Elefan Report post Posted May 9, 2004 Hello and welcome Bev! Glad you could join us! Your frustrations sound so common, so I expect 'others' will pop up soon to empathise and support you. One thing that I have learned, is that where they cannot place a child into a specific part of the spectrum,..like Aspergers,...they leave them with the diagnosis of ASD. Whether this enhances support you will receive within the Education sector, will very much depend upon your own individual LEA. My very best wishes to you all. Also a hello and welcome to Rhyn Essence! Thank you for sharing your background. Hope your wife posts also,...I couldn't fail to notice you said she was in Education! Is that flutterings in the Bat Cave I hear from Jester?!! Kind regards, Elefan Share this post Link to post Share on other sites
nellie Report post Posted May 9, 2004 Hi Rhyn_Essence Welcome to the site. I have never heard of Kleinfelter's Syndrome before. I'm Nellie, my eldest son of 26, is diagnosed with ASD and my husband was recently diagnosed with AS. I hope you find the site useful. Nellie. Share this post Link to post Share on other sites
nellie Report post Posted May 9, 2004 Hi Bev, a warm welcome to you, I am sure you will find plenty of people on this site that you can relate to. Just be careful of entering the Bat Cave you may never be the same again! Nellie. Share this post Link to post Share on other sites
kirstie Report post Posted May 9, 2004 Hello there Bev and Rhyn Essence, I'm glad you found us!! This forum has been a brilliant source of info and support for me and don't be fooled The Batcave is the best form of escapism there is!! love Kirstie. Share this post Link to post Share on other sites
BEVERLEY Report post Posted May 9, 2004 after you all mentioned the batcave i had to go and look. LOL not laughed so much in ages, hubby (john) woundered what i was laughing at so came and joined -suprised he didn't wake the kids he was laughing that much bev Share this post Link to post Share on other sites
pookie170 Report post Posted May 9, 2004 It is fun, Isn't it? Nice to meet you, Bev and Rhyn Essence too.(hope I spelled that right!!) Bev, my son, now 6, was a bit of a puzzle to the psychiatrist too. Finally got a DX of AS after 2 years, but you'll get there. Only thing I can advise is to make as much noise as poss. They don't like to give a DX until they're fairly sure...... Rhyn, I've heard of Kleinefelyer's syndrome. Wasn't it featured on a recent documentary on Ch4? You must've been through an awful lot!!! Hope to chat with you soon! Esther.... (alias the Caped Confuser!!) x Share this post Link to post Share on other sites
Rhyn_Essence Report post Posted May 10, 2004 It is fun, Isn't it? Nice to meet you, Bev and Rhyn Essence too.(hope I spelled that right!!) Rhyn, I've heard of Kleinefelyer's syndrome. Wasn't it featured on a recent documentary on Ch4? You must've been through an awful lot!!! Hope to chat with you soon! Esther.... (alias the Caped Confuser!!) x Yes well K.Syn was featured on CH4 and I watched it hoping that it would explore the "emotional difficulties" as the prog advert intoned. Maybe I was distracted by a sudden gust of wind unless of course both of us mentally switched off because as I recall it centered on something completely different To be honest I don't actually identify myself as a potiential transsexual and have no desire to dress up. though I have been known to do it for a laugh erm Tim Share this post Link to post Share on other sites
lynyona Report post Posted May 10, 2004 hi bev and rhyn_essence welcome and nice to meet you both.I am lynn live in north easy Lincolnshire with dh and my 4 ds 26,22,17(autistic) and 15 Share this post Link to post Share on other sites
Jester Report post Posted May 10, 2004 Hi Rhyn_Essence Well, if you like dressing up (even just for fun) you DEFINITELY need to come to the Batcave Welcome to you and welcome also Bev regards Jester Share this post Link to post Share on other sites
daisy Report post Posted May 10, 2004 (edited) Hello all, great to find this site. I am a mum to 4, our 7 year old son was diagnosed with AS in November last year. It has been a difficult time for all of us, not least as we are a "restructured" family, consisting of a 12 yr old, 10 yr old & 7 yr old who are my birth children & our 7 year old withAS who is my step son we all live as a family with limited input from absent parents. I'm hoping the site might stop us from pulling our hair out!! Edited May 10, 2004 by daisy Share this post Link to post Share on other sites
