Kathryn Report post Posted February 23, 2006 Hi Prettypallomino and Tilly and welcome to the forum. Don't worry Tilly, you'll be an old hand in no time. Kathryn Share this post Link to post Share on other sites
zaman Report post Posted February 27, 2006 Hi I have been looking at the forum for a few weeks, and have just started posting, so I thought I should introduce myself. I have a NT 8 year old daughter, and a 5 year old ASD son. He was diagnosed a year ago, and since then I have been struggling with it all on different fronts. Not least of all having to give up my job partly as I couldn't get childcare for him, but also because he needed more from me than I was able to give him while working. So on top of everything else we are now hugely skint and in debt! One of the hardest things that I have found is the profound lack of communication between the agencies involved (eduction and NHS mainly). I don't know if it is due to overwork or what, but I have learnt the hard way to keep a huge file filled with notes of conversations had, copies of letters, etc, and to cart it around with me to each of the meetings! It seems to intimidate the people on the other side of the table . . . Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted February 27, 2006 Hi Zaman, Welcome to the forum, you'll find a wealth of knowledge and support here. And well done for keeping the file, we keep everything from assessment reports to compliments slips and they helped a lot when it came to getting my boy's DLA. Enjoy yourself Share this post Link to post Share on other sites
annie Report post Posted February 27, 2006 Hi Zaman, Welcome to the forum <'> I keep a great big file of everything too. That and putting everything in writing have been probably the best bits of advice ever . There's nothing more enjoyable than turning up at a meeting, and someone 'offical' says they haven't received something........only for you to say 'Oh, here's my copy'.......priceless . I had to give up my job too. Look forward to chatting to you. Annie Share this post Link to post Share on other sites
martubew Report post Posted February 28, 2006 Hi there and welcome to the new forum. If you have not already registered you will not be able to post replies or to start new topics so it is worth taking a few short moments to register by clicking on the link above (or from the login screen) We would be grateful if you could take a little time to complete the above poll and post a reply to introduce yourself. Maybe you have a story to tell or would like to ask a question. Go for it. This forum is for you and depends on your input, information and participation. If you have any technical questions or problems using the forums then please feel free to email us at Kris@krism.org.uk or PM either myself or Elefan (forum co-host) Regards, Kris & Elefan Forum Hostshi i have just joined forum and have put the wrong user name can you help it should be martinew thanks Share this post Link to post Share on other sites
bid Report post Posted February 28, 2006 Hi Martinew Easily done! I would PM Lufty directly for help. Bid Share this post Link to post Share on other sites
martubew Report post Posted February 28, 2006 Welcome back Vicki. Computers! Dont ya just hate em Kris hi my name is martine and i am new to the forum i have two daughters bethany who is 12 and mia who is 10 and AS, ADHD and has a receptive and expressive disorder we live in the south east (kent) with my second husband and i would like to hear from anyone who wants to chat!!!!!! hope to hear from lots of you soon martine x Share this post Link to post Share on other sites
martubew Report post Posted February 28, 2006 Hi Martinew Easily done! I would PM Lufty directly for help. Bid hi thanks i dont think i am gertting the hang of this sorry and help Share this post Link to post Share on other sites
phasmid Report post Posted February 28, 2006 Just in case you were not sure how to do this I have pm'd him for you. In the meantime welcome to the forum. Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted February 28, 2006 Hi, welcome to the forum Martine. Plenty of help and advice here. Enjoy. Share this post Link to post Share on other sites
Mrs.Obtuse Report post Posted March 2, 2006 Fellow Members, Hello there. I am from the United States. I will be married 20 years and have 18 yr. old twins in school....(Thing1 & Thing2) I'm not really sure what to say, other then that right now I feel like I'm a journey of discovery to possible answers I have not been able to find for decades. Thank you for the opportunity to join you while, I search for these answers... Mrs. Obtuse Share this post Link to post Share on other sites
UltraMum Report post Posted March 2, 2006 Hi to everyone new You'll soon be hooked Share this post Link to post Share on other sites
