Jump to content
Rachey

Would like to say hello

Recommended Posts

Hi

 

Couldn't think of an appropriate title!

 

I am Rachey, have lurked on and off for a while, but felt like a fraud if I posted without my son having a firm diagnosis.

 

I have two children, a son who is 11 and a daughter who is 7. My son has ADHD, Conduct Disorder and Aspergers/High Functioning Autism (unsure exactly what yet until we meet the Constultant again on 6 June - long story involving my husband!)

 

Rachey

Share this post


Link to post
Share on other sites

i always wondered is conduct disorder different from ADHD? but still a behavioural disorder? does he take meds? he being tested for AS/HFA? is he on meds for ADHD and CD ? does he get help and support from CAMHS? who [icked on he may have HFA/AS too? is CAMHS assessing him? you waiting to be seen?

 

how does he cope and deal with things? how his ADHD.CD and HFA/AS affect his moods behaviour etc? does he get help and support at school once you have official diagnosis of HFA/AS will have SEN IEP and review meetings? have family accepted official diagnosis of ADHD and CD well? XXXXKX

 

good luck

take care

XKLX

 

 

Edited by Kathryn

Share this post


Link to post
Share on other sites

Hi Rachey,

 

Welcome to the forum. You would have been welcome even without a firm diagnosis - good to have you with us. :)

 

K x

Share this post


Link to post
Share on other sites

hi Rachey and welcome

 

Emma :thumbs:

Share this post


Link to post
Share on other sites

Hi

 

From what I gather, conduct disorder is the oppositional and defiant behaviour which isn't usually apparent with ADHD. It is a behaviour disorder and we deal with it by never directing telling DS to do something and therefore causing a conflict, but either suggesting he does it or making it part of his routine (like putting his plate in the dishwasher when he has finished eating).

 

He is currently on Ritalin and has been under the care of CAMHS since he was 5. The AS/HFA was originally picked up 3 years ago by a specialist ASD nurse who used to run a parenting group I was told I had to attend. DS did not respond to positive praise, 1:1 time chatting, playing etc and she came and assessed him. 3 years ago he was dianogised as "borderline ASD" because ourselves and the school were coping with his behaviour.

 

His consultant assessed him (took 10 minutes) about 3 weeks ago and indicated to me he has AS. But my husband is very reluctant for DS to be labelled so the firm diagnosis won't be made until next week when my husband can make an appointment and it can be explained to him fully. I have known for a long time he is on the spectrum.

 

He doesn't cope at the moment. He is fine if left alone and doing his own thing and misbehaves badly when taken out of the house. He has a full time 1:1 at school without the Statement in place, but his school are struggling with him.

 

The ADHD diagnosis was 4 years ago, came as no surprise to me and that was accepted. But I always "knew" there was something else.

 

Rachey

Share this post


Link to post
Share on other sites

Hi Rachey and Welcome to the Forum.

I was a member here for three years before finally obtaining an AS dx for Ben [age 10] a few months ago.So you have plenty of time before you need worry. ;):P

Ben can be a challenge to parent much as I love him dearly.So it sounds to me like you are doing great. :D Karen.

Share this post


Link to post
Share on other sites

you can have ADHD,CD together or ADHD ,ODD the same thing! glad that he got an assessment and official diagnosis n is working with CAMHS he lucky in way that got help and support at young age i never had that until later and still not what it should be! have you had family therapy or CBT?

 

take care

good luck with everything!

kirst X

Share this post


Link to post
Share on other sites

mothers seem to know there's something else there behind it my mum and if read posts may others do too how weird and strange is that! your husband may have emotions such as denial,anger,depression this is 'natural process' to experience when child is going through asessment and diagnoses! does he accept the official diagnosis of ADHD? is there not specialist school in your area that deals with behavioural problems like a unit for children like your son is the funding from LEA to let access this service? with teachers that personally work with condtions like your son's! ? i would talk to professionals that been invovled with like CAMHS and see if this can be put in place for him!it's good his on meds! does this help calm his impulse controls difficulties?! does going to CAMHS help him and you?

