mossgrove Report post Posted April 30, 2004 Wecome Gita! As you can see, you will find loads of support here, so there's no need to feel alone. Simon Share this post Link to post Share on other sites
viper Report post Posted April 30, 2004 Hi Gita, hope you find us a help, or even somewhere to express your feelings as lots of us do. Wendy. Share this post Link to post Share on other sites
Gita Report post Posted April 30, 2004 Thanks all you guys. I've never been made to feel so welcome. Its really good to know that you're all out there to offer help/support if I need it. Since we got Shaan's diagnosis, I've spent every spare moment reading books, visiting web sites etc, but have found it hard to actually talk to anyone about Shaan. I have friends who will listen and bless them, they do offer support, but I sometimes feel they don't truly understand as they have no dealings with anyone with ASD. Gita Share this post Link to post Share on other sites
lynyona Report post Posted April 30, 2004 welcome gita nice to meet you . lynn Share this post Link to post Share on other sites
Jester Report post Posted May 1, 2004 Hi Gita, Welcome to the forum. It really is good to be able to talk to people who understand. Even my best friend - a caring headteacher with a great deal of experience with kids of all ages - seems to have a "sympathy threshold" beyond which we get another beer and change the subject. Mind you - upside of this, as a bloke - I get a beer! In our short time here Bid and I have found that: everyone is nice you can rant and never have to worry you will burst into tears no-one thinks you say anything stupid we've all been there (pretty well) between us we know just about everything - or can find it out. only trouble is ... no-one gets me a beer Jester & Bid Share this post Link to post Share on other sites
pookie170 Report post Posted May 2, 2004 everyone is nice you can rant and never have to worry you will burst into tears no-one thinks you say anything stupid we've all been there (pretty well) between us we know just about everything - or can find it out. Hi Gita, Jester has pretty much covered the reasons as to why tis is such a fabulous site. I must admit, when I worked in a creche (pre Caghal's diagnosis) I loved talking to the parents of the ASD kids that came to play. They had lots of understanding. I could talk about my fears and suspicions reagarding my own boy with them as well as listen to them when they'd had a bad day with their own child. One of the biggest reasons I miss working, but I've rediscovered sympathy and understanding through being a member here. Also another huge plus is that we get to hear about our children's successes and triumphs, when things go well and it provides hope and reassurance which we all need from time to time. And the mad members(Apparently, I'm officially one of 'em!! ) help buoy up spirits too. Glad to have you on board-you too Dodobird!!! My sister appreciates your name, my son renamed her Maba, she thinks the way your nickname came about is very sweet and special. I do too!! Hope to chat with you guys often! Esther x Share this post Link to post Share on other sites
Helen Report post Posted May 2, 2004 He was diagnosed in June 2003 with ASD. His nursery put in a request for a statement a few weeks ago & his case has gone to Panel today. Hi Gita A lot of parents here, seem to have obtained a diagnosis from many different fields of expertise - I'd be interested to know which type of professional diagnosed Shaan? Also, Shaan's nursery sounds really enthusiastic from your post, it seems that it really does understand your son. I assume the nursery that your son attends is an independent one? My son started nursery when he was 3 1/2, the nursery was attached to the primary school that he eventually went to. The nursery staff were absolutely hopeless, in my son's case. Helen Share this post Link to post Share on other sites
Abba & Boffa Report post Posted May 3, 2004 Hi i'm abba dodo's little sister. I'm sharing this with dodo's biggest sister Boffa. I'm 9. At school i look after this boy called bill (not his real name) he is the same age as me 9. In class i have to make sure he is listening and heip him with his work. In assemblies to make sure he is listening. At playtime i have to make sure he is playing safely. I don't mind looking after bill. My brother Kian and my sister Dodo have aspergers Kian likes to play fighting all the time he hurts and Dodo is a pain she always annoying but they can't help it. Abba Share this post Link to post Share on other sites
nellie Report post Posted May 3, 2004 Hi Abba, Welcome to the site (this is my favourite smilie - I love it) . Abba, you sound like a really caring person, looking after another child. I'm sure you are a great help to him. Don't forget to look after yourself too. Boffa and Abba, I'm sorry Kian can sometimes hurt you during play fighting, as you say he can't help it, but I know it can be difficult to deal with some times. You sound like great kids. I would love to know how you got the names Abba and Boffa. Look forward to hearing from you. Nellie (love this one too)! Share this post Link to post Share on other sites
Abba & Boffa Report post Posted May 3, 2004 Hi nellie we got our names abba and boffa from when kian was a baby. He could'nt say Abigail and Jennifer and now everyone calls us abba and boffa where did you get that smiley at the bottom of your post from? it's so abba Share this post Link to post Share on other sites