zaman Report post Posted March 6, 2006 Hi Mrs Obtuse welcome, and I call my kids Thing one and Thing two as well! Share this post Link to post Share on other sites
polkadotty Report post Posted March 7, 2006 Hi, I'm Charlotte, and this is the first time i've ever posted anything anywhere, other than letters through slots, if you catch my drift (old habit of explaining my metaphors for literal people)... I'm married with 3 kids, the eldest is nearly nearly 8 (and time is passing so painfully slowly for him) and has Aspergers Syndrome. Then theres my 6 yr old son NT, but having a rubbish time at school and being referred (I thinkthere may be ADHD and/or dyslexia) and 3 yr old daughter, NT and as emotionally balanced as anyone could be, i think. C (with as) has also been dx as on gifted end of bright, which should be fab but is just one big problem, since he was permanently excluded from his mainstream primary school in nov 2005, and still has no school to go to. Special schools (we're told) won't cope with him academically and he sure as heck can't manage in mainstream (so far). We've found an independant special ASD school in Tadley, Berks which has offered him a full-time place, but it's so expensive!! I cannot imagine that our LEA will stump up for it, as they still maintain that C should be going back into mainstream. I should add that he has been excluded from 2 schools, and attended another before that, too. Sorry to rant - i have been on the phone to the LEA SEN officer this morning, and it always makes me want to shout and jump up and down with frustration. Anyone else in a similar boat to me? xx CHarlotte Share this post Link to post Share on other sites
annie Report post Posted March 7, 2006 A big welcome to all our new members <'> . There's lots of information and support here. Any questions, just ask Charlotte - If you could copy your post onto 'Education', I'm sure you would get lots of good advice on your present situation. Annie (who's been in a similar situation) Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted March 7, 2006 Hi Charlotte, Welcome to the forum - you'll get lots of helpful advice here and there's many people in similar boats to you! Enjoy Also a warm welcome to Mrs Obtuse - I'm a mum of twins too, one with AS (the boy) and the other NT (the girl) plus several other kids all supposedly NT! Share this post Link to post Share on other sites
polkadotty Report post Posted March 7, 2006 thanks daisy and annie - i will copy my post to education. Very frustrating - its so good to hear from other people who've got through stuff you're going through. Or are getting there. thanks Charlotte x Share this post Link to post Share on other sites
PinkSapphireAngel Report post Posted March 9, 2006 Hello I am soooo pleased to have found this brilliant forum My name's Helen, I'm 31 and married, living in Lindon (Hillingdon LEA) I have 3 sons the eldest is 11 and is diagnosed with extreme anxiety, aspergers/ASD and Dyspraxia. He was diagnosed in 2004 with the AS/ASD and Dyspraxia back when he was 6. We are going to SENDIST in 2 weeks time as the LEA are refusing to assess. My other 2 boys are aged 8 and 3, the 8 year old seems to have Meares Irlen Syndrome (needs to use coloured overlays over his work as the words move for him) and very likely Dyslexia. Share this post Link to post Share on other sites
polkadotty Report post Posted March 9, 2006 Hi Helen nice to meet you - i've just joined and love it already! i think we will also be goin to SENDIST - can i rack your brains later? good luck Share this post Link to post Share on other sites
DaisyProudfoot Report post Posted March 10, 2006 Welcome Helen , If its Education you have problems with then you've defintely come to the right place for help and advice. There's some long-time experts here with some tried and tested results. Have fun Share this post Link to post Share on other sites
PinkSapphireAngel Report post Posted March 10, 2006 i think we will also be goin to SENDIST - can i rack your brains later? Of course you can <'> Share this post Link to post Share on other sites
sarahponari Report post Posted March 10, 2006 Hi im sarah and im 23 this year, i dont know if i will get any help from here but thought id sign up to see if i can. i am married and have 2 daughters and im from birmingham, i am being referred to someone to get diagnosed with aspergers, all my life i have felt different but a few yrs ago my mum found some information on aspergers which we had never heard of before that and we showed it to all the family and our doctor and everyone seems to think it sounds just like how i am, i will be happy to be diagnosed as it means i can get help going to work and maybe my husband will understand a bit more. having a relationship is very hard, but my husband is very suportive and understanding. i just wanted to know if there is any one else out there that have aspergers or some form of autism so i can talk to them, im also worried about how bigger chance my children could get some form of autism as it can run in families cant it?i just dont want either of them to have to wait this long beofre they can get any help. anyway id better stop talking now! sarah Share this post Link to post Share on other sites