 

take care

good luck

XKX

Share this post


Link to post
Share on other sites
mothers seem to know there's something else there behind it my mum and if read posts may others do too how weird and strange is that! your husband may have emotions such as denial,anger,depression this is 'natural process' to experience when child is going through asessment and diagnoses! does he accept the official diagnosis of ADHD? is there not specialist school in your area that deals with behavioural problems like a unit for children like your son is the funding from LEA to let access this service? with teachers that personally work with condtions like your son's! ? i would talk to professionals that been invovled with like CAMHS and see if this can be put in place for him!it's good his on meds! does this help calm his impulse controls difficulties?! does going to CAMHS help him and you?

 

Hi

 

We haven't been offered any kind of family therapy. I have no idea what CBT is!!

 

My husband is fine with the ADHD diagnosis as he has had 4 years to come to terms with it. I think it is denial about the ASD as he is concerned about Alex's future prospects.

 

There are two main stream schools with ASD units in my area, both have 10 places each (and I am in a big city) and, not surprisingly, both are full. There is a school in the neighboroughing county I am hoping to get him into if the LEA agree, especially as they have an ASD and behaviour base there.

 

His latest CAMHS consultant is much more pro-active, and knows more about the education system than his previous ones.

 

Unfortunately all my experiences with the health professionals concerning Alex have been negative ones, CAMHS included. Alex's caseworker at the LEA is very helpful, which is rare for the LEA.

 

His meds are amazing. The difference is phonemonal. It calms him down so much and you know when they are taking effect as the constant talking stops!

 

Share this post


Link to post
Share on other sites

CBT-cognitive Behavioural Therapy! can be offered if asked for CAMHS changes thinking and behaviour process around! why do you think your husband does worry about his ADHD affecting his future like ASD might? have u tried sitting down talking everything over about your son's problems with LEA/CAMHS and how you can find practical individual solutions together like support network for him working from different angles of his life like school,home etc glad him meds calm his ADHD down alot for him this must make it more managable and means his settled more has more concentraion and attention span!

 

do you think like the ADHD official diagnosis took awhile tom adjust and sink in for your husband do you think same could happen with ASD? hope you get him into ASD unit his help him with education system hope LEA agree with it wish i had same experience growing up but NEVER DID! so in that way your son's lucky there more awareness growing on society each day as with help and support available it's not as wide SEN as was for me! good luck!

 

take care

XKX

Share this post


Link to post
Share on other sites
CBT-cognitive Behavioural Therapy! can be offered if asked for CAMHS changes thinking and behaviour process around! why do you think your husband does worry about his ADHD affecting his future like ASD might? have u tried sitting down talking everything over about your son's problems with LEA/CAMHS and how you can find practical individual solutions together like support network for him working from different angles of his life like school,home etc glad him meds calm his ADHD down alot for him this must make it more managable and means his settled more has more concentraion and attention span!

 

do you think like the ADHD official diagnosis took awhile tom adjust and sink in for your husband do you think same could happen with ASD? hope you get him into ASD unit his help him with education system hope LEA agree with it wish i had same experience growing up but NEVER DID! so in that way your son's lucky there more awareness growing on society each day as with help and support available it's not as wide SEN as was for me! good luck!

 

take care

XKX

 

I'll definitely ask about CBT on Wednesday when we are meeting CAMHS.

 

When he was first diagnosed with ADHD we were told he should grow out of it, and if he doesn't grow out of it maturity will help him realise what is accepable and unacceptable social behaviour. My husband was happy with this. He doesn't see the ADHD as being a disability as much as the ASD is. I think he is also a bit scared of being responsible for a child who has a form of autism. He also won't talk about it, but does acknowledge it.

 

I should find out more about the school situation this week.

 

Rachel

 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...

×
×
  • Create New...