is backing up what you say, by giving a diagnosis.

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:groupwave: I have recieved the final statement this week for my DS 8 who is HFA. The school told me that he didn't meet the criteria!

 

Just enjoying the moment ........how much good it will be in the long run of course remains to be seen!

 

Phoebe

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J has a dx of AS but no statement. I haven't even applied, but not worth trying at this stage as we're moving him to a different school in September. I think he needs one, but school say otherwise - but that's because they have their heads firmly in the sand as to what his difficulties are.

 

Karen (not bitter, honest).

x

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DS (10) has had a statement since he went to school. We fought for it immediately he was diagnosed aged 4 with HFA - fought being the operative word!

Edited by jomica

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J is diagnosed as having "moderate autism" now. (He was initially diagnosed as AS at 4 although he had language delay and difficulties). But every year I have been told by school that he wouldn't get a statement as he was progressing slowly. He is on school action plus at the moment. He is just starting to show behaviour (mainly stimming) which is disruptive to the rest of the class so I may be in a better position to get a statement now. So I intend to apply for a statement after he starts junior school in September.

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Go for it Michelle! Sadly its often the most disruptive kids that get the support the soonest, because the teachers have to think of the effect on the other children in the class. The quiter ones who sit in the classroom and just get on with it, maybe not reaching their full potential but not annoying anyone else either, often get forgotten :( its wrong but that's the way it is. "Not reaching his full potential" is always a good phrase to use. The fact that they might be just about keeping up with the rest of the classs, is missing the point somewhat if the child is bright and capable of so much more. Also, although he/she might be fairly well behaved in class, it doesn't mean he's ok at home cos often they get more and more stressed and hold it all in til they get back to the safety of their home and then it all comes out! :hypno: I know lots of kids like that. Some children don't erupt in temper as they're the more placid sorts but that doesn't mean it isn't having an effect in other ways, they might lose all their self esteem, become timid and anxious etc etc

 

Sorry for ranting on a bit but this attitude that everything is ok as long as the rest of the class isn't affected and the one with SEN is "making progress" (of some sort) so no extra support is needed, really gets to me :wallbash:

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Voting here and on other forums would suggest that Lord A has got his figures correct - so I rang DfES today and was pointed in the direction of http://www.dfes.gov.uk/rsgateway/DB/SFR/s0...FR23-2006v2.pdf which is where all of the statistics re statements come from. They are gathered from ALL schools in England.

 

You need to scroll down to table 9 to see ASD.

 

Cat

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hi my ds is waiting on both i know he is to be statemented and waiting on dx for aspergers. could anyone tell me what help this will be to me and him thanks. does it make much difference. thanks again.

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Your child having a statement will open many doors for him and help towards getting the help he needs and will give you the written evidence to apply for extra support financially.

Help in school on a 1 2 1 with a teaching assistant apply for as many hours as possible they rarely give full-time but it is best to ask anyway. Additional help with transport to school can be included in the statement, ask the paediatrician and ed specialist to include this with their reports and add it to yours. Education department can provide transport because of medical condition a taxi lifts my lad at the front door and brings him home again. Therapy. You will be able to find out about these from other people on this forum.

 

It is better to have and not need, than to need and not have!

Good luck on your journey!

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Hello,

 

H has a diagnosis of AS is approximately 2 years behind his peers in core school subjects and receives small group and one to one tuition. However, he does not have a statement and the school are reluctant to support us in our application for one because he is making progress and they feel that H may become dependent on a particular assigned worker. H remains on school action plus and we are monitoring the situation carefully. He has made significant progress in his reading and spelling, but the two year gap is worrying and does not seem to be closing. I strongly suspect the reluctance to statement is based on funding.

Edited by wilson

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Hi all :thumbs:

 

My son age 12 has a DX aspergers, high anxiety levels and some learning difficulties.

 

No statement, I was informed by the ED P that he would expect to assess someone with more of a complex diagnosis ???

I am confused, yet my son has been on IEP's ever since the age of 4, and School action and School action plus for a year !!

 

I voted NO, but will fight for this statement due to his anxiety which is causing a lot of problems.......including skipping the odd lessons, even though he stays on the school grounds, but nothing they plan seems to get resolved, we're just going round in circles !!

 

Good luck to all regarding a statement !

 

Cheers Di xx :thumbs:

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I voted yes. My DS was dx feb '07 and we received his statement last week - yipee!!! :thumbs:

Got to say though the only reason we got the statement - I think - is because of his violent disruptive behaviour at school.

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hi

ds has dx and a statement and we have just had it re done as well after a long hard fight we know seem to be getting somewhere ? hopefully . this seems a very popular subject with many grey areas it is a battle but nothing is easy in life

paul

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Hi

Niamh got a Statement when she was 7 and a half - a year after she was dx. We got told by the powers that be that it would be hard for us to get her Statemented due to her age - apparently our LEA finds it easier to Statement pre-school children than those at school. However, we gor one for her without a fight although initially they wanted her to go fulltime at mainstream which we contested so they put on the final Statement that her main school was to be her special school but she has to have links with her local mainstream. Last term she went for a few visits to the mainstrea, school with the intention of her going there one day a week - lets just say she couldn't cope with an hour there with full support from an LSA plus out-reach worker from her special school let alone a whole day so that idea has been dropped for at least a year :thumbs: Thank God!

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I was diagnosed in June 1998 but it took until August 2000 to get my statement. 2 years and 2 months of pure hassle it was.

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hi chris do you think that it benefited you with being statemented. if so could you tell me in what way i dont have a clue about these things and my son is to be statemented when he gets back to school thanks very much for your help. he is dyslexic as well as awaiting diagnosis for aspergers 8 years old. thanks again.

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