Skywalker Report post Posted December 23, 2005 Thankyou for welcoming me to Aspergers Forum. Hope you have a good christmas (Thats in 2 days!) So I am partying early! Share this post Link to post Share on other sites
Kerre Report post Posted December 23, 2005 *feeds Skywalker peanuts* Hi. Share this post Link to post Share on other sites
Skywalker Report post Posted December 23, 2005 *Prepares a big pint of coke to Kerre* Make sure you drink it Share this post Link to post Share on other sites
Kerre Report post Posted December 23, 2005 Hell yeah, I love Coke. *drinks it down* *'splodes* Share this post Link to post Share on other sites
Skywalker Report post Posted December 23, 2005 My mum (stressed out mum) thinks this is going to get silly *drinks pint of coke* Share this post Link to post Share on other sites
Kerre Report post Posted December 23, 2005 Of course it's gonna get silly, have you seen what some of the adults do? Share this post Link to post Share on other sites
Skywalker Report post Posted December 23, 2005 I'd say the same thing Share this post Link to post Share on other sites
Kerre Report post Posted December 23, 2005 I'm on that Santa site. I saw that on the Jonathon Ross Show. That guy singing was soooo drunk. "AFRALUATOMMARA!" Share this post Link to post Share on other sites
Skywalker Report post Posted December 23, 2005 It was obvious he was wobbling everywhere! Share this post Link to post Share on other sites
debbie28 Report post Posted December 23, 2005 hi my name is debbie, i have a daughter called sophie who has aspergers syndrome and a.d.h.d she is 7yrs old.someone recommended i look at this site as it has lots of usefull information after looking through it im really pleased to see im not the only one out there struggling to make sure our children have a normall life etc.i wasnt very clued up on asd and found it quiet difficult to understand we have been very lucky as we were accepted on a t.v programme called LITTLE ANGELS and had the expert help from a lady called lavene antrobus who works at the tavistock centre in london with children who have asd.she has given us a lot of help and support in understanding aspergers syndrome and im pleased to say that sophie responds a lot better to me now..anyway its been good reading all of your advice and tips etc hope to pick up on some more as time goes on.. Debbie Share this post Link to post Share on other sites
Kerre Report post Posted December 23, 2005 Fleep. Hello. Share this post Link to post Share on other sites
Skywalker Report post Posted December 23, 2005 Hello Debbie, I'm new here so don't be shy everyone on Aspergers Forum knows mostly all the problems you may have. I am 12 years old but I help people with all their worries & problems. So if any problems you know where to find us. Share this post Link to post Share on other sites
mossgrove Report post Posted December 23, 2005 hi my name is debbie, i have a daughter called sophie who has aspergers syndrome and a.d.h.d she is 7yrs old.someone recommended i look at this site as it has lots of usefull information after looking through it im really pleased to see im not the only one out there struggling to make sure our children have a normall life etc.i wasnt very clued up on asd and found it quiet difficult to understand we have been very lucky as we were accepted on a t.v programme called LITTLE ANGELS and had the expert help from a lady called lavene antrobus who works at the tavistock centre in london with children who have asd.she has given us a lot of help and support in understanding aspergers syndrome and im pleased to say that sophie responds a lot better to me now..anyway its been good reading all of your advice and tips etc hope to pick up on some more as time goes on.. Debbie Welcome Debbie I saw the program a few months ago. You might be interested to know we have already discussed it on here: http://www.asd-forum.org.uk/forum/index.php?showtopic=3949 Simon Share this post Link to post Share on other sites
phasmid Report post Posted December 23, 2005 Hi Debbie, welcome to the forum. I didn't see the program but from reading the reviews on here it is one I would like to see if it is repeated again. Share this post Link to post Share on other sites
annie Report post Posted December 23, 2005 Hi Debbie, Welcome to the forum I saw the programme too. Glad you found your way here. It's a great place to be. Annie X Share this post Link to post Share on other sites
smiley Report post Posted December 23, 2005 Hello Skywalker and Debbie Welcome <'> And a big thank you to Debbie - after your programme my family were much more understanding Mary xx Share this post Link to post Share on other sites
Brook Report post Posted December 23, 2005 Hiya Deb, You made it then. Brook Share this post Link to post Share on other sites
debbie28 Report post Posted December 24, 2005 Hiya Deb, You made it then. Brook hi brook yes i finally worked out how to use the site...thankyou everyone for the wellcome i read all of your thoughts on the little angels programe its just so nice to see that there are so many people out there who understand asd. i have been told by the bbc that LITTE ANGELS will be shown early next year on bbc1 i will let you all know the exact date when they tell me. Share this post Link to post Share on other sites
debbie28 Report post Posted December 24, 2005 Hello Debbie, I'm new here so don't be shy everyone on Aspergers Forum knows mostly all the problems you may have. I am 12 years old but I help people with all their worries & problems. So if any problems you know where to find us. hi skywalker..thankyou very much everyone is so welcoming on here its lovley... Share this post Link to post Share on other sites
