Jump to content
Sign in to follow this  
kirstie

not weight bearing on one side

Recommended Posts

Hi all,

Just wondering if any of you ahve been through the same?

My little girl dx recently with autism is not weight bearing on the left side atall, she's not walking yet either but she is globally delayed anyway. We ahve had piedro boots fitted and their making no difference whatsoever, granted she can't get her foot into the position of using the dorsal part of her foot but she just won't weight bear on that left side atall, she had normal hip xrays and all reflexes are ok- none brisk. Achilles are slightly tight but nothing major, she objects if you try to place the foot in the correct position but then she is tactile defensive and objects whever you try to assist her physically be it with paint or touchy feely toys, not sure what is going on and physio is totally stumped, she has no idea why she is doing this atall, (i did ask if anything was coming to mind!) she did ask however if she is seeing a neuro or will she be? Well, her consultant is Neuro but specialises in autism spectrum disorders.

Jusr a bit worried and wondered if anyone had any ideas?

A standing frame is the next thing if the boots don't work!! :tearful:

Share this post


Link to post
Share on other sites

Hi.I am not giving an expert opinion but I did work as a registered nurse in my prior life.It would be worth talking to the Neoro at the next appoinment.If the physio has not written to the neoro then ask them to write and confirm what they have said.If the Neorologist does not have the experience or specialism to figure out whether the difficulties your DD has are ASD related then ask for a referal.There are other causes of not weight bearing on one side and just because a child has ASD does not rule out the other possible factors.

I came across a similar situation last year where a friend's child was having abscences that everyone including A and E thought were related to AS .On further exploration it turned out the child was also epileptic.I do not want to worry you but it is woth making sure that everyone does not pressume the problem is related to ASD if it might be something else.Karen.

Share this post


Link to post
Share on other sites

Hi Karen,

Thanks for your reply. I spoke to her consultant today and she is referring her to Neuro specialist. He deals mostly with children with Cerebral palsy but he also has a lot to do with neuro-muscular disorders and she was quick to reassure me she doesn't think Eilidh has CP but what she did say was that when she saw her and dx her she was very anxious about her leg and foot position- not a word you hear a Dr say too much (if you're lucky!) she said it was almost equinovarus (or something like that) position (her foot) but no brisk reflexes and normal xrays everyone is baffled, or maybe not.......it's almost as if her brain doesn't know what to do with her left leg, it's kind of dissassociated from the rest of her body.

\i have no idea what any of this means alongside the uneven thigh folds and one side being more pronounced than the other (the left side ironically!!) but i'm worried. I hope the wait to see the Dr's isn't too long!!!

Thanks again for your reply!!

Share this post


Link to post
Share on other sites

This sounds very similar to a friend of mine. Her dd was like that and had physiotherapy to spark her brain into using both sides. However, the difference is that she has mild CP. She walked fine eventually but still gets weak on one side when she's tired. Obviously it won't be the same because your dd has already had CP ruled out, however it does sound as if she would benefit from physiotherapy to get her to use the other side. The physio is done by the parent but taught by a therapist and is easy to implement into every day life, it's more like playing really. Hope you can get somewhere with the consultant etc.

 

Flora >:D<<'>

Share this post


Link to post
Share on other sites
Hi Karen,

Thanks for your reply. I spoke to her consultant today and she is referring her to Neuro specialist. He deals mostly with children with Cerebral palsy but he also has a lot to do with neuro-muscular disorders and she was quick to reassure me she doesn't think Eilidh has CP but what she did say was that when she saw her and dx her she was very anxious about her leg and foot position- not a word you hear a Dr say too much (if you're lucky!) she said it was almost equinovarus (or something like that) position (her foot) but no brisk reflexes and normal xrays everyone is baffled, or maybe not.......it's almost as if her brain doesn't know what to do with her left leg, it's kind of dissassociated from the rest of her body.

\i have no idea what any of this means alongside the uneven thigh folds and one side being more pronounced than the other (the left side ironically!!) but i'm worried. I hope the wait to see the Dr's isn't too long!!!

Thanks again for your reply!!

 

>:D<<'> >:D<<'> I do wish doctors would talk in a language people can understand.I have a nursing background and don't know what half of that doctor speak is.''equinovarus position'' would be enough to worry anyone....sounds like horses hooves. :wallbash::rolleyes::) I hope you you don't have to wait too long too.Karen.

 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
Sign in to follow this  

×
×
  • Create New...