Will Report post Posted January 20, 2006 Do you like rollercoasters? Yes. Yes I do I suspect I have already drivelled about the subject in depth in the 'obsession' topic, as coasters have been mine for at least 9 months of the year for over 5 years now And if you like my avatar - I took that picture If you don't... well, unfortunately, it's still mine Share this post Link to post Share on other sites
UltraMum Report post Posted January 20, 2006 I assumed that you probably did like them - my son loves them - but only to watch [for which I am eternally greatful! - not liking riding them myself! ] He loves to stand and follow the tracks with his finger - watching the route the cars take. Share this post Link to post Share on other sites
kirstie Report post Posted January 22, 2006 Wow theres loads of new people! Welcome to all of you. i look forward to chatting with you. Share this post Link to post Share on other sites
bettybiscuit123 Report post Posted January 22, 2006 Hello everyone, I am Chantel, I am always looking on this forum and have found so many of the topics useful. I thought I had better introduce myself! I have a 3 and a half year old son who was diagnosed with autism in December and had been being assessed for over a year before, and I have a daughter who is 7. I live near Chepstow and have already met with adamsmum. My sister TRACY put a post on here asking how to get a mobility buggy and adamsmum gave us one that her son had grown out of! She is the first person I have met who also has a child with autism and it was such a fluke meeting up with her as she doesnt live too far away and we get on really well! You all sound like a lovely bunch and I am pleased that there is a website like this as its not easy to get to chat to other parents that are going through the same experiences as we are. Share this post Link to post Share on other sites
UltraMum Report post Posted January 22, 2006 Hi Chantel - welcome to the forum Share this post Link to post Share on other sites
phasmid Report post Posted January 23, 2006 Hi Chantel, at least you know where to come for a chat now! Hope you find the forums useful. Share this post Link to post Share on other sites
Guest flutter Report post Posted January 24, 2006 welcome to all the new folks <'> <'> }i{ x Share this post Link to post Share on other sites
LindaB Report post Posted January 30, 2006 Hi, I have been looking at this forum for several weeks and thought it about time I joined and introduced myself. I have a 14 year old daughter who has been diagnosed with dyspraxia and we are in the final stages of her being assessed with possible Aspergers. We have had a tough time in the last 3 years as she is also suffering from chronic fatigue syndrome. As she has been unable to attend school for more than 1 hour a day we have at least had some success in getting a statement for her and all the problems she has had in school with communications and socially have at last been addressed. So as bad as the chronic fatigue has been for her some good has come of it. Her school and home tutor have been very supportive and I feel we have been very lucky in this respect. I look forward to reading and posting on the forum. Share this post Link to post Share on other sites
Flora Report post Posted January 30, 2006 Hi Linda, welcome <'> Â Lauren Share this post Link to post Share on other sites
annie Report post Posted January 30, 2006 Hello Chantel and LindaB, Â Welcome to the forum . Â Look forward to 'chatting' to you both. Â Annie <'> Share this post Link to post Share on other sites
phasmid Report post Posted January 30, 2006 Hello and welcome to the forum Linda. Share this post Link to post Share on other sites
bid Report post Posted January 31, 2006 Hi to all the newbies! Â Bid Share this post Link to post Share on other sites
Rhonda Report post Posted February 1, 2006 hi, Â My name is Rhonda, I am 34yrs old, live in Gloucester and have 2 children, 10yr old boy who has Aspergers and girl who is 7 on Sunday. Having a really tough time at the moment, our son was diagnosed at the age of 5 after much delay and hassling on my part to get someone to listen. At present he attends a mainstream school with a full time statement but things are bad and next week his case goes before the panel with a view to a special school placement. Â Trouble is ed pysch says he is too able for special school but his anxiety/ stress and difficult behaviour mean he isnt managing and we have had one fixed term exclusion. Anyone out there been in the same situation. How are your experiences of special schools with aspergers kids. Our LEA has no provision for a unit for ASD etc so its special or mainstream. Enough of me, oh I work part time, practice nurse and love it, it keeps me sane!!! Â Rhonda Share this post Link to post Share on other sites
