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**Mia

What happens in this situation

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Hello I know some of you may be able to explain this to me better than what I can.

 

My mum has epilepsy unconfirmed yet but also has visual and auditory processing disorder both as well as Autism. Should she seek help for these through her GP or go to an eye hospital.

 

From your experience or knowledge, what steps to helping her. 'Please', she is zoning off a lot too.

 

Noise can cause distress.:( like her head is a washing machine.

 

thanks

Mia

 

 

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Thank you for the message but could you explain this situation to me

 

thanks

Mia

 

Hello I know some of you may be able to explain this to me better than what I can.

 

My mum has epilepsy unconfirmed yet but also has visual and auditory processing disorder both as well as Autism. Should she seek help for these through her GP or go to an eye hospital.

 

From your experience or knowledge, what steps to helping her. 'Please', she is zoning off a lot too.

 

Noise can cause distress.:( like her head is a washing machine.

 

thanks

Mia

 

 

 

 

 

 

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I think your mum needs to wait until she has her epilepsy confirmed, especially what kind of seizures she may be having, as epileptic activity can very often effect the senses too.

 

Bid :)

Edited by bid

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Hello

 

There is a rare type of epilepsy that is triggered by sounds. An optometrist could help her with colorimeter or similar lenses if she cannot get diagnosed.

i haven't found an NHS doctor that can help me get these though :wallbash:

 

Asking for a referral to a neurologist should help. Why did you ask about going to the eye hospital? If her auras are visual this needs to be mentioned

at her doctors appointment. People can zone out without being epileptic, known as "autistic shutdown".

 

Alexis

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Hi Mia :)

I'd agree that i think your mum needs to wait until she sees the specialist and gets his/her report.

That waiting period will be difficult and scary I'm sure, but better that then trying to pre-guess the situation.

very, very best with that consultation

 

L&P

 

BD

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Hello

 

I have been really busy so sorry I haven't replied sooner than this.

We agree the EEG may help ease her as she beleives she is having aura The doctor is happy to visit her at home as everytime she goes to leave the house she feels she can't breathe.

 

I think Scotland is on her mind if all else fails too.

 

Mia

 

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The important thing to remember is that a dx of epilepsy is only made based on a detailed clinical history of more than one seizure. The EEG isn't used to dx epilepsy, but to establish what type of seizures are happening or if any epilepsy syndrome is present.

 

I think your mum really needs to let the medical professionals establish what may be happening, as guessing herself will only cause more stress.

 

Hoping she gets good news.

 

Bid >:D<<'>

Edited by bid

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Hello

 

Thank you very much with your helping with my enquiries.

 

She is getting full analysis so we will know more as suggested.

 

Just another question with coloured lenses if you have them would you please explain what it was like for you before and after having them prescribed.

 

Your experience will help to understand their benefits. Thanks again for your assistance it helps a lot.

 

 

Mia

 

 

 

0

 

 

 

 

 

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Hello

 

Colorimeter lenses helped with my fatigue, reading, auditory discrimination (being able to filter out background from foreground noises), sensitive hearing, dizziness, headaches and other symptoms.

 

Alexis

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Hello

 

You just described many of the problems stressing her out. We are seeing the medications her specialist put her on as not resolving any of these problems except stopping the panic attacks which are being managed with the medication.

 

She won't can't leave the house alone since the seizures and keeps putting off the EEG aura's prevent her doing the trip. It is a long journey by bus and this is something her doctor needs to be told.

 

The coloured lenses are her only hope to manage at college this year. Alexis what you described caused a life long problem she is no longer able to mask. As there seems to be aura's triggering a chain reaction of events. I won't go into detail as they are upsetting.

 

Thank you Alexis for your assistance. This is something she wants her doctor to do more tests for for sure.

 

 

Mia

 

 

 

 

 

 

 

 

 

 

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Just another question with coloured lenses if you have them would you please explain what it was like for you before and after having them prescribed.

 

Your experience will help to understand their benefits. Thanks again for your assistance it helps a lot.

 

 

Mia

 

I have coloured lenses. They are amazing because wearing them I can see the whole of faces in sync for the first time, I don't wobble when I stand still, I don't wobble when I walk down stairs, etc.

 

However, to be honest I haven't found that I can really use them in everyday life because the colour is so strong that I can't function adequately. For example, if I wear them in the supermarket they cut out my sensory overload, but I can't read the labels on things or see my way round easily.

 

That's just my experience anyway.

 

Bid :)

 

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Hello

 

You just described many of the problems stressing her out. We are seeing the medications her specialist put her on as not resolving any of these problems except stopping the panic attacks which are being managed with the medication.

 

She won't can't leave the house alone since the seizures and keeps putting off the EEG aura's prevent her doing the trip. It is a long journey by bus and this is something her doctor needs to be told.

 

The coloured lenses are her only hope to manage at college this year. Alexis what you described caused a life long problem she is no longer able to mask. As there seems to be aura's triggering a chain reaction of events. I won't go into detail as they are upsetting.

 

Thank you Alexis for your assistance. This is something she wants her doctor to do more tests for for sure.

 

Mia

 

Your welcome and im pleased you found it useful.

 

Alexis

 

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