Kris Report post Posted June 17, 2005 1000 members!!!!!! Blimey - I'm gonna have to have a glass of wine and a sit down!! Kris Share this post Link to post Share on other sites
nellie Report post Posted June 17, 2005 Congratulations Boss!! 1,000 members... but the board stats say we have 988 registered members?!!! How come the figures don't add up??!! Enjoy your wine, I'm off for a refill. Nellie xxx Share this post Link to post Share on other sites
mossgrove Report post Posted June 17, 2005 Nellie wrote 1,000 members... but the board stats say we have 988 registered members?!!! A small handful of members have resigned over the time the board has been going so a little over 1000 people have joined but only 988 of them are still members. Simon Share this post Link to post Share on other sites
Gordie Report post Posted June 17, 2005 (edited) A small handful of members have resigned over the time the board has been going so a little over� 1000 people have joined but only 988 of them are still members. ... so we'll have to have another little celebration when we hit 1,000 current and active members then. And it currently stands at 1,005 members that have joined overall (988 of whom are still with us, as you say). James Edited June 17, 2005 by Gordie Share this post Link to post Share on other sites
George Report post Posted June 21, 2005 Hi, I am new to this forum I have posted some recipes but thought I would put my introducion in here too. I have a son, Jamie who will be five in September he has just received his ASD diagnosis in May, I am home educating him and we live in Cornwall with my mother, I am a single mum and have found reading all the posts really helpful - look forward to talking to you all. George Share this post Link to post Share on other sites
bevalee Report post Posted June 21, 2005 Hi George Welcome to the forum! Share this post Link to post Share on other sites
nellie Report post Posted June 21, 2005 Welcome to the forum George, You will find great information and support plus lots of understanding here. Nellie xx Share this post Link to post Share on other sites
Hectorshouse Report post Posted June 22, 2005 Hi George and welcome aboard, I live in cornwall too ... good luck with your home eding, I may be on the same route myself if I can't get my son's statement sorted out. HHxx Share this post Link to post Share on other sites
asereht Report post Posted June 22, 2005 HI and welcome to all new members. T Share this post Link to post Share on other sites
LizK Report post Posted June 29, 2005 Only just spotted this post so better introduce myself here too! I live in the Midlands and am mums to two boys. My eldest son (currently 3.5yrs old) probably has AS or somewhere on the milder end of the autistic spectrum though he is too young for a proepr diagnosis yet. He has a receptive and expressive speech delay of about 12 months (which is his biggest problem), has social difficulties including crushing anxiety and impulsivity and a few obsessions and routines thrown in for good measure. He may also be dyspraxic, have an OT assessment at some point Am jsut starting tor realise that if you want any decent help you need to battle and do your best neurotic parent act Cna see myself spending a lot of time here, lots of great information Liz x Share this post Link to post Share on other sites
Mandy24375 Report post Posted June 30, 2005 Hi Everyone! I just joined here today and found this thread so thought I'd better introduce myself! My name is Mandy, 30 years old, married to Rich (who has HFA) and we have 3 kids: Melissa (6) who has Asperger Syndrome, Lucy (3), speech and language delay and Gemma who is 10 months old. We live in the West Midlands. Melissa was diagnosed with AS just over a year and a half ago. She is in mainstream school with support and is coping with it ok so far. I am currently without a "home" place on the internet for support . I used to be a CL (community leader) on ivillage special needs board but stood down because of family responsibilities. I also used to co-manage an MSN group for autism support but I am no longer there for personal reasons. So feeling a bit isolated at the moment. This looks like a great place, and I'm looking forward to getting to know everyone and making some new friends I hope! Take care for now, Mandy xxx Share this post Link to post Share on other sites