Kathryn Report post Posted February 1, 2006 Hi Rhonda, Â Welcome to the forum. Â My part time job keeps me sane too! Sorry to hear you're having a tough time at the moment, but you've come to the right place for support and help. Â Kathryn Share this post Link to post Share on other sites
bettybiscuit123 Report post Posted February 1, 2006 Hi Rhonda, We live on the Gloucestershire border and are under Gloucestershire LEA too, my son is due to start school in Sept and we are just beginning his statementing to get him in to a special needs school, we are keeping our fingers crossed it all goes ok - and fingers crossed for you too. Share this post Link to post Share on other sites
baddad Report post Posted February 1, 2006 Hi Rhonda - and welcome to the forum... If you look at our 'post count' system you'll see it starts at Norfolk Broads and progresses through hills and mountains of various sizes... congratulations on being our first valley!! On a more serious note - your ed psych is looking at only one aspect of your childs diagnosis, and academic achievement is only one of 3 areas of need he/she SHOULD be looking at... Welcome to all other newbies too - you've found a great place for all sorts of info and support. l8ers, t8ers BD Share this post Link to post Share on other sites
UltraMum Report post Posted February 1, 2006 Hi Rhonda and welcome to the forum - lots of advice on here. My son is at mainstream and we're in the process of investigating secondaries. Â There does seem to be an educational black hole for able autistic children who struggle in mainstream Share this post Link to post Share on other sites
JenRose Report post Posted February 4, 2006 Hello im jen im married to Dave who works full time while i am a SAHM. im mum to 2 M who is 9 undx for AS but we are pushing for a dx and R who is nearly 2 with CP.  Oh and i am AS as well dx,d last year  Im really glad ive found this site, yesterday after M was seen by CAMHS and they said no to ASD i felt like giving up but as ive seen on this site this is a common occurence and you have to really fight for the right dx for your child. Share this post Link to post Share on other sites
UltraMum Report post Posted February 4, 2006 Hi again JenRose Share this post Link to post Share on other sites
jb1964 Report post Posted February 8, 2006 Our LEA has no provision for a unit for ASD etc so its special or mainstream. Rhonda  Hi Rhonda,  I'm pretty new myself to this forum and can't express how much help and advice you can find/be given (our daughter is 12yrs only diagnosed Nov'05).  Our LEA is the same as yours in it's either special or mainstream. We've had loads of problems at mainstream but the CP has told us to try to stick it out (if we can!! - easier said than done!!) - she's currently in her 2nd year (yr8) and missed loads of time (I think her attendence is less than 25% to date) due to either illness or symptoms that could be attributed to anxieties/stress. They have just offered a flex-schooling system - school in the morning and home tutor in the afternoon, which we are accepting.  The CP has advised us this because she thinks our daughter would benefit more from mainstream than a special school, although I think she's talking just about education - luckily she's very bright in certain subjects.  We've all found it really hard but are hoping things get better now once this starts.  Hope you manage get the info you need. Share this post Link to post Share on other sites
mel Report post Posted February 8, 2006 Ive not been around for a while so Welcome to all Newbies and <'> Share this post Link to post Share on other sites
ROBANDDEB Report post Posted February 10, 2006 HI ,  Nearly missed this bit  My name is Rob and my partner is Debbie. Too much to mention ill end up depressing everyone  Heres a rough idea of our family setup We have : 3 children 1 is due to leave school in may healthwise he is fine. The second is a 13 years old daughter with Aspergers Syndrome The third is 9 years old boy with Arskoggs syndrome And 1 well overloved and spoilt rottie.  Stress levels most times ok but can sometimes go from 0 to 60 quicker than a ferrari bieng driven by Jeremy Clarkson  Had a couple of really bad years from absolute hell !! My local area and authorities now realise im not terrorising my children i just have a child with AS  Everyday around school times the panic ..sets in before she enters the house Once a week we have a school meeting with all the neccassary parties to be told how well were coping and how they couldnt cope if they were in our shoes. Or i dont know how you do it AAARRRGGHH !!  Overeall : like most people on here overworked /under appreciated /over tired /overstressed but coping !   Share this post Link to post Share on other sites
annie Report post Posted February 10, 2006 Hi Rob and Debbie, Â Welcome to the forum . Â Annie <'> Share this post Link to post Share on other sites