Elefan Report post Posted May 10, 2004 Howdi Daisy!! Hope the forum helps to keep you away from being unnaturally hairless!! Elefan Share this post Link to post Share on other sites
lynyona Report post Posted May 10, 2004 hi daisy, nice to meet you i am sure the site will keep you from going hairless ,it as me so far it is full of friendlyand helpfull members and i dont regret joining them one bit so enjoy even at times like this .lynn Share this post Link to post Share on other sites
nellie Report post Posted May 10, 2004 Hi Daisy, I'm Nellie and I'm competely bald!!! A warm welcome to the site, hope you find it useful. Nellie. Share this post Link to post Share on other sites
Auriel Report post Posted May 10, 2004 hullo im the son of bid and step son of jester hullo Share this post Link to post Share on other sites
Elefan Report post Posted May 10, 2004 Hullo and welcome!! I presume you will be making for the bat cave, Auriel?!! Elefan Share this post Link to post Share on other sites
CarolJ Report post Posted May 10, 2004 (edited) Hello fellow ASPs Autistic Spectrum People/Parents May I bid a warm superhero welcome to Bev, Rhyn Essence and Daisy and an especailly warm welcome to Auriel ... son of bid and step son of jester otherwise known as The Jester and Female Inquisitor - child prodigy of said superheros are most welcome here. You must be possessed of a twisted and clever mind indeed! I look forward to welcoming you all into the Batcave. Caped Confuser put the kettle on and I'll grab whats left of the Hob nobs. SWOOOSH!!! - [ASM woman swirls her ample arm up in a stylish flair tossing her superhero cape around her generous form - she turns and trots towards the safety of the batcave, leaving behind her a faint smell of Byriani ......] .... Edited May 10, 2004 by CarolJ Share this post Link to post Share on other sites
Kris Report post Posted May 10, 2004 I think that she's trying to say hello!! You'll have to excuse the... interesting... sense of humour. Some of our members have passed the point of no return. I'd suggest a visit to the Batcave in General Discussion to learn more. Be warned though you may not escape with your sanity. But... welcome to our forum. I hope you are able to find the information you need, unwind or maybe sound off when necessary. Kris Forum co-Host Share this post Link to post Share on other sites
clair Report post Posted May 10, 2004 Hi just in case you are wondering I am Clair, married to Adie with three kids, Elise, Srevie and Aston. I am awaiting a diagnosis for Aston the youngest, 6 years old, most likely Aspergers. I have been fighting for a diagnosis since he was three, I originall thought it was ADHD. My sister is a speech therapist and mentioned it could be Aspergers as she had her own concerns. The more I read the more I am convinced. Luckily after getting the school and CDC to take me seriously they called in an Ed psych who said she didnt know how I had coped at home with him. "at last". I can honestly say I think I am going crazy at times as when the school say that all has not gone well with him in the day I think I am going to laugh. I dont mean to be funny but when you tell them for so long that you are having problems at home and they cant see it at school, it becomes amusing to see the teachers face when she cant believe the way he is being now. I think to myself "yeah get on and push it through your channels then instead of telling me", I already know what he is like. I was so glad to find this site, I have never been a one for forums but I have found myself having a look more and more. I will post as time goes on if I can help but really I am a bit of a lost newbie. Speak soon Clair. Share this post Link to post Share on other sites
nellie Report post Posted May 10, 2004 Clair You won't be a newbie for long and your are not lost anymore - consider yourself found. <'> Welcome to the site, you should find lots of information and support here. It sounds as if you have had a struggle, I'm sorry. Best Wishes to you. Nellie. You might hear a lot of talk about bat caves etc. Don't worry it's parents letting off steam, I think!!!! Share this post Link to post Share on other sites