platinumstar Report post Posted June 30, 2005 Hi my name is Alison. I have two boys both with a dx of Aspergers and suspect ADD they are also dyspraxic, microcephalic and hypermobile and extended x chromosome. Phew it wears me out listing it all. Ashley is 10yrs (11 in August) and Christian is 8yrs. I am also dyspraxic and hypermobile and still wondering about other dx. I have a wonderful husband too. I found this site thanks to Darky who I met on another forum. We have become great friends and found we have an enormous amount in common! So thanks lisa you are a star I think it is great that the moderators spend the time on these sites cos we need somewhere to blurt out and seek advice for each other. There are few places to rant! I would especially love to hear from anyone in Wiltshire. Well that my intro, look forward to chatting with you guys! Alison x aka Platinumstar Share this post Link to post Share on other sites
mossgrove Report post Posted July 1, 2005 (edited) Welcome Mandy, Liz and Alison. You have definitely come to the right place, there are loads of people here who understand what you are all going through, and you will find plenty of support and advice. I look forward to talking to you all. Simon Edited July 1, 2005 by mossgrove Share this post Link to post Share on other sites
nellie Report post Posted July 4, 2005 Welcome to all new members. A great place for information and support. Nellie Share this post Link to post Share on other sites
petet Report post Posted July 5, 2005 Hello all... I just discovered this forum while trawling for 16-19 provision options for our son "Al" who is middle functioning AS aged 13. Details follow ... Location - Swindon Status - Married to Anne Children - 2 (Al + 1 young lady aged 15) Work - "Gardening leave" but used to be a "chip-head" at Intel. I'm looking to exchange experience on parenting Al for 13 yrs for advice on what to do next... And you may even get your PC/Motorbike/TV/Plumbing fixed in the process PT Share this post Link to post Share on other sites
nellie Report post Posted July 5, 2005 Welcome to the forum PT, You will find lots of support, information and understanding here. I'm afraid provision for adults with AS can be very scant. You will find some information on this previous topic. Adult Provision ? Forward Thinking., Post 16 Provision. http://www.asd-forum.org.uk/forum/index.ph...t=0entry12290 Best wishes. Nellie xx Share this post Link to post Share on other sites
nautim Report post Posted July 5, 2005 Hi, I'm hiding under a pseudonym at the moment but anyone who knows me from other lists would probably recognise me. I have two daughters on the spectrum who are both also diagnosed with fetal valproate syndrome. The older one has just been looked at and diagnosed with DCD as well. I have several roles as I'm also a professional as well as a parent as well as my own diagnosis of Aspergers. Regards Nautim Share this post Link to post Share on other sites
nellie Report post Posted July 5, 2005 Hi Nautim, welcome to the forum Yes, I think I know who you are, I hope you find the forum helpful. The natives are very friendly. Nellie xx Share this post Link to post Share on other sites
nay Report post Posted July 6, 2005 hi there my name is nay . i have just joined this forum and wanted to introduce myself i am a member of a american board but wanted to also join a uk board. ok i have 2 boys my eldest is 10 he was diagnosed at 4 . i also have a 8 year old he is being diagnosed at the moment ( bit later than the other , i was so happy he wasnt destroying the house like his brother i never worried. hard to explain but hopefully in time u will understand what i mean). i am married to a great man who is a great step dad to the boys . any way lovely to meet everyone nay xx Share this post Link to post Share on other sites
nellie Report post Posted July 6, 2005 Hi Na and welcome to the forum. I have two sons, the eldest (26) was diagnosed with autism at 19, my youngest (24) was diagnosis with AS last month. My husband was diagnosed with AS at 52. I hope you find the forum useful. Nellie xx Share this post Link to post Share on other sites
~Jonathan~ Report post Posted July 6, 2005 I'm Jonathan. I'm 31 and a self-diagnosed Aspie. I definitely have AS. Share this post Link to post Share on other sites
Flora Report post Posted July 6, 2005 Hi Jonathon, I'm new here too. I have an 11 year old with AS. It must have been very hard for you to grow up and go through life without the help that people with AS need. What made you decide you have AS? Do you feel better for knowing there is an explanation to some of the difficulties you may have had? Hope you don't think I'm being nosey. It's great though to have an insight into AS from someone who actually has the condition. Best wishes Lauren Share this post Link to post Share on other sites
