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istari

Finally got diagnosis appointment.

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I have finally received my appointment for my AS assessment/diagnosis, it's October 2nd, and even though it's classed as an "Autism Diagnosis Assessment", i'm nervously looking forward to it happening i'm concerned about what may happen.

Can anyone who has had a recent diagnosis tell me what I may expect to happen? Thanks

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I don't know whether my experience is typical.

 

Stage 1 - April this year. Two assessors visited me at home & just had a general chat about things. When one was asking the questions the other was writing lots of notes. I was a bit worried that there were things I should have said & didn't or had given the wrong impression. They seemed to know what they were doing and made things easy for me. it took about an hour & a half

 

Stage 2 - they went away & called my mother to ask about when I was growing up.

 

Stage 3 - May. I went to an assessment centre & met one of the ladies from stage 1 & another assessor. They gave me a puzzle to do, asked questions - new ones & some I thought were following up on Stage 1, and made me tell a story & describe pictures. nothing difficult. took about 2 hours.

 

Stage 3.5 They sent me two questionaires to fill in covering depression & anxiety

 

June - The lady who was at both sessions visited me at home to give me the diagnosis. Actually this was the worst part as I was fretting about what the answer would be.

 

 

The whole thing was a lot less stressful that I had anticipated.

 

Happy to go into more detail if you have questions.

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There seems to be no set procedure for these diagnoses, and they vary such a lot depending on who we get. Mine involved a diagnostic interview with a psychiatrist, followed by a phone call to the only relative who knew me as a child (and even then not very well). The next stage was an ADOS test, which I didn't do too well at due to the stress of travelling there. Lastly a short final meeting with him and a psychologist to discuss the future and support needs. There were no forms of any kind to fill in.

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I'm finished with support workers, due to the fiasco they caused for me. I think you should be wary of being betrayed by yours, if anybody has any. :(

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