nellie Report post Posted May 3, 2004 Abba Thanks for the explanation about your names. I wonder how Kian would have pronounced Nellie when he was a baby? Maybe I'm better not knowing. Smilies - When posting, the smilies are on your left, at the bottom of this panel it says show all click on this and you will find more smilies, they are great, have fun. Nellie Share this post Link to post Share on other sites
nellie Report post Posted May 3, 2004 (edited) Hi Abba & Boffa You could ask your mum to get an avatar for you ( the picture beside people's name). I don't have one - because I'm really boring!! Nellie (Sorry Karen) Edited May 3, 2004 by nellie Share this post Link to post Share on other sites
Abba & Boffa Report post Posted May 3, 2004 HI Nellie how do you get pictures My mum cannot remember how to do it Thanks for telling how to get them smilies abba Share this post Link to post Share on other sites
nellie Report post Posted May 3, 2004 Hi Abba Kris, our knight in shining armour should be able to help you with this! Cue Kris Nellie Share this post Link to post Share on other sites
kaz Report post Posted May 3, 2004 I don't have one - because I'm really boring!! Nellie (Sorry Karen) mmmmmmmmm Nellie, what have i done now????????? Love karen xxxx Share this post Link to post Share on other sites
Gita Report post Posted May 3, 2004 Hi Helen Sorry, I didn't see your post earlier, so hope you get to read this. I don't have a clue how to send a mesage to you personally. You asked what kind of pro made Shaan's DX. Shaan has been seeing a paediatrician since he was 9 months old. He never crawled, but used to roll around the floor. He became quite adept at this. We were worried that he never crawled & he would never put his weight on his feet even when we held him up. Eventually (around 18 months) he did start to walk & our concerns then moved on from his physical wellbeing to his mental welbeing as his speech was limited. As it happened, one day we met one of Tariq's cousins quite by chance. He had been abroad for 5/6 years & is now back in the UK. He mentioned that his son was autistic. He said that his son would arm flap, repeat things, spin objects, spin himself etc. As he was describing his sons behaviour, bells started ringing in my head as Shaan was doing the same things. Again, quite by chance, we had an appt with the paediatrician the following week & I asked if Shaan might be autistic. She immediately confirmed that this was a distinct possibility & the following month (June 2003) confirmed the DX. She was quite surprised by our attitude in that we took it quite well. I think she's more used to people denying that there's anything wrong with their children, but the way I look at it, it's better to know what the problem is so you can deal with it. The nursery Shaan goes to is a state nursery & I think it's just luck that he's attending there. I didn't like the other nurseries in my area so only applied to this one & got a placement. This was prior to Shaan's DX. They are not a speacilist or independant nursery, but they have had ASD children there before, so I guess they are pretty experienced in this field. I also believe that nurseries have far more funds given to them so can afford to give 1:1 to children if needed. Unfortunately, this nursery does not feed onto a infants/primary school, so in Sept 2004 or Jan 2005 Shaan will be going to a different school. Hopefully, by then Shaan will have got a statement. Gita Share this post Link to post Share on other sites
Kris Report post Posted May 3, 2004 Hi Abba Kris, our knight in shining armour should be able to help you with this! Cue Kris Nellie Hiya all, Sorry about the delay in replying, my armours a bit rusty and my horse is.... well, I think you can see the problem there!! To get yourself an avatar.... 1. Click on 'My Controls' at the top of the page 2. Click on 'Edit Avatar Settings' from the list on the left 3. You'll see a section that says 'Pre Installed Avatars' Just click 'GO' and select an avatar from the list that appears. There ya go Any other problems then just give me a shout. Kris Share this post Link to post Share on other sites
Abba & Boffa Report post Posted May 4, 2004 Hi Kris thanks for the help <'> abba Share this post Link to post Share on other sites
vastsarah Report post Posted May 4, 2004 hi im vastsarah ,im just posting to see if my pic comes up well a little about me im married with 5 children,4 boys and a girl i had 5 under 9 years at one stage my girl is 11 and fine all my boys have learning difficultys with reading and writeing but are well liked and mix social very well apart from harry.He is the 4 th child and is 9 years old,he had been diagnosed with AS and ADHD by the nhs doctor the school got in.The ed phy has been called in by the doc and senco to do a statement as they at school cant cope any more And i have asked at the end of the easter hoildays for help from social services plus i have been told i could apply for DLA which im sitting on the forms at the moment .i have no parents they died when i was young and i was raised in foster care .My hubby is my best mate but he has traits of AS and not that serportive,but trys in his own way. im 36 and live in devon with 3 cats ,2 dogs ,1 rabbit and 5 guniee pigs. i dont work but i like reading comp, animals,and as a christrian i find it hard to be a bit more pushy at school from vastsarah Share this post Link to post Share on other sites