debbie28 Report post Posted December 24, 2005 Hello Skywalker and Debbie Welcome <'> And a big thank you to Debbie - after your programme my family were much more understanding Mary xx hi im glad that you gained something from the programme i sometimes watch it again myself to pick up on the important issues that were raised lets hope they continue making programmes on asd in the futue.. Debbie Share this post Link to post Share on other sites
ceecee Report post Posted December 26, 2005 Hi Debbie Welcome to the forum.I saw the programme too.I found it extremely interesting.At times I really felt for you but there were other times when I thought what a lovely little girl your daughter was. Anyway you've come to the right place here.Welcome <'> Share this post Link to post Share on other sites
kirstie Report post Posted December 27, 2005 Hello Skywalker and Debbie, I'm so glad you both made it here, we're all here to help each other. Ben, it is always great to have the input of our members with asd's , in gives us a real insight into how our children might be feeling and that can only be a good thing, so if i need to know anything expect to hear from me, that goes for you too Kerre!! Debbie i haven't seen Little Angels but if you keep us posted as to when it will be on again i'd be really keen to see it. Anyway hope you all had a great Christmas and got everything you wished for..... Share this post Link to post Share on other sites
nellie Report post Posted December 27, 2005 A warm welcome to all new members. Nellie xx Share this post Link to post Share on other sites
Gordie Report post Posted December 27, 2005 Hi there, debbie28 ... Recognise yourself? http://www.bbc.co.uk/bbcthree/parenting/li.../series3d.shtml (Scroll down a bit. ) James Share this post Link to post Share on other sites
lil_me Report post Posted December 28, 2005 Hello to the newbies & welcome to the forum Share this post Link to post Share on other sites
Elanor Report post Posted December 29, 2005 Hi Debbie I'm really pleased you've joined us - the Little Angels programme really took me back to how we used to be, at the time of my son's diagnosis, and I watched most of it in tears. I thought you very brave to do the programme, and I'm sure it's helped lots of people. Hope things are getting better for you, Sophie and the rest of the family. Elanor Share this post Link to post Share on other sites
carrieq Report post Posted December 30, 2005 My name is Carrie. I have 3 children; dd 8yrs (dyslexix) ds 6yrs (Language disorder which we are told will manifest as severe dyslexia when enough evidence can be gathered, ADHD, and autistic tendencies, pushing for this to be more specific!) dd2 1yr. Share this post Link to post Share on other sites
nellie Report post Posted December 30, 2005 Hi Carrie and welcome to the forum, You certainly seem to have your hands full. This is a great place for information, support and advice. I hope you find it helpful. Nellie xx Share this post Link to post Share on other sites
Steve_colour-se7en Report post Posted December 30, 2005 Hello everyone, I'm new here Just a little introduction, My name is Steve I am on the Spectrum and my little boy who 7yrs old and is also AS, i am quite busy with my own site which is on asperger/autistic savant syndrome and related disorders. I enjoy researching on AS and also have computer interests, I enjoy numbers very much as do a lot of AS folk apparently I will be posting more in fact I already have. If I can also help anyone in any way just let me know, you can always visit my site and forums you can find the address in my profile. I could always do with more visitors to share information with. I truly believe we need to promote awareness and also help parents and newly diagnosed children, and adults more coping stratergies etc. I won't go on too much though ( it a thing we do apparently) thanks for the site, and company (by distance naturally). Steve.. I think the boy means well but he is distinctly inclined to be inattentive...... Tutor of Winston Churchill to Lord Randolph Churchill, Winston's father Share this post Link to post Share on other sites
Helen Report post Posted December 30, 2005 A warm welcome to all new members Share this post Link to post Share on other sites
LizC Report post Posted December 31, 2005 Hi I am Liz and am a mum to 3 kids. Hayley is 8, Matthew is 5 and Nathan is 2. Matthew was recently dx in september wiht aspergers syndrome. we have known since birth really that he was 'different' and when he was younger we thought he has ADHD but it wasn't and he was assessed over a few mths. Life can be hard! Liz Share this post Link to post Share on other sites
Steve_colour-se7en Report post Posted December 31, 2005 (edited) welcome LizC, Glad you have found the forum, forums it seems do help people in different ways at various times, we can relate a little to you we have also known since the birth of our son, in the fact really that he was 'different' (since found out a lot like me AS)also when he was younger we to thought he ADHD. It wasn't the case and he happened to have AS with tics - the tourette traits.you say life can be hard! indeed it can as my partner informs often. look forward to reading some of your posts. Steve.. I think the boy means well but he is distinctly inclined to be inattentive...... Tutor of Winston Churchill to Lord Randolph Churchill, Winston's father Edited December 31, 2005 by Steve_colour-se7en Share this post Link to post Share on other sites
kirstie Report post Posted December 31, 2005 Hi Carrie and Steve, Welcome folks. <'> I also thought my son had ADHD, even after the AS dx but apparently not! I also knew from birth my son was' different ' , he screamed and screamed and never slept.......... anyway hope you get lots of advice and help, Hi to you too Liz (I've replied to your post) and i know it, life can be hard... you're in good company so whatever you need to know just ask. I really hate the thought of anyone stuggleing it makes me pretty mad actually Take care and happy Hogmanay all! Love Kirstie. Share this post Link to post Share on other sites