Kathryn Report post Posted February 10, 2006 Hi Rob and Debbie,  Welcome again  I sympathise with your frustration at the attitude of professionals. We've had our share of "helpful" comments too - such as "Don't let it take over your life - get out with your friends more" (!) - to me.  You'll find this smiley comes in very useful at such times!  Glad you're enjoying the forum so far,  Kathryn. Share this post Link to post Share on other sites
UltraMum Report post Posted February 10, 2006 Hi Rob and Deb  Like the sense of humour!  Eve Share this post Link to post Share on other sites
amberzak Report post Posted February 10, 2006 My name is Rebekah and I am 22. It has been recently discovered that I have Aspergers. I have always had trouble socialising with my own age group, and I have been having terrible trouble where I work. Â I am obsessed with Films, and I want to be a filmmaker. My main obsession is Steven Spielberg - I can tell a Spielberg film within the first 15 minutes simply by the style of the film. Â I just wondered if there was any other females out there who has simular expereinces and if you get as paraniod as I do when in big groups of peers. Share this post Link to post Share on other sites
Kathryn Report post Posted February 10, 2006 Hi Rebekah, Â Welcome to the forum. I look forward to "talking" with you on here. Â I think Spielberg is a great director - ET was the first film I ever saw that really made me cry!. Â My daughter who is 16 and has AS ejoys films too and wants to be a conceptual artist. Â Kathryn Share this post Link to post Share on other sites
DaisyFulkirk Report post Posted February 14, 2006 (edited) My name is Daisy. Well, it isn't actually, but for the purposes of here (and some other places) it is. Â I'm twenty, and in the third year of an Honours degree. I got my diagnosis two years ago, at the age of 18 years eight months from Dr ****** ******* in ********. (name deleted by moderator) (town removed by Daisy - might as well anonymise it properly!) Â I self-diagnosed three years before that, and it's quite a funny story. Â I was on a camp-type event, a week long, with a girl who we can call Rachel. Rachel was new and I had been a few times before. I am a very 'pro-computer' person and the camp had no internet access... but the computer in the village library, three fields away, was free access and it did have internet. We had free time in the afternoons so I would walk to the village and have some two hours blissful internet time, and one day I was telling Rachel about it and she asked me to take her there. So I did. After 20 minutes of me being on the (single) computer, Rachel was getting really fidgety and impatient and asked for a turn, so I let her go on... for nearly an hour. I was really upset, I had gone such a long way for my computer time and she was taking it all. Rachel told me all about her autistic brother on the way back to the camp, and I mentally told myself that she must be autistic as well, and that was why she was so anxious about the computer. Â It wasn't until a day or two later that I realised to my consternation that I was exactly the same as her and that whatever it was that made it so hard for her to wait patiently to use the computer, I had it too. Â I was quite Autism- and Disability-aware generally before then, but that was the point at which I knew I was autistic. I'd always been 'different', recieved resourcing under the Gifted & Talented SEN category from the Excellence in Cities initiative, with hugely diverse nearly paradoxical profile of skills and weaknesses, and once I had realised it all became crystal clear. I didn't really tell anyone about it and mostly forgot, until I left home, got to my College and started studying for my degree, and started really really struggling with everything. I went to the GP and she referred me to a Clinical Psychologist... and, seven visits later, one diagnosis. I was also quite gratified to be told that my IQ was rather high, as I didn't do that well at school even though I found the work very easy. Edited February 15, 2006 by DaisyFulkirk Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted February 14, 2006 Hiya Daisy,  Welcome to the forum - lots of friends and support here - you'll love this place  Another Daisy! Share this post Link to post Share on other sites
Brook Report post Posted February 14, 2006 Welcome Daisy <'> Â and welcome to everyone who has recently joined. <'> Â Brook Share this post Link to post Share on other sites
ASSci-Fi Report post Posted February 17, 2006 Hi, my name's Bryn, I'm 18 and live on the west coast of wales. I am self diagnosed with Aspergers, but I am going to the doctor on Monday to be referred to get a proffesional diagnosis. If anyone has any advice about getting it or how long it will take, I'd really appreciate it Share this post Link to post Share on other sites