clair Report post Posted May 10, 2004 Thank you for the warm welcome Nellie. It is nice to know there are people out there who care. Thankyou. Clair Share this post Link to post Share on other sites
Kris Report post Posted May 10, 2004 Hi Clair, Welcome to the forum. We hope you'll find all the information, support and understanding that you need. Our members are the best and always willing to help out. As Nellie has already mentioned, if you ever feel the need for a healthy dose of insane fun then visit the Bat Cave in General Discussion. Kris Forum co-Host Share this post Link to post Share on other sites
nellie Report post Posted May 10, 2004 Hi Auriel A big welcome to the site. Love the avatar, did you choose it? It's brilliant. My name is Nellie, I look forward to having you around. Share this post Link to post Share on other sites
Kris Report post Posted May 11, 2004 Blimey, its getting so hard to keep up with new members !!! Welcome to the forum Auriel Kris Share this post Link to post Share on other sites
lynyona Report post Posted May 11, 2004 hi clair and auriel nice to meet you both. lynn Share this post Link to post Share on other sites
Auriel Report post Posted May 11, 2004 Hi Auriel A big welcome to the site. Love the avatar, did you choose it? It's brilliant. My name is Nellie, I look forward to having you around. danke, yeah i chose it myself Share this post Link to post Share on other sites
Helen Report post Posted May 11, 2004 Hello Clair and Auriel and welcome Auriel, I hope your sense of humour is better than your madcap mum and Jesters! Great avatar by the way Helen Share this post Link to post Share on other sites
benruth Report post Posted May 11, 2004 Hi everyone, I've really enjoyed reading the postings. Not yet grasped how everything works but will keep trying. I have a son age 13 and daughter age 11. My son was diagnosed with Pathological Demand Avoidance (PDA) in 1996. I always knew he was different since he was a baby, and he was extremely hard work from day 1. Eventually got a statement by year 5, then he refused to go to school and was out of school for 18 months. He now goes to a weekly boarding school which he never refuses to go to on Monday mornings so I take that as meaning he is happy there. He rarely talks about school (he cant remember things that have happened when he changes location so home and school life are kept totally seperate) He is very animated when he initiates conversation, which is usually about films, computer or PS2 games or science. Living with him before he went to boarding school was very stressful. Due to the pressure he felt from school, his verbal and physical aggression was becoming intolerable due to his rapid growth and increased strength. He is a changed person over the year he has been at his new school, more tolerant when he comes home at weekends and is now rarely physically or verbally abusive. Still struggling with getting him to attend to personal cleanliness, rarely brushes his teeth! When I send him to the bathroom he pretends to do it (wets toothbrush to fool me). Same with washing hair: wets his hair but wont use shampoo and hopes I dont notice. My daughter probably has ADHD (not diagnosed) doesnt sit still for a moment, plays sport every day and needs this to get rid of excess energy. She gets into trouble at school for fidgeting and distracting other kids and her teacher once described her as being like a 'Meercat'! I'm sure I will enjoy reading all your messages and getting to know everyone Jan Share this post Link to post Share on other sites
nellie Report post Posted May 11, 2004 Hi and welcome Jan Hope you find the site useful. You will soon get the hang of how everything works. Nellie. Share this post Link to post Share on other sites
Auriel Report post Posted May 12, 2004 Not yet grasped how everything works but will keep trying. Generally the buttons do what they say (post posts, reply replys, log out logs out....) Share this post Link to post Share on other sites
Kris Report post Posted May 12, 2004 I've really enjoyed reading the postings. Not yet grasped how everything works but will keep trying. Hiya, Welcome to the forum. Dont worry about it - I'm the resident techie here and still havent worked out how it all works yet (Elefan will tell you how often I manage to crash the board - And I'm supposed to be a professional!!!!!) Kris Share this post Link to post Share on other sites