nellie Report post Posted December 31, 2005 Welcome Carrie and Steve Glad you found us. Nellie xx Share this post Link to post Share on other sites
lindy-lou Report post Posted December 31, 2005 hello to all the newbies <'> debbie im really looking forward to seeing the little angels programme. Share this post Link to post Share on other sites
annie Report post Posted January 1, 2006 Welcome to all our new members <'> Share this post Link to post Share on other sites
cmuir Report post Posted January 4, 2006 Hi, I'm Caroline and I have a 4 year old son called Robert. Since Robert was 14 months old I started having real concerns about his behaviour (aggressive, self-injurous, unpredictable) along with lots of unusual traits, etc. Ever since then I've been battling to get someone to listen to me, without automatically assuming I'm off my head. I found that our GP and Health Visitor were very dismissive and told me Robert had the 'terrible twos' early (apparently that can last 2.5 years!). After writing some strongly worded letters and having been consistent in what I've been saying about Robert, we're finally getting somewhere (slowly!). Robert is currently in a fantastic nursery where, despite the staff finding him a real handful, they really care about him and are doing the best they can. Within 3 days of starting there, an EP had been assigned. Robert has now been seen on 3 occasions by a Speech and Language specialist; seen on 3 occasions by a Paediatrician; seen on 4 occasions by an EP. One to one care has been applied for when Robert starts school, but this isn't guaranteed. We're now lucky that we have a really nice care worker who visits for a couple of hours every week, to primarily observe Robert (and report back to the specialists) and offer a bit of support (and check out my parenting skills or lack of!). All specialists involved are now finally in agreement that Robert is showing signs of being on the spectrum, but are unwilling to give a diagnosis because he doesn't tick every box. Despite fact that we're receiving some support, can't help but think that money/funding comes into picture with regard to formally diagnosing Robert. However, I'm counting the days until Robert's next appointment ? he's been referred to the Communication Clinic at the Sick Children's Hospital in Edinburgh. When I received the appointment date, I initially felt very hopeful that Robert would finally be diagnosed, however that confidence has almost disappeared as I know what a massive struggle parents have on their hands to have their child diagnosed and I know what a struggle it's been over the past 2.5 years. I find it heartbreaking watching my little boy behaving the way he does (Robert is extremely aggressive and tends to flare up without warning or provocation) and seeing how other people distance themselves through ignorance and fear. I wonder what lies ahead of Robert (whether he'll get worse) and want to ensure I do everything I can for him. I therefore joined this forum to communicate with people who understand and are in the same boat and would be grateful for any advice. Share this post Link to post Share on other sites
smiley Report post Posted January 4, 2006 Hello Caroline and welcome <'> Share this post Link to post Share on other sites
jannyk Report post Posted January 6, 2006 hi my nam e is janet i have been reading the forum pages for the last few weeks and thought it was about time that i introduced myself and my family i have ahusband and three children 2 nt a daughter 20 and a son 18 .youngest son 14 dx ASD in November the assesment for this took ages and up until then we thought he had AS . Was seen at age 6 at a ADHD clinic but was told it was not this then saw a Ed physc twice age 10 was told to go off and read everything on AS as this was what son had then next meeting a year later told it was not AS just a language disorder. So we just thought although son seems different to other two children this is him and we just have to get on with it. at age 13 saw another ed physc who said straight away AS so finally got to Where we are now. Son permanantly excluded from mainstream school in june last year they could no longer manage his behaviour and now attends a referal unit which was only supposed to be for six weeks but as i turned down a place fo him at a mainsream school he is still there on and off . was turned down for statutory assesment but now have reports from CAMHS and speech and language therapist so assesment is now going ahead .Sorry it is a long thread but nice to talk to other people who are in same boat nobody else outside four walls intrested and no support from other family members . Share this post Link to post Share on other sites
nellie Report post Posted January 6, 2006 A warm welcome to the forum Janet, I'm glad you decided to join us, I don't think you will regret it. It's a great place with great people. but after reading the threads for the last two weeks, you probably already know that. Sorry to hear you've had such a run a round with the diagnosis and it sounds as if education hasn't been much better. If you have started the Statutory Assessment process then the following threads contain the relevant information. If you don't already have support then I suggest you give IPSEA or the NAS advocacy service a ring. You will find the number for both under SEN Support. I look forward to 'chatting' with you, any questions, just ask. Nellie xx NAS information on SEN procedure, http://www.asd-forum.org.uk/forum/index.php?showtopic=690 SEN Support and Information Services, SEN advice, information and support Options http://www.asd-forum.org.uk/forum/index.php?showtopic=676 Useful Documents on SEN Procedure., For parents of children with SEN. Options http://www.asd-forum.org.uk/forum/index.php?showtopic=675 Share this post Link to post Share on other sites