phasmid Report post Posted March 10, 2006 Hello Sarah and welcome to the forum. There are quite a few adults here with AS so I know someone will be able to answer some of the questions you have posed. It is believed that AS can run in families, although that is still being researched and debated at the moment. It is perfectly possible that your children may have no problems but, that said, early intervention is certainly beneficial. You are bound to have lots of worries, concerns and questions right now. Please don't be afraid to ask us. Share this post Link to post Share on other sites
slaphead Report post Posted March 14, 2006 Hi, I'm new on here and would just like to say what a brilliant website this is. I am hoping to gain from other people's experiences and I will offer any of my own experiences should they be of use to anyone at all. My 9 year-old son Barry was diagnosed with ADHD and Asperger's Syndrome last year, and we are still learning, as a family, how to cope with and understand Barry's special world. My wife Linda and I (Tim) have also got a wonderful Daughter aged 6, called Rhiannon, who tries really hard to help and understand Barry, but it is hard to explain to a 6-year-old something that you don't fully understand yourself, as most of you will probably know! After a shaky start, Barry's Primary School have been fantastic with their support for us and Barry, although I know that this is not the case with other Primary Schools (I have read some of the posts on here before I signed up) So in that respect I count us as lucky! Barry is in the process of being Statemented at the moment and we hope to have news on this before the end of March, although we're not holding our breath while we wait! i'm looking forward to getting to know the people on this BB, you all seem to be pulling together and that is so nice, we haven't met anyone else who has children with ASD's, so we hope to gain from being on here. I'm running out of things to say, so I'm going to end by thanking the owners/admin of this site for creating such a good, and friendly resource. Cheers! Share this post Link to post Share on other sites
annie Report post Posted March 14, 2006 Hi Tim, Welcome to the forum . It's great to hear that Barry's school are very supportive . Be warned, this place is very addictive Annie Share this post Link to post Share on other sites
phasmid Report post Posted March 14, 2006 Welcome to the forum. Share this post Link to post Share on other sites
ignoredmom Report post Posted March 16, 2006 (edited) hello everyone my name's karen i have four children altogether my second child has classic autism he is six he's very passive as yet non verbal not even a no or yes still wears nappies, it is so hard to know how to bring him on anyways hello to all hope to get to know everyone better Edited March 16, 2006 by ignoredmom Share this post Link to post Share on other sites
Kathryn Report post Posted March 16, 2006 Hi Karen, Welcome to the forum . I hope you like what you've seen so far. You'll find lots of people on here to chat to when you need advice, or just to let off steam. I look forward to getting to know you, Kathryn. Share this post Link to post Share on other sites
annie Report post Posted March 16, 2006 Hi Karen, Welcome to the forum. Look forward to chatting to you. Annie Share this post Link to post Share on other sites
mel Report post Posted March 17, 2006 Hi karen, hi tim welcome to you both <'> Share this post Link to post Share on other sites
bid Report post Posted March 18, 2006 Hi and Welcome to all the new members!! Bid Share this post Link to post Share on other sites
keyholekate Report post Posted March 21, 2006 Hi there and welcome to the new forum. If you have not already registered you will not be able to post replies or to start new topics so it is worth taking a few short moments to register by clicking on the link above (or from the login screen) We would be grateful if you could take a little time to complete the above poll and post a reply to introduce yourself. Maybe you have a story to tell or would like to ask a question. Go for it. This forum is for you and depends on your input, information and participation. If you have any technical questions or problems using the forums then please feel free to email us at Kris@krism.org.uk or PM either myself or Elefan (forum co-host) Regards, Kris & Elefan Forum Hosts Hello My name's Julie Share this post Link to post Share on other sites