nellie Report post Posted February 17, 2006 Hi Bryn and welcome to the forum  My husband was diagnosed with AS a few years ago, I also have a 27 year old son diagnosed with autism at 19 and my youngest son who is 25 was diagnosed with AS last June.  It can be difficult to get an adult diagnosis a lot depends on your GP and the diagnostic resources in your area. Try to be well prepared, make a list of things you want to highlight before you go and it can be helpful to leave the GP with a copy. These links from the NAS should help you. You could try doing a search of the forum as this has been discussed previously - search can be found top right hand corner of the page.  How can I get a diagnosis as an adult? http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=255&a=3341  Why get a diagnosis as an adult? http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=119&a=8018  Important facts about autism and Asperger syndrome for GPs (If you look at the bottom of the page you will find some related resources). http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=128&a=2225  Good luck.  Nellie xx  Another useful link A GP's guide to adults with Asperger syndrome. http://www.nas.org.uk/content/1/c4/36/00/guide_adults.pdf Share this post Link to post Share on other sites
nellie Report post Posted February 17, 2006 I've not been around for a little while so a warm welcome to all newbies. You've come to a great place with great support from people who understand. Â Nellie xx Share this post Link to post Share on other sites
Sarah L Report post Posted February 18, 2006 Hi, Everyone, Â My name is Sarah and I have one son Julian (or JJ), he was diagnosed with ADHD in February 2005 and later with Autism in December 2005. He was 4 yesterday, 17 February. I am very new to forums etc, I am trying to get used to reading the information. Also the keyboard on my computer is broken so bear with me if you have any strange words. Â Looking forward to posting here. Â Cheers Sarah Share this post Link to post Share on other sites
smiley Report post Posted February 18, 2006 Welcome Sarah L <'> Â This is a fantastic place for support and information Share this post Link to post Share on other sites
Kathryn Report post Posted February 19, 2006 Welcome to the forum, Sarah. I hope your son had a good birthday. Â I look forward to reading your posts - I hope your broken keyboard doesn't cause too many problems! Â Kathryn. Share this post Link to post Share on other sites
prettypallomino Report post Posted February 19, 2006 Hi,  I have just recently joined the forum, already i am so impressed with just how much other people go out of their way to help others, even those people who don't have children of their own with special needs. The site has shown real support and practical advice, i commend all those trying to help all children with special needs, carry on with the good work  I have 2 very special children, who both have ASD problems, my yds has been recently statemented with high functioning aspergers/dyslexia, he has recently started a special needs school (previously he was in main stream) he seems to be much happier.  Sometimes life is a struggle but you knuckle down and have to get on with it, but with sites like yours it makes life more easier for both parent and child as we become more knowledgable in our understanding of our childrens difficulties and how to best help them Thankyou Pretty Pallomino Share this post Link to post Share on other sites
prettypallomino Report post Posted February 19, 2006 Hi everyone Im another Lisa who works in an autistic school as a support worker. I have 2 children , my son whos 9 was diagnosed at 7 with AS and my daughter whos 7 was diagnosed last week with AS. Still getting My head round the fact they both have AS and why?. Â Anyone else have both boy and girl with AS? i was told that 7 was young for a girl to be diagnosed. Â Btw im in the Kent area. Great to see an English site up and running Lisa Hi, Â I too am a mum of 2 children, both of whom are on ASD. My daughter suffers with pragmatical/semantical probs and is doing well (she has remained in main stream school). My son is 7 and has high functioning asd=aspergers/dyslexia with learning diffs - my son has recently started special school, which i am hoping will be an encouragement, and that we will see a difference in him I know were you are coming from about the fact that they both have AS (which i think means Autistic Spectrum), as you can see i too am still learning. Pretty Pallomino Share this post Link to post Share on other sites
Tilly Report post Posted February 23, 2006 Hi I'm Tilly and have 9 year old dd diagnosed ASD 6 years ago and I think that in that 6 years I've aged 20 years. Â I've been reading the posts for some time but have just sussed out how to post I am a real technophobe so please be patient lol. Â Tilly Share this post Link to post Share on other sites
annie Report post Posted February 23, 2006 Hi Tilly and all our new members <'> . Â I'm glad you found us. There's tons of support, advice, and always a friendly ear, even if you just want a good old rant. Â Annie Share this post Link to post Share on other sites