Lesley Report post Posted July 6, 2005 Been adding replies to a few topics & realised I haven't introduced myself. If there is ANYONE on this planet in the same boat as me I'd dearly love to hear from you.... My son (4) got dx of AS, ADHD, speech & language disorder in June. LEA not interested, Tribunal date set for 20 October, ombudsman complaint in post. Finally refered to CAMHS (appt late July) through Health Visitor & Nuffield Centre (appt Aug) after a year of chasing/appealing. Currently biting and lashing out at home on daily basis. Starts school in Sept. Daughter (5) is NT but just came home with her reception report yesterday - achieved all her early learning goals with the exception of social & emotional development... Hubby (!) self-diagnosed AS still has trouble with obsessional behaviours & has fought alcoholism amongst other things - has always said its something to do with 'his head not being straight' but the light only dawned after my sons dx. Hubbys parents turn out to have obsessional traits - not drying hands after washing / depression / feeling different / can't use public loos... My mother I've always described as the most unmaternal woman in the world - now I'm beginning to see her inability to empathise, fixation on telling the truth, stressed about imaginitive play with grandchildren, lack of ability to get jokes, lost the plot when retired (was a teacher - end of routine!)... all adding up.... My brother cant socialise even with his own family, never sent me a birthday card, marriage failed after 1 year cos couldn't compromise/empathise, lost the plot after leaving school had to join the marines to have his life organised My Grandfather (mother's side, dead now) was apparently admitted to psychiactric units for assessments on several occaisions for obsessional compulsive behaviours...ie couldn't look at car tyres in case the car crashed & never used a handbrake in his life... And me. NT. (I think!) Teaching in a secondary school for Asperger Syndrome. Excuse me: AAAARRRRGGGGHHHHH Got the job long before it dawned on me..... If there is ANYONE in this world who can help me retain my slight grip on reality please advise!!!! Am I imagining things?..... Lesley PS Doc signed me off sick ON MY BIRTHDAY through stress of trying to get LEA to accept sons dx - haven't even started on the rest of it yet! Share this post Link to post Share on other sites
oracle Report post Posted July 6, 2005 Hi Lesley, Hey we could have a lot in common? I have two sons with ASD. Eldest 18 next week has AS, he was not idagnosed until he was 13. My youngest now 8 has High Functioning Autism and was given his dx aged 3. My ex Husband, is my ex because he lost his battle with the booze, and I could take no more. He only ever had two interests in life, Fishing and Drinking. People walked away from him in pubs because he never shut up about either. His Dad my ex Father-in-law, was a very controlling man who had every receipt for anything that he has ever purchased age 14 and over. He kept every gas and electricity bill and logged them in a book and demanded explinations from his wife if she used more energry that he expected them to use. This all depended on the time of year on what he expected the consumption to be. He also had very fixed ideas about meals and what you could serve for a meal, again depending on what time of the day or year it was. Does any of this jangle alarm bells in your head? He too was into fishing, they were both fishermen and he actually sold his fish to his wife because he sold it to everyone else. For my part my Mum has always been more concerend with the house being in apple pie order and the meals being served at the right time and on the right day than in mothering Don't get me wrong I know that she loves me very much indeed but she has to attend to her routines and housework before it's my turn. I am an only child and I now believe that the change I brought to her life was just more than she could cope with again. Even when my Dad was in hospital last year, he died, we had to make sure that all of her routines were adhered to before we could visit. Her brother has always lived by routine and always expected to be served a glass of milk and two jaffa cake biscuits by my Gran on his return from work. His wife carries on this routine to this day he is now almost 70. He no longer works and so he goes out and spends his day in the Library Reading Rooms because he can not break the cycle of his day while he was working. When my Dad died I went to inform him of the death and he thanked me and then closed the door in my face My husband could not believe what he had done. I could and knew that he was not being nasty just being him. I do not think that I have AS? But then again I may not be 100% 'normal' either. But I do find it really hard work trying to faciliate the needs of everyone else in my life and sometimes just want to go AWOL and spend a week just looking out for me Welcome to the group - its the best. Carole Share this post Link to post Share on other sites
