Jump to content
  • Announcements

    • Kris

      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team
Seawolf2u

Hello! First post, very confused mum of Aspie with ADD.

Recommended Posts

Hi!

I am Cath and have a 7 year old daughter who was diagnosed with Aspergers and ADD, just before Christmas.

My daughter's behaviour seems to be getting worse, is this 'normal' or do I need to seek extra help?

Her mood swings are getting really bad (mainly at home rather than at school, I think);

I will tell her something and she will call me a liar, a few moments later!

She seems to be walking on her tip toes more and more;

She is waking earlier and earlier - The paediatric Consultant finally gave her a script for Melatonin, - after I asked the GP if there was anything he could do, and he consulted her.

Her 'friendships' at school are getting worse, due to her tempers and always wanting to control things (she will play a game so long as it is by her rules, she will have a meltdown if she loses or is not picked first)

I have just had her off school for a week with badly swollen glands and can't wait for her to go back to school, as I feel so stressed! (Her father does not help much and tends to leave it all to me!)

I have my own medical issues, which cause me to have fatigue, forget things easily suffer chronic pain etc etc etc.

 

I realise that this might all seem worse because I have had her at home for the past week, but any help/advice would be very welcome.

 

Although the school she attends is very small and the SEN is also the head teacher and has sent her class teacher on specialist 1 day Aspergers awareness sessions, and her class teacher states that he is very Aspergers aware, I feel that from things he has told me, he does not differentiate between problems that girls with Aspergers have and how boys with Aspergers present.

 

My daughter is on the 'gifted and talented' list at school, though seems to be doing nothing different from the rest of her class.

 

It was me that instigated that she be assessed for Aspergers, via a GP at our surgery, and he referred us to the consultant who then instigated the other professional assessments in order to get a diagnosis (though in her diagnosis letter, she did not actually say that she had Aspergers, but that my daughter met the criteria for Aspergers and ADD.)

 

Please, I am becoming more and more overwhelmed by the situation, and need some help/support.

 

Thank you for your time.

 

Cath

 

 

Share this post


Link to post
Share on other sites
smileyK   

have she been assessed for mood related disorder existing underlying hidden beneath the ADD or AS ? or do you believe and personally think part of ADD/AS? but I also found out ADD can impact and effect your mood patterns , I can empathise I have just recently ,currently been officially diagnosed with ADHD , have you decided to put your daughter on medication? is she involved any support services? I also struggled to balance ,stabilise my moods which never easy ,such a challenge so difficult :( also was informed by ADHD helpline ADHD classed as 'mood disorder' I believe living on emotional rollercoaster I battle every day trying equal everything out! your daughter maybe struggles ,find difficult to express her emotions so inner frustrations build up.

 

XKLX

Share this post


Link to post
Share on other sites

Thank you smileyK!

I believe she was only tested for Aspergers, but even then the consultant gave me the diagnosis and said she did not need to see my daughter again! No hlp offered, nothing!

I am lucky in that the Parent Support at school is fantastic and she pointed me in several directions that I could look into further! She gave me a load of information on Aspergers and what services are available in our county. I just find it all so overwhelming! I am yet to make it to a support group, as they only meet on an evening on the third Wedneday of the month, and I find evening meeting difficult to get to.

I haven't looked into ADD separately yet, but after you saying that it can have an effect on mood, then I will now look more into that.

(Generally the school are showing on th eoutside that they support me on my daughters diagnosis, but deep down they do not seem to believe her diagnosis - her class teacher sys that he has plenty of experience with Aspergers, but then says that my daughter must be only just Aspergers as she copes with so much - I have read that this is more typical of girls with Aspergers as they 'copy' behaviours in order to try and fit in, where boys behave in a different way.)

Again, thank you for your reply, I will definitly look into ADD more.

Thank you for sharing your personal experience.

Edited by Seawolf2u

Share this post


Link to post
Share on other sites
smileyK   

your very welcome ;) hope it helps gain insight when look into ADD further! ,I'm glad parent support at the school are great for you! let me know your personal opinion on ADD! girls do tend to commonly just 'get on with it' struggle along until hit barrier ,brick wall emotionally have issues and become overwhelmed , frustrated with hold inside instead of showing on outside which effects 'us' ASD females later on unlike males where physically show up more in 'limelight' as seen as more male 'condition' so people tend to rule out females even having ASD which is again frustrating and annoying! your daughter sounds like she hit breaking point emotionally as comes and reaches a time where this happens and difficult to break free from! can be so difficult to separate! we do mirror and copy social skills etc to 'fit in' boys have been proved to portray differently but much more research is needed for females with ASD and how 'we' are affected!

 

XKLX

Share this post


Link to post
Share on other sites
trekster   

Your daughter seems to be having a reactive depression phase and realising she is different from other kids. There are quite a few resources for girls and autism. There's also a book called "when my autism gets too big", if you can get some emotional literacy education for your daughter within school this could address the anger issues.

 

How about fish oil supplements or omega 3s or probiotics for her? Anything that is naturally good for depression could work either way for your daughter. B6 or magnesium or something similar could also help. A social story as to why you take turns in games can also help. I know someone who throws things when they get competitive within gaming situations so they have to be supervised whenever they attend a group I run. I hope you can find a way of helping your daughter to understand how to deal with loosing. There is an excellent book aimed at teachers "Asperger syndrome in the classroom".

Share this post


Link to post
Share on other sites
smileyK   

I was also going to mention depression as this can make you edgy and irritable and know from personal experience on this one?! this make you seem angry ,lashing out almost aggressive ,oppositional or defiant? so this is another option to investigate? as also sounds highly likely to address as this can come alongside AS/ADD as secondary MH Issues

 

XKLX

Share this post


Link to post
Share on other sites

Hi Cath. Its a shame her father is not willing to help out because it would help if both of you were helping her with her difficulties - she needs help to cope with situations not going her way, and ways to let go of anger in a safe way. It may also cause her difficulties at home if one parent has a different approach/response to the other. She needs help to cope with school life, and growing up - its good the school are aware of Aspergers and ADD, hopefully they can guide her at school - but she needs help at home as well, even if she doesn't like it. See if there are any local support groups for autism/aspergers, for advice and guidance. Things may get worse before they get better, but set clear boundaries so she knows whats expected of her.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


×