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fluffyblueberry

process of diagnosis?

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I have only just written a topic - but thought of a second... :)

 

what was the process you went through for your diagnosis of AS/ASD as an adult?? How long was the referral? What tests did you have to take? What were they like? How long did it all take? Private or NHS?

 

Any insight would be beneficial. I'm hoping if it's not so unknown, I might be able to approach it with less anticipation :/

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I went to my GP and told her about my problems with far more insight than I had been able to show before and she referred me to a psychologist where I had a few meetings with her telling her about my life and did a questionnaire type thing. She gave me a questionnaire for my mum to fill out too about what I was like when I was younger from her perspective. Previously it had been assumed that it was anxiety/social phobia that was my main problem but it turns out that seems to stem from AS.

 

For me the interviews that led to the diagnosis were no different to the ones I had for depression and anxiety in that it was just me trying to explain how I felt and the difficulties I had and a psychologist asking plenty of questions.

 

Had to wait about two months for the referral and it was on the NHS.

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Thank you...

 

my mum has only just started to talk about some of the unusual things I used to do as a very small child - I was her only child, so she just thought I was a bit different but didn't question it much. I think she'd find filling out the questionnaire quite interesting. :)

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Hi there, I have no experience of getting a diagnosis as an adult (my 11 yo son was recently diagnosed with AS) but I noticed your location is York, we live just outside York but the nurse we have been seeing to get the diagnosis is from Lime Trees in York and she has been absolutely brilliant, if you get referred to them there is a lot of help available.

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My daughter was diagnosed as an adult aged 22. I talked to my GP about her problems and she agreed that it was likely she had Asperger's. She referred her to a psychiatrist but we were told that this was only the first part of the diagnostic process, and she would probably have to be referred on to the Asperger's service by the consultant psychiatrist. However, it turned out to be a lot easier than we thought. We went for the first appointment, the consultant talked to my daughter and I think she did a few basic tests but I got the impression it was mainly talking. Then she called me in and took some early history from me, I had already completed a developmental questionnaire. The consultant was in no doubt that my daughter had Asperger's but had to confer with an Asperger's specialist at the Sheffield Asperger Services to confirm the diagnosis. This she did within a fortnight of our appointment, and then telephoned us and wrote to us. The consultant referred my daughter to the Asperger's Service but they only accept a certain number of referrals from their own area apparently!!! So she never got to see them. She was referred for counselling with them, but again, budgetary measures have meant that this hasnt happened. She occasionally sees an occupational therapist, but doesnt really engage with them. But the diagnostic process, from GP referral to getting the result only took a few months and she only actually needed to see one consultant. She would have found it awfully difficult to see more than one.

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Hello,

 

thank you for your response. I'm glad it was a straight-forward process for you, it sounds like a relief. I'm not sure it will be that straight-forward for me because it's not obvious that I have it, you wouldn't be able to tell if you met me, (I doubt). Even if you spent a lot of time with me, you would most likely put my behaviour down to other things... If it wasn't for my son having ASD, I would never looked into it and regognised myself so much in the books. But I'm still confused becsause I'm trying to sort out my self-identity again, I'd like to see another women with asperger's like myself and see "ahh I relate to you"...but I've never met another woman with it (to my knowledge!) and so I can't :/. Asperger's would explain so much that's happened in my life, I just want to know if that is the answer.

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Hello,

 

yes I have recently become aware of lime trees due to my son but wasn't sure whether they were involved with adults - I will look it up, thanks!

 

I believe they are, I've not been there yet as we saw the nurse locally but I am going there on Monday to attend a course on Aspergers so I'll see if there are any leaflets or posters about adults :)

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