Flora Report post Posted July 6, 2005 Hi Leslie. Well my problems are rather less than yours, but I'd say one thing, with the frustration, stress and being passed from pillow to post you are trully not alone. I have 3 children; one with AS and dyspraxia, and another with language delay and autistic tendencies. Believe me, there are times when I've just wanted to curl up and cry, then there are times when I want to lash out at someone, and other days I count my blessings and enjoy the unique way in which my children see the world. Keep strong, and remember there's always someone out there to give a shoulder to cry on, or to rant to (or at!) Best wishes Lauren Share this post Link to post Share on other sites
big mamma Report post Posted July 6, 2005 A big hello to all the new members Share this post Link to post Share on other sites
Lesley Report post Posted July 6, 2005 Thanx for all your support - its like I can finally talk about it without feeling it should be hushed up Lauren I could never imagine having a 3rd child - James is enough for 5 He stayed up tonight until we got home from parents evening to find out which reception class he was going to be in - thank god they got it right & made him a rabbit! Lesley Share this post Link to post Share on other sites
~Jonathan~ Report post Posted July 7, 2005 (edited) What made you decide you have AS? Do you feel better for knowing there is an explanation to some of the difficulties you may have had? Hope you don't think I'm being nosey. It's great though to have an insight into AS from someone who actually has the condition. (((((Lauren)))))) I can't really answer that, it's been a slow and gradual process really. I get a lot of identification from the people here, things they write. Someone's post a few days back where they listed their traits was as if they were just talking about me and my own experiences. Edited July 7, 2005 by ~Jonathan~ Share this post Link to post Share on other sites
Busyknitter Report post Posted July 9, 2005 Hello, I'm Mum to T, who is 3.5 and autistic (fairly low functioning, no speech yet). He has a Statement which provides 1:1 support in mainstram nursery and that is working well at the moment. But we have recently decided that he would be best placed in the long run in a special school and are hopeful that he will be offered a place at a very good LEA-run school for ASD sometime in the next year. We are also waiting on an appeal for DLA Having had a nose around the forum, I suspect most folks here are dealing with high functioning ASD rather than our end of the Spectrum. But I thought I'd pop in and say Hi anyway. BK Share this post Link to post Share on other sites
~Jonathan~ Report post Posted July 9, 2005 Hi Busyknitter. Welcome to the forum <'> Share this post Link to post Share on other sites
mandyque Report post Posted July 9, 2005 Hi there, I've just been pointed in your direction by a relative who is here by the name of Trinity I'm a 30-something divorced mum of two, boy and girl. My daughter is 8 and has severe autism (kanner/classic autism) and attends a special needs school in the North East of england. As you all probably do, I have numerous difficulties with her challenging behaviours and whatnot and I hope maybe by sharing experiences and knowledge we might help each other out! Share this post Link to post Share on other sites
Kathryn Report post Posted July 9, 2005 Hi Mandyque and welcome to the forum. You'll find a lot of support on here. Share this post Link to post Share on other sites
UltraMum Report post Posted July 10, 2005 Hi there You may have guessed my name! I have one son (J - just turned 9) who has been diagnosed with (in order of diagnosis!) ADHD, dyspraxia, HFA and severe pragmatic disorder. I guess the autism diagnosis trumps (and explains) the others. The pragmatic disorder is the hardest to get to grips with. I used to work as a radiographer (pre child!) then as a classroom assistant but working in term time and then coping with J as well proved too much for my mental health and i gave up work last September. I'm 2 years into an online degree which is workplace based - I have redefined my workplace and role and have continued the degree, specialising in studying autism and the impact on our family. This has meant that I can take time to research issues that affect us and look at ways of implementing changes to help - that's the theory anyway! We've (hubby and I) been trying to get a statement for J since he was 6 and a 1/2 - just got a final statement last Friday, which doesn't give J all that we think he needs but is better than the 1-2 hours input into handwriting and motor skills that he has had so far. We had to threaten a trip to SENDIST to get SALT provision written into part 3 of the statement. That's probably enough for now - wish I'd found this site a few years back ... Share this post Link to post Share on other sites