annie Report post Posted March 21, 2006 Hi Julie, Welcome to the forum Annie Share this post Link to post Share on other sites
Flora Report post Posted March 21, 2006 Hi Julie and welcome to the forum Lauren Share this post Link to post Share on other sites
bikergal Report post Posted March 22, 2006 Hi everyone, I'm Jo and I have 2 daughters. My 12 year old has social/communication disorder with autistic like behaviour! But no one doubts she has AS just can't get paediatrician to assess says she's not well enough...suffers from school related anxiety. Has signed her off clinic as I refused to let her take anti depressants. This site is amazing, I am not alone. Can't believe how similar our experiences are. My daughter is not statemented yet but that is what I'm currently fighting for...I feel like an enormous weight has been lifted....Thanks all Share this post Link to post Share on other sites
annie Report post Posted March 22, 2006 Hi Jo, Welcome to the forum You're right, you're not alone. This is the place to be for support, advice or a listening ear if you need to rant Annie xx Share this post Link to post Share on other sites
lynn040998 Report post Posted March 23, 2006 Hi, I'm Lynn from North Lanarkshire in Scotland. I was given this link by the HOPEforautism group in Lanarkshire. I'm married to Stephen. I have a 15yr old son, Stephen has an 11yr old son, and we have 6yr old son, who is on the waiting list of the local diagnostic service. We have known for a long time our son had autistic tendencies, but were told he was just attention seeking. He couldn't speak until he was nearly 4yrs old. When he did speak, he was echolalic, and couldn't pronounce a lot of words, which caused major frustration on both sides. My son used to head the wall, and I'd end up in tears. Now I can't get him to stop talking Last week was pretty bad, he went into meltdown. Although he is only 6, he is a big guy. He's 4ft 3" and weighs 4st 10lbs, so can pack a hefty punch. Educational psychologist suggested we lock him in his room and count him out for 3 minutes, every time he was rude or aggressive. We did this and it made things worse. He was shouting, "this is f*****g rediculous, let me out" From a 6yr old Anyway, we finally worked out that he was stressed because I was off work and was home when he got in from school, when usually I don't get in until 1hr and a half after him. He could't work out what I was doing in the house. But hey, according to the PROFESSIONALS! there is nothing wrong with him, but he goes to a school for special needs and cannot be put in a class with more than 8 pupils. So we are on the list awaiting diagnosis. The list of things that favour him having ASD is too many to mention, so we just get on with it. Thank god for my saint of a husband or I'd be in meltdown permanently. Share this post Link to post Share on other sites
Kathryn Report post Posted March 24, 2006 Hi Lynn, glad you found us - welcome to the forum. You'll find it's a great place to be when you feel like going into meltdown yourself - my sanity has been saved many times by the wonderful people here! Kathryn Share this post Link to post Share on other sites
tallship Report post Posted April 1, 2006 Hello, I am Head of Maintenance at a specialist private school which provides education for children with severe dyslexia, dyspraxia or Asperger's Syndrome. My particular interest is in providing the best environment for the children - colour schemes and lighting etc, that will put them most at ease both in the classroom, and, as it a boarding school, in the dorms and common rooms. Opinions seem to vary greatly amongst both educational and medical specialists about the stroboscopic effects of fluorescent lighting for instance. A small proportion of the general population are able to detect the slight flickering of a fluorescent light, a slightly higher proportion of those with ASD are affected. This manifests itself as anything from a vague feeling of unease to a desparate need to get away from the room if it is brightly lit. Despite long research I can find no reference to high frequency fluorescent lighting and ASD, this type of lighting was specifically designed to eliminate visible stroboscopic effect particularly in areas with computer VDUs. Anyone out there with any experience in this area? Sorry If I've posted this query in the wrong thread / subforum, if I have please point me in the right direction. Share this post Link to post Share on other sites
Brook Report post Posted April 1, 2006 Hi tallship, welcome to the forum. <'> It was really refreshing to read your post, and to see how you want to help the children at your school with their environment, which is soooooo important. I think if you posted this in the general discussion forum you would have lots of replies. Brook Share this post Link to post Share on other sites
