madmumof5 Report post Posted June 4, 2008 (edited) Anyone explain why our dd who is now 7 and been under pead for 3yrs hasnt done any formal assessments as we feel she has ASD but the pead only considers the view of the school. Do some pead wait to see if children midley affected out grow immaturites - just looking for reasons why were still waiting. DS was only referred when I mentioned I had read that there may be links between Aspergers and his bowel problems ,they werent aware of any links apparently, I told them they should google more ;0) I get the feeling they are doing it to prove me wrong more than anything :0( My DS's school dont have any concerns with him as they have far worse behaved 'normal' children there to deal with (thats probably not the right way to put it but you know what I mean ) the school nurse was supposed to be helping me by doing something in January ,it is now June and I'm still waiting, I think its not a problem to them as they dont have to live with it .I am at my wits end tbh Edited June 4, 2008 by madmumof5 Quote Share this post Link to post Share on other sites
bluefish Report post Posted June 5, 2008 7 months from the day nursery raised concerns to dx of HFA/ASD Quote Share this post Link to post Share on other sites
mum22boys Report post Posted June 5, 2008 2 years from first visiting GP to getting diagnosis. That doesn't include the 3 years I spent chasing up the health visitor with my concerns!!! Quote Share this post Link to post Share on other sites
Imelda Report post Posted June 12, 2008 12 months. My health visitor was not very good. She missed our son and two more, all on the spectrum, all severe. I think it all depends on their behavours. Our son didn't have any of the traits. I even asked one doctor was it autism and was told no. Quote Share this post Link to post Share on other sites
bikergal Report post Posted June 13, 2008 A very long time! I fought dd1's corner all through first school but they ignored my concerns, middle school not much better. Got the "social/communication disorder with autistic like behaviour" label after doing the DISCO at age 11. At age 12 camhs pysch 'suggested' several labels including ASD, PDD NOS, atypical autism. Dd1 has had a statement for the last year...was a long time coming and they refused to assess the first time. I was diagnosed privately last year at the age of 35. I'm still not happy with dd1's 'labels' , she is much further down the spectrum from me, has many more difficulties and I do wonder if she will ever be independent. Quote Share this post Link to post Share on other sites
bikemad Report post Posted June 13, 2008 Bikergal how did you go about getting yourself diagnose cos my other half is convinced ive also got OCD n Aspergers but ive never seen anyone bout it. Quote Share this post Link to post Share on other sites
bikergal Report post Posted June 13, 2008 Bikergal how did you go about getting yourself diagnose cos my other half is convinced ive also got OCD n Aspergers but ive never seen anyone bout it. To go privately I contacted the NAS and they gave me a list of people qualified to diagnose in my part of the country. I ended up going to the Autism Research Centre in Cambridge. My diagnosis was actually a bit of a shock for me as I just thought I had traits! My daughter's psych suggested I look into diagnosis for myself. I think it's difficult to get anywhere with the nhs... Quote Share this post Link to post Share on other sites
bikemad Report post Posted June 13, 2008 To go privately I contacted the NAS and they gave me a list of people qualified to diagnose in my part of the country. I ended up going to the Autism Research Centre in Cambridge. My diagnosis was actually a bit of a shock for me as I just thought I had traits! My daughter's psych suggested I look into diagnosis for myself. I think it's difficult to get anywhere with the nhs... Thanks for the info-id not really thought bout it till my lad started going to all his appointments n stuff they were saying about sounded like myself too itms. Quote Share this post Link to post Share on other sites