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      Depression, Mental Health and Crisis Support   06/04/2017

      Depression, Mental Health and Crisis Support   Depression and other mental health difficulties are common amongst people on the autistic spectrum and their carers.   People who are affected by general mental health difficulties are encouraged to receive and share information, support and advice with other forum members, though it is important to point out that this exchange of information is generally based on personal experience and opinions, and is not a substitute for professional medical help.   There is a list of sources of mental health support here: <a href="http://www.asd-forum.org.uk/forum/index.php?showtopic=18801" target="_blank">Mental Health Resources link</a>   People may experience a more serious crisis with their mental health and need urgent medical assistance and advice. However well intentioned, this is not an area of support that the forum can or should be attempting to offer and we would urge members who are feeling at risk of self-harm or suicide to contact either their own GP/health centre, or if out of hours contact NHS Direct on 0845 4647 or to call emergency services 999.   We want to reassure members that they have our full support in offering and seeking advice and information on general mental health issues. Members asking for information in order to help a person in their care are seeking to empower both themselves and those they represent, and we would naturally welcome any such dialogue on the forum.   However, any posts which are deemed to contain inference of personal intent to self-harm and/or suicide will be removed from the forum and that person will be contacted via the pm system with advice on where to seek appropriate help.   In addition to the post being removed, if a forum member is deemed to indicate an immediate risk to themselves, and are unable to be contacted via the pm system, the moderating team will take steps to ensure that person's safety. This may involve breaking previous confidentiality agreements and/or contacting the emergency services on that person's behalf.   Sometimes posts referring to self-harm do not indicate an immediate risk, but they may contain material which others find inappropriate or distressing. This type of post will also be removed from the public forum at the moderator's/administrator's discretion, considering the forum user base as a whole.   If any member receives a PM indicating an immediate risk and is not in a position (or does not want) to intervene, they should forward the PM to the moderating team, who will deal with the disclosure in accordance with the above guidelines.   We trust all members will appreciate the reasoning behind these guidelines, and our intention to urge any member struggling with suicidal feelings to seek and receive approproiate support from trained and experienced professional resources.   The forum guidelines have been updated to reflect the above.   Regards,   The mod/admin team
shinkansen1966

ASD assessment and diagnosis, what to expect ?

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Bit of newbie lurker here.

 

In November 2014, I was diagnosed with ADHD. To my surprise, the ADHD specialist also said he was "pretty sure" I was on the autism spectrum. So he referred me to an NHS autism spectrum disorder (ASD) unit for an assessment. A few weeks ago, I had the ASD assessment. During the assessment, I had an interview which also referred to the ASD symptoms in my ADHD diagnosis. I had an ADOS test, too. Afterwards, the assessor called a relative to discuss my background.

 

The ASD unit have invited me back for a follow up appointment to discuss feedback. The appointment lasts an hour and I'm allowed to bring a friend or relative.

 

So I am wondering if others have any advice on the kinds of things I should be asking at this follow-up appointment.

 

I've impressed with the NHS service. For the ADHD assessment, I was on the waiting list for 4 months. And less than 10 months from ASD referral to assessment.

 

Just a bit nervous about this all really....

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I'm thinking it may be best to phone them to ask their advice regarding your part and focus in the follow up. I don't think its good to focus on problems but I guess you will have considered / documented how asperger traits have historically impacted your life ... negatives and hopefully positives too ... Do you foresee any barriers to a happy life ahead due to your asperger traits? ... Can they help you with 'workarounds'. Will you need further support and if so what with and from where ? I'm guessing they are going to help with some extra brainpower for any future areas that seem cloudy. Its guesswork though. If you are able ask them, then you can prepare properly. One hour is not long.

For me the diagnosis was both a huge relief but also a source of worry, confusion. Now a time of acceptance and continued adaptation with insight which was formally absent. Its nice that I don't have to kid myself any more. Liberating

Edit: I notice you are affected by ADHD. Something I have no knowledge of, so I apologise if my comments do not appear relevant.

Edited by jack schitt

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Had my follow up appointment today. I meet the criteria and they diagnosed me as being on the spectrum. They reminded me that the aspergers diagnosis has been dropped and included in the overall spectrum. They took me through their draft report and I'll get a written copy in a few days. It was an interesting meeting. As it happens, I'm already seeing an NHS psychologist discussing anxiety problems and a diagnosis report will be sent to him. They also recommended going to an autism spectrum meeting in London, which I really want to do.

 

This assessment and diagnosis experience has been helpful and explains a lot. Particularly my coping and compensating mechanisms for dealing with difficult situations. From now, I'd like to continue seeing the psychologist but with discussions focused practical help.

Edited by shinkansen1966

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Mihaela   

Congratulations! My diagnosis explained a lot for me too, but I've been getting precious little support afterwards. The waiting seems to last forever. I hope you soon get the support you need.

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