Helen Report post Posted May 4, 2004 (edited) as a christrian i find it hard to be a bit more pushy at school Hello vastsarah , I am a totally different person now, to what I was four years ago - one extremely bad experience and it's changed me. I used to be a practising Catholic until that time - I no longer go to church unless it's the anninversary of my mother's passing. I want to get over my bitterness - I really wish I could, but at moment, the time isn't right for me to either forgive or forget. However I do believe that 'what goes around, comes around' - my signature. I know that if I wasn't the person that I am today, I would never have succeeded in getting a statement for my son. kind regards, Helen Edited May 4, 2004 by Helen Share this post Link to post Share on other sites
Kris Report post Posted May 4, 2004 Hi Kris thanks for the help <'> abba LOLOLOL You found the pics then!! LOLOLOL Kris Share this post Link to post Share on other sites
Jester Report post Posted May 5, 2004 Hi Vastsarah Welcome to the forum. <'> I am also a practising christian and my father was a senior clergyman before his death. Some bits of advice he gave me:- We are obliged to forgive only those who repent...you can get a bit "Wrath of God" with the b*gg*rs who don't" (He did say he was called to the church because the Almighty had run out of ideas on how to save his soul!) And ... We are only obliged to turn our own cheeks when attacked, we have a far greater responsibility to fight to protect the weak. You be as pushy as you need to be ...don't forget what "crusade" originally meant! Regards Jester PS I've also noticed that the Bible is full of people "getting stoned" ...but I may have misinterpreted these bits. Share this post Link to post Share on other sites
mossgrove Report post Posted May 5, 2004 Welcome Vastsarah. We can't quite match you on the four children under 9, but do have four children six and under so our household can be quite busy too. (2 with special needs) Forums like this are especially useful for people with larger families as it can be especially hard to get babysitters etc. I am sure you will find plenty of support here! Simon Share this post Link to post Share on other sites
mary crookes Report post Posted May 6, 2004 Hi to everone, I'm Mary and compared to all of you I'm ancient, but still taking care of my son who's 36, but wasn't diagnosed till he was 29.Had no help at all in all those years, and still haven't. Glad to hear your experiences are better than mine.good luck with the new site. Share this post Link to post Share on other sites
bid Report post Posted May 6, 2004 Welcome Mary! You will find this site is full of great help, advice and support. I hope you will have some more positive experiences from now on!! Bid Share this post Link to post Share on other sites
kirstie Report post Posted May 6, 2004 Hi there Mary! glad you found this site.It has been such a great place for me to come and have a moan, find out information and to see that i'm not alone! actually i'm still finding my way around the site (am not too great with computers) But i'm sure if theres anything you need to know someone will be at hand to point you in the right direction. Kirstie. Share this post Link to post Share on other sites
nellie Report post Posted May 6, 2004 Hi Mary, welcome to the site I'm pretty ancient too, and no, I'm not going to tell you how ancient!! I have a son, 26 this year, diagnosed ASD at 19. My husband was diagnosed with AS at the end of last year. Hope you get everything you are looking for from the site. Best Wishes Nellie Share this post Link to post Share on other sites
tinytrace Report post Posted May 6, 2004 hi mary welcome to the site i hope you find it as helpful as i have Trace xx Share this post Link to post Share on other sites
nellie Report post Posted May 6, 2004 Mary Just to add that, I had no help until my son was 19 when we managed to get him a great residential placement. Looking forward to chatting with you. Nellie. Share this post Link to post Share on other sites
pookie170 Report post Posted May 6, 2004 Hi Mary! Glad to make your acquaintance! I don't know about anyone else here, but personally speaking, I really appreciate reading posts from parents of adult aspies. You guys have been through the childhood trials and tribulations with your ASD kids and often have great perspective and advice for those of us whose kids are younger which is often really helpful. And I'm sure your son will still experience difficulties that you need to chat about, so feel free to rant and rave when you need to, we don't hold back!! Hope to chat with you, Esther x Share this post Link to post Share on other sites
lynyona Report post Posted May 6, 2004 hi mary nice to meet you im and ancient compared to these lot as well lol.I can empathise with you about your son i have only just diagnosis of autism for my 17 year old son last month after being statemented with learning disabilities since 7 years old and has with you am had little support and only getting some help sorted out now and him being set in his ways his proving difficult for him to adapt to any change due to not liking change or different routine.They are all very friendly and helpfull here and have been a god send to me these forums for help and support .lynn Share this post Link to post Share on other sites