CarolJ Report post Posted May 12, 2004 Hi Jan (alias Benruth), and welcome. This is a good place to offload, seek advice or generally lose yourself in insane ramblings, whatever takes your fancy. Look forward to cross posting! Regards, Share this post Link to post Share on other sites
mossgrove Report post Posted May 12, 2004 Blimey! I drop off the introductions thread for a couple of days and loads of new people join! Welcome one and all! You'll find loads of support here. Simon Share this post Link to post Share on other sites
bid Report post Posted May 12, 2004 Hi Jan, Welcome to the forum! My son is nearly 15 and posts as "Auriel". I sympathise with you over the teeth and hair!!! (Are you reading this, Auriel??!!) Perhaps I'll see you in the Bat Cave!! Bid Share this post Link to post Share on other sites
Auriel Report post Posted May 12, 2004 Your teeth and hair are awful auriel hey :| Share this post Link to post Share on other sites
kirstie Report post Posted May 12, 2004 Hi all you new guys, memory stinks...so one big hello and welcome! i used to be sane untill i met this lot!! joking apart this is a great site and there are so many knowledgeable people who know exactly how thing are.now... to the Batcave and beyond......... Love Kirstie. Share this post Link to post Share on other sites
CarolJ Report post Posted May 12, 2004 Your teeth and hair are awful auriel Stop picking on Auriel, boys will be boys! My son is almost five and I darent brush his teeth, his bite is worse than Jaws! Believe me I have tried everything, superhero toothbrushes with batteries, he just chews the bristles off! As for the hair, well, I just give him a no. 2 - have you seen the sheep shearers in Aussie, you have to be dead quick - I get his head in a half Nelson and three strokes later he's done! In fact need to tackle hair problems later, as he has caught nits from playgroup - sigh! - easiest solution is to shave it all off! He does look cute with no hair! Share this post Link to post Share on other sites
benruth Report post Posted May 12, 2004 Thanks all you guys for the welcome! Look forward to reading and posting! Share this post Link to post Share on other sites
saz690 Report post Posted May 19, 2004 Hiya all, New around here, just found this forum and seeing as everyone else is doing an intro I may as well join in! I'm Sarah, married (for my sins) to Ian and we have 2 children, Alex and Lydia. Alex is 8 and has dx's of ASD, ADHD, dyspraxia, severe migraine disorder, hyperlexia, hyper+hypotonia, pelvic/trunk/shoulder instabilities and finally anxiety disorder! He's a lovely little lad, very complex to say the least! He goes to an ASD specific unit (we did the mainstream thing - never again!) and he's been there for 2 years or so and is doing well. He's made alot of progress these last 2 years and I personally beleive in the ASD specific approach, its worked for Alex and there should be more provision like that around. He's very gifted in maths and could read before he could talk properly, but writing - urgh! He hates it and will do just about anything to avoid it! Lydia is 3 and is definetly becoming more of a puzzle each day! She is beautiful, chirpy with huge blue eyes! She's in pre-school one day per week where she is currently getting 1 to 1. She enjoys it and likes to go but really doesnt *get* the other children. She toewalks, stims, twirls, flaps, has echolalia etc etc etc. Her speech isnt brilliant, her pronunciation isnt very good and much of what she says is echolalia but its coming on - slowly. We are currently waiting for an appointment for her for CDC, she was seen there last year but they weren't sure if she was copying her brother or not, well we are 1 year on and we are pretty sure she isnt copying her brother! So here we go again, at least this time we know the score. Ian, hubby, is *in computers* and is in my mind *somewhere* on the spectrum. Me, well I'm just stressed! Thats about it for now. Sarah Share this post Link to post Share on other sites
nellie Report post Posted May 19, 2004 Welcome to the forum Sarah, You have had your share of problems, I'm not surprised you're stressed! It's good to hear that your son is getting specialist support in school and yes, I agree, there should be more places like that. I hope you find lots of information and support here and maybe have a laugh to ease the stress. Look forward to chatting with you. Nellie. Share this post Link to post Share on other sites