UltraMum Report post Posted July 10, 2005 my son and husband clash terribly. My husband cannot deal with TJ's condition at all and this is my biggest battle. Just read Maggie's message (back in May) - I have the same problem - I seem to spend half my time separating them or sorting them out - Hubby seems to wind son up. Share this post Link to post Share on other sites
boyzmum Report post Posted July 11, 2005 Hi all, My name is Kate and I live in Dorset. I have two children both of whom are beginning assessments for Aspergers. My eldest has always had behavioural problems that have been put down to emotional problems and ODD and my youngest has been recently diagnosed with ADHD. I know there is more to their difficulties than that and with the help of friends from an ADHD support group (whose kids also have an ASD) have pushed the docs for further assessment. My eldest is currently undergoing tests via a speech therapist and her initial assessments showed her that he definetely needs support with his social communication skills. I see my youngest sons doctor on Tuesday and I am going to ask her to begin further assessments with him then. Especially since starting meds for ADHD, his obsessions and social problems have become worse. I was shown this site by an internet friend from www.adders.org and from what I have seen so far I am glad I came for a visit. Anyway that's me, speak to you soon, Share this post Link to post Share on other sites
CalamityKate Report post Posted July 11, 2005 Hi everyone! My name is Kate, I am a mother of 2 boys aged 2 and 3, from Essex. My eldest son Lewis is in the process of having various tests for ASD. I have known for a long time that something isn't right, so in a way if he is dx as being somewhere along the spectrum, it will come as a relief...... I will feel vindicated as I think people tend to dismiss you as a neurotic mother sometimes! Lewis' main problems are very delayed speech, obsessional behaviours and poor concentration. His speech (at least in the way of actual amount of new words) is coming on in leaps and bounds at the moment, but his pronunciation is very poor and he tends to stress the wrong syllables. He is also quite echolalic and uses words out of context. He is obsessed with opening and closing doors and also has a bit of a thing about phones, either toy or real ones - holding them to his ear and going "hello Granny", or whoever. His concentration span is limited, but is better if it is actually something he wants to do. Having said all that, he is, on the whole, a very easy child - sometimes easier than his n/t younger brother LOL! He is usually very biddable, eager to please, he is extremely affectionate, makes great eye contact, sleeps like a log all night every night and eats well. As I said, he is improving a lot in every way lately (I just noticed today that he has also stopped biting his nails - that came as a shock as I have never, ever cut them yet!!! Have to start, I guess...) and loves nursery. I worry how he will get on at school, but we will cross that bridge when we come to it. Anyway, bit of an essay there - sorry to ramble and nice to "meet" all of you!!! Share this post Link to post Share on other sites
bevalee Report post Posted July 11, 2005 A 'BIG' hello to all the new members! Welcome aboard! Share this post Link to post Share on other sites
bid Report post Posted July 11, 2005 Welcome to all our new members They're a great bunch on here! Bid Share this post Link to post Share on other sites
nellie Report post Posted July 11, 2005 A big hello to all new members. Nellie xx Share this post Link to post Share on other sites
XxRosiexx Report post Posted July 12, 2005 Hello my name is Rosie and im new, I havnt been diagnosed with Asperges as i only have it mildly but everyone in my family has belived i have Aspergus since i was very young. I just thought it woul be interesting to hear from other people with Asperges.... so hi everyone. Share this post Link to post Share on other sites