Helen Report post Posted May 6, 2004 Hello Mary and Welcome! I hope you'll find the answers to what you're looking for, kindest wishes, Helen Share this post Link to post Share on other sites
Gita Report post Posted May 6, 2004 Hi Mary Welcome to the site. I only discovered it a couple of weeks ago & have already found such a warm welcome from everyone. I'm also quite ancient (45), but they say the oldies are the goodies! Gita Share this post Link to post Share on other sites
Guest master yoda Report post Posted May 7, 2004 (edited) Hi everyone-I'm a mother of 2. My oldest son is 8 and diagnosed Aspergers/ADHD and my younger son is 4 and undergoing medical assessment at present. Other members of our family are affected including my Dad (now deceased) me and my oldest sister although we have not all been diagnosed. Har-I've puzzled the therapists for many years though and it was a real drag having 'we know she could do so much better' written on every school report, but I'm still here-just about. At 17, I was also involved in a bad road accident partly due to my 'wild' teenage stage, which means I have my left leg amputated, so have my work cut out refereeing the matches at home and finding the mental gusto to battle on against my LEA, while also trying desperately to keep up with the crud the NHS dishes out for me to walk on Edited to add that I am Master Yoda because Star Wars is one of my oldests main obsessions and has only been so for ooh 3 years or so Edited May 7, 2004 by master yoda Share this post Link to post Share on other sites
Gordie Report post Posted May 7, 2004 Uh-oh ... this is gonna be confusing! A mother giving herself the title of "Master"! I'm gonna think you're a bloke every time I see a post of yours! Anyway, master yoda, welcome to the gang. Sounds like you've had a pretty rough time, but hopefully you'll find some comfort in the forums here. James Share this post Link to post Share on other sites
lynyona Report post Posted May 7, 2004 GITA: They also say older but wiser i dunno about that one what do you think. MASTER YODA: Just want to say hi and nice to meet you. lynn Share this post Link to post Share on other sites
nellie Report post Posted May 7, 2004 Welcome to the site Master Yoda, I hope you find it useful. Nellie. Share this post Link to post Share on other sites
Rhyn_Essence Report post Posted May 9, 2004 My 3rd wife of almost 2yrs (June 2002) who is a secondary school teacher was intrigued when we met. For I displayed characteristics relating to two seperate gentic anomalies that she'd previously encountered. The first being Kleinfelter's Syndrome which affects its sufferers across a broad spectrum but has common ground in that all of its male "victims" are infertile. In my case I have lower Testosterone which affected me by making me extremely angry. Now after just over 2yrs of injections I'm more stable but its likely to be another 4yrs before my re-awakened puberty stage is complete. The second anomaly being ASD for which I'm currently awaiting a referal...ok it took me this long to get my head around to the concept. Initially I was mortified by the suggestion of Autism basically because of my own ignorance of the subject. Without turning this into a precise of "War and Peace" ASD actually goes hand in glove with how I'm affected to a certain extent whereas the majority of K.Syn sufferers quite frankly don't have a clue what I'm talking/writing about except for their social shyness and low testosterone. Share this post Link to post Share on other sites
BEVERLEY Report post Posted May 9, 2004 hi i'm Bev and really glad to have found this site i have 3 wounderful kids 1 boy Ben 7yrs and 2 girls antonia (toni) 5yrs and taylor 2 yrs nearly 3 yrs ago toni was refered to different specialist due to showing traits of autism, but as today we still have no dx the school doctor has said toni has some traits of autism but also traits that are not she has requested the school get the educational psy and the autism team to come in to school, but we have been told by other people that these people are not able to give a dx and that we need to see a specialist in the field. the specialist in our area (chester) has a 2 yr waiting list and we have not even had this referal yet (hoping to get that this week) the request for ed psy and autism team was 9 weeks ago and the school has done nothing about it yet to say we are very frustrated and worried is an understatment, as toni is now coming to the end of yr 1 at school and apart from being on school action plus toni has no support. i initially thought toni could have aspergers but i am now thinking semantic pragmatic disorder another form of autism as toni didn't start talking untill she was 4. but then she has obsessions which SPD children don't, which then puts her back towards AS. as you can tell i'm confussed by it all and i suppose i will have to wait for another 2 yrs before we get our answers. Share this post Link to post Share on other sites
bid Report post Posted May 9, 2004 Hi Bev, Welcome to our Forum! So sorry to hear the problems you are having. You will find plenty of help and advice here, and a great place to unload! Bid PS If you need cheering up try the Bat Cave topic!! Bid Share this post Link to post Share on other sites
